Hi all,
I'm new here, and newly dealing very invasive constant tinnitus as well. To offer a little background of myself, I am 37 and living in a small town in BC, Canada. I originally got tinnitus around 2007, most likely from attending shows and events without ear protection. From that point in 2007 until last Saturday, it had not worsened. It would present itself occasionally as a very high pitched ringing that seemed to originate from the centre of my head, but consistently every single time it would kind of "fizzle" out and then be gone, or be so low that it was only present during complete silence.
So now, back to the NeoRhythm personal PEMF device. I ordered it from an Indiegogo campaign [found here: https://www.indiegogo.com/projects/neorhythm-breakthrough-in-brain-science/] in a bid to help treat my ongoing anxiety disorder, as well as just relax in general. I read through the information many times, read some reviews, talked with my fiancé about it, and finally decided to go for it. It arrived very quickly, and needless to say I was excited to try it out. However, upon starting it up and putting on my head (using the Deep Relaxation setting) at about 4am in our quiet bedroom, within 10 seconds I noticed that I was experiencing tinnitus louder than I ever had in the past.
At first, I wasn't really concerned as I just figured it would function in the same way it always had, be intense for a short while, then fade out and return from whence it came. But this time, it didn't go away at all. I went to sleep with it still loudly ringing, expecting that when I woke up it would be gone. However, that was not the case. Since then I have had the most invasive high pitched ringing in my ears that I have ever had, accompanied by a kind of pressure in my head that almost reminds me of altitude changes when flying. It has been triggering severe panic attacks, as well as disrupted my eating and sleeping to a great degree. I wake up nearly every morning in an anxious panic, not to mention the difficulties staying asleep.
It has suddenly become very difficult to function on any semblance of normal level. I've lost interest in everything I used to love, have no appetite and no desire to do anything, including cook and generally take care of myself. The only solace I find is in the shower, which I now have multiples of every day just for the touch of peace they provide. I have become a complete wreck and am really struggling to not be afraid. I am filled with a deep regret for getting this device and causing this problem for myself, as now I feel like I don't know how to live anymore and have lost my way.
To make matters worse, my fiancé is pregnant, due yesterday in fact, which is itself fantastic and I am truly excited to meet our new daughter. But all of these panic attacks that I'm having, the inability to focus on having conversation, the lack of desire for meal preparation and severe difficulties having restful sleep are putting quite a damper on the experience we are trying to have. I find it difficult to think about anything else other than the anxiety I am having from the tinnitus and pressure in my head. Even when I try to commit to something I enjoy, I feel so anxious about my brain health and not knowing what I have done to my self that enjoyment seems impossible.
I reached out to the company and they argued with me about the safety of their product, saying that what I was experiencing was not possible from using it and that there was no connection. Meanwhile, their health and safely section of the manual states that: ""Pulsed electromagnetic field side effects are usually nonexistent or minor and temporary, but they may be observed in users who are sensitive to electromagnetic fields." Usually is the key word there, not always, which also clearly suggests that some people do in fact experience adverse reactions, and to their knowledge even, yet nothing is disclosed about it.
Perhaps there is a different underlying reason to it all, and the timing of the onset was purely coincidental. It just seems too connected to pin to simply coincidence in my opinion. There are other known cases of people undergoing TMS therapy and it worsening their tinnitus, at much greater intensity of magnetic fields however, but still suggesting that the issue may present it self even with lower intensity fields. The fact that the company quite literally told me it was impossible for that to happen, and did not list any potential side effects at all, even for those hypersensitive to electromagnetic fields, is quite a red flag for me about the company that I wish I had seen prior to using it.
So here I am currently, expectant father any day now, and a sorry mess of a person hardly able to see past the anxiety that is plaguing me regarding the newly developed constant tinnitus and head pressure. It's also worth noting that I have been in therapy for just over a year and half now for trying to cope with increasing anxiety I have been experiencing for other reasons. It's a combination of discussion and CBT, and up until this happened I had really been making a lot of progress and feeling positively about my life. I was also just diagnosed with OA in my back and neck, and told I have abnormal curvature in my spine in two places as well as multiple disc issues throughout, yet because of my therapy up to that point I was able to deal with it in a much more healthy way.
Yet with this newly developed invasive constant tinnitus, I am seemingly back to square one; my mind is running wild and I am having great struggle trying to keep it under control. I feel like I am going crazy and I don't know what to do. Every night I find a bit of sleep by holding on to dear hope that it will be gone when I wake up in the morning. Perhaps that is why I have panic attacks in the morning upon waking and it's still present...
The ironic thing about how it started for me (seemingly with the PEMF device) is that there is actually tinnitus therapy involving rTMS. I have found all sorts of published science claiming it's effectiveness, however nothing that can explain what I am experiencing. See article here: [https://www.pemfadvisor.com/pemf-therapy-and-tinnitus/] They link to published papers as well. And there are others as well from as early as 2005.
I am very confused about this entire experience and normal things have become quite a struggle, so any insight or suggestions would be greatly appreciated.
Thank you for taking the time to read this very long post.
