So Sad and Hopeless : Update

Today has been a terrible day for me ! Very scared this is never going away I had hearing loss from for 3 months had tympanic ear injections and this has gotten worst do not want a cat scan or MRI sick of all of it
I'm so sorry you had a terrible day and are so scared. Come to forum for support. You are not alone :huganimation:
 
More information on the Sage NMDA -Methyl-D asperate receptor program made available today by Market Realist under Company News Insights and Analysis on Yahoo Finance. Neuro indications is mentioned, but tinnitus (in word) isn't mentioned as it IS in above post link on pages 82 and 83. They plan to start dose studies in the second quarter. Why is this all so important! They have Breakthrough Therapy from the FDA. This is from animals to humans. Animal discussion in link below, but Sage has far advanced that for humans as discussed in recent news releases.

http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0077674
 
More information on the Sage NMDA -Methyl-D asperate receptor program made available today by Market Realist under Company News Insights and Analysis on Yahoo Finance. Neuro indications is mentioned, but tinnitus (in word) isn't mentioned as it IS in above post link on pages 82 and 83. They plan to start dose studies in the second quarter. Why is this all so important! They have Breakthrough Therapy from the FDA. This is from animals to humans. Animal discussion in link below, but Sage has far advanced that for humans as discussed in recent news releases.

http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0077674

Does the NMDA Methyl-D asperate receptor deal with processing D-Aspartic Acid by any chance and would that mean D-Aspartic Acid could cause Tinnitus?

The reason I'm asking is, that I was doing a weight training program right around the time i developed Tinnitus...
DAA is contained in lot of Testostrone boosting supplements these days as one of main ingredients, as it supposedly does a good job at doing just that.
The stuff I was using had DAA in it...could there be a connection?
 
@Starthrower
Hi Star. Thank you so much for checking in and thinking of me.

I'm not doing so well. Tinnitus has gotten worse.
It's gotten more intense the last few days. I use to have some milder periods. But not recently. Its been more relentless. It's sharper and louder; it physically hurts. I'm really scared, Star. I don't know if it's related to withdrawal from Clonazepam. I don't know. I'm feeling very desperate.
 
I'm not doing so well. Tinnitus has gotten worse.
It's gotten more intense the last few days. I use to have some milder periods. But not recently. Its been more relentless. It's sharper and louder; it physically hurts. I'm really scared, Star. I don't know if it's related to withdrawal from Clonazepam. I don't know. I'm feeling very desperate.

@TracyJS I understand and appreciate your honesty. I was you back in 2002 through about 2004. I slowly began my journey back to life. There were many ups and many set backs. I almost gave up.

It is really hard to talk about medical things like medications responsibly on a forum. I learned that the hard way back then. I was afraid because so many posters were against what my personal doctor recommended. But I made the decision to get off my butt and push forward. I needed to start with anxiety from the loud noise that was like screeching brakes non-stop and the level of loudness often knocked me out of bed.

Blah blah....the story goes on and on.

Are you able to secure any medical doctor that would be willing to discuss the issue of your anxiety medication and your tinnitus? And also include other types of stress/anxiety therapies that can be found free on the internet if you are unable to find a therapist due to your financial situation.

What is your usual day like? Are you able to get out and about at all? I wasn't. I took small steps to get out of the house and now I am back to mostly normal. I avoid many situations but it isn't a big deal thing for me.

It helps if you start the move forward. I think reading all about addiction to anxiety medications is increasing your fears and anxiety and tinnitus. You have to decide what will make your life better right now.

I try to get on line as much as possible but have to limit my time.

Ugg...life is full of crapola. I am dealing with a bout of tremendous non-stop pain which isn't good with tinnitus. It is really hard to sit here for too long. Been through tests and tests. No real help yet. But, I know somehow I will get through this. I am just trying to avoid major surgery if possible.

And I have to again explain tinnitus/hyperacusis to each specialist and there is little concern or understanding from them.

But....life goes on and I am dealing with it day to day. Just like with tinnitus.
 
@TracyJS It's awful. Horrendous. Terrifying. Totally inhuman what we suffer. I nearly ended my life tonight but my brother called me. He told me understood that what I'm going through is hell but he loves me. He doesn't want me to die. Just hearing him tell me he loves me and wants me to get better, however impossible that seems, kept me going a little bit longer. I hope you have someone, anyone that feels that same way about you and if you do just try and keep fighting. I'm with you. I know and feel your pain.xx
 
@Bam
I'm so glad your brother called you tonight and told you that he loves you and that he doesn't want you to die. I know you are suffering so greatly. Yes, I think I have someone who feels that way about me. Maybe we can both keep fighting a little bit longer.

