Pain Hyperacusis in Relation to Acoustic Shock & Synapse Disconnection

[grate_biff]

I got myself some Ambroxol. Pills and mixture. Should I just drink the whole thing? See where it gets me?

It's 1.6 mg/ml and the pills are 8 mg a piece.

Should I be excited to try this or is this just Meh...?

I see some have tried much bigger dose than what I've got.

I talked with my pain doctor today. As the first Sphenopalatine Ganglion Block did nothing, she did not think there was any point in trying it again. She had no belief in Ambroxol either by the way. She basically said there was nothing she could do. What's new?

 

[Lukee]

Does there exist a theory as to why hyperacusis can cause inflammation of the muscles around the ear/jaw? When at its worst, the muscles around my ear canal were swollen like I had an ear infection, but it was noise induced. Months after that the muscles around the ear felt very stiff/hard really kind of calcified.

Now months with a lot of rest and high Magnesium & Potassium supplementation the muscles seem to becoming more flexible again.

Would be interesting to know if someone has a theory as to why hyperacusis can cause this muscle inflammation.

I wanted to throw this out there. I have mild hyperacusis that is very reactive to certain sounds, not loudness, it's more dependent on the pitch. My young kids' voices and speakerphone are two of the things that unfortunately cause my ears to resonate and cause much discomfort, but no severe pain. I can work in a factory with 90 dB machines running and it doesn't bother me but the second there is a certain shrill noise I feel my ears vibrate like crazy. Here's where is gets stranger: It's more prominent in the early morning and before I take a shower. I don't know if it's the hot water or the noise from the shower but it seems to cut it by about 50-70% once I've had a shower. For most of the day after that I won't really notice it, only on very certain sounds.

My tinnitus and other ear issues were not caused by noise, they were caused by Wim Hof breathing exercises. After a week of getting tinnitus, I started to get fullness and then sensitivity (hyperacusis) to all sounds. After about 2-3 weeks the hyperacusis basically went away but the pressure remained. I continuously performed the Valsalva to clear the pressure in my ear as it would give some occasional relief. Then a month later the hyperacusis came back and worse than before. I especially noticed it after using an Otovent balloon to help try clear what I though what fluid in my ear. After that night, I started to get worse hyperacusis and a low rumbling in my right ear. It seems like the pressure affected my ears and thankfully, the hyperacusis seems to be getting better ever so slowly.

So I guess the questions are: why did I get hyperacusis without noise trauma? Why is it worst in the morning and better after a shower? Is it because during sleep there is no sound input and so my ears become sensitive? Why did pressure seem to make it worse?

Like @xyz, I have a similar issue of "ear stiffness." I can't really explain it, but physically, my ears are more stiff if I try to rub them or move them around, as if the canal is inflamed. If I pull my ear back from inside, I get clicks like the tendons are stiff, if that makes sense. Never had that problem before all this. Now this leads me to my next question: if Ambroxol helps with inflammation, and it seems it does, why isn't the hyperacusis getting treated?

@xyz, I also have jaw stiffness and definitely more stiffness all around the ear so is it because we are in defense mode and the muscles are contracting or maybe anxiety is causing TMJ and that is causing the stiffness in the ears? I believe that magnesium helps me with this but I haven't been taking potassium so I will add that in.

@FGG, I hate to keep on going back to this but I see some stories posted about LDN. If it helps with inflammation of the CNS, is it possible it could help with trigeminal neuralgia? Also, if it helped reduce systemic inflammation as a whole, you would think it could help something going on in middle or inner ear. I am heavily intrigued by @Samantha R's story because she basically describes hydrops and all her symptoms resolved on LDN.

@Aaron91, what are your thoughts on this? How is the Ambroxol working for you?

