Tell Me the Truth... Is a Cure Realistic?

[Tinker Bell]

Yeah, I still don't understand how someone can have hearing loss, even severe hearing loss, but no tinnitus. That is, why some people and not others?

I've been told that it has to do with whether the hearing loss is sudden or gradual enough that the brain has time to adapt. I think it also depends on whether there is cochlear damage or damage directly to the nerve.

But really I have no idea, and I really wish I did not have tinnitus and hyperacusis on top of hearing loss.

 

[TheDanishGirl]

@TheDanishGirl have you tried any natural supplements such as Magnesium. Sometimes they help with relaxing the body,anxiety,sleep better etc..

I'm on a steady "diet" of AD's and benzo's.....couldnt do without them :/

 

[JurgenG]

We need it asap..

 

[Pleasure_Paulie]

There will certainly be more effective treatments in our lifetime. A cure, well let's live in hope

Ps. I encourage you to re-read this thread in 12 months time; you will be amazed how much time helps.

 

[Jake007]

I've been told that it has to do with whether the hearing loss is sudden or gradual enough that the brain has time to adapt. I think it also depends on whether there is cochlear damage or damage directly to the nerve.

But really I have no idea, and I really wish I did not have tinnitus and hyperacusis on top of hearing loss.

I believe this to, I know quite a few people including my father that have it come gradually, they have no problem with it. When you go from pretty much silence to loud t, that's when it becomes a huge issue.

 

[Bill Bauer]

I am going to the festival and that is final and is not not up to debate. You guys have your opinion and i have mine.....NOTHING is certain here in life anyways, so taking a (small) risk on my ears/T is just many of lifes everyday risks.

When is the festival? How are you feeling now?

 

[TheDanishGirl]

When is the festival? How are you feeling now?

august 15-19th.

I am feeling much better thanks.....thank god for AD's!......i think the new AD i have been taking for a little over 3 weeks now has started working......about a week ago i woke up and suddenly felt better. The T was and is still there but it doesn't limit me anymore and often i hear it but have no reaction to it, maybe other then mild annoyance from time to time.

I feel 95% my old self and i feel happy.

 

[Ron Robles]

@TheDanishGirl hi it is Ron I know exactly what you mean as I am sitting this writing this to you my tonight is a so loud I don't know I don't know if things that we eaten or what's going on you know I have my usual eggs I'm Hispanic I ate a tamale beans and tortilla I'm not sure if you know what that is being from where you're at but I ate chicken and rice also and as I'm sitting here my tinnitus is spiked up up so bad and you're right we must be different because it really bothers me that way it's bothering you how are you doing today

 

[Michael Leigh]

I feel 95% my old self and i feel happy.

That's good news Sandra. My advice is still not to use headphones even at low volume as there is a risk of making the tinnitus worse. You know what tinnitus is capable of doing and how it can make a person feel.
Best of luck
Michael

 

[TheDanishGirl]

That's good news Sandra. My advice is still not to use headphones even at low volume as there is a risk of making the tinnitus worse. You know what tinnitus is capable of doing and how it can make a person feel.
Best of luck
Michael

I have not been using headphones for several weeks now and i don't even miss them anymore. I enjoy my music through speakers now.

 

[Michael Leigh]

I have not been using headphones for several weeks now and i don't even miss it anymore. I enjoy my music through speakers now.

That's good Sandra. So now you see what I was telling you all along. I said that you would improve and you had doubts which is understandable for a newbie. We tinnitus veterans know. I am pleased for you because I know you were in a dark place. Please do not get complacent when your tinnitus reduces to such a low level that you won't even hear it believe me that will happen. And that is when it is most dangerous, because a person can easily forget and return to using headphones or going to places where loud music is played then Wham, back to square one. You don't want that to happen. You can go out and have a good time. Use noise reducing earplugs but still be aware of loud sounds.

I wish you well.
Michael

 

[Bobbie7]

The Good, The Bad And The Ugly.

@Michael Leigh - The way you summed it all up was perfect! The advice you give is always right on!

 

[Michael Leigh]

The way you summed it all up was perfect! The advice you give is always right on!

Thank you @Bobbie7

 

[Bill Bauer]

I am going to an outdoor festival with live music for 5 days this august where i live

I went to music festival, 4 days long, but I was wearing ear protection all the time of course.