Thank you. Your words touched me deeply. I'm with you, too. xx
 
@Starthrower
I'm so sorry Star that you are having chronic pain right now and have been unable to get any help yet. That's so hard. I hope you can get some help soon.

I try and get out some most days. It's difficult at times.

You are right: I have read so many negative fearful things about anti anxiety medication that I'm so scared to take it. I'm still on a tiny dose of Clonazepam because I'm afraid to stop. I tapered because I was afraid to stay on. What scares me the most is all the stories about it making tinnitus in the long term so much worse. Yet, I am struggling mightily with horrible anxiety.
I feel paralyzed by it all. The fear for me is so great. Especially because I think maybe tinnitus has worsened since reducing the Clonazepam.

I'm not sure I could find a doctor who would know much about tinnitus. But I could possibly see someone about anxiety.

I am looking into clinical hypnotherapy also for anxiety.

This is such a hard decision.

I'm scared Star.
 
This is such a hard decision.

I'm scared Star.

I know. I went through it also. I fought to find the right person to help me. I would take a step forward and then retreat back a few. But once I dealt with the anxiety I was able to move a bit further forward.

It is fricking lonely @TracyJS even being in a good marriage. There was that space inside of me that was so lost. Somehow I got this determination that I would fight and not give up.

Just keep writing here even if something made you smile for a moment. Those moments are important because as an exercise I would have to remember that moment and try to feel it again. The negative weighs so much more in our brains. I still fight that once in a while.
 
It is fricking lonely @TracyJS even being in a good marriage. There was that space inside of me that was so lost. Somehow I got this determination that I would fight and not give up.
It is so lonely, Star. I don't have a partner, so perhaps it's even more lonely.

I'm trying to find that determination. Don't know that I found it yet. The negative is just so powerful for me. I feel terrorized by tinnitus and the anxiety.

I feel overwhelmed by trying to find someone to help.
 
73FBF65F-0A2F-40BC-9ABC-68C382DA9138.jpeg
@Starthrower
Here is a picture of Riley....something positive.
 
Riley is beautiful!

I feel terrorized by tinnitus and the anxiety.

Just remember I was you back then. One step first is the hardest. Calm that inner anxiety and slowly things will turn around. You are in the first year and I remember that year.
 
It is so lonely, Star. I don't have a partner, so perhaps it's even more lonely.

I'm trying to find that determination. Don't know that I found it yet. The negative is just so powerful for me. I feel terrorized by tinnitus and the anxiety.

I feel overwhelmed by trying to find someone to help.

Dear Tracy
- you are very brave to mention the full extent of your fears and anxiety, and your loneliness.
Everybody here that has heard you, worries about you, loves you and wants you better.
As Star says, you are in the toughest phase.
If we could actually meet you sweetheart, you'd get the biggest

{{{{{{{SQUEEZY-HUG}}}}}}

Keep coming here, and soaking up the love babe,
(......er......tell Riley I love him xx)
Dave
xxx
 
@TracyJS ,
We are all hear for you anytime xxx
Life will get better and anxiety will settle when you are more at ease with your tinnitus and the changes that come and go.
Emotions play a big part in how we cope day to day so don't worry about the future and try to find peace in ways that can help you.
We all care about you as a member of our Tinnitus Talk family so your never alone and support eachother through hard times and better times do come.
love glynis x
 
It is so lonely, Star. I don't have a partner, so perhaps it's even more lonely.

I'm trying to find that determination. Don't know that I found it yet. The negative is just so powerful for me. I feel terrorized by tinnitus and the anxiety.

I feel overwhelmed by trying to find someone to help.

Keep your spirits up and know that this forum is here to support you!!!
 
@TracyJS I understand and appreciate your honesty. I was you back in 2002 through about 2004. I slowly began my journey back to life. There were many ups and many set backs. I almost gave up.

It is really hard to talk about medical things like medications responsibly on a forum. I learned that the hard way back then. I was afraid because so many posters were against what my personal doctor recommended. But I made the decision to get off my butt and push forward. I needed to start with anxiety from the loud noise that was like screeching brakes non-stop and the level of loudness often knocked me out of bed.