I'm new here, and newly dealing very invasive constant tinnitus as well. To offer a little background of myself, I am 37 and living in a small town in BC, Canada. I originally got tinnitus around 2007, most likely from attending shows and events without ear protection. From that point in 2007 until last Saturday, it had not worsened. It would present itself occasionally as a very high pitched ringing that seemed to originate from the centre of my head, but consistently every single time it would kind of "fizzle" out and then be gone, or be so low that it was only present during complete silence.
So now, back to the NeoRhythm personal PEMF device. I ordered it from an Indiegogo campaign [found here: https://www.indiegogo.com/projects/neorhythm-breakthrough-in-brain-science/] in a bid to help treat my ongoing anxiety disorder, as well as just relax in general. I read through the information many times, read some reviews, talked with my fiancé about it, and finally decided to go for it. It arrived very quickly, and needless to say I was excited to try it out. However, upon starting it up and putting on my head (using the Deep Relaxation setting) at about 4am in our quiet bedroom, within 10 seconds I noticed that I was experiencing tinnitus louder than I ever had in the past.
At first, I wasn't really concerned as I just figured it would function in the same way it always had, be intense for a short while, then fade out and return from whence it came. But this time, it didn't go away at all. I went to sleep with it still loudly ringing, expecting that when I woke up it would be gone. However, that was not the case. Since then I have had the most invasive high pitched ringing in my ears that I have ever had, accompanied by a kind of pressure in my head that almost reminds me of altitude changes when flying. It has been triggering severe panic attacks, as well as disrupted my eating and sleeping to a great degree. I wake up nearly every morning in an anxious panic, not to mention the difficulties staying asleep.
It has suddenly become very difficult to function on any semblance of normal level. I've lost interest in everything I used to love, have no appetite and no desire to do anything, including cook and generally take care of myself. The only solace I find is in the shower, which I now have multiples of every day just for the touch of peace they provide. I have become a complete wreck and am really struggling to not be afraid. I am filled with a deep regret for getting this device and causing this problem for myself, as now I feel like I don't know how to live anymore and have lost my way.
To make matters worse, my fiancé is pregnant, due yesterday in fact, which is itself fantastic and I am truly excited to meet our new daughter. But all of these panic attacks that I'm having, the inability to focus on having conversation, the lack of desire for meal preparation and severe difficulties having restful sleep are putting quite a damper on the experience we are trying to have. I find it difficult to think about anything else other than the anxiety I am having from the tinnitus and pressure in my head. Even when I try to commit to something I enjoy, I feel so anxious about my brain health and not knowing what I have done to my self that enjoyment seems impossible.
I reached out to the company and they argued with me about the safety of their product, saying that what I was experiencing was not possible from using it and that there was no connection. Meanwhile, their health and safely section of the manual states that: ""Pulsed electromagnetic field side effects are usually nonexistent or minor and temporary, but they may be observed in users who are sensitive to electromagnetic fields." Usually is the key word there, not always, which also clearly suggests that some people do in fact experience adverse reactions, and to their knowledge even, yet nothing is disclosed about it.
Perhaps there is a different underlying reason to it all, and the timing of the onset was purely coincidental. It just seems too connected to pin to simply coincidence in my opinion. There are other known cases of people undergoing TMS therapy and it worsening their tinnitus, at much greater intensity of magnetic fields however, but still suggesting that the issue may present it self even with lower intensity fields. The fact that the company quite literally told me it was impossible for that to happen, and did not list any potential side effects at all, even for those hypersensitive to electromagnetic fields, is quite a red flag for me about the company that I wish I had seen prior to using it.
So here I am currently, expectant father any day now, and a sorry mess of a person hardly able to see past the anxiety that is plaguing me regarding the newly developed constant tinnitus and head pressure. It's also worth noting that I have been in therapy for just over a year and half now for trying to cope with increasing anxiety I have been experiencing for other reasons. It's a combination of discussion and CBT, and up until this happened I had really been making a lot of progress and feeling positively about my life. I was also just diagnosed with OA in my back and neck, and told I have abnormal curvature in my spine in two places as well as multiple disc issues throughout, yet because of my therapy up to that point I was able to deal with it in a much more healthy way.
Yet with this newly developed invasive constant tinnitus, I am seemingly back to square one; my mind is running wild and I am having great struggle trying to keep it under control. I feel like I am going crazy and I don't know what to do. Every night I find a bit of sleep by holding on to dear hope that it will be gone when I wake up in the morning. Perhaps that is why I have panic attacks in the morning upon waking and it's still present...
The ironic thing about how it started for me (seemingly with the PEMF device) is that there is actually tinnitus therapy involving rTMS. I have found all sorts of published science claiming it's effectiveness, however nothing that can explain what I am experiencing. See article here: [https://www.pemfadvisor.com/pemf-therapy-and-tinnitus/] They link to published papers as well. And there are others as well from as early as 2005.
I am very confused about this entire experience and normal things have become quite a struggle, so any insight or suggestions would be greatly appreciated.
Thank you for taking the time to read this very long post.
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