Suicidal

[Lucifer]

Is that for chronic or acute tinnitus?

I feel today I ain't gonna last another year, with a head ready to explode.

I'm pretty sure for both. They both tested tinnitus in the clinical trials and stated there were no major side effects. I would assume if tinnitus got worse it will be considered a major side effect.

 

[FGG]

Btw, what good is this trial? Aren't they already at some stage of the trial? There are posts and comments about it here and other sites, going on at least a year so far, at least?

Yes they are recruiting for their current trial but if you would prefer you could wait for results to be published. The device itself is slated for release late next year I believe.

 

[Bartoli]

Yes they are recruiting for their current trial but if you would prefer you could wait for results to be published. The device itself is slated for release late next year I believe.

Has anyone ever heard Shore admit to a release date? Technically they're still in trials and the results should dictate whether they're going to market or not.

 

[Fanny1]

Yes they are recruiting for their current trial but if you would prefer you could wait for results to be published. The device itself is slated for release late next year I believe.

Hi,
The last communication I had with them about 3 weeks ago is that they closed their recruitment because of COVID-19, and will complete this round by the end of summer. You must be within 100 miles.

 

[Contrast]

My new health problem does NOT have the same kind of community as Tinnitus Talk.

I don't know why I'm still on Tinnitus Talk.

 

[Contrast]

https://psychcentral.com/blog/its-all-in-your-head-living-with-chronic-illness/

This is a primitive backwards part of human history. It is not a good time to be alive as a disabled person.

 

[valeri]

My new health problem does NOT have the same kind of community as Tinnitus Talk.

I don't know why I'm still on Tinnitus Talk.

Well why don't you then share it with people here?

Maybe there is someone on this forum who has the same or has family member/friend with it!
Going on and on about this mystery condition that will send you prematurely to a grave is really pointless.

This forum has some very very smart members and I think you may be pleasantly surprised how much support you may find!

 

[Orions Pain]

About 7 months ago I thought the ringing in my ears was going to be my biggest problem. Definitely not how it turned out (not to minimize severe tinnitus here).

Still amazes me how people can abuse their ears for years on the end and end up a tiny bit deaf. Genes, you cruel mistress.

 

[acute]

bang or hang. about the only question left

Poisoning also.

 

[Capstan]

Hi James,

I am sorry you feel this way. Please take comfort that most of the folks (including myself) on this forum blame themselves for their condition. They feel guilty for their actions or inactions that lead to tinnitus and/or hyperacusis. But they realize they cannot go back and have to move forward. You can and will do the same. You are so blessed to have a loving wife and adoring kids. So many here have no one and are alone dealing with their condition. Please take comfort that you have a strong support system at home. You will get through this. So please forgive yourself as quickly as you forgive others. Also, please seek the advice of a professional to work through your emotions. Many will offer service through video feed during the virus outbreak. In the meantime, please sit down with your wife and let her know what you are going through emotionally. I truly pray your physical symptoms subside and YES you can habituate just like anyone else. Please be kind, compassionate, loving, patient and most importantly forgiving with yourself. Be Well.

Christopher- How are you doing?

 

[PeteJ]

Frequency Therapeutics and Audion Therapeutics may come out in a couple of years time if their clinical trials allow them to skip phases. Audion has already finished Phase 2 so maybe they could release the drug since there are no alternatives. If that's the case it will be good cause if sufferers are desperate at least there will be Audion Therapeutics which will give them relief. The Audion anecdote has given me hope that it will work with hyperacusis and tinnitus.

How much will either these help?

Especially if the tinnitus is excessively loud? I should be dead already. I can't believe it is this loud and the number of tones. The high pitch... etc. Does any of that matter with these treatments? Tinnitus is different for everybody so how are those going to help severe tinnitus?

 

[PeteJ]

About 7 months ago I thought the ringing in my ears was going to be my biggest problem. Definitely not how it turned out (not to minimize severe tinnitus here). It's unbelievably loud. It also got worse than the first two months.

Still amazes me how people can abuse their ears for years on the end and end up a tiny bit deaf. Genes, you cruel mistress.

It's so extreme and severe that it's my worst problem and I have other health issues. My tinnitus is so unbearably loud and it worsened since the first two months.

I think about suicide every day and I never find any enjoyment or reason to be around. I just don't know what method to use because I don't want to be crippled or a vegetable if I fail. I guess there are certain ways but I want an easy way like an exit bag or something not as extreme as a jump of a high place. If only euthanasia or assisted suicide was legal.

People on here are speculating on treatments coming out in 2 years but it's just vague speculation. I don't think that helps anybody.

 

[Contrast]

I don't see the point of suffering without the possibility of recovering. I find it stupid. I just wanted to start classes and have a normal life. I don't suffer.

