Ok, whatever. Seriously, whoever or whatever thought this was a funny joke to play on me (have this existence), I frankly am sick of it. Already looked into how to acquire a drug I can't name on here that they use to let people euthenize in Europe. Not at the buying stage yet, but I'm about to give this life the middle finger right back soon. I'm ready to see what's next. If it's just what existed before this life (whcih who knows what that was), then it seems I survived that and showed up here. So whatever.
So, Now I'm 28 and Have Hearing Loss, Is This Guy Saying I Now Am Losing Brain Function Too?
- Thread starter jdjd09
- Start date
Member@jdjd09 It's not that you have to have a good attitude as if you didn't have tinnitus and some hearing loss. That would be false to pretend that that wasn't there. The challenge is to COPE by developing coping strategies, ways to still be happy despite what is currently going on. I agree that it is very unfortunate that you have developed this. Believe me, I have my own personal challenges related to this. I am also into this for four months. I am a silence lover/writer/thinker type by nature. This is NOT easy to cope with. But I am doing it, and still turning my face to the sun, because I don't have the time to waste getting into a long, negative spin with this.
Also, I've come through enough rather lousy life experiences and survived and grown from them by now, that I have some perspective about dealing with the lousy stuff. Life is still beautiful, even amid the crap. (Yes it is, @attheedgeofscience, a person whose advice and postings I respect here, but who I have to respectfully disagree with and say that life is also an everyday miracle, or rather, a combination of the good and the bad and ever was it and perhaps ever shall it be. Longer discussion, another time. Meanwhile, you must yourself not purely act on that statement you ended with above, for you are so valiantly pursuing all your research, which is, after all, a great response to a bad situation!
).
Anyway, jdjd09, maybe you're thinking that "yeah, but you're 53 and had your life and I'm 28" <<--heck, maybe when I was 28 I would've thought that too, because I recently discovered that my very own mother just developed tinnitus and she's 74 and one of my little thoughts, which I quickly made myself kick out of my head, was: "Gee, she had 21 more years without tinnitus that I did! That's not fair!!" So you see, this is human nature and we all tend to fall prey to this kind of useless thinking. Because it IS useless. Why? Because it just keeps us in a negative spin cycle and doesn't help us.
So, yeah, I'm 53, but guess what? My grandmother lived to 92 and we have longevity and I am just getting to a place where I am more free to focus on writing and creating and now along comes ringing in the ears when all I craved before this, and still do, is to sit in silence.
So, just telling you this by way of saying that, DESPITE this ringing, I am working to still maintain that silent place inside myself that has nothing to do with the ears, if that makes any sense. From long experience at coping with things that have happened to me, I have the inner knowing that I can bring strength and creativity to even this situation.
And I am hanging in there with you, because we all have to start somewhere, and you can grope your way out of the purely negative reaction and get to a better place too. A better place WITH even the crappy stuff still going on at the same time.
Who knows? Maybe at some point your tinnitus will abate wholly or partially. Maybe yes, maybe no. You can definitely learn to cope and also maybe get aides for the hearing.
Yes, I am SURE that you are completely frustrated with the doctors appointments not yielding help. I went through something like that in my late 20s and it was SO distressing.
All I can say is, please have patience even though all that has been frustrating, because lots of things are frustrating in this imperfect world, but YOU are worth it, and you've got to keep fighting for YOU.
Just don't waste your time by staying in the perpetuating negative cycle. I know that when I was in my 20s and 30s, I tended to stay negative about things waaaaaaaaay longer because of that thing that all younger people have where we still believe, like the childhood thinking we just left behind, that we have "all" the time in the world. But we don't. From here at age 53, the perspective changes, as you can imagine, and time becomes even more of a precious commodity, and so when something bad happens, for me, at least, I of course am human and grieve it. But I make myself get up from a blow a whole lot faster, because I don't have the time to hang out forever in a pit of despair.
I care about you. I care that you're going through such a hard time. I truly believe that you can learn to cope with this better, which would be the starting point. The "happiness despite having these problems" will come a little later on. But how about just changing your thinking, one tiny little bit, from "How can I stand this, it sucks?" to "HOW can I proceed better, despite this?" Just one or two creative coping techniques, and you will be taking your first steps.
