Tell Me the Truth... Is a Cure Realistic?

[GP55]

Would it? Really if you think like..you had some silence time..then you had to "return" to the "tinnitus state of mind"...wouldn't it be mindwrecking

I would be willing to take the chance, I pray for any amount of silence. If you could relate with the volume and the insanity that my T brings me and bit of silence would be golden. And maybe you can relate, but I will take any silence I can get. And so far nothing, but I still keep hoping. Best regards!

 

[GP55]

Would it? Really if you think like..you had some silence time..then you had to "return" to the "tinnitus state of mind"...wouldn't it be mindwrecking

And YES it would!

 

[3ri0w]

I would be willing to take the chance, I pray for any amount of silence. If you could relate with the volume and the insanity that my T brings me and bit of silence would be golden. And maybe you can relate, but I will take any silence I can get. And so far nothing, but I still keep hoping. Best regards!

And YES it would!

Dang man I wish you all the best for you mate!!!!

 

[Zinnia]

Use the highest rated foam earplugs you can find (which are 33 decibels are far as I've discovered.) If you are going to risk being around concert level sounds you should protect as much as possible. ....if you even choose to go.

Oh, and make sure you learn how to properly insert a foam earplug otherwise it won't do its job - it's not so straightforward.

These are what I use when needed:

https://www.amazon.com/Protection-C...qid=1499115444&sr=8-6&keywords=foam+ear+plugs

I would have added to this comment that, in my opinion, it is vital to protect your ears and that skipping the concert would be wise. I have had my tinnitus worsen because of new sound exposures and I am wary too of the protection that earplugs can even provide.

I didn't read every comment in this posting, so I don't know the full story here, but I hope you are feeling better soon. Give it time Give everything time.... when things are bad we often feel they will continue like that always, but life goes on and changes and gets better.

 

[Tinker Bell]

I am going to the festival and that is final and is not not up to debate. You guys have your opinion and i have mine.....NOTHING is certain here in life anyways, so taking a (small) risk on my ears/T is just many of lifes everyday risks.

My only advice is this: do not let anxiety take hold after the festival. Do not worry whether your tinnitus is louder. I'm not saying it will be, but I think that anxiety can take over -- and anxiety can make tinnitus worse.

I spent yesterday at quite a few fun places with my kids. Doors slammed, babies cried, vehicles drove by, a loud bell clanged, etc.

My tinnitus was screeching in both ears by the evening. Anxiety began to creep in while I worried if I'd overdone it and worried about all the things I fear I won't be able to do anymore. But then I calmed down and considered some other key factors: I had not drank or ate enough, I was hot and slightly sunburnt, I had been on my feet all day, I was exhausted, and I had an absolutely horrible headache. All things that on their own increase my tinnitus.

So I drank a few glasses of water, went to bed early, and ignored my worries. It was back to it's usual level by morning.

I guess I lied, I have more advice: use sunscreen, drink enough water, wear comfy shoes, get enough sleep, and don't hesitate to leave early if you or your ears are tired.

 

[Tinker Bell]

She is not planning to protect her ears, so I am no longer sure about how things will work out for her.

I missed where she said she wasn't going to protect her ears. I thought she said she was going to wear ear plugs?

 

[Bill Bauer]

I missed where she said she wasn't going to protect her ears. I thought she said she was going to wear ear plugs?

In one of my posts in this thread, I provided a large number of links to threads where people said that they were wearing earplugs to loud events and that that wasn't enough (they got temporary and permanent spikes).

You wear earplugs when you can't avoid the loud event. For example, you will still hear fireworks on the 4th of July, even when you stay home. So you would want to wear earplugs at home. If you choose to go to a noisy event, then that you are not doing everything you can to protect your ears (even if you wear some ear protection while attending the event).

 

[Tinker Bell]

You wear earplugs when you can't avoid the loud event. For example, you will still hear fireworks on the 4th of July, even when you stay home. So you would want to wear earplugs at home. If you choose to go to a noisy event, then that you are not doing everything you can to protect your ears (even if you wear some ear protection while attending the event).

