- Sep 2, 2021
- 11
- Tinnitus Since
- 2006
- Cause of Tinnitus
- Possibly Cisplatin and Unknown Causes
Hi,
I'm new to the forums but thought I would reach out to see if anyone has gone through any of my symptoms and what they did to get through theirs. My situation is somewhat complex and I have found almost no information on some of my symptoms online and hope some people could shed some light on what I might be going through. My situation can be broken up into two separate events with event 1 being a 50 minuet episode in the right ear until symptoms leveled off to moderate constant symptoms until event 2 a week later where things changed. As a note my right ear was perfectly fine with no symptoms until the situation that unfolded with event 1.
EVENT 1
August 21st 2021 at 1:00am in the morning I was sitting up in bed and suddenly had ringing in my right ear. I would consider this a normal tinnitus ring where the tone gets louder to a point then stays that way for about 15 to 20 seconds and then dies off. I have experienced this in both of my ears before but maybe only once every couple months. This time when it came it would repeat itself once it died off so once it went away after 20 seconds it would just start right back up again. After about 20 minutes I noticed ear fullness in the right ear as well as a sound associated ring where sounds would cause a simultaneous ring on parts of words or vowels within the words, it's almost like the ring is piggybacking on the words which the words themselves are not distorted. After about 50 minutes the up and down rings turned to a constant moderate tone but the other symptoms stayed the same. I went to sleep and the next day had the same symptoms I went to sleep with although the ear fullness felt like it had gone but I noticed certain sounds didn't feel right or normal on the ear and sometimes felt uncomfortable. Between August 22nd and August 29th not much had changed and had the same symptoms except sometimes the 20 second ring from earlier might come and go at random times during the day, on top of the other symptoms.
EVENT 2
August 29nd at 6:50am I woke up with ear fullness in the right ear, along with the now normal moderate constant tone and sound associated rings from the past week, but was also getting short and frequent 5 second tones going off every 10 seconds or so that sounded similar to silverware tapping a glass. Along with this the sound associated ring seemed to have changed in an odd way that I will discuss later. After about an hour the frequent 5 seconds tones were no longer as frequent and would come on only every couple minutes. As the day went on the fullness in the ear started to go away but I noticed I couldn't hear as well out of my right ear, maybe a 30% to 35% decrease in hearing, I noticed this mostly when using ear buds and noticing how sound was no longer nearly as loud in the right ear as it normally is or compared to the left ear. I went into the ER and they gave me an MRI, which showed that there were no issues. A couple days later I got in with the ENT that after reviewing the MRI and the hearing tests said I most likely have Cochlear Hydrops. The hearing tests showed a decrease in low frequency sounds in the right ear. He started me on a 2 week Prednisone taper and for me to come back halfway through, September 7th, to see if any hearing was restored and then we will decide what to do next.
I should note that from August 29th to present, which is a little over a weeks time after event 2, the symptoms consist of a constant hearing loss that has not fluctuated at least from what I have noticed, but with fluctuating ear fullness that seems to come and go throughout the day. Also the moderate constant tone I have since event 1. What has mostly changed within this second week after event 2 is the 5 second tones have turned into two different things. The first is a faint grandfather clock bell sound that comes and goes throughout the day that sounds like it's lost somewhere in my head and difficult to pin point it to a particular ear. This can also come in the form of soft wind chime sounds in the background. The second is another faint sound but of something similar to a light piano key or water dripping in a cave in the distance, this also happens throughout the day ever since event 2. Lastly the most confusing symptom is how my sound associated ring has changed. During week 1 sounds that went into my right ear would cause a moderate sounding simultaneous ring with certain vowels of words where the ring would piggyback on the particular words or sounds, if I plugged my right ear the sound would not trigger as it required an external sound to go into the right ear to trigger the ring. During week 2 after event 2 that sound associated ring has turned into two different things. First of all certain sounds going into the right ear will now causes a higher pitched ring but it seems to be triggered by different sounds than what triggered it during week 1, now instead of words triggering it seems to be things like fans and faucets. Secondly now when sounds go into my left ear I will get a metal banging sound in my right ear that increases in sound based on the level of sound going into the left ear. It sounds as if the sound is bouncing off a metal sheet, almost like a metal vibration. What's odd as this does not happen when the sounds go into my right ear but only the left ear and I will hear the metallic noise in my right ear still. I should note that the words that I hear are not altered, but this metallic sound simultaneously accompanies the words or sounds itself usually sounding like it's attached to the ends of words or sounds.
So far after event 2 I have had these same symptoms, with small variations and changes within some of the tinnitus sounds but without much changing otherwise. I am hoping to get on a diuretic to remove what I believe to be fluid in the inner ear and hope that makes a difference in my symptoms. Some things like my sound associated rings are very odd and I have found almost no data or similar cases online so I am curious if other people have gone through similar things.