Do things you can do for yourself, despite doctors not helping, etc. Enroll in the tai chi, or the gym, or whatever makes you happy. Get good earplugs off amazon or someplace, too. I have a pair that I use in loud situations, and they come stored on a keychain so they're always with me.
Also, I've come through enough rather lousy life experiences and survived and grown from them by now, that I have some perspective about dealing with the lousy stuff. Life is still beautiful, even amid the crap. (Yes it is, @attheedgeofscience, a person whose advice and postings I respect here, but who I have to respectfully disagree with and say that life is also an everyday miracle, or rather, a combination of the good and the bad and ever was it and perhaps ever shall it be. Longer discussion, another time. Meanwhile, you must yourself not purely act on that statement you ended with above, for you are so valiantly pursuing all your research, which is, after all, a great response to a bad situation!
).Anyway, jdjd09, maybe you're thinking that "yeah, but you're 53 and had your life and I'm 28"
<<--heck, maybe when I was 28 I would've thought that too, because I recently discovered that my very own mother just developed tinnitus and she's 74 and one of my little thoughts, which I quickly made myself kick out of my head, was: "Gee, she had 21 more years without tinnitus that I did! That's not fair!!" So you see, this is human nature and we all tend to fall prey to this kind of useless thinking. Because it IS useless. Why? Because it just keeps us in a negative spin cycle and doesn't help us.So, yeah, I'm 53, but guess what? My grandmother lived to 92 and we have longevity and I am just getting to a place where I am more free to focus on writing and creating and now along comes ringing in the ears when all I craved before this, and still do, is to sit in silence.
So, just telling you this by way of saying that, DESPITE this ringing, I am working to still maintain that silent place inside myself that has nothing to do with the ears, if that makes any sense. From long experience at coping with things that have happened to me, I have the inner knowing that I can bring strength and creativity to even this situation.
And I am hanging in there with you, because we all have to start somewhere, and you can grope your way out of the purely negative reaction and get to a better place too. A better place WITH even the crappy stuff still going on at the same time.
Who knows? Maybe at some point your tinnitus will abate wholly or partially. Maybe yes, maybe no. You can definitely learn to cope and also maybe get aides for the hearing.
Yes, I am SURE that you are completely frustrated with the doctors appointments not yielding help. I went through something like that in my late 20s and it was SO distressing.
All I can say is, please have patience even though all that has been frustrating, because lots of things are frustrating in this imperfect world, but YOU are worth it, and you've got to keep fighting for YOU.
Just don't waste your time by staying in the perpetuating negative cycle. I know that when I was in my 20s and 30s, I tended to stay negative about things waaaaaaaaay longer because of that thing that all younger people have where we still believe, like the childhood thinking we just left behind, that we have "all" the time in the world. But we don't. From here at age 53, the perspective changes, as you can imagine, and time becomes even more of a precious commodity, and so when something bad happens, for me, at least, I of course am human and grieve it. But I make myself get up from a blow a whole lot faster, because I don't have the time to hang out forever in a pit of despair.
I care about you. I care that you're going through such a hard time. I truly believe that you can learn to cope with this better, which would be the starting point. The "happiness despite having these problems" will come a little later on. But how about just changing your thinking, one tiny little bit, from "How can I stand this, it sucks?" to "HOW can I proceed better, despite this?" Just one or two creative coping techniques, and you will be taking your first steps.
Do things you can do for yourself, despite doctors not helping, etc. Enroll in the tai chi, or the gym, or whatever makes you happy. Get good earplugs off amazon or someplace, too. I have a pair that I use in loud situations, and they come stored on a keychain so they're always with me.
Also I didn't have everything going for me before this (yes i know what quote says). But it was ok. I had health problems before this issue and take medication for it. I hated life but felt I was going in right direction. But probably quitting job soon and possibly attempting to return to school. But who knows at this point. This isn't living anymore.
@jdjd09 Just read what you wrote above, which you must have been writing as I was typing my usual book (see above).