 

[FGG]

I wanted to throw this out there. I have mild hyperacusis that is very reactive to certain sounds, not loudness, it's more dependent on the pitch. My young kids' voices and speakerphone are two of the things that unfortunately cause my ears to resonate and cause much discomfort, but no severe pain. I can work in a factory with 90 dB machines running and it doesn't bother me but the second there is a certain shrill noise I feel my ears vibrate like crazy. Here's where is gets stranger: It's more prominent in the early morning and before I take a shower. I don't know if it's the hot water or the noise from the shower but it seems to cut it by about 50-70% once I've had a shower. For most of the day after that I won't really notice it, only on very certain sounds.

My tinnitus and other ear issues were not caused by noise, they were caused by Wim Hof breathing exercises. After a week of getting tinnitus, I started to get fullness and then sensitivity (hyperacusis) to all sounds. After about 2-3 weeks the hyperacusis basically went away but the pressure remained. I continuously performed the Valsalva to clear the pressure in my ear as it would give some occasional relief. Then a month later the hyperacusis came back and worse than before. I especially noticed it after using an Otovent balloon to help try clear what I though what fluid in my ear. After that night, I started to get worse hyperacusis and a low rumbling in my right ear. It seems like the pressure affected my ears and thankfully, the hyperacusis seems to be getting better ever so slowly.

So I guess the questions are: why did I get hyperacusis without noise trauma? Why is it worst in the morning and better after a shower? Is it because during sleep there is no sound input and so my ears become sensitive? Why did pressure seem to make it worse?

Like @xyz, I have a similar issue of "ear stiffness." I can't really explain it, but physically, my ears are more stiff if I try to rub them or move them around, as if the canal is inflamed. If I pull my ear back from inside, I get clicks like the tendons are stiff, if that makes sense. Never had that problem before all this. Now this leads me to my next question: if Ambroxol helps with inflammation, and it seems it does, why isn't the hyperacusis getting treated?

@xyz, I also have jaw stiffness and definitely more stiffness all around the ear so is it because we are in defense mode and the muscles are contracting or maybe anxiety is causing TMJ and that is causing the stiffness in the ears? I believe that magnesium helps me with this but I haven't been taking potassium so I will add that in.

@FGG, I hate to keep on going back to this but I see some stories posted about LDN. If it helps with inflammation of the CNS, is it possible it could help with trigeminal neuralgia? Also, if it helped reduce systemic inflammation as a whole, you would think it could help something going on in middle or inner ear. I am heavily intrigued by @Samantha R's story because she basically describes hydrops and all her symptoms resolved on LDN.

@Aaron91, what are your thoughts on this? How is the Ambroxol working for you?

Ambroxol is not much of an "anti inflammatory". You probably are feeling the effects on your ET resulting in less pressure build up if you feel those effects. The humidity from a warm shower may be helping open up your ETs as well. It is good for facial pain as well through sodium/calcium channel blocking effects.

The "feeling your ears vibrate" is a typical symptom of TTTS and it sounds like you may have that. The Wim Hof breathing may have somehow caused an inflammatory or hypoxic condition in your middle ear that triggered that.

This goes into detail about what can happen after an acoustic shock:

An Integrative Model Accounting for the Symptom Cluster Triggered After an Acoustic Shock

But I think you may have aspects of it despite no noise trauma.

"Irritating" noise seems to trigger the acoustic reflex more because there is a mental component to that symptom (stress or even just thinking of a loud noise can cause a spasm because it's normally a protective reflex which in this case is dysregulated) which would explain why some noise triggers spasms more.

You seem to be looking at treating this like a strictly inflammatory disease and I think you are oversimplifying it.

Hyperacusis takes months to sometimes years to improve but the most important thing is protecting your ears from noise. If you are regularly exposed to 90 dB factory sounds it means your hyperacusis is not that bad and that's a better prognostic factor for faster healing but wear good ear protection around those sounds whether they cause a flutter or not.

As an aside, the ear drum vibrates in a more discordant way for higher frequency sounds.