 

[acute]

I wish there was a suicide pill. I will pay everything I have to get it. Disappear in peace, escape this twisted reality and end this horrific nightmare with no risk of becoming paraplegic.

 

[Orions Pain]

Hyperacusis and tinnitus open a terrible door, the door to the realization that the human body is built to fail. I wish I could scrub my brain clean of everything I have read and experienced in these last 7 months or so. Struggling to ever see how I will ever feel okay with this.

 

[Contrast]

Hyperacusis and tinnitus open a terrible door, the door to the realization that the human body is built to fail. I wish I could scrub my brain clean of everything I have read and experienced in these last 7 months or so. Struggling to ever see how I will ever feel okay with this.

It shows the human body is NOT designed to be exposed to extremely loud noise. Not that it's inherrently weak.

The inner ear never evolved to handle extremely loud noise of modern society.

 

[Orions Pain]

It shows the human body is NOT designed to be exposed to extremely loud noise. Not that it's inherrently weak.

The inner ear never evolved to handle extremely loud noise of modern society.

Agreed. Also meant in general. You realize how easy it is to get sick and how scary the depression that follows can be. There are literally thousands of life ruining diseases that can appear out of nowhere, even if you're careful. You can just get unlucky.

 

[Zugzug]

Hyperacusis and tinnitus open a terrible door, the door to the realization that the human body is built to fail. I wish I could scrub my brain clean of everything I have read and experienced in these last 7 months or so. Struggling to ever see how I will ever feel okay with this.

If I recovered tomorrow, I would be f***ed in the head. I don't think I can un-see this level of torture. After a year of life-altering hyperacusis, I surely have severe phonophobia, even if the hyperacusis went away.

 

[Lucifer]

If I recovered tomorrow, I would be f***ed in the head. I don't think I can un-see this level of torture.

Yea me too. I probably will have PTSD for the rest of my life if I survive this. Now I know what it feels like for those soldiers who come back from war and experience PTSD. I'm grateful for their sacrifice and their contribution to their country.

 

[Zugzug]

Yea me too. I probably will have PTSD for the rest of my life if I survive this. Now I know what it feels like for those soldiers who come back from war and experience PTSD. I'm grateful for their sacrifice and their contribution to their country.

The thing I'm the most worried about is being unable to not see myself as a victim. I have a condition that likely affects one in 500,000 people that no one has ever heard of. All of the suffering, the lack of medical privilege, the suicidal thoughts, etc. And it's like, "business as usual, moving along here." No one would ever look at me and have any comprehension of what I went through. Maybe I would have to make a point to go on the internet and find the worst of the worst of the worst medical stories to feel like less of a victim. It's frightening.

There are certainly other medical problems with similar (if not more) levels of torture. But the unique blend of torture, unknowns, debilitation, zero societal understanding, it's extremely hard to compete with hyperacusis.

 

[Lucifer]

The thing I'm the most worried about is being unable to not see myself as a victim. I have a condition that likely affects one in 500,000 people that no one has ever heard of. All of the suffering, the lack of medical privilege, the suicidal thoughts, etc. And it's like, "business as usual, moving along here." No one would ever look at me and have any comprehension of what I went through. Maybe I would have to make a point to go on the internet and find the worst of the worst of the worst medical stories to feel like less of a victim. It's frightening.

Yea I know how you feel. It's sad how even doctors and specialist don't know much about these issues and that's what makes this condition worse when they don't understand what your going through.

 

[FGG]

The thing I'm the most worried about is being unable to not see myself as a victim. I have a condition that likely affects one in 500,000 people that no one has ever heard of. All of the suffering, the lack of medical privilege, the suicidal thoughts, etc. And it's like, "business as usual, moving along here." No one would ever look at me and have any comprehension of what I went through. Maybe I would have to make a point to go on the internet and find the worst of the worst of the worst medical stories to feel like less of a victim. It's frightening.

If it helps, I have a friend who had severe post war PTSD. Awful stuff: TBI, friends dying in front of him, etc. He went for years of poor sleeping (once went almost a week with zero sleep) and severe anxiety but found that medical marijuana changed his life. He no longer seems to suffer from PTSD even when he is not smoking. It's as if his brain just needed time to reset. He can even watch war movies now (was absolutely not possible a few years ago).

I'm not suggesting using weed with tinnitus but if a cure comes, something like it (or even time) might help reset your brain's trauma levels. At least I have seen it happen myself anyway.

 

[Zugzug]

If it helps, I have a friend who had severe post war PTSD. Awful stuff: TBI, friends dying in front of him, etc. He went for years of poor sleeping (once went almost a week with zero sleep) and severe anxiety but found that medical marijuana changed his life. He no longer seems to suffer from PTSD even when he is not smoking. It's as if his brain just needed time to reset. He can even watch war movies now (was absolutely not possible a few years ago).