Do me a favor? Instead of looking into euthanasia, look into something positive to do, for the next several months, that is COMPLETELY unrelated to tinnitus, hearing loss, cures, or anger?
Really!
Make a plan, for several months, to do something COMPLETELY UNRELATED.
It will make you focus AWAY from CULTIVATING negativity, which is what you do now.
Volunteer somewhere? Take a class that is easy and doesn't require too much concentration? Join a hiking club? Just something, anything. Whatever makes you feel a spark of interest ...
Damn it, man! Do THIS: See yourself as a 40-year-old man, in a happier frame of mind, looking back at the distressed 28-year-old you once were, and breathing a sigh of relief, saying to yourself, "Wow. I am SO glad I hung out and hung in there. Things DID get better. So glad I developed a bigger perspective and toughed it out."
Sending a real hug.
Do me a favor? Instead of looking into euthanasia, look into something positive to do, for the next several months, that is COMPLETELY unrelated to tinnitus, hearing loss, cures, or anger?
Really!
Make a plan, for several months, to do something COMPLETELY UNRELATED.
It will make you focus AWAY from CULTIVATING negativity, which is what you do now.
Volunteer somewhere? Take a class that is easy and doesn't require too much concentration? Join a hiking club? Just something, anything. Whatever makes you feel a spark of interest ...
Damn it, man! Do THIS: See yourself as a 40-year-old man, in a happier frame of mind, looking back at the distressed 28-year-old you once were, and breathing a sigh of relief, saying to yourself, "Wow. I am SO glad I hung out and hung in there. Things DID get better. So glad I developed a bigger perspective and toughed it out."
Sending a real hug.
I know you didn't have an "everything going for you" life before this. I have read all your posts. I am also going to be presumptuous and say you probably had this negative outlook, too, before all this. But I say that with caring, because when we grow up in hard family situations, the negativity is almost a given. It needs to be worked through.
Do you REALIZE how strong you really are? To have pulled through your childhood and kept on trying despite whatever all that entailed? Do you realize???
I struggled with all that. I am here to say it can all be come through, and, you can even enjoy yourself while you come out of the haze of a rough start. Not only will you no longer hate life, you will come to love it and to love and cherish yourself. I think you already do; otherwise you wouldn't be so very angry on your own behalf.
Now let's channel that anger into a little more self love. Hang in there for yourself.
Do you REALIZE how strong you really are? To have pulled through your childhood and kept on trying despite whatever all that entailed? Do you realize???
I struggled with all that. I am here to say it can all be come through, and, you can even enjoy yourself while you come out of the haze of a rough start. Not only will you no longer hate life, you will come to love it and to love and cherish yourself. I think you already do; otherwise you wouldn't be so very angry on your own behalf.
Now let's channel that anger into a little more self love. Hang in there for yourself.
Everything? I don't think you've really been paying attention to what he has been saying over the past couple months.
There is a reason that a very large majority of people with tinnitus eventually no longer suffer and live a normal, happy life where tinnitus is just a sound that does not bother them. Based on everything he has said, I have no reason to believe his tinnitus or hearing loss is severe enough to prevent him from being one of those people. More than anything else, his attitude and outlook is holding him back. More than the tinnitus and more than the hearing loss.
What is the support value of telling this to someone who wants to end his life? Seriously, I don't understand.
-Mike
It's good you may return to school. Hopefully it would be for something you truly enjoy and can take your mind off things.
Have you been to an audiologist yet?
-Mike
- Aug 14, 2013
- 2,455
- Tinnitus Since
- Resolved since 2016
- Cause of Tinnitus
- Unknown (medication, head injury)
Hope is a good thing; false hope, I am not such a fan of, however. And there is certain amount of false hope on these threads. Here is a prime example:
Inspiring words indeed, but, unfortunately not so convincing when the same member writes on his profile - in practically the "same breath of air" - that:
Words of encouragement that come without substance, are so hollow right?
It seems like certain members comment on support threads as a form of self-therapy: "If I can convince someone else that I am doing fine, then perhaps I can also convince myself" - that kind of logic. And a logic I am very allergic to.
