Hi there, and apologies for very slow response!
I met with an ENT consultant, who tested hearing and pressures - all fine both sides. Has deemed it to be tinnitus.
But since then (3 months) it's got louder and night and started noticing it through the day. When it's at it's loudest at night (and it is louder, not just because I'm in a quieter environment), the rhythmic length is similar to my pulse. It's not a heartbeat I hear but a rhythmic vibration if that makes sense.
As such am off to the ENT again next week as really want some answers (just so I can rest knowing it's nothing sinister), as has been going on for well over a year now.
The ENT did suggest a venous hum prior to meeting with me but after meeting thinks it's 'just' tinnitus.
How are you getting on
@Samantha R ?
Have the same thing, I believe it's
Middle Ear Myclonus or a type of
tensor tympani syndrome. ENT's know nothing about this 99.9% of the time, and are generally morons outside of the normal scope of issues they cover. I want to emphasize this is NOT traditional Tinnitus. Shouldn't even be labeled as such imo.
Mine was triggered from what I believe was extreme pressure that damaged the inner muscle of the ear. It may have been already weak or a genetic predisposition to it. The day before it came on, I found out my grandfather died. First death I ever faced. I cried hard than I've ever done, and do remember the pressure in my head from just being upset all day and night. I blew my nose so many times (which I rarely do) and I'm sure that didn't help.
When I awoke the next morning, I thought I briefly heard this oscillating type of vibration hum, vrooom, slight pause, vrooom, and so on. It went away within a few minutes and thought nothing of it. Sadly, that same morning I had decided to take my mind off things and boil these Decibulz brand hard plastic ear plugs I had sitting around, so I could have something ready for my ears for long term use since there was a lot to do in the following days that would be loud. After boiling the plug, putting the earplug tip portion that goes into canal, I spent numerous minute's molding the outer soft boiled plastic to my ear canal to get a good fit/seal. For some reason, this pushing of the mold I think created pressure/suction affect in the ear, and was the final straw in an already injured state.
Once I took it out, the vibrating pulse went insane. And que a whole year of this being almost daily, all day, with brief breaks. It got triggered easily by hearing low bass sounds, loud cars idling, being in a car driving, even just laying on the ear. Putting plugs in set it off, even muffs. It took about an entire year to get it to a consistent point where it was gone 90% of the day. Sadly, even now it can still come back briefly for no reason. It can also still be triggered by driving, and other intensely low vibrating type of frequencies. Though it doesn't last as long and goes away, so there's progress.
From what I was told from others here who had some anecdotal on this issue, they saw people with MEM/TTS improve over the course of about a year, which sync up exactly with my case. Like others had said here and elsewhere, when it was at it's worst I could oddly stop it by lightly shaking my head, talking and things like that, only for it to start up the second I stopped doing that. I can always tell there's an issue coming or if I'm in a spasm(as I call it it) even if it's being masked, because there is a feeling I start to feel in that ear. It's hard to describe, but it's almost like a pressure change, or even slight soreness sometimes, that makes it feel completely off from the other ear. So I know it's having an issue.
During my initial first year, I had also suffered with random muscle spasms all across my body and random intervals. Something I believe was triggered by extreme stress and caused some central nervous system issue, which I think could of also affected perhaps the trig. nerve in the ear, which then affected the muscle. These are just my theories. Everyone has their own possible causes, but it definitely has to come back to being an either ear muscle issue and/or nerve issue with the trigeminal nerve.