I'm not suggesting using weed with tinnitus but if a cure comes, something like it (or even time) might help reset your brain's trauma levels. At least I have seen it happen myself anyway.

In pains me to say this, but a good way to feel like less of a victim is to read stories from vets. I would rather vets be taken care of, but it's amazing that they are still serving (as sources of motivation) even after they come back.

I have my disease flare up for the first time in 2015. I also went through a very, very rough time. Lots of pain, suicidal thoughts, etc. My brain ended up blocking a lot of it out. That was a different circumstance though, as this problem I have now is far more rare.

Easily, the most traumatic part of all of this is knowing how non-resilient the inner ear is. When I had debilitating chronic pain, I never wondered if I was undergoing major permanent damage.

 

[Lucifer]

If it helps, I have a friend who had severe post war PTSD. Awful stuff: TBI, friends dying in front of him, etc. He went for years of poor sleeping (once went almost a week with zero sleep) and severe anxiety but found that medical marijuana changed his life. He no longer seems to suffer from PTSD even when he is not smoking. It's as if his brain just needed time to reset. He can even watch war movies now (was absolutely not possible a few years ago).

I'm not suggesting using weed with tinnitus but if a cure comes, something like it (or even time) might help reset your brain's trauma levels. At least I have seen it happen myself anyway.

That's great news to hear that your friend is doing well. I hope when a cure comes out it will take time for the PTSD to go away. I'm just worried I will have it for the rest of my life.

 

[serendipity1996]

On the topic of PTSD, there's been a vast amount of promising research and a resurgence in the use of psychedelics (in a controlled setting of course!) and also MDMA - the latter, in particular has been noted as especially successful in treating PTSD (often treatment-resistant, decades-long cases). I went into a bit of a research rabbit hole a while ago about this because it's so fascinating. Pretty sure MDMA therapy trials are currently in phase 3 in the US currently.

 

[Orions Pain]

If I recovered tomorrow, I would be f***ed in the head. I don't think I can un-see this level of torture. After a year of life-altering hyperacusis, I surely have severe phonophobia, even if the hyperacusis went away.

100% there with ya.

 

[Orions Pain]

In pains me to say this, but a good way to feel like less of a victim is to read stories from vets. I would rather vets be taken care of, but it's amazing that they are still serving (as sources of motivation) even after they come back.

I have my disease flare up for the first time in 2015. I also went through a very, very rough time. Lots of pain, suicidal thoughts, etc. My brain ended up blocking a lot of it out. That was a different circumstance though, as this problem I have now is far more rare.

Easily, the most traumatic part of all of this is knowing how non-resilient the inner ear is. When I had debilitating chronic pain, I never wondered if I was undergoing major permanent damage.

I like to watch movies/documentaries about chronic illnesses/rare disorders. It helps me cope in a strange way. Takes away that "why Me" component from all this stuff, knowing I'm not the only person in the world who is struggling even though at times it feels like it (outside of forums).

On Snapchat today there was a story of a woman who is allergic to the sun or any UV rays. Not just a mild rash allergic but she literally gets little melanomas (cancerous) all over her body if exposed. She's had most of her nose surgically removed. Her lower lip. It's so sad.

 

[Zugzug]

Also, if I do get better, I am sure that I am going to feel guilty knowing about the existence of this neglected, dark corner of the world. I really wish I knew more biology. I'm a professional at mathematical modeling, but it would take a lot of research to come up with a model that is accurate and useful. Maybe a little bit of reading at a time.

 

[Contrast]

Also, if I do get better, I am sure that I am going to feel guilty knowing about the existence of this neglected, dark corner of the world. I really wish I knew more biology. I'm a professional at mathematical modeling, but it would take a lot of research to come up with a model that is accurate and useful. Maybe a little bit of reading at a time.

When I say "biology' I am referring to biochemistry, biomedical, bioengineering, biomedicine, tissue engineering, gene therapies, stem cells and deep sciences relating to specific organs and bodily functions.

Those are the sciences that involve reversing disease and they are under prioritized.

This is just a awkward part of human history and we happen to observe one of it's big problems. It's obvious biology is a really difficult top level science that is going to take probably centuries of trial and error before humanity can master it. The role that doctors play is unfortunately miniscule. We all know that bad ideas (like TRT) can spread like wild fire in the academic world. As if they are not caring about patient feed back.


That's what I find disturbing... patient feed back (such as TRT failing) doesn't influence the clinical world. They just do whatever the flowchart says. The veterans with hyperacusis made no difference, how can you guys?



I honestly think I should just give up. It's a losing battle.

 

[Contrast]