However, my tinnitus came back. And I am really scared. It has been a week now, I will see a specialist after weekend..

https://www.tinnitustalk.com/threads/tinnitus-renewed-i-am-really-scared.23039/
@TheDanishGirl Are you still sure you want to go?

 

[TheDanishGirl]

https://www.tinnitustalk.com/threads/tinnitus-renewed-i-am-really-scared.23039/
@TheDanishGirl Are you still sure you want to go?

Yes, i think so. Just not everyday and for many hours.

But as i have stated several times i will be way back from the stage, and i will wear double protection. Dont care if i look stupid, as long as i can go out and have a bit of fun.

But i will see what my H has to "say" about it, if my ears hurt even with double protection i will of course retreat but i doubt it, the festival is not terribly big and therefore not as loud.....it is not anything like huge festivals like say Roskilde festival.

 

[w-drak]

I was quoted by Bill. What can I say. I wish I stayed home. Please be supercareful.

 

[DebInAustralia]

I am beginning to feel regret over discovering this board, i feel it mostly brings me grief to come here reading about struggles, limitations, worsening, things you no longer can do and so on

How do you people truly live enjoyable lives with your T?? I don't believe it

Maybe it it just the fact that you all are very different from me. Like i said....i am not like most people.

How can you possibly feel positive about your life with t if you continue to read negative posts?

You can choose not to believe that others are living enjoyable lives with t, but you can't deny the multiple testaments of forum members here who, like myself, have habituated.

Unbelievable I know. I wouldn't have believed it myself in the beginning, but it is possible. So, start reading the stories on here of people who have moved past their t and found life again. Stay away from all those negative stories that will only serve to fuel your own anxiety.

Give it time, and trust that you too, will eventually learn to adapt.

 

[TheDanishGirl]

How can you possibly feel positive about your life with t if you continue to read negative posts?

You can choose not to believe that others are living enjoyable lives with t, but you can't deny the multiple testaments of forum members here who, like myself, have habituated.

Unbelievable I know. I wouldn't have believed it myself in the beginning, but it is possible. So, start reading the stories on here of people who have moved past their t and found life again. Stay away from all those negative stories that will only serve to fuel your own anxiety.

Give it time, and trust that you too, will eventually learn to adapt.

When i wrote that i was really depressed and in great despair. I still am somewhat.....but I have found that great support can be found here and an understanding of my situation that i will find nowhere else.....and for that i am grateful, but one can also get caught up in the negativity/suffering that is also on this forum, so i have to be careful how i navigate on this forum.

I'm sure that many people, as yourself are habituated and back to enjoying life but i still have great doubt if i can ever fully habituate when i think what kind of person i am (perfectionist, obsessive, noise sensitive, history of depression/anxiety and so on)

 

[DebInAustralia]

When i wrote that i was really depressed and in great despair. I still am somewhat.....but I have found that great support can be found here and an understanding of my situation that i will find nowhere else.....and for that i am grateful, but one can also get caught up in the negativity/suffering that is also on this forum, so i have to be careful how i navigate on this forum.

I'm sure that many people, as yourself are habituated and back to enjoying life but i still have great doubt if i can ever fully habituate when i think what kind of person i am (perfectionist, obsessive, noise sensitive, history of depression/anxiety and so on)

Then you will be enlightened to learn that I have OCD and ANXIETY but have still managed to learn to adapt. It can be done!

 

[TheDanishGirl]

Then you will be enlightened to learn that I have OCD and ANXIETY but have still managed to learn to adapt. It can be done!

Great to hear that it can be achieved regardless of other obstacles May i ask how long it took you to habituate and how bad your T is on a scale of 1-10.

 

[DebInAustralia]

Great to hear that it can be achieved regardless of other obstacles May i ask how long it took you to habituate and how bad your T is on a scale of 1-10.

One day you will look back on this, and wonder what all the fuss was about!

I have habituated in stages. Like most, I have had my set backs, but currently doing well. I either dont hear it/not aware of it, or when i do hear it, it doesnt bother me as much as it used to.

There are times when I still wish I didnt have tinnitus, but on the whole, it doesnt really impact on the quality of life like it used to.

My h has improved too.

I have habituated to loud, intrusive tinnitus.

 

[TheDanishGirl]

One day you will look back on this, and wonder what all the fuss was about!