- Dec 17, 2015
- 577
- Tinnitus Since
- December 2nd, 2015
- Cause of Tinnitus
- Acoustic trauma (loud concert for 1h)
I don't get it. Have you started to use hearing aid? I asked you once before but not sure that I ever got an answer.
If not, do it. I don't see how quitting your job is going to make anything easier for you in life. Why don't you ask your boss for some time off? Or go to a doctor and have him write a sick leave for a few weeks?
I had to take some time off when it started for me, it wasn't that long but it was a few days here and there. Just because I couldn't cope with having to perform when I didn't feel good. But then again, it's mostly because I hold myself against high standards, and cannot do half-assed work without feeling like I am totally incompetent.
@attheedgeofscience, don't take this the wrong way, but I don't feel that hanging someone out (with full nickname and all) is very nice. I would have at least crop the name out and try to make it more discrete, someone might feel like they are being targeted. I am sure we all have dips in our mood (I know I had) and lost hope, and then feeling better again. Like I said, I mean this in the best way I can
If not, do it. I don't see how quitting your job is going to make anything easier for you in life. Why don't you ask your boss for some time off? Or go to a doctor and have him write a sick leave for a few weeks?
I had to take some time off when it started for me, it wasn't that long but it was a few days here and there. Just because I couldn't cope with having to perform when I didn't feel good. But then again, it's mostly because I hold myself against high standards, and cannot do half-assed work without feeling like I am totally incompetent.
@attheedgeofscience, don't take this the wrong way, but I don't feel that hanging someone out (with full nickname and all) is very nice. I would have at least crop the name out and try to make it more discrete, someone might feel like they are being targeted. I am sure we all have dips in our mood (I know I had) and lost hope, and then feeling better again. Like I said, I mean this in the best way I can
Well, yeah, of course it is a form of self-therapy. This is precisely why people who are suffering seek out support groups. And if you look at the top of the page, this is "Tinnitus Talk Support Forum." People who come here and offer support don't have to be 100% cured or habituated in order to offer someone else hope. Maybe the guy in your example suddenly started having a bad day, so what? If he can still find a way to help someone else, even if for only a moment, that should be commended.
Then perhaps a support forum is not the best place for you to hang out.
-Mike
Everybody's situation is different. For some, staying in the job could be helpful. For others, changing the job or going back to school could be helpful. We don't know the actual situation with this particular poster's job. He's also said that he's taken off all the time they'll give him and that some doctor visits have resulted in no results (happens a lot with this tinnitus, it seems). So maybe he needs some time to regroup before he begins the next round of trying things. In any event, I wish him the best as he makes his way through this. That hearing aide may be a real benefit ...
@jdjd09 : I will be 30 years old in a few days. I've had tinnitus, hyperacusis and hearing loss for 12 years. These 12 years have mostly been amazing. I did not realize it soon enough, that's my biggest regret.
Things worsened three months ago (new noise trauma). It's hard. Pain, dark thoughts. My tinnitus, hyperacusis and hearing loss are severe. I'm in a struggle to get a worthwhile life back. I don't know when this will happen, but somehow, I know it's possible.
This will never be easy. Don't let anyone tell you it's easy. This will take time.
This is my first message on Tinnitus Talk. It's for you because I know too well what you are going through. You can't give up now. I don't.
By the way : my brain is all right after all these years of hearing loss. Not stellar I guess, but it never was
Things worsened three months ago (new noise trauma). It's hard. Pain, dark thoughts. My tinnitus, hyperacusis and hearing loss are severe. I'm in a struggle to get a worthwhile life back. I don't know when this will happen, but somehow, I know it's possible.
This will never be easy. Don't let anyone tell you it's easy. This will take time.
This is my first message on Tinnitus Talk. It's for you because I know too well what you are going through. You can't give up now. I don't.
By the way : my brain is all right after all these years of hearing loss. Not stellar I guess, but it never was
@Foncky Welcome! I am in a two-person club with you, because I signed on after lurking because I want to encourage @jdjd09 too.
