Tell Me the Truth... Is a Cure Realistic?

[Greg Sacramento]

@Benoves The second link is just to show the target of the hippocampus.

The hippocampus light up on fMRI scans for those with tinnitus. Depression may be one reason for this. Some researchers now think that the hippocampus is a control center for tinnitus. I have no idea. My neuro thinks so.

https://www.streetinsider.com/Corporate+News/Neuralstem+(CUR)+Announces+Positive+Updated+Data+from+Phase+2+Study+of+NSI-189+in+Major+Depressive+Disorder/13568440.html


http://scr.zacks.com/News/Press-Rel...UR-NSI-189-What-You-Need-To-Know/default.aspx

Added: Some research shows that the hippocampus has grey area with some with neuro complications. Tinnitus
My neuro feels that this drug will lower tinnitus perception. He also feels that it may lower ringing. I don't have a clue.

https://www.researchgate.net/public...s_and_Hearing_Loss_and_Changes_in_Hippocampus

 

[Greg Sacramento]

@Benoves: I've sent an email to CUR research. Also added more to post above.

 

[Michael Leigh]

@Michael Leigh I think people DO understand what the role of an ENT dr is. Sure ENTs don't know much about tinnitus, that's fine. But they tend to either be arrogant and/or extremely dismissive. Not supportive. It's as though their egos can't deal with what they do not know.

For the record I was not offered an MRI or hearing test despite seeing my first ENT three times in about 6-7months. I had to pay an exorbitant amount for ear wax removal with a bad attitude and this was at a decent private hospital.

Thank you @Gman Your comments are much appreciated and I agree with you.
Take care
Michael

 

[Benoves]

@Benoves: I've sent an email to CUR research. Also added more to post above.

Find this very interesting, thanks. Also believe it's really a brain thing, and the hearing loss cause is pure baloney. Maybe a nice trigger but that's it. I've got hearing loss all my life, never experienced tinnitus before not even fleeting. My mom has more severe hearing loss and don't experience any form of tinnitus.

Would love to see your email.

 

[Rainbowsheep]

I would say it is, yes. Studying psychology I have seen how much progress there is in understanding the brain and how it works and thus also what happens when it malfunctions. For instance scientists can tell that people are looking at a cross, for example, in an MRI just by looking at the pattern of activity in the brain.
However I have also seen how little we understand even though we have made great progress the past 20 - 10 ish years. But the technology keeps getting more and more advanced and thus gets us closer to answer questions we couldn't answer before, so yeah. I would say a cure is possible but I think we'll have to wait at least 10 years ish. So I guess right now the best thing we can do is to learn to cope and keep waiting for the day scientists crack the code!

 

[just1morething]

Find this very interesting, thanks. Also believe it's really a brain thing, and the hearing loss cause is pure baloney. Maybe a nice trigger but that's it. I've got hearing loss all my life, never experienced tinnitus before not even fleeting. My mom has more severe hearing loss and don't experience any form of tinnitus.

Yeah that seems true in some cases. I don't know how to change the brain chemistry without taking drugs? Maybe exercise would help? I have some Amitriptyline and Cymbalta on hand but should check with the Dr. to restart either one. I don't like side effects so may try neither.

Cymbalta is for nerve pain so probably worth trying.

 

[Paulmanlike]

Little press release today about Sage therapeutics that I came across

https://www.barrons.com/articles/ch...therapeutics-could-cure-your-blues-1512669431

 

[Benoves]

@Benoves: I've sent an email to CUR research. Also added more to post above.

Greg,

I've read somewhere you said neck tinnitus is often very high pitched. Some couple of months before onset i did have very severe headache while having an orgasm. This thing went away 2 weeks after it began. It was so severe that medical people thought I was having a stroke.

They told me that thing is often neck related. Could this have something to do with my tinnitus? My high pitched tinnitus often changes ears, one day is on the left, other day on the right and sometimes completely gone. It is much worse the day(s) after i drink alcohol. 2 Days ago i worked a lot with forward neck bending (floor) and yesterday was hell again. I wondered if this all could be related? You seem like the only one to give a proper answer. My ENT is useless.

The point is, if it's neck related maybe something is possible. My other tones are much more bearable and constant. The thing which is bothering me most is that sometimes it's gone. Completely. It's always worse when waking up and better when I start with the day (standing). It's also worse when working on the computer a whole day.

 

[Greg Sacramento]

@Benoves You mention:
"worse when waking up"
"better when I start the day standing"
"changes ears"

Questions: Do you sleep mostly on one side?
Do you have any facial discomfort? Do you clench teeth?

"forward head bending and on the computer a whole day"
It's possible that you have a neck and maybe an added facial problem.