In any case, I think LDN is barking up the wrong tree personally. LDN is useful for things like auto immunity but the problem with the inner ear is that the opioid receptors actually contribute to NMDA hyperexcitability through an endogenous opioid peptide released during stress called "dynorphins". It's possible for LDN to make you worse and in fact some people do get worse tinnitus on it.

Personally, I think you should 1) protect your ears, 2) use Ambroxol to keep your ETs clear if needed (even just once a day at night), 3) manage stress as well as possible, 4) be aware if you are clinching your jaw or grinding, 5) don't do things to irritate your ET like Otovent or Valsalva since it seems like it's already irritated, 6) don't increase your intracranial pressure with things like the inversion table you were looking at, 7) try as much as possible to relax and not hop from treatment to treatment or expect immediate results. It takes months to see effects.

@Aaron91 has been talking about Stamet's stack. It may help with stress especially (which is a co factor in this) but I haven't tried this yet.

My plan for middle ear healing is noise protection, Ambroxol nightly, walking at night in the quiet to increase middle ear blood flow. I tried Lion's Mane but it seemed to spike my tinnitus (but settled thankfully) which shows you how individual this all is. After 3 months, I'm about 10-15% better and that's actually really good progress for this to show you how slow it tends to be.

 

[Lukee]

Ambroxol is not much of an "anti inflammatory". You probably are feeling the effects on your ET resulting in less pressure build up if you feel those effects. The humidity from a warm shower may be helping open up your ETs as well. It is good for facial pain as well through sodium/calcium channel blocking effects.

The "feeling your ears vibrate" is a typical symptom of TTTS and it sounds like you may have that. The Wim Hof breathing may have somehow caused an inflammatory or hypoxic condition in your middle ear that triggered that.

This goes into detail about what can happen after an acoustic shock:

An Integrative Model Accounting for the Symptom Cluster Triggered After an Acoustic Shock

But I think you may have aspects of it despite no noise trauma.

"Irritating" noise seems to trigger the acoustic reflex more because there is a mental component to that symptom (stress or even just thinking of a loud noise can cause a spasm because it's normally a protective reflex which in this case is dysregulated) which would explain why some noise triggers spasms more.

You seem to be looking at treating this like a strictly inflammatory disease and I think you are oversimplifying it.

Hyperacusis takes months to sometimes years to improve but the most important thing is protecting your ears from noise. If you are regularly exposed to 90 dB factory sounds it means your hyperacusis is not that bad and that's a better prognostic factor for faster healing but wear good ear protection around those sounds whether they cause a flutter or not.

As an aside, the ear drum vibrates in a more discordant way for higher frequency sounds.

In any case, I think LDN is barking up the wrong tree personally. LDN is useful for things like auto immunity but the problem with the inner ear is that the opioid receptors actually contribute to NMDA hyperexcitability through an endogenous opioid peptide released during stress called "dynorphins". It's possible for LDN to make you worse and in fact some people do get worse tinnitus on it.

Personally, I think you should 1) protect your ears, 2) use Ambroxol to keep your ETs clear if needed (even just once a day at night), 3) manage stress as well as possible, 4) be aware if you are clinching your jaw or grinding, 5) don't do things to irritate your ET like Otovent or Valsalva since it seems like it's already irritated, 6) don't increase your intracranial pressure with things like the inversion table you were looking at, 7) try as much as possible to relax and not hop from treatment to treatment or expect immediate results. It takes months to see effects.

@Aaron91 has been talking about Stamet's stack. It may help with stress especially (which is a co factor in this) but I haven't tried this yet.

My plan for middle ear healing is noise protection, Ambroxol nightly, walking at night in the quiet to increase middle ear blood flow. I tried Lion's Mane but it seemed to spike my tinnitus (but settled thankfully) which shows you how individual this all is. After 3 months, I'm about 10-15% better and that's actually really good progress for this to show you how slow it tends to be.

Thank you for your amazing insight.