Your post is wonderful. I am glad you have done well despite.
And you're right: even though it's normal and human to grieve and feel bad when something bad happens, it is SO important to get to a better place and not stay really down forever. There is much that lays ahead on the unknown path that could be brighter and better.
Your post is wonderful. I am glad you have done well despite.
And you're right: even though it's normal and human to grieve and feel bad when something bad happens, it is SO important to get to a better place and not stay really down forever. There is much that lays ahead on the unknown path that could be brighter and better.
@jdjd09 Just read what you wrote above, which you must have been writing as I was typing my usual book (see above).
Do me a favor? Instead of looking into euthanasia, look into something positive to do, for the next several months, that is COMPLETELY unrelated to tinnitus, hearing loss, cures, or anger?
Really!
Make a plan, for several months, to do something COMPLETELY UNRELATED.
It will make you focus AWAY from CULTIVATING negativity, which is what you do now.
Volunteer somewhere? Take a class that is easy and doesn't require too much concentration? Join a hiking club? Just something, anything. Whatever makes you feel a spark of interest ...
Damn it, man! Do THIS: See yourself as a 40-year-old man, in a happier frame of mind, looking back at the distressed 28-year-old you once were, and breathing a sigh of relief, saying to yourself, "Wow. I am SO glad I hung out and hung in there. Things DID get better. So glad I developed a bigger perspective and toughed it out."
Sending a real hug.
I am trying to do that, find something else to do. But, I don't know how things will be positive again. I wonder if by 40 things will be worse by then. Much less ever dating or getting married or anything like that. I don't understand how to be positive anymore with this. I really don't. I wish there was a pill I could take, without side effects, that allowed for positive life.
Yes, but I'm probably going to have to move back into that hellhole of a house in the fall to go back to college. I can't stand debt and should have enough money saved up at that point to go back to college and have it paid for 2 years with no debt (it's cheaper in state tuition). They live in city of that college. But...I don't know how I will ever live with them and keep my sanity.
@Michael2013 , I am going to try to complete my Computer Science degree there, which I enjoyed before this issue. I am unclear how I will get through classes with this issue now though. Plus, living with mentally abusive household for 2 years...
No, I haven't seen audiologist. I have looked around, but none really meet on the weekend. Costco is open on weekend, but they aren't audiologist. On top of that, I cancelled the AM-101 meetings because they kicked me out of the trial. They were just using me for money, I can pretty much tell by there attitude. They never gave me steriods, which was better idea to give first. Instead, they just pushed there trial drug to make a buck.
How will this get better for me you think? I'm 3-4 months into this issue. I question how it will get better. How will it get better?
I don't get it. Have you started to use hearing aid? I asked you once before but not sure that I ever got an answer.
If not, do it. I don't see how quitting your job is going to make anything easier for you in life. Why don't you ask your boss for some time off? Or go to a doctor and have him write a sick leave for a few weeks?
I had to take some time off when it started for me, it wasn't that long but it was a few days here and there. Just because I couldn't cope with having to perform when I didn't feel good. But then again, it's mostly because I hold myself against high standards, and cannot do half-assed work without feeling like I am totally incompetent.
@attheedgeofscience, don't take this the wrong way, but I don't feel that hanging someone out (with full nickname and all) is very nice. I would have at least crop the name out and try to make it more discrete, someone might feel like they are being targeted. I am sure we all have dips in our mood (I know I had) and lost hope, and then feeling better again. Like I said, I mean this in the best way I can
No, I haven't seen audiologist yet. None meet on weekends and I pretty much burned through most all my PTO times. So, lost how to do that now.
@jdjd09 : I will be 30 years old in a few days. I've had tinnitus, hyperacusis and hearing loss for 12 years. These 12 years have mostly been amazing. I did not realize it soon enough, that's my biggest regret.
Things worsened three months ago (new noise trauma). It's hard. Pain, dark thoughts. My tinnitus, hyperacusis and hearing loss are severe. I'm in a struggle to get a worthwhile life back. I don't know when this will happen, but somehow, I know it's possible.