Points to consider:
Your neck may not show soreness, but it still could be your neck.
Are your shoulders balanced when standing in front of a mirror?

You may have age related posture problems or had an injury like falling down as long as fifteen years ago.
You could have a c spine problem or related MUSCLE imbalances that affecting nerves, and maybe veins and/or arteries.

Have you had some simple testing? An EKG, blood work, X Ray of neck. If the neck X ray (4 views) show problems then a CT of neck and face may be helpful. Often doctors want a CT of head as well.

If any problems are seen from testing, then I would consider self gentle therapy to start with. I like the exercises at the bottom of the article 'Chapter 4 Cervical Spine' for neck conditions relating to muscles, nerves and veins. Be careful with any stretching of muscles unless advised by a doctor.

Try sleeping with a little pillow support under neck, but don't have neck stretched.

 

[dpdx]

I dont think a cure will come out for a long time, there may be some treatment but we will have to wait 10 years.

 

[Striveon]

Do you guys truly believe there will a cure in the next few years

it's so hard to believe and the sad part is I can't even take one Xanax to calm down because I'm afraid it'll cause a permanent spike. I don't know how to handle my bad anxiety and depression, tinnitus has made so unhappy and such an anxious, paranoid of noise person.

I'm not myself anymore I truly miss the old me, I wish I could have silence back

 

[JohnAdams]

there's like 5 cures already there. they are just sitting on a shelf somewhere.

 

[coffee_girl]

I honestly don't think a cure is available any time soon, but I also don't know much about what is happening behind the scenes at those Tinnitus research companies so I am hoping to see it within my lifetime =]

 

[Striveon]

there's like 5 cures already there. they are just sitting on a shelf somewhere.

It's so hard to believe that a real cure is out there and it's saddening if that's the truth... They're not in our position enough to care, in my case, I feel as a zombie wondering around, exhausted and unable to concentrate and do what I love with all kinds of ringing in my brain and ears... just great..

 

[Striveon]

I honestly don't think a cure is available any time soon, but I also don't know much about what is happening behind the scenes at those Tinnitus research companies so I am hoping to see it within my lifetime =]

It's hard for me to believe a cure will be on its way any time soon because I've seen old forums and they say exactly what we say, " a cure will be here soon" they just have us filled with hopes and nothing is being done to speed up any process

 

[Greg Sacramento]

@Striveon @Contrast posts truthful quotes about hearing and that needs to be considered. I read your entire detailed history and I have thoughts for you to consider talking to your doctors about on your next appointment. Neck occipital nerves, sternomastoid muscles, neck facet joints, deep neck fibers, trapezius muscles, maybe your jaw. Do some problem research on each mention with the word tinnitus to follow and you will read how they match with everything that you mention in your postings. You may have something else as cause too.

Maybe discuss with your doctors about correcting posture, upward gentle neck stretching, a small pillow under neck while sleeping and the use of warm and cold on neck. Stay in touch.

 

[dpdx]

I think we will not see a cure but a treatment that will reduce our Tinnitus to mild/very mild. I WILL TAKE IT NOT TO HAVE TINNITUS 8/10..PLEASE AND THANK YOU!

 

[Contrast]

If we are smart in the next 2-15 years we can see things like Susan Shore's device and similar ones, eventually 5-7 years we may get an actual treatment for sensorineural hearing loss as well as other advancements.

That's only if the community is vocal and aware of their condition, if we are ignorant we will go around Jastreboff's merry go around another 10 years.

 

[threefirefour]

If we are smart in the next 2-15 years we can see things like Susan Shore's device and similar ones, eventually 5-7 years we may get an actual treatment for sensorineural hearing loss as well as other advancements.

That's only if the community is vocal and aware of their condition, if we are ignorant we will go around Jastreboff's merry go around another 10 years.

I want off Jastreboff's wild ride.

 

[Eric N]

I remember reading somewhere that we are going to cure aging and become immortal by 2050, now I am thinking what a joke considering we would have to go from not having a cure for most things to having a cure for everything within 30 years, that is shorter than some estimates on how long it would take to cure T.

 

[threefirefour]

I remember reading somewhere that we are going to cure aging and become immortal by 2050, now I am thinking what a joke considering we would have to go from not having a cure for most things to having a cure for everything within 30 years, that is shorter than some estimates on how long it would take to cure T.

On one hand considering that we're beginning to master certain treatment revenues like stem cells and bioengineering we can expect to see cures being released faster and faster as time goes on. I expect we'll be regrowing organs for everyone to use by 2040.

On the other hand futurism is usually way off. I don't think we'll have immortality for a while but we'll definitely extend people's lifespans much more than any past generation of medicine has been able too.

