Mine is subjective. I wish they could find a cure for this. The docs I have been going to can't pin down the reason. What doctors did you see Karen and have you had the surgery yet?
Pulsatile Tinnitus — Now on Tinnitus Talk
- Thread starter Markku
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ManagerHi, LVC595, It's good to know that I'm not alone in this, and I'm sorry to hear you have subjective pulsatile tinnitus. Is yours in both ears, or just one? Mine is in my right ear only.
The doctors I have seen include: Two ENT's, three neurotologists, had several audiological exams, and went to an audiologist who specializes in tinnitus. I've had an MRI/MRA with contrast, a CT scan of the temporal bone (without contrast), and a carotid artery scan. No one has been able to pinpoint the cause of my pulsating tinnitus. Three doctors, however, believe that I have otosclerosis (based on the tuning fork test) due to the fact that I have conductive hearing loss in my right ear.
One of the neurotologists wanted me to get another CT scan, with iodine contrast dye, but I have put that off, since I'm a thyroid patient and am not sure what the iodine contrast dye will do to my system. I'm also afraid of too much radiation exposure.
No, I haven't had stapedectomy surgery, and I am hoping to avoid that, after reading about other people's experiences. There is no guarantee that stapedectomy will help tinnitus in any way; the surgery is meant to improve hearing loss. Some people have experienced a lessening in tinnitus (ringing tinnitus) after this surgery, but not everyone. There are some patients who have to have the stapedectomy redone after awhile, because the titanium prosthesis has slipped. The success of this surgery depends on the experience level of the neurotolgist.
What sort of tests have you had, and how are you coping?
The doctors I have seen include: Two ENT's, three neurotologists, had several audiological exams, and went to an audiologist who specializes in tinnitus. I've had an MRI/MRA with contrast, a CT scan of the temporal bone (without contrast), and a carotid artery scan. No one has been able to pinpoint the cause of my pulsating tinnitus. Three doctors, however, believe that I have otosclerosis (based on the tuning fork test) due to the fact that I have conductive hearing loss in my right ear.
One of the neurotologists wanted me to get another CT scan, with iodine contrast dye, but I have put that off, since I'm a thyroid patient and am not sure what the iodine contrast dye will do to my system. I'm also afraid of too much radiation exposure.
No, I haven't had stapedectomy surgery, and I am hoping to avoid that, after reading about other people's experiences. There is no guarantee that stapedectomy will help tinnitus in any way; the surgery is meant to improve hearing loss. Some people have experienced a lessening in tinnitus (ringing tinnitus) after this surgery, but not everyone. There are some patients who have to have the stapedectomy redone after awhile, because the titanium prosthesis has slipped. The success of this surgery depends on the experience level of the neurotolgist.
What sort of tests have you had, and how are you coping?
D
Deb
Guest
Lvc595,
If its carotid artery dehiscence, they repair it surgically, and should be. What did your Dr. say about the dehiscence??
D
Deb
Guest
Carotid Dehiscence is repaired surgically (a dehiscence is a tear - please Google it), and it shouldn't be ignored. Dr. Hamid Djalilian located at UC Irvine has experience with this, and with Pulsatile Tinnitus. There is an article on the Whooshers web site under - 'Cured Whooshers' by a woman who went to see him after a very long search trying to get some help. Dr. Djalilian spotted a fistual on her imaging studies that her other doctors had missed. This site won't let me post a link to his bio web page since I've just joined and haven't made two posts, yet. Google him.
Welcome to Tinnitus Talk, Lvc595 and Deb! I am grateful to hear from other whoosers on this thread. You can read about my experience with pulsatile tinnitus above.
I've had pulsatile tinnitus and severe ringing tinnitus for a little over 2 years, and have tried many remedies and therapies during that time --- so far, without much relief. Mine started after taking a blood pressure drug. I had problems with the drug, and got myself off it within 10 days. I also got off caffeine about the same time. It was about a week or so after that that my pulsatile tinnitus started. I first noticed it in bed one night, just like you did, Lvc595.
Since yours is caused by a dehiscence, Lvc, there is a definite chance for a cure. You are fortunate to have found what is causing your pulsatile tinnitus. I would say that is good news!
