Because they need to attempt to heal cochlear synaptic damage before trying this surgery. The root is cochlear sensory cell and nerve damage and treatments for that exist but just aren't being studied enough or offered to patients while options like this are. It's crazy. They need to give people the option to try NT-3 and BDNF.
Are NT-3 and BDNF treatments that are currently available, or still being developed? All I'm saying, is if there is a surgery currently available, that has minimal negative side effects, it is certainly a huge positive. Other, possibly better treatments should continue to be researched, but for those who have been suffering for a long time, a minimally invasive surgery that on average boosts your LDL's by 10 to 20 dB is a godsend.
I get where you're coming from and I agree that they obviously should attempt those things too. But you have to take into account that some types of hyperacusis might be entirely middle ear related. A regenerative treatment for the inner ear would do nothing for someone if hypermobile stapes is the culprit for example. The middle ear is unbelievably underreserached when it comes to these things.
Not approved for human use yet, however, neither is cocaine and people still find a way to get that.
The surgery that is the topic of this thread is minimally invasive. It's effect on a large scale of people is unknown, but the small sample size at least seems promising.
1. Don't know how long the window period is.
I am sorry. I was literally asking if the treatment is provided with no regards to the argument. I should have expected that you cannot get it. It's so predictable this answer with our ear issues.1. Don't know how long the window period is.
2.
My assertion is that the statement that the damage cannot be repaired was wrong. It clearly can be. Just because the treatment isn't being provided doesn't mean that the damage cannot be repaired.
You can buy this from lab supply companies. The only thing you have to do is find a doctor willing to mix it in a gel or something and inject it into your ear. I don't see how the laws of physics prevent that from occurring. Is it illegal? Yeah.
It doesn't need to treat those things. In a perfect world we'd know exactly how to fix everything that's wrong, but in cases where we don't know the answers, alleviating symptoms that are crippling people is the next best option.
My parents lived in Naples on a gated golf course for years. @Sailboardman is from Sarasota, but I think his SSHL caused him debilitating tinnitus in one ear. Last seen here in 2016.
Furthermore, the middle ear could be setting off a domino effect on the inner ear. And when people say hypermobile stapes or hypermobile tensor tympani or hypermobile stapedius or veli palatini, or tense eardrum and such, they don't know if it's creating a hearing loss or a hearing gain. What they do sense kind of vaguely is that the ear just loses its perfect tonicity, you know the one we've been accustomed to for gazillions of billions of years, which, oh naturellement, arrogant urbanite psychologists think they can trump. This is always spoken of when a university doctor decides to write on TTTS every 5 or 10 years or so.
I think he's a lot more active over at chat-h and has lots of posts about the operation there. His username there is cozo.Hi, can you give us any information and how you're faring now. There's plenty of people on here who have hyperacusis and want to know what your experience is like, or if you've been keeping posts somewhere about it on another site maybe? Let us know.
Pretty sure he's on the hyperacusis surgery success Facebook group, there's a guy named coz there. He said his one ear is pretty good now and he's waiting to do the other ear next year I think.Hi, can you give us any information and how you're faring now. There's plenty of people on here who have hyperacusis and want to know what your experience is like, or if you've been keeping posts somewhere about it on another site maybe? Let us know.
I don't know exactly. I think there is one video of Silverstein's presentation on Facebook.
Yes that's what it is.
This thread is amazing and really interesting to me, a hyperacusis victim.
Because it is very hit and miss on who it helps. It's not a "cure", however for some it can alleviate the symptoms of whatever hyperacusis really is. Which is of course the next best thing if you're one of the lucky ones it works on.
Member
