Silence After 4.5 Years (Medications from Company Called Decola)

Hi! I don't feel comfortable sharing this old doctor's information with strangers. I don't even know where you live. He probably doesn't speak English, and I'm very afraid he will be spammed because his information was shared. Especially because he didn't intend to treat my ears, he just believed I would feel better if I stabilized the results of my intestines test.

I don't know a lot about the quality of intestines tests in foreign countries, but try to get an advanced one. Second step is finding the right doctor, probably an open minded one that also believes in "alternative" medication. It took me three years after the test to find the right doctor.

Hi @Margrietje,

No worries, if he/she doesn't speak English it could be especially difficult for me to get in touch with him/her.
I will try to find another similar type of doctor in Europe.

Thanks anyway for sharing your story, for me it's going to be a new starting point.
 
Update.

When I take these supplements, most of the time:

- I don't feel fear (and I hardly ever have panic attacks).
- I think it is quieter (but not all the time).
- I no longer feel the compulsion to confront tinnitus (previously I listened to my tinnitus compulsively, now I almost always drown it.

My situation is more humane.
 
Update.

When I take these supplements, most of the time:

- I don't feel fear (and I hardly ever have panic attacks).
- I think it is quieter (but not all the time).
- I no longer feel the compulsion to confront tinnitus (previously I listened to my tinnitus compulsively, now I almost always drown it.

My situation is more humane.
I'm really glad that I helped at least one person by sharing my story. Because I'm still quite easily scared, I'm currently on a more psychological mission. I'm currently working with a therapist, and I consider hypnosis too. Physically I'm still better than ever.

I wish you all the best!
 
That's ok it's not your fault, I was desperate to try anything. I'm glad you're still getting silence and good days
Sorry to ask but are you in the US? I would try it if I knew what to buy here.
 
@Margrietje, how have you been doing?
Fine, really. It's not always quiet in my ears, but I can say it's pretty much gone 95% of the time. After all these years I am still struggling terribly with my anxiety disorder though. Busy places terrify me, I am still worried that the initial beep will come back / get worse. But physically I'm okay.
 
@Margrietje, did you experience Visual Snow too?
I had to Google Visual Snow first, but hey you freaked me out o_O Two days ago, in the evening, I suddenly saw a lot of "floaters" (got that word from one of the Visual Snow images on Google) in the edges of my field of vision. It was temporary though, but the coincidence with your comment! I read some of the information on Google about imbalances in the brain, and I totally believe there could be a link with tinnitus.
 
I had to Google Visual Snow first, but hey you freaked me out o_O Two days ago, in the evening, I suddenly saw a lot of "floaters" (got that word from one of the Visual Snow images on Google) in the edges of my field of vision. It was temporary though, but the coincidence with your comment! I read some of the information on Google about imbalances in the brain, and I totally believe there could be a link with tinnitus.
Hm, that probably confirms my speculation about the link between tinnitus and visual snow syndrome. It's probably the same hyperactivity you can hear and see as tinnitus + floaters / visual snow syndrome. It all makes sense now.
 
I've been experimenting with keto and am wondering if that has changed gut bacteria and caused a spike.
How can a keto diet cause a tinnitus spike?

Keto is considered healthy. I've been on a similar diet for about 2+ months after I got rosacea and the diet is turkey, chicken, almonds, eggs, berries, cereal, salmon - in that order.

I've also noticed that my tinnitus has gotten a tad worse.
 
How can a keto diet cause a tinnitus spike?

Keto is considered healthy. I've been on a similar diet for about 2+ months after I got rosacea and the diet is turkey, chicken, almonds, eggs, berries, cereal, salmon - in that order.

I've also noticed that my tinnitus has gotten a tad worse.
Any changes to diet can cause/worsen tinnitus but it is not the norm. Generally, Keto and AIP diets, along with fasting will improve tinnitus and related symptoms. For some people these metabolic changes may cause transient increases to their tinnitus and other health conditions. It's a "gets worse before it gets better" paradoxical effect but, for others the metabolic changes don't agree with the body for whatever reason and the increase in tinnitus will stay as long as you are dieting.

I personally believe there are many types of anti-inflammatory diets that help with different conditions but it's not a one size fits all. We should all eat what makes us healthy but that doesn't always translate into the same diet for everyone.