I do have some underlying conditions that might also be helped along by LDN which is why I'm very curious about its effects. After reading Samantha's story, I realized so many of the symptoms and progression was similar so I hoped it could help. I've also talked to a few people who have knowledge of LDN and know it has helped people with tinnitus and I guess it really depends on the cause. Thanks for explaining about the dynorphins and mechanisms behind the opiod receptors.

I know it is not strictly an inflammatory issue we are dealing with but I "feel" like the main source of my distress comes from inflammation. With that being said, fish oil seems to help a bit but I don't think Curcumin does. I have noticed some pretty freaky effects from taking 200 mg of niacin once the flush comes out. I am able to "equalize" using Valsalva with almost no pressure at all, so I know for a fact the Niacin does promote blood flow into my ET or middle ear. I haven't taken it in about a month but I will again once I start the stack.

I have been taking a high quality Lion's Mane for about 2 weeks now and maybe, just maybe it has been responsible for helping with the hyperacusis (or TTTS as you suggested it might be). I will eventually try the Stamet's Protocol but I am easing into things and don't want to take too many things as you suggested.

I have also started with Vinpocetine 30 mg a day. It's only day 2 so I can't say whether or not there is any effect but I feel like it might be helping a bit. I was hoping it could encourage blood flow to the ears like Niacin. I have to admit that the Ambroxol is probably the best thing I have taken to date, aside from pseudoephedrine.

I'm glad you are seeing improvements. You really deserve to get better. Do you plan to stay on Ambroxol as long as your symptoms improve?

 

[FGG]

Thank you for your amazing insight.

I do have some underlying conditions that might also be helped along by LDN which is why I'm very curious about its effects. After reading Samantha's story, I realized so many of the symptoms and progression was similar so I hoped it could help. I've also talked to a few people who have knowledge of LDN and know it has helped people with tinnitus and I guess it really depends on the cause. Thanks for explaining about the dynorphins and mechanisms behind the opiod receptors.

I know it is not strictly an inflammatory issue we are dealing with but I "feel" like the main source of my distress comes from inflammation. With that being said, fish oil seems to help a bit but I don't think Curcumin does. I have noticed some pretty freaky effects from taking 200 mg of niacin once the flush comes out. I am able to "equalize" using Valsalva with almost no pressure at all, so I know for a fact the Niacin does promote blood flow into my ET or middle ear. I haven't taken it in about a month but I will again once I start the stack.

I have been taking a high quality Lion's Mane for about 2 weeks now and maybe, just maybe it has been responsible for helping with the hyperacusis (or TTTS as you suggested it might be). I will eventually try the Stamet's Protocol but I am easing into things and don't want to take too many things as you suggested.

I have also started with Vinpocetine 30 mg a day. It's only day 2 so I can't say whether or not there is any effect but I feel like it might be helping a bit. I was hoping it could encourage blood flow to the ears like Niacin. I have to admit that the Ambroxol is probably the best thing I have taken to date, aside from pseudoephedrine.

I'm glad you are seeing improvements. You really deserve to get better. Do you plan to stay on Ambroxol as long as your symptoms improve?

That's sort of the problem. Everything is so individual and depends on the cause and individual pathology. That's what makes all this stuff so hard to navigate. If you do end up trying LDN and it makes it worse, I would definitely stop and not "push through."

It's interesting that you had such a good response to Niacin. Middle ear blood flow is a component of this and it goes into that a bit in the link I posted above.

I'm also interested in the fact that maybe Ambroxol helped you beyond just ET clearing because it may contribute to Trigeminal nerve healing if that's a part of your pathology:

Study identifies specific gene network that promotes nervous system repair

Try not to get too impatient with this, will only add to your stress and actually make it worse.