Deb, like you, I have thyroid issues, and I am now in menopause, so there could definitely be a hormonal component there. I'm still trying to find the cause, and am determined not to give up, no matter what! I have been to three different neurotologists in my local area, and have had all the tests --- except the angiogram. My doctors say I have conductive hearing loss, and have suggested a stapedectomy, although there is no guarantee it will cure my tinnitus or pulsating. So far, I've opted to try natural means to reduce my tinnitus.
We are here to support each other, and I hope you will both check in periodically, and keep us up to date on your progress toward finding an answer. It is hard to cope with, that's for sure, and some days (or even times of the day) are better than others. I'd like to know how you are coping, and if you are having trouble sleeping, etc.
Here's hoping that all of us find some answers!
I've had pulsatile tinnitus and severe ringing tinnitus for a little over 2 years, and have tried many remedies and therapies during that time --- so far, without much relief. Mine started after taking a blood pressure drug. I had problems with the drug, and got myself off it within 10 days. I also got off caffeine about the same time. It was about a week or so after that that my pulsatile tinnitus started. I first noticed it in bed one night, just like you did, Lvc595.
Since yours is caused by a dehiscence, Lvc, there is a definite chance for a cure. You are fortunate to have found what is causing your pulsatile tinnitus. I would say that is good news!
Deb, like you, I have thyroid issues, and I am now in menopause, so there could definitely be a hormonal component there. I'm still trying to find the cause, and am determined not to give up, no matter what! I have been to three different neurotologists in my local area, and have had all the tests --- except the angiogram. My doctors say I have conductive hearing loss, and have suggested a stapedectomy, although there is no guarantee it will cure my tinnitus or pulsating. So far, I've opted to try natural means to reduce my tinnitus.
We are here to support each other, and I hope you will both check in periodically, and keep us up to date on your progress toward finding an answer. It is hard to cope with, that's for sure, and some days (or even times of the day) are better than others. I'd like to know how you are coping, and if you are having trouble sleeping, etc.
Here's hoping that all of us find some answers!
Hi, since about 3 weeks I got pulsating tinitus in my left ear. (or in both ears as it might be that the sound in my left ear is so loud that I do not notice the pulsating sound in my right ear) It's very annoying and it's nearly ongoing 24/7.
However I noticed when I'm done running , got my shower and sit down to read the newspaper it stops pulsating and becomes a rather minor static sound in both ears, which does not bother me to much, and as long I just stay seated I can be OK for upto a 2 to 3 hours. As soon I start working (in front of a computer monitor) or doing other stuff it comes back mildly and gets slowly worse.
I also use a punching back daily but this does not make a difference, nor does my daily morning walk, it's really running that fixes it for me.
After running my blood pressure can drop to about 100/70, (normal I'm around 115/75, and since i got this pulsating thing going on it's a bit higher)
I wonder howfar lowering my bloodpressure does have a positieve impact for me, and why this happens, and if somebody knows why, whehter he/she can explains what the reason of the pulsating tinitus might be?
My guess is TMJ and that running relexeas my jaw, but that's a guess. Been going to doctors, ent specialist, and going to a nurologist hopefully soon. Done some scans and till now it's all futile and very confusing.
When i move my jaw i can chnage the sound level, and hear cracking and popping, but it's apprently no inner ear infections according to the ENT specialist
THanks
Menno
However I noticed when I'm done running , got my shower and sit down to read the newspaper it stops pulsating and becomes a rather minor static sound in both ears, which does not bother me to much, and as long I just stay seated I can be OK for upto a 2 to 3 hours. As soon I start working (in front of a computer monitor) or doing other stuff it comes back mildly and gets slowly worse.
I also use a punching back daily but this does not make a difference, nor does my daily morning walk, it's really running that fixes it for me.
After running my blood pressure can drop to about 100/70, (normal I'm around 115/75, and since i got this pulsating thing going on it's a bit higher)
I wonder howfar lowering my bloodpressure does have a positieve impact for me, and why this happens, and if somebody knows why, whehter he/she can explains what the reason of the pulsating tinitus might be?
My guess is TMJ and that running relexeas my jaw, but that's a guess. Been going to doctors, ent specialist, and going to a nurologist hopefully soon. Done some scans and till now it's all futile and very confusing.