Blah blah....the story goes on and on.

Are you able to secure any medical doctor that would be willing to discuss the issue of your anxiety medication and your tinnitus? And also include other types of stress/anxiety therapies that can be found free on the internet if you are unable to find a therapist due to your financial situation.

What is your usual day like? Are you able to get out and about at all? I wasn't. I took small steps to get out of the house and now I am back to mostly normal. I avoid many situations but it isn't a big deal thing for me.

It helps if you start the move forward. I think reading all about addiction to anxiety medications is increasing your fears and anxiety and tinnitus. You have to decide what will make your life better right now.

I try to get on line as much as possible but have to limit my time.

Ugg...life is full of crapola. I am dealing with a bout of tremendous non-stop pain which isn't good with tinnitus. It is really hard to sit here for too long. Been through tests and tests. No real help yet. But, I know somehow I will get through this. I am just trying to avoid major surgery if possible.

And I have to again explain tinnitus/hyperacusis to each specialist and there is little concern or understanding from them.

But....life goes on and I am dealing with it day to day. Just like with tinnitus.

Star - when I think of all the suffering you have come through, and for so long, I have to say that your ongoing determination and courage amazes me.

You really helped me, as I think you know, first of all by your lovely humanity and warmth. xx

Also, when we read about somebody who has had this thing so bad, and yet managed to survive it, and win though, it gives us all the hope that we can with courage and determination, get there also.
I am so sorry you now have this chronic pain to contend with.
It seems that life has turned us all into reluctant heroes.
So unkind - so unfair.
It is so important to me that, in a very real sense, we all have each other.
We recognise each other - and we know - we just know.
I am sincerely hoping for better days for every single one of us.
I love you folks,
Dave. xx
Jazzer.
 
@Starthrower @emmalee
Yes, Riley is beautiful. She's such a love.

@ Starthrower
Yes, it's the first year. The hardest year. Thank you for caring about me ❤️

@Jazzer @glynis @dayma
Thank you. I appreciate so much the love and support of everyone here. ❤️❤️❤️
Being a part of the TT family helps me feel less alone.

Damn it - I knew I'd get Riley's sex wrong (again.)
Well if you must name a cat after a motor car....???
 
It is so important to me that, in a very real sense, we all have each other.
We recognise each other - and we know - we just know.
I am sincerely hoping for better days for every single one of us.
I love you folks,
Dave. xx
Jazzer.

I agree with all that you say here, Dave. How wonderful that we can come here and be greeted with open arms and open hearts. I don't know what I would have done if I had not found this place.
 
I'm sorry you feel that way Tracy. Stick with it. Time is the greatest healer.
 
Hi everyone,
I am not doing so well. Some attempts I have made to get help this week, unfortunately, haven't worked out. I'm really starting to lose hope. I feel like I'm sinking.
My tinnitus has been really bad and my anxiety has increased.
I don't know how much more I can keep going like this.
I'm scared.
 
Four months is very short time even if it can feel as a life time for a sufferer. You are still in your early stages and a lot can and will improve over time, trust me on this. H is not a permanent state, it will go away but you need to sleep well and stress a lot less. Your T can also improve a lot over time if not go away completely. Its important you rest your ears from loud noise and try to get good sleep.

Trust me when I say that four months is still very early and things will improve.
 
@TracyJS wish I could say something to help you, it's a vicious circle... especially if you're reaching out for help and don't seem to get anywhere. Try and keep active as much as you can, and all you can do is give it time and let your body adjust. Also just come on here and have a good ole rant and release some tension.

Ps Riley is just beautiful :)
 
@TracyJS

Tracy, I have come across a quote that I want to share with you. Sometimes I just can't find the words within myself to express what I would like to say to you. We all support you and care for you, please know this.

"Your trauma is valid. Even if other people have experienced "worse". Even if someone else who went through the same experience doesn't feel debilitated by it. Even if it "could have been avoided". Even if it happened a long time ago. Even if no one knows. Your trauma is real and valid and you deserve a space to talk about it. It isn't desperate or pathetic or attention-seeking. It's self-care. It's inconceivably brave. And regardless of the magnitude of your struggle, you're allowed to take care of yourself by processing and unloading some of the pain you carry. Your pain matters. Your experience matters. And your healing matters. Nothing and no one can take that away."
 

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