 

[xyz]

I wanted to throw this out there. I have mild hyperacusis that is very reactive to certain sounds, not loudness, it's more dependent on the pitch. My young kids' voices and speakerphone are two of the things that unfortunately cause my ears to resonate and cause much discomfort, but no severe pain. I can work in a factory with 90 dB machines running and it doesn't bother me but the second there is a certain shrill noise I feel my ears vibrate like crazy. Here's where is gets stranger: It's more prominent in the early morning and before I take a shower. I don't know if it's the hot water or the noise from the shower but it seems to cut it by about 50-70% once I've had a shower. For most of the day after that I won't really notice it, only on very certain sounds.

My tinnitus and other ear issues were not caused by noise, they were caused by Wim Hof breathing exercises. After a week of getting tinnitus, I started to get fullness and then sensitivity (hyperacusis) to all sounds. After about 2-3 weeks the hyperacusis basically went away but the pressure remained. I continuously performed the Valsalva to clear the pressure in my ear as it would give some occasional relief. Then a month later the hyperacusis came back and worse than before. I especially noticed it after using an Otovent balloon to help try clear what I though what fluid in my ear. After that night, I started to get worse hyperacusis and a low rumbling in my right ear. It seems like the pressure affected my ears and thankfully, the hyperacusis seems to be getting better ever so slowly.

So I guess the questions are: why did I get hyperacusis without noise trauma? Why is it worst in the morning and better after a shower? Is it because during sleep there is no sound input and so my ears become sensitive? Why did pressure seem to make it worse?

Like @xyz, I have a similar issue of "ear stiffness." I can't really explain it, but physically, my ears are more stiff if I try to rub them or move them around, as if the canal is inflamed. If I pull my ear back from inside, I get clicks like the tendons are stiff, if that makes sense. Never had that problem before all this. Now this leads me to my next question: if Ambroxol helps with inflammation, and it seems it does, why isn't the hyperacusis getting treated?

@xyz, I also have jaw stiffness and definitely more stiffness all around the ear so is it because we are in defense mode and the muscles are contracting or maybe anxiety is causing TMJ and that is causing the stiffness in the ears? I believe that magnesium helps me with this but I haven't been taking potassium so I will add that in.

@FGG, I hate to keep on going back to this but I see some stories posted about LDN. If it helps with inflammation of the CNS, is it possible it could help with trigeminal neuralgia? Also, if it helped reduce systemic inflammation as a whole, you would think it could help something going on in middle or inner ear. I am heavily intrigued by @Samantha R's story because she basically describes hydrops and all her symptoms resolved on LDN.

@Aaron91, what are your thoughts on this? How is the Ambroxol working for you?

I think taking Potassium citrate can't be bad. I'm taking it mostly as a natural substitute for a beta blocker. But it does help to improve blood flow.

But this stiff/tense calcified muscles and with it the hyperacusis takes really long time to improve. I started out last June with strict protection and am getting better over the months. But I am still in recovery phase. Had I started out this protocol directly after experiencing the first ear burning symptoms, maybe I would be recovered by now. But unfortunately I am learning only the hard way and ENTs are also not much of a help here.

 

[Born To Slay]

That's sort of the problem. Everything is so individual and depends on the cause and individual pathology. That's what makes all this stuff so hard to navigate. If you do end up trying LDN and it makes it worse, I would definitely stop and not "push through."

It's interesting that you had such a good response to Niacin. Middle ear blood flow is a component of this and it goes into that a bit in the link I posted above.

I'm also interested in the fact that maybe Ambroxol helped you beyond just ET clearing because it may contribute to Trigeminal nerve healing if that's a part of your pathology:

Study identifies specific gene network that promotes nervous system repair

Try not to get too impatient with this, will only add to your stress and actually make it worse.

Since you were talking about trigeminal nerve feeling, I wanted to tell you my facial pain has gotten better after a few weeks of doing therapeutic ultrasounds.

It's still bad but not as bad.

 

[Lukee]

Since you were talking about trigeminal nerve feeling, I wanted to tell you my facial pain has gotten better after a few weeks of doing therapeutic ultrasounds.