When i move my jaw i can chnage the sound level, and hear cracking and popping, but it's apprently no inner ear infections according to the ENT specialist
THanks
Menno
Just came back from my run and have been good for at least 2 hours again. While running the pulsating sound start to mimic my running instead of my heart beat, so every-time my feet hit the ground I here that sound in my left ear, but this time it has nothing to do with blood flowing through my veins.
One positive thing... Pulsating tinnitus is often/sometimes treatable once the underlying cause is found.
So you definitely have very much to look forward to.
Many people can change their tinnitus volume/pitch by moving jaw, neck etc. It's called somatosensory tinnitus. It's not rare at all.
Although the cracking and popping sounds a bit unusual...
There's a site for those suffering from pulsatile tinnitus, it's called Whooshers.com. Maybe you can find some more information from there...
We do have some people with PT here on Tinnitus Talk, but they are a minority. Not surprising, considering that pulsatile tinnitus is way rarer than "normal" tinnitus.
I hope you'll find out what's causing yours and hopefully it's treatable.
So you definitely have very much to look forward to.
Many people can change their tinnitus volume/pitch by moving jaw, neck etc. It's called somatosensory tinnitus. It's not rare at all.
Although the cracking and popping sounds a bit unusual...
There's a site for those suffering from pulsatile tinnitus, it's called Whooshers.com. Maybe you can find some more information from there...
We do have some people with PT here on Tinnitus Talk, but they are a minority. Not surprising, considering that pulsatile tinnitus is way rarer than "normal" tinnitus.
I hope you'll find out what's causing yours and hopefully it's treatable.
MemberHello Menno!
I have pulsitile or vascular (as my ENT said) T. Mainly left ear. My ENT says he hears a heart murmur which could be the cause, but no other DR hears it. hmmm...
Anyway... I have been thinking about your running and how your T is affecting the blood flow to your head area.
A couple of possibilities... not guaranteeing anything mind you!
While doing research, it is suggested the T sufferers use two pillows to keep their heads propped up higher when sleeping. I do that. I get the sense that it helps keep the volume down as my T is stronger during the night. Higher head means less blood flow there.
I think your running may direct the flow of blood from your brain to your muscles and respiration instead of the brain and organs. So.... less PT sound in the head from the vascular hum. Ask your Doc about it of course.
Aug 1st I had a blood test. The nurse wasn't so good at it and it hurt like the dikkens! Since I was fasting and I am needle phobic, I felt light headed and had to lay down for a few minutes after. I did notice when I was going into the 'I am going to faint" stage, I heard ZERO tinnitus sounds. ZERO!
Of course in the fainting stage, blood ruses away from your head and laying down balances it out again.
That is my fainting story which I wanted to share here anyway, so you kind of linked it up for me with the running and lower T experiences.
whatcha think?
I have pulsitile or vascular (as my ENT said) T. Mainly left ear. My ENT says he hears a heart murmur which could be the cause, but no other DR hears it. hmmm...
Anyway... I have been thinking about your running and how your T is affecting the blood flow to your head area.
A couple of possibilities... not guaranteeing anything mind you!
While doing research, it is suggested the T sufferers use two pillows to keep their heads propped up higher when sleeping. I do that. I get the sense that it helps keep the volume down as my T is stronger during the night. Higher head means less blood flow there.
I think your running may direct the flow of blood from your brain to your muscles and respiration instead of the brain and organs. So.... less PT sound in the head from the vascular hum. Ask your Doc about it of course.
Aug 1st I had a blood test. The nurse wasn't so good at it and it hurt like the dikkens! Since I was fasting and I am needle phobic, I felt light headed and had to lay down for a few minutes after. I did notice when I was going into the 'I am going to faint" stage, I heard ZERO tinnitus sounds. ZERO!
Of course in the fainting stage, blood ruses away from your head and laying down balances it out again.
That is my fainting story which I wanted to share here anyway, so you kind of linked it up for me with the running and lower T experiences.
whatcha think?
Calin -
Very interesting that it went away when you were about the faint. I had a similar experience once when I woke up. For about a milli-second I realized I was tinnitus free.
I'm not sure if I have what is called "pulsating tinnitus", but my left ear has tinnitus that comes and goes. Kind of a "whizzer" sound, like how cicadas make a sound that builds up and down. My right ear is always "on".
Very interesting that it went away when you were about the faint. I had a similar experience once when I woke up. For about a milli-second I realized I was tinnitus free.
