@meeruf, while perhaps knowing a concert can damage your hearing and then purposely going without protection might be considered reckless, I don't think it helps to call people's actions stupid here - what's done is done and we all need support at this point. I for one simply had no idea a concert would do any damage to my hearing at all (that's how I got my t). It's not entirely popularly circulated knowledge in the US, in my experience and I'd never had tinnitus before in any way to even have been "warned".)
@st0rch I know it is impossible to hear or understand right now, but you absolutely can be okay whether or not your tinnitus fades away. I wouldn't have believed that when I was in your position either - I was having panic attacks a week in and visiting every conceivable doctor trying to get one to give me the one thing none of them could - assurance that the ringing would stop.
You're just at the very beginning, it could still easily go away, there are many stories of tinnitus going away even years later and there are lots of new therapies and meds in trials, so do not lose hope and don't view this as a "rest of my life" sentence right now. Do not spend your days waiting for the sound to stop. I did that and it was as if I died a little each day when I woke up and it was still there in my head. It was a horrible thing to do to myself, but it's understandable. Forgive yourself. However, you wisely found TinniusTalk, which is the only positive and supportive tinnitus forums I've found out on the internet. The people here are kind and most really seem to have done their homework and lived their good advice. That said, here is (very humbly) what I wish I'd done when I was a week into my tinnitus, knowing what I know now.
1.
Do not look to ENTs and general practitioners for answers and do not hang on every word they give you as if it is law. They just don't have much to offer to a person new to the world of noise-induced tinnitus. Do not obsess over their words and try to predict (based on those words) whether or not your tinnitus is permanent. Sitting and running over these thoughts will not help. Work on not panicking, sleeping and taking steps to learn about useful therapies. Bottom line, take care of yourself, do not beat yourself up or try to tell the future, that is guaranteed to make you feel worse.
- Also, side note on the hearing loss - you may have high frequency hearing loss a regular test cannot detect. Do not be sad you don't have hearing loss and think that future hearing loss innovations will not help you - be JOYOUS your normal range hearing is still good. It means you have more incoming outside sound to mix with the tinnitus and...you still have great hearing! That is a huge blessing, believe me. Celebrate that! Even if your tinnitus isn't from hearing loss at all, there are also major studies based in neuroplasticity that may help you that might not help other sufferers. Bottom line, tinnitus can be in the ear, or in the brain or both - most people still aren't 100% clear - so either way you have as much chance of a cure as anyone of us if it doesn't just go away on its own (and it's still so early, it might easily do just that.)
- As for anxiety and tinnitus - having anxiety isn't going to "keep your tinnitus there" per se, but it will slow down the rate at which you habituate and it will stall your body from healing. That fight or flight response takes a major toll on your body. When you hear that tinnitus sound and feel all that terror, it's literally telling your brain "do not forget this sound, it's dangerous!" - it's not going to make tinnitus itself stay, but it will keep it in your consciousness if it's there. Your brain will be looking for it like it looks for the sound of a creaking board in a dark room or the sound of a bear's growl in the woods. If it thinks it's dangerous, it will freak out and not let you focus on anything else. You can definitely train your brain to register tinnitus as nothing more dangerous than the traffic outside your window or the hum of the air conditioner, but it will take time, have patience.
2.
Get a list from the ATA of tinnitus specialists in your area. I don't know how effective I think the ATA (American Tinnitus Association) is for most things, but they do have a good directory of people all over the US who actually habitually work with tinnitus patients. Having someone who knows what you're going through is invaluable.
3.
Pick a Psychiatrist off this list and go ASAP. Having someone to talk to and most importantly to help you manage your anxiety and sleeplessness is absolutely essential. Your body can't heal, absorb nutrients etc. when you're in a constant state of panic, depression and anxiety. You NEED sleep. You will feel better with sleep than without it and more able to process and cope. There is no shame whatsoever in taking meds to help you sleep or manage you anxiety. I took klonopin and ambien for a while in the beginning and then went off it slowly. It helped a ton, sometimes these meds can even lower the volume a bit temporarily and give you a little break.
4.
If you can afford it, give Hyperbaric Oxygen Therapy a shot. This is absolutely just my personal opinion (though there is a thread on it here in the forum), and I am not a MD - just as a disclaimer, but I think it can help with the noise induced T, but the sooner you go the better. I see you're in the US - check out Sara's Garden (sarasgarden.org) they're a non-profit in Ohio that provides HBOT to people who may have conditions not covered by insurance that HBOT can still help. They treated me and several other tinnitus patients. A few got better, a couple didn't, I got a little volume relief, though it didn't cure me. I started about 3 or 4 weeks in, maybe it would have done more if I was just a week in like you. Either way, it's a good place with good people and if you can afford to give it a try, I have not heard of anyone who regretted trying it. The people at Sarah's Garden are angels and will help you through your hard time - that in itself can be enormously healing - just some good, loving energy.
Other than that, there are many, many treatments to help you habituate, they're just not time sensitive. Things like not panicking and HBOT are - get those things out of the way so you can know that you tried/are trying/are doing something. I think that's the worst thing doctors tell us is that there's nothing we can do. It's just not true. Going and trying something beats sitting at home obsessing any day.
Know that things absolutely can get better. Whether or not the tinnitus goes away, you can be fine. That doesn't mean it wont take some effort on your part along with the healing power of time, but you can be better. I was pretty close to suicidal, and now my life is more or less back to "normal". In some ways I've really grown and, I hope, become a better, stronger person. Would I get rid of it if I could? You betcha, but I'm back to living it even with the tinnitus. T is just a new part of it.
I know even that thought is probably distressing and upsetting right now - I remember being upset at that thought of even getting used to tinnitus, like that meant giving up, but it will be okay. It's just so important not to feed your own brain thoughts like "this will ALWAYS be on my mind" - it seems that way now, but it doesn't have to be that way. I know it's hard, because I did it too, but do not spend hours on the internet reading every "success" and "failure" tinnitus story out there. Whether the ringing stops or not, you can succeed. Don't blame yourself, it doesn't help - don't feed yourself mantras of sadness and despair - tell yourself you can get better and the ringing could still stop, and if it doesn't you can and will habituate. Life will be good again one way or another, you just need time.
Someone should probably change my username to "obnoxiously long post addict", but ah well - I want so badly for people to know it can get better because I remember all too well how desperately hopeless and lost and broken I felt when tinnitus started with me. If you have any questions, feel free to pm me or email me at
hopeblog@outlook.com. I started a little blog about my tinnitus journey (hopeblog.org), it's just me writing about my struggles and successes, but I also have a page that says what I've tried, what's helped and what hasn't and I try to keep it positive an honest. Give it a look if it helps, it's not selling any products or miracles or therapies, just hope
I'll say it once more, cause it's true: Life can be good again one way or another, you just need time.