It's still bad but not as bad.

The neurologist I spoke to who claims to have a treatment for tinnitus using RST Sanexas (see the thread I made) told me that he has success treating all nerve issues on a regular basis, even those of the head and face. I don't know if this specifically includes trigeminal nerve as well (I don't have this issue) but it's possible that maybe it's the real deal?

I am skeptical but hopeful that this doctor does actually have a treatment for tinnitus and we are just being ignorant to it.

 

[FGG]

I got myself some Ambroxol. Pills and mixture. Should I just drink the whole thing? See where it gets me?

It's 1.6 mg/ml and the pills are 8 mg a piece.

Should I be excited to try this or is this just Meh...?

I see some have tried much bigger dose than what I've got.

I talked with my pain doctor today. As the first Sphenopalatine Ganglion Block did nothing, she did not think there was any point in trying it again. She had no belief in Ambroxol either by the way. She basically said there was nothing she could do. What's new?

The dose I started with was 30 mg three times daily. I'm not sure if it will help you or not without trigeminal pain but if it does, you would probably notice at least some difference in a day or two as it works fairly quickly.

I think you need to "drink the whole thing" but if 30 mg every 8 hours helps even a little you can increase your dose.

I'm surprised your doctor didn't want to try to block again. It seems like a fairly low risk thing to attempt.

 

[Born To Slay]

The neurologist I spoke to who claims to have a treatment for tinnitus using RST Sanexas (see the thread I made) told me that he has success treating all nerve issues on a regular basis, even those of the head and face. I don't know if this specifically includes trigeminal nerve as well (I don't have this issue) but it's possible that maybe it's the real deal?

I am skeptical but hopeful that this doctor does actually have a treatment for tinnitus and we are just being ignorant to it.

I'd say give it a shot man, especially if you have good insurance, and tell us what happens.

 

[Lukee]

I'd say give it a shot man, especially if you have good insurance, and tell us what happens.

I don't have trigeminal nerve pain but I would definitely try it for tinnitus. My issue is I'm in Canada and he's in Tulsa, OK. Our borders are closed otherwise I would be there in a heartbeat.

 

[Lukee]

The dose I started with was 30 mg three times daily. I'm not sure if it will help you or not without trigeminal pain but if it does, you would probably notice at least some difference in a day or two as it works fairly quickly.

How long have you been taking this dose?

I find that the Ambroxol is helping something but not sure how long the usual protocol is. I am going to step it up to 3x daily and see if I get better results.

Do you feel like it makes your head feel pressurized and the need to pop your ears worse?

 

[FGG]

How long have you been taking this dose?

I find that the Ambroxol is helping something but not sure how long the usual protocol is. I am going to step it up to 3x daily and see if I get better results.

Do you feel like it makes your head feel pressurized and the need to pop your ears worse?

A month maybe? It definitely doesn't make my head feel pressurized. It actually fully alleviates the "fullness" feeling in my ears as well as significantly helps with face pain.

 

[Born To Slay]

A month maybe? It definitely doesn't make my head feel pressurized. It actually fully alleviates the "fullness" feeling in my ears as well as significantly helps with face pain.

Can you link the brand you bought?

 

[FGG]

Can you link the brand you bought?

This one:

https://www.soin-et-nature.com/en/d...broxol-eg-labo-30mg-30-tablets-dry-cough.html

 

[Born To Slay]

Hey guys,

So disappointing but important update, the Sphenopalatine Ganglion Block wasn't successful, at least it definitely wasn't the panacea I had hoped for. That said, I think it may have had an effect as I was able to eat at a restaurant mostly comfortably, though later on I had a headache. So it's possible the block was the reason I was able to tolerate the restaurant. Or maybe it's because my noxacusis goes up and down, it's hard to tell.