I'm not sure if I have what is called "pulsating tinnitus", but my left ear has tinnitus that comes and goes. Kind of a "whizzer" sound, like how cicadas make a sound that builds up and down. My right ear is always "on".
Hi, folks,
I have pulsatile tinnitus, too, and I believe it is tied to blood pressure/blood flow. Menno, mine always improves after a brisk walk (I don't run, but I do walk very rapidly) , which I try to do every day. After those walks, I can count on my blood pressure going down -- after the cool-down period, that is -- and my pulsating always gets better, too. It doesn't go away like yours does, but it does improve.
It could be that the reason your tinnitus comes back when you are working on the computer, etc., is that those are quiet activities, and you begin to notice the pulsating again. That's what happens to me, too, especially when working on the computer.
Karl, if when we hear tinnitus, we are really hearing the "noises of the brain", I can see why it might be possible to wake up and not hear the tinnitus right at first. Then, when we become more awake, the perception of sound kicks in again. It's possible you might have pulsating, too. I have both a cicada or hissing sound, which is constant, with an undercurrent of drum-beat like pulsating. During the day, I often can't really hear the pulsating, just the cicada/hissing. The drum-beat sound is noticeable mostly in quiet settings, and especially at night, but it's very constant.
I hope all of us find some answers, and get some peace and quiet one of these days!
I have pulsatile tinnitus, too, and I believe it is tied to blood pressure/blood flow. Menno, mine always improves after a brisk walk (I don't run, but I do walk very rapidly) , which I try to do every day. After those walks, I can count on my blood pressure going down -- after the cool-down period, that is -- and my pulsating always gets better, too. It doesn't go away like yours does, but it does improve.
It could be that the reason your tinnitus comes back when you are working on the computer, etc., is that those are quiet activities, and you begin to notice the pulsating again. That's what happens to me, too, especially when working on the computer.
Karl, if when we hear tinnitus, we are really hearing the "noises of the brain", I can see why it might be possible to wake up and not hear the tinnitus right at first. Then, when we become more awake, the perception of sound kicks in again. It's possible you might have pulsating, too. I have both a cicada or hissing sound, which is constant, with an undercurrent of drum-beat like pulsating. During the day, I often can't really hear the pulsating, just the cicada/hissing. The drum-beat sound is noticeable mostly in quiet settings, and especially at night, but it's very constant.
I hope all of us find some answers, and get some peace and quiet one of these days!
Karen & menno,
have you tried measuring your blood pressure and pulse when your tinnitus is loud and comparing it to the results after exercise (when tinnitus is lower)? If you could confirm there is a direct connection between blood pressure and tinnitus, it would be really great news, I think. This would give you some form of control over tinnitus and generally a chance to seek treatment.
have you tried measuring your blood pressure and pulse when your tinnitus is loud and comparing it to the results after exercise (when tinnitus is lower)? If you could confirm there is a direct connection between blood pressure and tinnitus, it would be really great news, I think. This would give you some form of control over tinnitus and generally a chance to seek treatment.
Yes, I'm pretty obsessive about checking my blood pressure, and I have taken it before and after exercise. Also, my tinnitus and pulsating are both usually lower in the morning, when my blood pressure is lower. There is a correlation, that's for sure, but there's more to it than that.
Sometimes, when my pulsating is most turbulent, I've tried exercise, and it hasn't helped it calm down. I don't always understand what causes this turbulence. It has gotten better recently, and I think that has had to do with sleep. For a long time, I had chronic insomnia, like many of you, because of the tinnitus. I think mine also has something to do with the central nervous system. Menno's may have a different cause, and a different "trigger", since he has mentioned TMJ as a possible cause.
What a mystery this ailment is! But, the good news is, with time, things do seem to improve.
Sometimes, when my pulsating is most turbulent, I've tried exercise, and it hasn't helped it calm down. I don't always understand what causes this turbulence. It has gotten better recently, and I think that has had to do with sleep. For a long time, I had chronic insomnia, like many of you, because of the tinnitus. I think mine also has something to do with the central nervous system. Menno's may have a different cause, and a different "trigger", since he has mentioned TMJ as a possible cause.
What a mystery this ailment is! But, the good news is, with time, things do seem to improve.