This will never be easy. Don't let anyone tell you it's easy. This will take time.
This is my first message on Tinnitus Talk. It's for you because I know too well what you are going through. You can't give up now. I don't.
By the way : my brain is all right after all these years of hearing loss. Not stellar I guess, but it never was
How bad was your hearing loss and tinnitus the first time? How were you able to live a happy life with it? Did you have a hearing aid? How did people react to the hearing aid in your 20s? Why was your time so happy with the issue?
@Foncky Welcome! I am in a two-person club with you, because I signed on after lurking because I want to encourage @jdjd09 too.
Your post is wonderful. I am glad you have done well despite.
And you're right: even though it's normal and human to grieve and feel bad when something bad happens, it is SO important to get to a better place and not stay really down forever. There is much that lays ahead on the unknown path that could be brighter and better.
@Path Maker , I just don't see how to see things brighter in this situation. The negativity effects my realations with others, my negativity is fulled by the ringing and hearing loss, and the hearing loss makes me not want to attempt to socialize with people.
@jdjd09 What I respect from you is your honesty about your feelings. You don't try to whitewash how you are feeling just to get along here, and you shouldn't have to. You feel crappy and you say it.
So, yes, I agree that you feel and have a lot of negativity in your life right now, with reasons for that. And I agree that you have a hard time seeing how things can be brighter. What my psychologist used to say to me (and remember, I went through something similar to this in MY late 20s) is this: "Even if you yourself can't see the positive and the possibilities right now (because, it is hard for the person going through the suffering to see positively), please somehow just TRUST that the positive does exist and can come to you in the future."
In other words, hold out hope and keep putting one foot in front of the other. And, try to DISENGAGE from the ENDLESS CYCLE of NEGATIVE THOUGHTS. <<--This cycle is like a boxing glove smacking you down again and again, day after day. That's what the negative thought cycle is. You can get away from the boxing glove, even if you still have your problems. Try not to let the boxing glove of your negative thoughts keep hitting you down. Try to just ... be.
Let me say that again: Try to just ... be.
Breathe, endure, seek distraction in anything you can - movies, walks, etc. Allow yourself to be on temporary hold for a few months as you sort this all out.
Just ... be.
Also, with regard to having to move back home, even though you hate debt, if you have enough saved for the tuition, can you at least take out a loan to be able to pay the rent on one tiny studio apartment in the college town for at least one year? That wouldn't be so much debt, and it would give you the peaceful oasis you deserve. "Home" won't help you. I'd rather a small debt and my peace of mind. You are worth that!
So, yes, I agree that you feel and have a lot of negativity in your life right now, with reasons for that. And I agree that you have a hard time seeing how things can be brighter. What my psychologist used to say to me (and remember, I went through something similar to this in MY late 20s) is this: "Even if you yourself can't see the positive and the possibilities right now (because, it is hard for the person going through the suffering to see positively), please somehow just TRUST that the positive does exist and can come to you in the future."
In other words, hold out hope and keep putting one foot in front of the other. And, try to DISENGAGE from the ENDLESS CYCLE of NEGATIVE THOUGHTS. <<--This cycle is like a boxing glove smacking you down again and again, day after day. That's what the negative thought cycle is. You can get away from the boxing glove, even if you still have your problems. Try not to let the boxing glove of your negative thoughts keep hitting you down. Try to just ... be.
Let me say that again: Try to just ... be.
Breathe, endure, seek distraction in anything you can - movies, walks, etc. Allow yourself to be on temporary hold for a few months as you sort this all out.
Just ... be.
Also, with regard to having to move back home, even though you hate debt, if you have enough saved for the tuition, can you at least take out a loan to be able to pay the rent on one tiny studio apartment in the college town for at least one year? That wouldn't be so much debt, and it would give you the peaceful oasis you deserve. "Home" won't help you. I'd rather a small debt and my peace of mind. You are worth that!
@Path Maker , thanks again for response. I read entire thing, so sorry if this response is short as its late. I guess I wanted to rrspond to one part, want to respond to more but it's getting late. Rent around here is expensive and also apartments are noisy. It's what lead me to this curew t bearing situation possibly. So, I don't want to live with them but I really don't know a better alternative. My current apartment would be good, but I can't afford it without my current job.
