Pulsatile Tinnitus — Constant Whooshing Sound — Two CT Scans Later Doctors Are Not Any Wiser

[Maya]

I want you to know that I am going through this exact same issue, except it is in my right ear. I got an audiogram which was perfect, my ENT referred me to get a CT scan, and I am seeing a neurologist next week. I'm really terrified and anxiety has been taking over my life because of this. Recently the whooshing has gotten much quieter almost silent. I don't know if that's a good or bad thing. If you need someone to talk to, let me know.

 

[Anjaty91]

Update:

I've now been dealing with pulsatile tinnitus for 3 years and it's draining me! Mentally, physically and emotionally. For the past week and a half my pulsatile tinnitus has been extremely loud with different sounds. The sounds are a whooshing, hissing, and muffled sound.

I've had a CTA of my head and neck, an MRI/MRA with and without contrast. All I've been told is that I have an artery deviating to the left in my brain.

I have been on Metoprolol (beta-blocker) because the pulsatile tinnitus has caused serious symptoms with my heart (heart arrhythmias). I am starting to feel as if this medication is causing my pulsatile tinnitus to get worse. I'm losing my mind at this point.

If anyone is going through this or can help guide me to the right specialist, please let me know!

 

[PTZack]

Update:

I've now been dealing with pulsatile tinnitus for 3 years and it's draining me! Mentally, physically and emotionally. For the past week and a half my pulsatile tinnitus has been extremely loud with different sounds. The sounds are a whooshing, hissing, and muffled sound.

I've had a CTA of my head and neck, an MRI/MRA with and without contrast. All I've been told is that I have an artery deviating to the left in my brain.

I have been on Metoprolol (beta-blocker) because the pulsatile tinnitus has caused serious symptoms with my heart (heart arrhythmias). I am starting to feel as if this medication is causing my pulsatile tinnitus to get worse. I'm losing my mind at this point.

If anyone is going through this or can help guide me to the right specialist, please let me know!

Hey.

I was just casually reading through the forum and came across your thread.

I went through a similar situation.

My pulsatile tinnitus pretty much came out of nowhere a few years ago.

Caused me horrible anxiety, palps, worries and more.

2019 was especially horrific for it.

Multiple panic attacks, dizziness etc.

I went through the ENT loads. Had an angiogram not too long ago with dye. Showed nothing out of the normal.

I also had a brain. Again, nothing out of the normal.

Over the years in getting checked I have always had retracted ear drums.

Related or not, unsure.

Towards the end of 2020 I really focused on not letting it get the best of me.

I came to understand that it isn't 'harmful'.

It is just a sound.

In a way, I have come to accept it into my life.

I know it sounds like a really tough thing to do, but the worst thing I did was to keep looking for causes and start realising that sometimes out bodies just do things for no reason.

I rarely get it now when walking around, sleeping or working. I do get it when exercising or bending my head to the left, but even then - I do not let it scare me anymore. I have started exercising more and more and it is helping!

 

[Anjaty91]

Update.

Today I had a cerebral angiogram and turns out I have a sigmoid sinus diverticulum. Pretty much going to get a coil placed to fix the pulsatile tinnitus.

 

[Steph1710]

Today I had a cerebral angiogram and turns out I have a sigmoid sinus diverticulum. Pretty much going to get a coil placed to fix the pulsatile tinnitus.

Amazing! Well done for getting it sorted girl!

I'm having my second angiogram in August. They already know I have a stenosis on the sinus, but apparently I have the sigmoid sinus bone missing too - which is what holds the sinus in place.

So happy you're finally getting it sorted.

Steph
<3

 

[Rinz]

Please let us know how it is going after the coil is placed! I hope for the best for you ;-)

 

[Anjaty91]

Hey everyone, I know it's been a while, but it's time for an update.

I haven't gotten the coil placed. Apparently, my appointment fell through the cracks with my neuroradiologist.

My pulsatile tinnitus is horrible at the moment. I'm dealing with an ear infection, but it honestly sounds like someone is stringing a muffled guitar in my ear! I need to get back in touch with my doctor because I'm so sick of this. I've been absolutely miserable.