Karen -
My "T" began in my right ear, which was a constant tone. Currently it doesn't seem to be as loud as in December when it became a problem.
My left ear is somewhat pulsating, and sometimes has a constant tone. The difference is, I'm not freaking out about the left ear. I'm predicting that my left ear will eventually become like my right ear. I think it's from aging.
I agree that tinnitus is sort of a function of noticing it. When I'm asleep, I am not aware of tinnitus. When we wake up, we react to stimuli, and tinnitus is a stimulus. It becomes a matter of adapting to a "new normal", where a constant buzz is a part of our normal state of mind.
My "T" began in my right ear, which was a constant tone. Currently it doesn't seem to be as loud as in December when it became a problem.
My left ear is somewhat pulsating, and sometimes has a constant tone. The difference is, I'm not freaking out about the left ear. I'm predicting that my left ear will eventually become like my right ear. I think it's from aging.
I agree that tinnitus is sort of a function of noticing it. When I'm asleep, I am not aware of tinnitus. When we wake up, we react to stimuli, and tinnitus is a stimulus. It becomes a matter of adapting to a "new normal", where a constant buzz is a part of our normal state of mind.
pulsating t seems to affect me when I've been laying down at night for a while. i'm still wearing my stabilizing orthotic since November and it seems to have helped somewhat for the tmj but I agree with Markku that most T, if it's not from loud noise, is definitely somatic. does anyone know if somatic t from tmj goes away with treatment. i also have a accupuncturist/chiropractor work on the right side where my problem stems. and, my t does get better after I exercise but I have to make sure I wear my splint otherwise it gets louder--any opinions on this?
It sounds like you actually do respond to treatment, Chicken. This is some good news I think! I also have problem with my jaw (after an old accident) and I grind my teeth at night. Could you tell me - do you have to wear your splint only when sleeping or also for some time during the day? This sounds really great if you say your T is better with TMJ treatment.
My tinnitus is mainly in the right ear and this is the side which has improperly healed after this accident, my jaw is a bit messed up on that side. Why would tinnitus appear after 15 years since that accident, though? Tinnitus is very mysterious... no wonder it's so hard to treat!
I also need to try some exercise to see if it gets better. I pretty much didn't do anything since it started
My tinnitus is mainly in the right ear and this is the side which has improperly healed after this accident, my jaw is a bit messed up on that side. Why would tinnitus appear after 15 years since that accident, though? Tinnitus is very mysterious... no wonder it's so hard to treat!
I also need to try some exercise to see if it gets better. I pretty much didn't do anything since it started
Thanks , some great responses and finally some people to talk about this in a more creative and investigative manner about all this, as my GP is simply hopeless.
I'm pretty sure that blood flow / blood pressure is related to all this in combination with something else.
I normally donate blood once every 3 months, and will go in about 2 weeks again, as I unfortunately need to wait 4 weeks after the last CT scan I had, I'm pretty convinced that when they take 500ml blood from me the pulsating will be gone as their will be less pressure and less blood flow.
Does anyone else donate blood, and has postive experiences with this in respect of T or PT?
Two pillows, makes a lot of sense to me as well and will start with it tonight.
My jaw might be related to all this and maybe some old dental work, as amalgane might start leaking after 20/30 years or so, and this again might be a cause of PT and T.
I just came back from running and and again I'm pretty good, the PT in my left ear is gone, and in return I have some normall "static" T in my right ear, which does not bother me, as it's nothing in comparison with the CAR-ALARM i have in my left ear.
Another thought is high cholestrol, mine is 6.7 which is a bit high but my hdl =2.2 and ldl =4 , so in principle it's actually very good, but the total of it might put too much pressure on my veins/arteries, so i stopped eating 2 egg's per day , and am down to about 4 to 5 a week.
Further i do not feel that there is ahuge difference between PT and T and that PT is simply a form of T and it all relate to blood flowing through your veins, some of us hear just that and it's called T, others can hear the blood flowing and the actually pumping and it's called PT.
Remember that my PT does follow my heart beat, but when i run it follows my foot steps and i reckon when i start beating my head on a wall it will follow that. I'm just a bit more senstive to internal sounds which i reckon inherited from my mam, who could hear her own heatbeat while laying down in bed.