I have habituated in stages. Like most, I have had my set backs, but currently doing well. I either dont hear it/not aware of it, or when i do hear it, it doesnt bother me as much as it used to.

There are times when I still wish I didnt have tinnitus, but on the whole, it doesnt really impact on the quality of life like it used to.

My h has improved too.

I have habituated to loud, intrusive tinnitus.

Thank you for answering my question....that is amazing, that you were able to overcome it, you are my inspiration!

 

[Tinker Bell]

One day you will look back on this, and wonder what all the fuss was about!

I have habituated in stages. Like most, I have had my set backs, but currently doing well. I either dont hear it/not aware of it, or when i do hear it, it doesnt bother me as much as it used to.

There are times when I still wish I didnt have tinnitus, but on the whole, it doesnt really impact on the quality of life like it used to.

My h has improved too.

I have habituated to loud, intrusive tinnitus.

This is so encouraging! I especially like that you said it happened it stages. I kept thinking habituation was like a switch (either on or off), but I've noticed for myself some gradual milestones that make me think the habituation process is starting.

 

[TheDanishGirl]

This is so encouraging! I especially like that you said it happened it stages. I kept thinking habituation was like a switch (either on or off), but I've noticed for myself some gradual milestones that make me think the habituation process is starting.

Yes, at the start i also thought it was something that just happened suddenly....a couple of weeks ago i had several days where i was 95% back to my old self and where T irritated me, but did not make me anxious or afraid.... at least onæly very little.....i seem to have lost that felling and now i am just back to feeling tormented by T But as i now understand, that is perfectly normal....the road to habituation will be a roller coaster ride, up and down.

 

[Tinker Bell]

But as i now understand, that is perfectly normal....the road to habituation will be a roller coaster ride, up and down.

Absolutely, and I think it's important to remember that whether we're doing good or bad. Yesterday was a very good day for me. So far, not so great today. But rather than panic, I reminded myself that it can be good and that I went to bed way too late last night!

 

[Vicki14]

Contrary to what some believe, the best treatment for tinnitus in the early stages and when there are no additional symptoms, as mentioned above is to leave it alone. The ears and auditory system are very delicate and often right themselves when left alone.

Urgh.... I rue the day I got my damn ears micro suctioned! I had actually habituated and only heard t at night/morning... not now... so, I agree, leave your ears alone to heal... x

 

[Vicki14]

Absolutely, and I think it's important to remember that whether we're doing good or bad. Yesterday was a very good day for me. So far, not so great today. But rather than panic, I reminded myself that it can be good and that I went to bed way too late last night!

Absolutely @Tinker Bell !! That's what gets me through the horrible days!!! x

 

[DebInAustralia]

Yes, at the start i also thought it was something that just happened suddenly....a couple of weeks ago i had several days where i was 95% back to my old self and where T irritated me, but did not make me anxious or afraid.... at least onæly very little.....i seem to have lost that felling and now i am just back to feeling tormented by T But as i now understand, that is perfectly normal....the road to habituation will be a roller coaster ride, up and down.

but ... it doesnt have to be a never ending roller coaster ride ...

i know that tormented feeling all too well ...

hang in there...

utilise the support here ..

you said you were 95% back to your old self ..

see...your brain can turn its attention to other things ..

im confident that you can put t into the background again..

 

[missingsilence]

Sorry if this has already been posted somewhere but I found this today:
https://www.pri.org/stories/2017-03...earing-loss-regenerating-hair-cells-inner-ear

The article is almost 5 months old but it seems they were able to use stems cells from intestinal lining to regrow hair cells in mice, non human primates and human cells.

EDIT: My bad, this is essentially the background that led to Frequency Therapeutics

 

[missingsilence]

Are any of the companies or treatments targeting fixing the synapses. The more I've been trying to find answers the deeper I sink. I started looking at threads from 2011 and 2012 and it still doesn't seem that we are approaching a cure. Other companies have failed and AM102 has been in pre trial since at least 2014 and people still say its for acute onset tinnitus.

Are we actually moving closer towards a cure? At least a treatment would be great.

Nothing has brought me more misery than this condition. The more time passes the more miserable I feel. It's odd, as the first few days I simple tried to pretend like the tinnitus didn't exist. I stayed calm and tried my best to go on with life, knowing it had to get better. In a few days I will be past the five month mark and things are darker than they have ever been. I feel like I'm drowning.