 

[Striveon]

@Striveon @Contrast posts truthful quotes about hearing and that needs to be considered. I read your entire detailed history and I have thoughts for you to consider talking to your doctors about on your next appointment. Neck occipital nerves, sternomastoid muscles, neck facet joints, deep neck fibers, trapezius muscles, maybe your jaw. Do some problem research on each mention with the word tinnitus to follow and you will read how they match with everything that you mention in your postings. You may have something else as cause too.

Maybe discuss with your doctors about correcting posture, upward gentle neck stretching, a small pillow under neck while sleeping and the use of warm and cold on neck. Stay in touch.

Can the posture really affect tinnitus? I have scoliosis, it's not bad but with a close look you can see one shoulder is higher than the other. The thing is my doctor says it's the hearing loss and does no further examinations if whether something else is causing it. I also have lots of liquid in my ear and I'm not sure what's the cause of it.

 

[Greg Sacramento]

@Striveon Yes talk to @Benoves. I had asked him to confirm my thoughts for his tinnitus at about the time that he posted towards the top of this page. One shoulder shorter places the body off balance and will cause scoliosis. Most will never get tinnitus. If one gets tinnitus from everything that I mentioned to you then that will cause head vibrations. Your SCM neck muscles can relate to your cold. Can you get some relief from this even with hearing loss - possible. I will need to send you some articles.

 

[coffee_girl]

Well in the 80s they predicted cars will fly In 2010; we barely just have cars that run on electricity. There's nothing wrong with having hope though, especially if it gets you through the day. I've already accepted the reality that if my ears become really bad...I'll just have to learn to live with it the best i can

 

[Margus]

I expect we'll be regrowing organs for everyone to use by 2040.

This is way too optimistic, look back 20 years, not much different, unless you consider having phones with no buttons and that everyone can post cat videos on-line a giant technological leap. Why would next 20 years suddenly make such a difference.

 

[Michael Leigh]

I honestly don't think a cure is available any time soon, but I also don't know much about what is happening behind the scenes at those Tinnitus research companies so I am hoping to see it within my lifetime =]

I fully agree with you @coffee_girl and doubt there will be a cure for tinnitus any time soon. Tinnitus is just one of many medical conditions that there is no cure for at the moment. Many newbies can find this difficult to accept and this was the same for me back in the day. There are many treatments available and a lot of people successfully habituate with time and specialist treatment may not be necessary.

Tinnitus has been around since the Egyptians so it is nothing new and I'm sure many learned to cope with it then, when treatment for it was not as advanced as it is now. If a person allows themselves to become fixated on finding a cure for tinnitus and looking to blame their government or health organisation for not finding one they will just become miserable. I advise one should try and look to the positive things in their life and not allow negativity to take hold. Tinnitus can be a very debilitating when it is severe and this level of intrusiveness is sustained. However, If a person is able to work and carry out their daily affairs without too much problems from tinnitus, then I think they should be a little more thankful as the condition could be a lot worse.

Michael

 

[Greg Sacramento]

@Striveon - I will send you more links that will tie everything together. In this link go down to about 2/3 of article and read about Jack. Then continue to end of article.
https://nuccadoctordavis.wordpress.com/category/ringing-in-the-earstinnitus/

https://thewellnessdigest.com/stern...es-sinus-ears-throat-pain-dizziness-whiplash/

 

[threefirefour]

This is way too optimistic, look back 20 years, not much different, unless you consider having phones with no buttons and that everyone can post cat videos on-line a giant technological leap. Why would next 20 years suddenly make such a difference.

The good ol' nothing ever happens.

In medicine there's a good rule of thumb that treatments usually take 20 years from discovery to practice. That's why all these articles about exciting new research just kind of falls off the face of the earth. This research takes time.

We can regrow organs now. They're just small, their functionality is questionable, and the host bodies often reject them. When we get these kinks worked out then we can put it into practice. Yeah 20 years from now is far from a bad guess.

And if you're referencing the internet yes, between now and the 90's is a huge leap in progress. And if you're talking about technology the average computing power of computers has more than doubled numerous times.

 

[Contrast]

This is way too optimistic, look back 20 years, not much different, unless you consider having phones with no buttons and that everyone can post cat videos on-line a giant technological leap. Why would next 20 years suddenly make such a difference.

the free market isn't regulated by Government thats why you see so much advances

the FDA is littered with lobbyist that want to halt progress in the name of security.

Most people have this condition caused by SNHL, but no one suggest to cure the SNHL loss.

 

[Greg Sacramento]

@Striveon It could something like the lesser occipital nerve touching your sternocleidomastoid muscle where a therapy release could change your life for the better. I would not settle for the 'just live with it' without a neurology exam.
https://www.sciencedirect.com/topics/neuroscience/lesser-occipital-nerve