Tomorrow i will have them make a scan of my jaw, and maybe the cause of all this is just some old dental work
Thanks
Menno
I'm pretty sure that blood flow / blood pressure is related to all this in combination with something else.
I normally donate blood once every 3 months, and will go in about 2 weeks again, as I unfortunately need to wait 4 weeks after the last CT scan I had, I'm pretty convinced that when they take 500ml blood from me the pulsating will be gone as their will be less pressure and less blood flow.
Does anyone else donate blood, and has postive experiences with this in respect of T or PT?
Two pillows, makes a lot of sense to me as well and will start with it tonight.
My jaw might be related to all this and maybe some old dental work, as amalgane might start leaking after 20/30 years or so, and this again might be a cause of PT and T.
I just came back from running and and again I'm pretty good, the PT in my left ear is gone, and in return I have some normall "static" T in my right ear, which does not bother me, as it's nothing in comparison with the CAR-ALARM i have in my left ear.
Another thought is high cholestrol, mine is 6.7 which is a bit high but my hdl =2.2 and ldl =4 , so in principle it's actually very good, but the total of it might put too much pressure on my veins/arteries, so i stopped eating 2 egg's per day , and am down to about 4 to 5 a week.
Further i do not feel that there is ahuge difference between PT and T and that PT is simply a form of T and it all relate to blood flowing through your veins, some of us hear just that and it's called T, others can hear the blood flowing and the actually pumping and it's called PT.
Remember that my PT does follow my heart beat, but when i run it follows my foot steps and i reckon when i start beating my head on a wall it will follow that. I'm just a bit more senstive to internal sounds which i reckon inherited from my mam, who could hear her own heatbeat while laying down in bed.
Tomorrow i will have them make a scan of my jaw, and maybe the cause of all this is just some old dental work
Thanks
Menno
Hey there Menno
Did your tinnitus start after you donated blood? Don't take it too seriously but one doctor once told me that frequently donating blood at regular intervals can cause your body to produce too much of it, resulting in cardiac problems, i.e. high blood pressure.
Did your tinnitus start after you donated blood? Don't take it too seriously but one doctor once told me that frequently donating blood at regular intervals can cause your body to produce too much of it, resulting in cardiac problems, i.e. high blood pressure.
I agree with Fish, who knows where or what the T comes from--it is very mysterious! For me, the popping in the right jaw was totally aggravated when I had to keep my mouth open/extended for a couple of hours for root canal work on the left side and I was scrubbing my driveway bent over a week later with my right hand, probably blew something out of whack there on my right side. I wear the splint all day long because my neuromuscular dentist believes that it does me more good during the day than at night. I do get pulsating t when I lay on my right side during the night sometimes. But for the most part, the t seems to be a low hum/hiss most of the time but it is better than a few months agowhen it throbbed and was a loud buzz. I'm told by my dentist that I will have to wear this splint up until November all day long. I'm just waiting for these research companies to find solutions to this condition that millions and millions of people have to some degree. But I think somatic t is the most common and if you have unilateral t it is probably somatic according to Dr. Jastroboff (spelling of name not sure) from NIH. I just can't believe that medical advancements have been stymied by this or perhaps t is something that in medical world has been ignored for too long--I'll choose the later.
Hi, Menno,
Have you had that jaw scan yet, and were you able to find out any more information about the cause of your pulsating T?
Has yours continued to pretty much go away after running? Hope you're doing better! Dental and/or jaw problems could have a lot to do with it.
I went to the dentist this past week for cleaning/checking, and my pulsating and ringing got worse for about 24 hours after the procedure. The pulsating became really turbulent for awhile, then it finally settled back down to what it is normally -- which is still like a constant pulsating/heartbeat/drumbeat in my head.
Please update us on how you're doing!
Have you had that jaw scan yet, and were you able to find out any more information about the cause of your pulsating T?
Has yours continued to pretty much go away after running? Hope you're doing better! Dental and/or jaw problems could have a lot to do with it.
I went to the dentist this past week for cleaning/checking, and my pulsating and ringing got worse for about 24 hours after the procedure. The pulsating became really turbulent for awhile, then it finally settled back down to what it is normally -- which is still like a constant pulsating/heartbeat/drumbeat in my head.
Please update us on how you're doing!
Just donated blood, and it did not help to reduce T.