If you've been having increased tinnitus for 2 months on your modified diet, something you are eating (or not eating) is likely triggering it and I would expect your tinnitus to resolve to baseline once you fix it. One thing I noticed is you mention cereals, almonds and berries. All these can spike tinnitus: cereals can spike insulin and berries and almonds are high in salicylates. For many people salicylates can increase tinnitus.
 
Any changes to diet can cause/worsen tinnitus but it is not the norm. Generally, Keto and AIP diets, along with fasting will improve tinnitus and related symptoms. For some people these metabolic changes may cause transient increases to their tinnitus and other health conditions. It's a "gets worse before it gets better" paradoxical effect but, for others the metabolic changes don't agree with the body for whatever reason and the increase in tinnitus will stay as long as you are dieting.

I personally believe there are many types of anti-inflammatory diets that help with different conditions but it's not a one size fits all. We should all eat what makes us healthy but that doesn't always translate into the same diet for everyone.

If you've been having increased tinnitus for 2 months on your modified diet, something you are eating (or not eating) is likely triggering it and I would expect your tinnitus to resolve to baseline once you fix it. One thing I noticed is you mention cereals, almonds and berries. All these can spike tinnitus: cereals can spike insulin and berries and almonds are high in salicylates. For many people salicylates can increase tinnitus.
I'm having about the same number of non-annoying days with tinnitus. About 15 a month. However, my very good days of tinnitus went from about 10 to 5 or 6.
 
I don't want to be overly optimistic, because my tinnitus has "only" been gone for 6 days, but after almost five years it's an amazing experience. I've finally found some (I think) 'alternative' pills that work for me. Important note: my ears aren't damaged in any way (not sure if that's important, just mentioning it).

Background story: When I was 16 years old, I woke up one day with mild tinnitus. I'd only been to two concerts in my life (both were months ago), and multiple tests (all sorts of tests as well) confirmed that my hearing wasn't damaged at all. The opposite was true: I even heard much better than the average peer. "You hear as good as a dog," said the ear specialist. Good news, my family said, but the tinnitus didn't care. For four years I have had to deal with all kinds of tinnitus: different frequencies, different volumes, pulsating tinnitus, sudden deafness, acoustic perturbations, ... I had one ear problem after another (sometimes also a different one in my left and my right ear). I got my hearing checked every year, because those temporary problems gave me the feeling that my hearing changed, but the doctor had always the same results: still no damage.

The cure: A lot of doctors blame tinnitus not caused by hearing damage to stress. I've tried to avoid stress at all costs, even though I didn't believe that I was more often stressed than the people surrounding me. One week ago, I went to see another doctor who's known for his alternative research regarding intestines. I had mine tested before, but the doctor back then didn't do anything with the results. When I showed those results to this "new" doctor, he immediately said that my intestines were causing this so called "stress" in my brain. Even though I've never actually experienced digestive problems, my body is apparently struggling.

I started taking medicines to support my intestines, and it's been silent ever since (but again, it's only been 6 days, I'm going to keep everyone updated here).

- Cerinax (so called "psychobiotics", they improve the relationship between your intestines and your brain)
- MB Adapt (MB stands for Mood Balance, so it should knock out stress - it contains among other things magnesium and vitamine B6)
- LG-support (natural resistance, detox)

The company making the pills is called Decola. I was able to get them in the pharmacy (they had to order them), so they may not be that "alternative". Either way, they are completely natural (not that I care: anything that helps is good, but classical medicine has few solutions).

The doctor advised me to take all three of them, so I'm not sure if they're all necessary to stop the tinnitus. However, I went to this website quite a lot when I was freaked out about a sound that spiked my tinnitus, and reading other people's topics here have often calmed me down. I hope that I'm a lucky one and that this is the end of my journey.

I'll keep you all updated!
What about live yogurt and kefir? They are full of probiotics. Has anyone tried them?
 
Hi!

It's been a while. One week ago I got diagnosed with Ménière's. The ENT said that the problems I still struggled with (sudden deafness and echo in an ear or other forms of disturbances) + the pressure tests were enough to give me the diagnosis. My balance has never been the best, but I don't have dizzy spells yet the ENT was very sure about my case.

When I asked why I didn't get this diagnosis sooner, she told me that my age at the time (16 years) and the fact that I didn't experience dizziness probably pointed another way.

So now I'm on Betahistine. Just wanted to keep y'all updated.

Stay strong everyone xxx
 

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