Sharing My Story: Tinnitus & Hyperacusis Still Present — My 3-Month Update

Gerard M

Member
Author
Jul 23, 2020
5
Tinnitus Since
19/05/2020
Cause of Tinnitus
Noise trauma most likely
I think it is about time to share my tinnitus & hyperacusis story, I´ve had tinnitus and hyperacusis for about 3 months after being exposed to loud music for a couple of weeks using headphones as I am a DJ and because of lockdown I was practicing more often and might got a bit too excited. It started on and off 2 secs of high pitched ringing several times a day for like 2 weeks following a kind of vertigo and then one night when I went to bed it was just there siting in the background, so quiet but I still noticed it.

I went through the same process of most people, going to doctors, trying to understand what I was experiencing, so went to the GP and he ordered me an audiology test which came back "normal" although it was not lineal and I could see a dip in the 4 kHz region but just within normal limits of 20 dB (although I think this has worsen with time doing some tests online). I then went to 2 ENTs, one told me that it was a TMJ issue and gave me antinflammatories. After 2 weeks of seeing no improvement I went back and another ENT finally told me I had to live with it and that I had to calm down and relax.

Soon after the onset of my tinnitus I experienced distortion of certain sounds, especially listening to music high frequencies sounded so tiny and harsh and in general so unbalanced and some of the frequencies a bit hollow. Also some everyday sounds sounded way too loud, like clenching of dishes, cutlery and all the bells and announcement sounds on the train were way too loud. I also realized some white noise like sounds (flushing of toilet, fans, AC, Heater, shower, frying stuff, kettle boiling) would react with an overlay sound like a whistling sound over it (after reading Tinnitus Talk, I would learn that this is probably dysacusis).

I fist couldn´t sleep and went in full anxiety mode, I had to start medication for sleep (Mirtazapine), I used to have sleeping issues for a few years in the past and was on Mirtazapine mainly for sleep but didn´t like the side effects so I just with the help of a sleep psychologist slowly got off it. I knew that Mirtazapine worked so I had to start again taking it to help me sleep. I started using masking sounds for sleep but every time they would work for a few nights but then the tinnitus would find a way to react so at the moment I am just playing some sounds in the background, it doesn´t mask the tinnitus but it gives my mind something else to listen to.

After 3 month since the original onset I have been up and down, it is mainly the psychological reaction to it and the idea of it becoming permanent what scares me the most. I changed my career to sound production 3 years ago and I was playing as a DJ more often for the past year. I was happier with this change but obviously how things are at the moment I am feeling it might be the end to my plans.

At this moment in time I am really struggling with this condition and it is always in the forefront, thinking what can I do to make it better, I haven´t been playing music because it makes me stressed and sad. Thanks to COVID-19 I have been at home looking after my ears, some days I don´t listen to anything and if I go out I am really careful, I wear earplugs which attenuates some noise but not too much. I have been reading Tinnitus Talk but it has so many different opinions of how to manage hyperacusis that I am not sure which one is the best as I don´t want to make it worse.

If there are any comments about my case or any DJ/soundie that has been through this please get in contact. :)


Thanks,
Gerard
 
How loud is your tinnitus on a scale of 1 to 10? When you want to sleep, does it get louder? Have you had any improvements in your tinnitus?
 

Log in or register to get the full forum benefits!

Register

Register on Tinnitus Talk for free!

Register Now