Drone Draper
Member
Sure. I appreciate that. I don't think I do, either. I will wait to see what John's results are like before making my decision.
Solsaem Clinic (Dr. Minbo Shim) Experience
- Thread starter JohnAdams
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It is still basically the same. Still fluctuating like it used to. No dramatic changes. As I've stated before I feel like my right ear is clearer but there has been no dramatic changes or any breakthroughs.
That being said my recovery period is a few months and I'm only a week and a half post treatment therefore I'm still very hopeful. Time will tell.
Drone Draper
Member
Maybe, a little, not enough to really say yes or no.
I'm not so sure that this would be a linear, gradual improvement anyway. If this works, I'd expect to just wake up one day with less tinnitus and better hearing. But then again we don't have any accounts of anyone that has successfully had their hair cells regenerated so how can we know what to expect?
I wish I had something better to report at this point.
Drone Draper
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Well if this doesn't work, I'm going to look like a biased zealot for defending your placebo effect and it will also prove that Ed was right. I am starting to believe this is a scam. I'll give a 14 day (2 week) window before I declare this a scam.
@threefirefour
@threefirefour
Drone Draper
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Drone Draper
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Drone Draper
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He just said it would take a few months. No curve given. He did say my ears will be very vulnerable though and to wear ear plugs when I'm driving etc.
I wonder if my brain will have to re adjust to hearing sound and if the tinnitus will persist in the presence of silence for sometime.
The reason I say that is because I can flex my jaw and make my tinnitus get really loud and then for a few seconds the tinnitus is gone and comes right back. I'm thinking that even if I start hearing my lost frequencies again that as soon as those frequencies aren't sounding that my brain will be like, eeeeeeeeee, again and will have to slowly retrain.
The reason I say that is because I can flex my jaw and make my tinnitus get really loud and then for a few seconds the tinnitus is gone and comes right back. I'm thinking that even if I start hearing my lost frequencies again that as soon as those frequencies aren't sounding that my brain will be like, eeeeeeeeee, again and will have to slowly retrain.
Was this treatment regulated by a board like the FDA here in the US? Like did he have to get all his drugs used approved or officially publish exactly what his formula is?
I'm genuinely curious because I know nothing about the Korean medical process.
I'm genuinely curious because I know nothing about the Korean medical process.
I think it is the same. Also, the more I dig around, the more I'm starting to think that intratympanic injections of PRP aren't prohibited in the United States, therefore not illegal. As far as I know, he is the first one to try this and is the only one doing it. Therefore it's not only unregulated, but completely off the radar scope of any regulatory agency.
Like adipose stem cell injections for tendons and stuff. I think it's not specifically approved by the FDA, but it's also not prohibited.
I honestly can't believe they aren't studying this anywhere except the Solsaem Clinic in Seoul. While I'm still waiting myself to find out its efficacy, I can attest from personal experience that it isn't harmful. PRP definitely has some advanced healing properties because 6 intratympanic injections everyday for twelve days left my eardrums none the worse. Makes sense, because there are peer reviewed papers showing it can accelerate healing of eardrum perforations.
https://www.ncbi.nlm.nih.gov/pubmed/25794691
Think about it, he invented it and he hasn't published yet. What would any regulatory agency go on to make any kind of decision?
I doubt PRP for tinnitus or hearing loss ever gets to the FDA clinical trial phase. There would need to be a control group at some point that receives a placebo. Is it really safe to inject someone's eardrum with saline multiple times? Who is going to sign up for that?
And that is a major flaw in the methods that we use to discover new therapies. The treatment could heal you and the placebo could cause complications.
You have exposed a flaw in the double blind placebo control religion.
Hi @Johan_L
Thanks for the tag.
I have seen this thread but I had habituated to my tinnitus until my second recent noise incident this January so didn't feel the need to pursue this route. I still don't as I am skeptical and my time in Korea is coming to an end very soon.
I hope it does work / give significant improvements for those who pursue this treatment.
John Adams, I just wanted to say thank you for your honesty. Total respect. Most humans, or many, are inclined to lie... their egos and fear compel them to spew lies and rubbish. I want you better, however this plays out, I thank you for your honesty and you're one courageous fellow, 72 injections is terrifying. I have been going through some trials and tribulations that actually trump tinnitus. I have a surgery on Tuesday, if it goes well, I can return to the neurotic world of eeeeeee and tinnitus. I hope I pull through, and I hope your hearing, your tinnitus, and sense of well being improve. I mean that sincerely. Peace out.
I agree. No matter how much controversy there was debating the risk part of the process, once @JohnAdams pulled the trigger, the debate was over since it couldn't affect the decision anymore.