Regardless, I'm still convinced that my issues are mostly trigeminal nerve related. As it's still mostly headaches and facial pain from sound that bother me, the ear pain is in comparison minimal and mostly tolerable.

So I've gone ahead and bought the Ambroxol, which I've put off for a while because it's expensive but at this point I was like "eh fuck it, at least if it works you have a lot of pills". I got the free shipping, so it'll take a week to get here. I'm probably going to start at 90 mg per day (30 mgs every six hours with my Gabapentin pills, which is 900 mg per serving) and move up from there if results are met. I have no patience whatsoever, the sooner I can declare victory over noxacusis, the better.

It's tragic as I was hoping the block would be the answer, when I next see my pain doctor I'm going to see if he'll do a Stellate Ganglion Block. Which is more invasive but I think he's just happy I haven't asked for opioids yet. I'm not going to tell him about the Ambroxol because I'm a fucking liar lol.

@grate_biff, did you end up trying Ambroxol? I know you don't have trigeminal pain but I'm curious if you had any effect.

 

[serendipity1996]

Hey guys,

So disappointing but important update, the Sphenopalatine Ganglion Block wasn't successful, at least it definitely wasn't the panacea I had hoped for. That said, I think it may have had an effect as I was able to eat at a restaurant mostly comfortably, though later on I had a headache. So it's possible the block was the reason I was able to tolerate the restaurant. Or maybe it's because my noxacusis goes up and down, it's hard to tell.

Regardless, I'm still convinced that my issues are mostly trigeminal nerve related. As it's still mostly headaches and facial pain from sound that bother me, the ear pain is in comparison minimal and mostly tolerable.

So I've gone ahead and bought the Ambroxol, which I've put off for a while because it's expensive but at this point I was like "eh fuck it, at least if it works you have a lot of pills". I got the free shipping, so it'll take a week to get here. I'm probably going to start at 90 mg per day (30 mgs every six hours with my Gabapentin pills, which is 900 mg per serving) and move up from there if results are met. I have no patience whatsoever, the sooner I can declare victory over noxacusis, the better.

It's tragic as I was hoping the block would be the answer, when I next see my pain doctor I'm going to see if he'll do a Stellate Ganglion Block. Which is more invasive but I think he's just happy I haven't asked for opioids yet. I'm not going to tell him about the Ambroxol because I'm a fucking liar lol.

@grate_biff, did you end up trying Ambroxol? I know you don't have trigeminal pain but I'm curious if you had any effect.

Please report back on how you get on! Will be interesting to hear.

 

[Born To Slay]

Please report back on how you get on! Will be interesting to hear.

Thanks, as demoralizing as the Sphenopalatine Ganglion Block not doing much was, I'm still confident that we can defeat noxacusis. The fact others in this thread have had their facial pain reduced from Ambroxol, is encouraging.

Do you still have facial pain?

 

[serendipity1996]

Thanks, as demoralizing as the Sphenopalatine Ganglion Block not doing much was, I'm still confident that we can defeat noxacusis. The fact others in this thread have had their facial pain reduced from Ambroxol, is encouraging.

Do you still have facial pain?

It's not as bad as it was but I still get facial pain (like low-level throbbing/sunburn) from stuff like phone calls etc. I actually have just been informed I may have a job offer - working in an admin role in an office and I am just unsure whether I can hack it or not. I don't really get immediate pain or discomfort, it's the delayed reaction that causes problems for me.

I am not sure whether to just bite the bullet in broach this topic candidly with my prospective employer.

 

[Born To Slay]

I still get facial pain (like low-level throbbing/sunburn) from stuff like phone calls etc. I actually have just been informed I may have a job offer - working in an admin role in an office and I am just unsure whether I can hack it or not.

I mean, don't office workers wear headphones all day on the phones? If so, that might be a bad idea.

 

[serendipity1996]

I mean, don't office workers wear headphones all day on the phones? If so, that might be a bad idea.