You mean if your house is right next to the grounds where the fireworks are being shot off, right? Not a mile away.

Likewise, wearing only earplugs right next to speakers is not a good idea. But wearing earplugs at an outdoor festival while avoiding the speakers and staying further away from the stage, is making an effort to protect your ears.

And incidentially, there are some members of TT who go to fireworks. I think they wear earmuffs.

 

[Bill Bauer]

You mean if your house is right next to the grounds where the fireworks are being shot off, right? Not a mile away.

My neighbours shot their own fireworks on Canada Day (July 1). You never know what your neigbours are about to do.

But wearing earplugs at an outdoor festival while avoiding the speakers and staying further away from the stage, is making an effort to protect your ears.

And incidentially, there are some members of TT who go to fireworks. I think they wear earmuffs.

It takes standing next to the speakers to lose your health and get T. Now that our hears had been compromised, it takes a lot less to get a permanent spike. I don't have the energy to check, but I believe the authors of the threads to which I linked to didn't mention standing right next to speakers. They would just be at a loud restaurant, while wearing earplugs and they would still post here in shock over what they had done to themselves.

Even if one doesn't experience a spike, it doesn't mean that one hasn't sabotaged their own healing process. Those members who go to fireworks, might have been over their T if they were to not see those fabulous fireworks. We will never know what would have happened to those people had they made different choices, but why take a chance when it comes to getting rid of T?!

 

[Raphael7713]

I think tinnitus cure will be found, but the question is as with everything else - when?

 

[Carlyi]

Modern science is lies mixed with the truth. Open your eyes the truth is right there in front of you. As for falling off the edge of the earth, that's not possible as we are in a closed system. Ever heard of the firmament? If not check out YouTube. No-one can leave the earth. The moon landings all fake.

I agree with you. Me and my boyfriend have been studying the flat earth topic for a long time and have came to the conclusion that NASA is hiding the fact that the earth is flat. There is so much proof out there. Our government is lying about pretty much everything. Rumors are that Stanley Kubeck confessed to filming the moonlanding in a hollywood studio.

Funny how the Red hot chili peppers also adress this in their song Californication "Space may be the final frontier But it's made in a Hollywood basement"

 

[Tinker Bell]

Those members who go to fireworks, might have been over their T if they were to not see those fabulous fireworks. We will never know what would have happened to those people had they made different choices, but why take a chance when it comes to getting rid of T?!

Realistically, who is actually getting rid of T after the initial treatment efforts and six month time window? The success stories section is full of people who habituated, not people who woke up one day to total silence.

The statistics that people get better? It's most often that their perception of tinnitus gets better, not that it goes away. Even medication studies measure the decreased perception of tinnitus as success, not the absence of it.

I do personally know one person whose tinnitus went away, and they never wore earplugs despite working five days a week with loud equipment.

Now that said, I wouldn't recommend taking crazy risks -- like standing next to a speaker without earplugs. And I would certainly wear earplugs around excessive sounds.

 

[glynis]

Sometimes you have to weigh up all the pro's and con's and leave it up to the person going to make their own choice.
@SandraDK has said she will protect her ears and take breaks.
She is struggling with low mood and suicidal thoughts and 2 weeks ago tried attempt taking her life.
Sandra needs this happy time and agree with her to stop a deep depression episode with suicidal thoughts by showing she can protect her ears the best she can and try have fun and help her confidence.
We can wish her well and look forward to a happy update....
Tinnitus is caused by so many problems and most will come across a few in life and no control like a ear infection.
She needs support to get through low moods and she is aware of that and not going could send her in a low mood she says and trying hard cope with that and her ears.
The bigger picture I'm sure will help her decide herself
... Love glynis

 

[Michael Leigh]

I agree with you. Me and my boyfriend have been studying the flat earth topic for a long time and have came to the conclusion that NASA is hiding the fact that the earth is flat. There is so much proof out there. Our government is lying about pretty much everything. Rumors are that Stanley Kubeck confessed to filming the moonlanding in a hollywood studio.
Funny how the Red hot chili peppers also adress this in their song Californication "Space may be the final frontier But it's made in a Hollywood basement"