I'm new to the forums but thought I would reach out to see if anyone has gone through any of my symptoms and what they did to get through theirs. My situation is somewhat complex and I have found almost no information on some of my symptoms online and hope some people could shed some light on what I might be going through. My situation can be broken up into two separate events with event 1 being a 50 minuet episode in the right ear until symptoms leveled off to moderate constant symptoms until event 2 a week later where things changed. As a note my right ear was perfectly fine with no symptoms until the situation that unfolded with event 1.
EVENT 1
August 21st 2021 at 1:00am in the morning I was sitting up in bed and suddenly had ringing in my right ear. I would consider this a normal tinnitus ring where the tone gets louder to a point then stays that way for about 15 to 20 seconds and then dies off. I have experienced this in both of my ears before but maybe only once every couple months. This time when it came it would repeat itself once it died off so once it went away after 20 seconds it would just start right back up again. After about 20 minutes I noticed ear fullness in the right ear as well as a sound associated ring where sounds would cause a simultaneous ring on parts of words or vowels within the words, it's almost like the ring is piggybacking on the words which the words themselves are not distorted. After about 50 minutes the up and down rings turned to a constant moderate tone but the other symptoms stayed the same. I went to sleep and the next day had the same symptoms I went to sleep with although the ear fullness felt like it had gone but I noticed certain sounds didn't feel right or normal on the ear and sometimes felt uncomfortable. Between August 22nd and August 29th not much had changed and had the same symptoms except sometimes the 20 second ring from earlier might come and go at random times during the day, on top of the other symptoms.
EVENT 2
August 29nd at 6:50am I woke up with ear fullness in the right ear, along with the now normal moderate constant tone and sound associated rings from the past week, but was also getting short and frequent 5 second tones going off every 10 seconds or so that sounded similar to silverware tapping a glass. Along with this the sound associated ring seemed to have changed in an odd way that I will discuss later. After about an hour the frequent 5 seconds tones were no longer as frequent and would come on only every couple minutes. As the day went on the fullness in the ear started to go away but I noticed I couldn't hear as well out of my right ear, maybe a 30% to 35% decrease in hearing, I noticed this mostly when using ear buds and noticing how sound was no longer nearly as loud in the right ear as it normally is or compared to the left ear. I went into the ER and they gave me an MRI, which showed that there were no issues. A couple days later I got in with the ENT that after reviewing the MRI and the hearing tests said I most likely have Cochlear Hydrops. The hearing tests showed a decrease in low frequency sounds in the right ear. He started me on a 2 week Prednisone taper and for me to come back halfway through, September 7th, to see if any hearing was restored and then we will decide what to do next.
I should note that from August 29th to present, which is a little over a weeks time after event 2, the symptoms consist of a constant hearing loss that has not fluctuated at least from what I have noticed, but with fluctuating ear fullness that seems to come and go throughout the day. Also the moderate constant tone I have since event 1. What has mostly changed within this second week after event 2 is the 5 second tones have turned into two different things. The first is a faint grandfather clock bell sound that comes and goes throughout the day that sounds like it's lost somewhere in my head and difficult to pin point it to a particular ear. This can also come in the form of soft wind chime sounds in the background. The second is another faint sound but of something similar to a light piano key or water dripping in a cave in the distance, this also happens throughout the day ever since event 2. Lastly the most confusing symptom is how my sound associated ring has changed. During week 1 sounds that went into my right ear would cause a moderate sounding simultaneous ring with certain vowels of words where the ring would piggyback on the particular words or sounds, if I plugged my right ear the sound would not trigger as it required an external sound to go into the right ear to trigger the ring. During week 2 after event 2 that sound associated ring has turned into two different things. First of all certain sounds going into the right ear will now causes a higher pitched ring but it seems to be triggered by different sounds than what triggered it during week 1, now instead of words triggering it seems to be things like fans and faucets. Secondly now when sounds go into my left ear I will get a metal banging sound in my right ear that increases in sound based on the level of sound going into the left ear. It sounds as if the sound is bouncing off a metal sheet, almost like a metal vibration. What's odd as this does not happen when the sounds go into my right ear but only the left ear and I will hear the metallic noise in my right ear still. I should note that the words that I hear are not altered, but this metallic sound simultaneously accompanies the words or sounds itself usually sounding like it's attached to the ends of words or sounds.
So far after event 2 I have had these same symptoms, with small variations and changes within some of the tinnitus sounds but without much changing otherwise. I am hoping to get on a diuretic to remove what I believe to be fluid in the inner ear and hope that makes a difference in my symptoms. Some things like my sound associated rings are very odd and I have found almost no data or similar cases online so I am curious if other people have gone through similar things.
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