- Dec 17, 2015
- 577
- Tinnitus Since
- December 2nd, 2015
- Cause of Tinnitus
- Acoustic trauma (loud concert for 1h)
Can't you take unpaid leave off? I mean, if you are wanting to quit anyway, or think you'll get fired, then it is better to try to do something (seeing the audiologist) rather than just not do anything and just getting unemployed?
I hear you about the high rents, jdjd09! Well, one thing at a time! Perhaps you can seek out a quiet house or apartment share with a roommate or two to cut costs. People who are also looking for quiet. You could always post an ad like that or answer one if you find it. There surely are others who like quiet housing. Hope you're having a good day!
Thank you !@Foncky Welcome! I am in a two-person club with you, because I signed on after lurking because I want to encourage @jdjd09 too.
Your post is wonderful. I am glad you have done well despite.
And you're right: even though it's normal and human to grieve and feel bad when something bad happens, it is SO important to get to a better place and not stay really down forever. There is much that lays ahead on the unknown path that could be brighter and better.
I agree with Ateos too : we must be honest with ourselves and with other members.
This journey is extremely difficult but most people succeed and become stronger. Some don't however, and we should never leave them behind.
The tinnitus was mild at first. It got worse very slowly over the years... Because I didn't always want to admit I had a problem. So I exposed myself to loud environments sometimes. But I was still ok with T until last December. About the same story for hearing loss.
You care about your ears, and that's great. I didn't when I was 18. You will protect them and that's what matters.
If I remember well, your hearing loss is mild, in just one ear. Many, many young people have it worse than you but don't even realize. You have the privilege to be fully aware of your condition. It is a privilege because you can protect yourself.
I had to give up on many things. That was tough. It still is. That doesn't mean my life was screwed :
- I got a degree
- got a job
- met a fantastic girl
- made fantastic friends
- went into extreme sports
- we travelled a lot, I mean a LOT, all over the world
- I wrote books, went into photography and filmmaking
Around me, many people with no chronic disease are not happy at all. My life is not the one I wanted at first. Not at all ! But boy, I'm lucky. Now It's time for me to give up on more things and find new challenges. All the pain has to lead somewhere. Maybe I will write a good book for once
I'm currently starting a small business. So I can work from home and still make something new and interesting.
Still no hearing aids. My high frequencies are burst, but I understand speech quite well. I feel like I don't need HA for now. I wouldn't care what people think about it. I even think the new generation of HA looks cool, very futuristic !
Because the issue is not my life. My life is something bigger. I can't imagine dying now. I want to contribute more to this world.
Thanks for the reference
Yes I said 70% and not 100%.
Sometimes it still really bothers me and then I am entitled to post messages like that.
Correct me if I'm wrong?
But what you interpret out of this is ridiculous and looks like you want to degrade someone.
Oh yes, you are the big one with the secret news from all T scientists around the world. You can say whatever you want. Sorry I forgot this
Recommendation: Maybe you should pay more intention to posts which really matter instead of scrolling through my profile page and making screenshots of everything.
"Then, I noticed that one or two members had somehow gotten notice of my new stem cell information and so I decided to share a bit more information on it with forum members (normally I would just share such information in the Facebook group I run, but I thought it might be interesting for TT-members as well)."
https://www.tinnitustalk.com/thread...us-cases-resolve-in-a-year.14002/#post-172234
You think you're something special with your private facebook group hiding information unless some members on this forum are interested in your new stem cell information. So then why don't you stay in your facebook group instead of fooling around here with a private group on facebook where you publish secret information not available for everyone. That's a logic I am very allergic to.
I see a lot of people mentioning you in their posts and expecting a response from you. You cannot respond to all of them, that's fully understandable. But in most cases you respond to no one and if someone mentions this you state something like "Hey my work on a weekend is worth more than $1000". Don't understand me wrong, you're doing a good job. But such a statement is just arrogant.