HI @Carlyi
For some time I have been having doubts about the earth being a globe but kept dismissing it. A relative whose a flat earth believer got me thinking and I began looking into it. The information on YouTube is quite startling and It can't all be false. Once you start to understand the reasons why we have been told this untruth, then the pieces of the jigsaw starts coming together and it can be quite alarming; especially when one learns the moon landings were fake and we can't leave the earth because of the glass firmament, meaning we are under a dome and in closed system. I agree with you "Space may be the final frontier but made in a Hollywood basement" nice touch Carlyi

 

[Rubenslash]

This is hilarious.

 

[Bill Bauer]

Realistically, who is actually getting rid of T after the initial treatment efforts and six month time window?

According to that Stats thread I posted - this is very realistic.

If someone's T is relentlessly at the same level throughout the six months, then I agree - it is not looking good, although that person is probably not completely hopeless (this will be the case after two years with absolutely no improvement). If someone's T had been improving gradually over those past 6 months, then why would there be a reason for it to stop improving (and to eventually disappear)? Well - one reason that comes to mind is additional noise traumas.

The success stories section is full of people who habituated, not people who woke up one day to total silence.

Those stories are there. Also, there are a number of people who had achieved total silence only to (years later) be exposed to more noise and have a second T experience. @jjflyman is one person, but I remember there were a number of others.

The statistics that people get better? It's most often that their perception of tinnitus gets better, not that it goes away.

People were asked whether they have T. They answered that they didn't. I am not sure why this implies that they just stopped minding it.

I do personally know one person whose tinnitus went away, and they never wore earplugs despite working five days a week with loud equipment.

The sample size is too small, and is overwhelmed by the sample size of people who didn't wear earplugs and got worse.

 

[Foncky]

This is hilarious.

Michael lost all credibility in an instant, I must leave TT, it will never be the same

Neh, it's just British humour.

 

[Michael Leigh]

Neh, it's just British humour.

Exactly @Foncky You understand British humour. Now, the idea is no-one will ever know whether I'm serious or just winding everyone up as we Brits say

 

[Foncky]

I like it a lot

 

[Tinker Bell]

If someone's T is relentlessly at the same level throughout the six months, then I agree - it is not looking good, although that person is probably not completely hopeless (this will be the case after two years with absolutely no improvement).

Where does this two year timeframe come from? I have never heard that for spontaneous recovery.

The sample size is too small, and is overwhelmed by the sample size of people who didn't wear earplugs and got worse.

I know, he's a complete anomaly.

Didn't wear earplugs at a loud concert? Correct, that could give anyone tinnitus. Fortunately, Sandra is planning to wear earplugs.

 

[jjflyman]

Realistically, who is actually getting rid of T after the initial treatment efforts and six month time window? The success stories section is full of people who habituated, not people who woke up one day to total silence.

My first bout with T (12 years ago, noise trauma from power equipment) was horrible, screeching full on T. It faded to ZERO in just over 18 months.
I'm now 9 months in my second bout with T (also noise trauma from concert) it has faded 75% so far.
So yes, at least noise induced T can fade. I don't know about long term noise exposure, but short term trauma exposer
can and usually does fade.

 

[Tinker Bell]

My first bout with T (12 years ago, noise trauma from power equipment) was horrible, screeching full on T. It faded to ZERO in just over 18 months.
I'm now 9 months in my second bout with T (also noise trauma from concert) it has faded 75% so far.
So yes, at least noise induced T can fade. I don't know about long term noise exposure, but short term trauma exposer
can and usually does fade.

Thanks for responding and sharing your story! Given the overwhelming number of people with longterm tinnitus, you might be a bit of an anomaly too. I wish you continued recovery and health!

I think you're right, too, in that the cause is probably a big factor. Overall health, whether there is hearing loss, and whether the damage is to the cochlea and/or auditory nerve are likely factors too.