From that point, I think everyone wishes him the best and wants his risk taking to pay off.
My tinnitus is definitely changing and doing some funny stuff it didn't used to do.
I've had a tinnitus tone in both ears right around 6.5 kHz and flipping my head around on my pillow at night has taught me that they were almost about the same loudness, with the left being a tad bit louder. My right ear has been lower against the pillow than my left for maybe 3 nights or so. Whenever I had fluctuations before in loudness it was never just on one side of my head like that.
My head hiss now sounds like it's on the left side only when before it was always in the center and instead of sounding constant like it almost always has, it sounds like it's flickering on and off like a loose wire.
My right ear also sounds clearer.
I've had a tinnitus tone in both ears right around 6.5 kHz and flipping my head around on my pillow at night has taught me that they were almost about the same loudness, with the left being a tad bit louder. My right ear has been lower against the pillow than my left for maybe 3 nights or so. Whenever I had fluctuations before in loudness it was never just on one side of my head like that.
My head hiss now sounds like it's on the left side only when before it was always in the center and instead of sounding constant like it almost always has, it sounds like it's flickering on and off like a loose wire.
My right ear also sounds clearer.
humptydumpty69
Member
@JohnAdams
Good job John. Good job.
Have you experienced any "ear resets" or fleeting tinnitus after treatment? I know many of us associate that sensation with healing. If I am not mistaken, ATEOS experienced fleeting tinnitus after his stem cell treatment. If you have experienced this result, could you estimate the quantity and frequency in which you experience ear resets? Also, I know that some of my own ear resets have been deep and penetrating, effecting the full register of my hearing range, while some are superficial; if it is relevant, would you comment on the strength of the resets as well?
Could you go in to some detail about the pelvic extraction? Was this for the adipose tissue regarding the stem cell extraction? Or was this involving the marrow and it was for the platelets? Or maybe they took platelets and stem cells from the marrow simultaneously? Do you have any scarring or lasting discomfort? What was the size of the needle? Did Shim perform this extraction? Was anesthetic or antibiotic administered? Did they by chance utilize PRP to heal the punctured site?
Also, could someone clue me in on what "1LR" and "2LR" means? I'm behind on the lingo evidently.
Good job John. Good job.
Have you experienced any "ear resets" or fleeting tinnitus after treatment? I know many of us associate that sensation with healing. If I am not mistaken, ATEOS experienced fleeting tinnitus after his stem cell treatment. If you have experienced this result, could you estimate the quantity and frequency in which you experience ear resets? Also, I know that some of my own ear resets have been deep and penetrating, effecting the full register of my hearing range, while some are superficial; if it is relevant, would you comment on the strength of the resets as well?
Could you go in to some detail about the pelvic extraction? Was this for the adipose tissue regarding the stem cell extraction? Or was this involving the marrow and it was for the platelets? Or maybe they took platelets and stem cells from the marrow simultaneously? Do you have any scarring or lasting discomfort? What was the size of the needle? Did Shim perform this extraction? Was anesthetic or antibiotic administered? Did they by chance utilize PRP to heal the punctured site?
Also, could someone clue me in on what "1LR" and "2LR" means? I'm behind on the lingo evidently.
Thank you for reminding me about that. I meant to mention that as well. I used to get fleeting tinnitus for as long as I could remember lasting about 5-10 seconds and not really that loud before I got tinnitus. After I got tinnitus I started getting fleeting tinnitus 1-5 times every single day and it was always very loud and usually on one side. I still get fleeting tinnitus at about the same rate and the same loudness but they only last now for about 1-5 seconds.
Not adipose.
Think about it.
Good question.
Yeah there'll be some scars. My left hip is still a little sore.
No clue, didn't look. Felt good, especially when it penetrated my iliac crest. The 6th time was the best.
Yes. He also gave me rhinitis surgery.
No, but that's a good idea. I think he was trying to use all the PRP for my ears.
I was there everyday for 12 days back to back except Sunday. They were taking a decent amount of my blood everyday. Every little bit counts.
I'll be honest, now that I'm back home and back to my daily life, this whole thing seems like a dream.
humptydumpty69
Member
@JohnAdams,
Thanks for answering. I'm still curious about anesthetic and/or antibiotics regarding the pelvic procedure?
Would you consider posting pictures of your scars so that we could know what we would be getting in to?
Just to clarify, your fleeting tinnitus has not fluctuated at all post Shim therapy?
Thanks for answering. I'm still curious about anesthetic and/or antibiotics regarding the pelvic procedure?
Would you consider posting pictures of your scars so that we could know what we would be getting in to?
Just to clarify, your fleeting tinnitus has not fluctuated at all post Shim therapy?
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