I don't think so unless you're working in a call centre or something? Maybe it's a cultural thing - I don't think it's that common in the UK. The job is working at a wealth management firm, dealing with writing reports and other administrative duties although I will receive more information on the job description.

Regardless, all this stuff is tricky with hyperacusis so I'll see what happens. Still have time to say no lol.

 

[Diesel]

I don't think so unless you're working in a call centre or something? Maybe it's a cultural thing - I don't think it's that common in the UK. The job is working at a wealth management firm, dealing with writing reports and other administrative duties although I will receive more information on the job description.

Regardless, all this stuff is tricky with hyperacusis so I'll see what happens. Still have time to say no lol.

I would at least give it a shot.

 

[serendipity1996]

I would at least give it a shot.

Thanks - I had an interview at the office last year (pre-COVID-19 lol) and it's not some open-plan office or anything and is a pretty small firm so it could be worse.

 

[Born To Slay]

Well, the Ambroxol came in today (way ahead of schedule, thank god I didn't pay for shipping). So tomorrow I'm going to start it. I'm debating whether to start at 60 mg or 90 mg, 3 times a day. I'll probably do 90.

I'll keep all of you updated on how it goes.

 

[sm20]

I know nobody can really answer this question but do you think there will eventually be some treatment/cure to (mostly) get rid of noxacusis?

When I say eventually, I mean in like the next 30 years.

I was reading up on the last 3 pages of the Inner Hair Cell Regeneration thread which was mostly about noxacusis/hyperacusis and I really just feel lost.

I don't even need that big of an explanation, just any brief opinion would be greatly appreciated because I'm in a pretty bad state mentally now.

 

[Lukee]

I know nobody can really answer this question but do you think there will eventually be some treatment/cure to (mostly) get rid of noxacusis?

When I say eventually, I mean in like the next 30 years.

I was reading up on the last 3 pages of the Inner Hair Cell Regeneration thread which was mostly about noxacusis/hyperacusis and I really just feel lost.

I don't even need that big of an explanation, just any brief opinion would be greatly appreciated because I'm in a pretty bad state mentally now.

Yes I think there will be treatments or cures for most ear related issues in the next 20 years. We don't yet know if regenerating hair cells and synapses will affect hyperacusis but I'd guess it certainly would help.

Keep your head up, help is coming.

 

[Born To Slay]

So my update is that Ambroxol at 90 mg 3 times per day hasn't been super effective but I think Ive noticed some improvement and interestingly I noticed while on it, my face can take more electrical stimulation in the chiro office, which I don't think is a coincidence. So I'm thinking about filtrating upward to maybe 150 mg 3 times per day. So far the only side effect I've had is mild nausea in the beginning.

 

[Lukee]

So my update is that Ambroxol at 90 mg 3 times per day hasn't been super effective but I think Ive noticed some improvement and interestingly I noticed while on it, my face can take more electrical stimulation in the chiro office, which I don't think is a coincidence. So I'm thinking about filtrating upward to maybe 150 mg 3 times per day. So far the only side effect I've had is mild nausea in the beginning.

If I'm not mistaken, 90 mg x 3 a day is a pretty large amount. I think it's supposed to be 30 mg x 3 per day for a total of 90mg.

 

[Born To Slay]

If I'm not mistaken, 90 mg x 3 a day is a pretty large amount. I think it's supposed to be 30 mg x 3 per day for a total of 90mg.

For its traditional purposes you are right, but for nerve pain there's no established dosage.

 

[Foamearplugssuck]

Does anyone not get straight up pain but rather a sensitization, like a tingling around their jaw, ear canal and ear? I am starting to get this with certain types of noise.

I know this is kinda random, but has this gone away or resolved for you at all? I'm starting to experience something similar myself and I'm freaking out a bit. I'm planning on staying away from all noise for the next few weeks, but I'm curious to hear how this has progressed for you if you don't mind sharing.