 

[Bill Bauer]

Where does this two year timeframe come from? I have never heard that for spontaneous recovery.

https://www.ncrar.research.va.gov/Education/Documents/TinnitusDocuments/01_HenryPTM-HB_1-10.pdf
"A general guideline is that tinnitus of at least 12 months duration has a high likelihood of being a permanent condition (Dobie, 2004b). However, it also has been suggested that a person must have experienced tinnitus for at least two years before it should be considered permanent (Vernon, 1996)."
Link to Dobie 2004: https://books.google.ca/books?hl=en...AfBTNxz1AY#v=onepage&q=dobie tinnitus&f=false

I remember seeing many more sources mentioning "2 years", but I don't have time to find all of them.

Didn't wear earplugs at a loud concert? Correct, that could give anyone tinnitus. Fortunately, Sandra is planning to wear earplugs.

Unfortunately for her, there is a good chance that she will live to regret it:
https://www.tinnitustalk.com/thread...pite-wearing-properly-inserted-earplugs.20675

https://www.tinnitustalk.com/threads/earplugs-muffs-give-very-little-protection.21737/

https://www.tinnitustalk.com/threads/tinnitus-much-worse-after-club-despite-wearing-solid-35-db-custom-earplugs-—-im-at-my-wits-end.15744/#post-186018

https://www.tinnitustalk.com/threads/bad-spike-not-subsiding-after-loud-bar-—-despite-wearing-properly-inserted-earplugs.20675/#post-239000

https://www.tinnitustalk.com/thread...t-an-acoustic-trauma-shock.18964/#post-219363

https://www.tinnitustalk.com/thread...le-in-real-life-situations.19067/#post-220314

https://www.tinnitustalk.com/threads/33-decibel-earplug-not-protecting-from-sound.22151/

I could go on and on and on (provide links to more horror stories where people found out the hard way that it was a bad idea to rely on earplugs), but you get the idea.

 

[sirjames]

Thank you. My T was much worse the last few days and it's good to hear other people talking about it.

 

[Rick Garner]

Realistically, who is actually getting rid of T after the initial treatment efforts and six month time window? The success stories section is full of people who habituated, not people who woke up one day to total silence.

Hi Tinker Bell,

I woke up to total silence on March 13th this year (if I remember correctly) after having tinnitus for five and a half months. Living in total silence now. Please read my story in the success section.

 

[Bill Bauer]

Hi Tinker Bell,

I woke up to total silence on March 13th this year (if I remember correctly) after having tinnitus for five and a half months. Living in total silence now. Please read my story in the success section.

Thank you so much for letting us know about it, Rick!

Have you, by any chance, had any dental procedures done at any time between the onset of your T and now?

 

[TuneOut]

Tinnitus itself falls into other sub groups so a one treatment for all will be hard for any research company to find .

Hearing loss tinnitus
Acoustic trauma tinnitus
Ear conditions tinnitus
Ear cleaning tinnitus
Bone damage tinnitus
Virus tinnitus
Stress related tinnitus
Medication tinnitus and more..

Hope a cure for one of the above can be found and others may follow.

Love glynis

Most, if not all, of those causes concern damage to the ears. The central auditory system then no longer receives the required input. This leads to maladaptive neuroplasticity and the resultant phantom percept of tinnitus. Fix the ears and you fix the brain. That's my story and I'm sticking with it.

 

[Rick Garner]

Thank you so much for letting us know about it, Rick!

Have you, by any chance, had any dental procedures done at any time between the onset of your T and now?

Hi Bill,

Nope. No any dental work done in that period. Both my ENT and I are almost 100% sure that I had tinnitus due to a severe wax build up and dysfunction of Eustachian tubes.

 

[TuneOut]

Try noise-reducing earplugs instead of foam earplugs. Foam earplugs will close off all the external sound. Noise-reducing earplugs have filters in and will allow some sound through.
Michael

Why would she want to let some sound through?

 

[TuneOut]

this forum and the undesirables that are able gain access to it.

Lol