Suffering from Clicking/Fluttering Tinnitus Since SSHL

[Thraitan]

Hello!

I have had two attacks of sudden sensorineural hearing loss in the low frequencies.

Because of that the doctors started suspecting Meniere's disease. I hope that is not the case as I am only 24 years old.

I have received Prednisolone in the hospital for the hearing loss, which practically did nothing, and a couple of days later, my hearing went back to 100%. Since then I have not had any major dips in my hearing, other than the occasional low tone frequency loss below 100 Hz, but not even 5 dB and it always goes back to normal.

I have a machine gun like clicking/fluttering in my ear which sounds like a hard drive defragmenting. The tinnitus is in the mid frequency range around 3.5 kHz-4 kHz which does not go with the Meniere's disease theory and it almost goes away when I drink coffee. Sadly, I have not received any helpful answers from ENTs yet and I have only been prescribed Betahistine.

Since the incident, I started trying to live my life more actively, so I started riding sport quads as a hobby and I might get into offroad racing. I only lived in preparation for the future and not in the moment and this knockback helped me see, that I should change that.

 

[annalena]

If you don't have signs of vertigo, it's more likely that it is not Meniere's disease. Your symptoms might also be connected to something called cochlear hydrops. The prognosis is much better than for people with Meniere's disease. The majority of patients with cochlear hydrops never develops Meniere's disease.

I don't know if there's much you can do - I once read that regular pressure equalization is important.

Wishing you all the best,
Anna-Lena

P.S. I also have what you describe as fluttering. Usually, when it appears often, my tinnitus gets worse. The tone that bothers me most is high-pitched though.

 

[Stuart-T]

Hello!

I have had two attacks of sudden sensorineural hearing loss in the low frequencies.

Because of that the doctors started suspecting Meniere's disease. I hope that is not the case as I am only 24 years old.

I have received Prednisolone in the hospital for the hearing loss, which practically did nothing, and a couple of days later, my hearing went back to 100%. Since then I have not had any major dips in my hearing, other than the occasional low tone frequency loss below 100 Hz, but not even 5 dB and it always goes back to normal.

I have a machine gun like clicking/fluttering in my ear which sounds like a hard drive defragmenting. The tinnitus is in the mid frequency range around 3.5 kHz-4 kHz which does not go with the Meniere's disease theory and it almost goes away when I drink coffee. Sadly, I have not received any helpful answers from ENTs yet and I have only been prescribed Betahistine.

Since the incident, I started trying to live my life more actively, so I started riding sport quads as a hobby and I might get into offroad racing. I only lived in preparation for the future and not in the moment and this knockback helped me see, that I should change that.

It does not sound like Meniere's. Vertigo and/or dizziness attacks happen with Meniere's.

It is interesting the coffee makes it better. Caffeine is said to spike it.