Another recommendation. Saw that you are embedding a lot of pictures in your posts. Some of them are definitely not licensed under Creative Commons and even if that's the case you have to mention the author depending on the specific CC license. So you have no rights to publish these pictures and violate existing copyright law. Big mistake for an "Advocate" but let's turn a blind eye
Here's one prime example:
https://www.tinnitustalk.com/thread...c-channel-activators.14531/page-5#post-174919
Ok, so I will respond to previous comments, but please keep any infighting or conflicts outside the topic to PM or please start another thread. I would like to be able to respond in detail later to some of these posts and not have the thread shut down like some other threads have been in past due to conflicts in the post. Thanks.
- Aug 14, 2013
- 2,455
- Tinnitus Since
- Resolved since 2016
- Cause of Tinnitus
- Unknown (medication, head injury)
"Sometimes"...? The following statements from you seem more general in nature:
- "Where is the cure? We live in the 2016. Don't want to wait any longer."
- "Dear scientists out there. Please help us! We had normal lifes and are suffering now one day after another."
Keep on digging your own hole deeper and deeper.Oh yes, you are the big one with the secret news from all T scientists around the world. You can say whatever you want. Sorry I forgot this
When you post to your profile, it shows up on the front-page of TinnitusTalk. So, I do not really have to scroll through your profile page to see what you write. I cannot help but notice it, in fact.
Thanks, but a pat on the back doesn't pay the bills. Arrogance comes from those members that seem to think that my time (or anybody else's time for that matter), effort and knowledge is something which can be expected. Strange that people think that way when they willingly pay outrageous parking fees, fees for going to the toilet on the German autobahn, not to mention going to the dentist in countries that have some of the high incomes taxes in the world (e.g. Denmark).
I also find the dissonance between suffering and the participation to help in even the smallest way interesting. For instance, I have been part of delivering high quality material to the newsfeed of TinnitusTalk - content that is very share-able. It is such an easy thing to partake in that exercise - costs absolutely nothing. And... folks here have no problem spending hundreds of dollars on appointments with tinnitus-specialists all over the country (to no avail in 99% of cases). But a click with a mouse button to rate a post on Facebook seems to cause problems for a certain majority of the members.
So who is arrogant?
Go to the ratings page here...
https://www.tinnitustalk.com/members
...and you will see that I have +2000 posts on TinnitusTalk. I think I have done my "citizen duty" with that amount of posts. Especially when you factor in the fact that I track down reliable information to base my posts on (unlike a not insignificant number of members who post the first random thought that pops into their heads).
Lastly, a lot of material that I am asked to comment on is just - well - a waste of time. Questions here are so absurdly theoretical - like "when and how does tinnitus become chronic?" - well, hell, not even the best scientists know that. So how the hell should the average poster be able to comment on that. The best anyone can do is share information where the content can be both verified and has value e.g. a future clinical trial that is known to go ahead. That has value (provided it is verified). Discussing things like "pharma company x, y, z and which is researching hearing loss should modify their patient profile to be such and such because that might also help tinnitus patients" - hmmm... and when did all of you suddenly become experts on a pipeline pertaining to research that is not publicly available? Utterly ridiculous.
At the moment, I am pursuing a lot of interesting information in the background with stem cell research. And also other things. And believe it or not, but I am quite capable of finding out how, when, and where to spend my own time.
Sebastians
Member
- Jan 12, 2016
- 375
- Tinnitus Since
- 10/2015
- Cause of Tinnitus
- Guitars, loud girls and guns
Please, everybody, jdjd09 just requested that fighting not happen on this thread. One of his recent threads was closed down due to fighting. He is just trying to have a thread for help, here in the Support section. Please let's just let that happen. There is a real person out there who is seeking support. Thank you!!!
How can you protect something that can't be protected? Loud sounds is everywhere we go. Example I wear noise canceling headphones when I go outside to avoid loud noise however I still manage to hear some loud event no matter how careful I am. Either someone screaming in the house or some idiot trucker blowing his horn outside my window. Point is protecting ones hearing is impossible when we live in such a loud world. Unless we moved out to the woods which would require complete isolation.
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