"Have patients gotten worse? There were a small number of patients who have gotten worse, erm not dramatically, their tinnitus might have gotten, you know, elevated. These patients, they were asked whether they wanted to discontinue the treatment or continue, a lot of them continued. Eh, most of those cases then resolved, so we haven't had any serious adverse events in the study, and eh so we haven't had any very..just very, kind of, yeah well this term "serious adverse events", you know so there aren't any patients we're very very concerned about. And the majority of patients did actually, in patients that, some patients experience some change at the start which is probably to be expected at the start if you are doing something, if you are disrupting this kind of neural processes there is going to be change".
In a way I am encouraged he's discussed this. It is striking a nerve with me as I had a surgery that kicked off my increased spiral of ill health, and before I had it I did loads of research and went by the papers and doctors who said it made no one's condition worse. A few years later the rise of social media showed that to be bollocks. He's not denying it never happens. And it may well be as he implies, mostly temporary. As I say, I would probably want to see the 12 month follow up paper before trying this and the experiences of other patients less concerned than me with risk!
Member