I'm really puzzled about all this as i can not imagine that what I got is a difficult medical issue at all.
Have been to cardiologist, neurologist, ENT specialist, 2 GP's, got 3 scans done, for what I feel is nothing more then an inner ear infection or congested eustachian tube.
I did found out that when I blow my nose while keeping my nose closed i can stop the ringing sound, same when i keep a deep breath and hold it for a while while I also fill up my mouth area with air. While running something similar may happen.
Both methods add pressure to the ear drum, inner ear and the eustachian tube. If that fixes it for me why can't a GP/ENT not simply tell me what's wrong and give me some medication for it?
Every time I see one of these medical guru's, they tell me something different, and it's simply confusing me.
My blood pressure is getting back to normal which is about 115/75 for me, it was up for a while because of the frequent medical visits.
I do have many of the symptoms related to somatosensory tinnitus, and maybe should try an osteopath, chiropractor. Not really sure where to go from now, as i believe my problem is something minor, that can be solved easily.
I'm really puzzled about all this as i can not imagine that what I got is a difficult medical issue at all.
Have been to cardiologist, neurologist, ENT specialist, 2 GP's, got 3 scans done, for what I feel is nothing more then an inner ear infection or congested eustachian tube.
I did found out that when I blow my nose while keeping my nose closed i can stop the ringing sound, same when i keep a deep breath and hold it for a while while I also fill up my mouth area with air. While running something similar may happen.
Both methods add pressure to the ear drum, inner ear and the eustachian tube. If that fixes it for me why can't a GP/ENT not simply tell me what's wrong and give me some medication for it?
Every time I see one of these medical guru's, they tell me something different, and it's simply confusing me.
My blood pressure is getting back to normal which is about 115/75 for me, it was up for a while because of the frequent medical visits.
I do have many of the symptoms related to somatosensory tinnitus, and maybe should try an osteopath, chiropractor. Not really sure where to go from now, as i believe my problem is something minor, that can be solved easily.
I had a scan done for all the old dental work and got apparently a jaw infection. Tooth extracted and I'am now on antibiotics. It's to early to say if the antibiotics work as the T is still there. even when the infection is killed the T might remain for some time. Next week I got an appointment with a TMJ specialist as many of the symptons I have point to TMJ and/or infection in my jaw//meniscus /joints, which I hope he could confirm by making yet another scan.
I assume that the high blood pressure is/was due to the infection in my jaw.
I assume that the high blood pressure is/was due to the infection in my jaw.
I am looking for other Whooshers - people with Pulsatile Tinnitus who live in California- especially Northern California. Would love to know about which doctors you have seen and which tests you have taken. If you live in the Bay Area it would be nice to connect.
Unfortunately you have to first find a doctor that will look for all of these reasons. It could be several different doctors. It's been a frustrating journey for me.
I have never heard of a prosthesis that uses titanium and can you tell me where you read that it had slipped? I would really like to know more about that. My prosthesis is made of my bone and plastic. How old was the other surgery? Do you know what doctor did that surgery?
I appreciate any info you can give me.
I appreciate any info you can give me.
Hi, Lvc595,
Here is a link about titanium prostheses used in stapedectomy:
http://www.ncbi.nlm.nih.gov/pubmed/15689744
I remember that I read a lot on forums about stapedectomies, and that more than one person had to have theirs re-done after it didn't stay put properly. I'd have to look to see if I could find those forums again; that was awhile back. I'm sure the process has improved by now. Those surgeries may have taken place several years ago.
Have you had a stapedectomy? Is it working for you? And --- did it take away your tinnitus, or did you have tinnitus before the surgery? I'd like to know more about it!
Here is a link about titanium prostheses used in stapedectomy:
http://www.ncbi.nlm.nih.gov/pubmed/15689744
I remember that I read a lot on forums about stapedectomies, and that more than one person had to have theirs re-done after it didn't stay put properly. I'd have to look to see if I could find those forums again; that was awhile back. I'm sure the process has improved by now. Those surgeries may have taken place several years ago.
Have you had a stapedectomy? Is it working for you? And --- did it take away your tinnitus, or did you have tinnitus before the surgery? I'd like to know more about it!
Cookie -- have you had any tests (MRI, etc.) to determine the cause of your pulsating? Did it start when your tinnitus (ringing) started? Did yours start suddenly?
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