Tell Me the Truth... Is a Cure Realistic?

My priorities is to live, not merely survive, which is what i am doing right now.

If i cant go to this festival which everybody that i know will go to, then i will most definitely fall into major depression and be very suicidal again.....and who knows maybe this time i will follow through with my suicide attempt:cry: i actually attempted to hang myself a couple of weeks ago, it was a half hearted attempt but an attempt non the less.
Stay away from the speakers and wear ear plugs. I can almost guarantee that in 6 months your T will be much faded and you will be doing a lot better. I'm 9 months in and my T (noise exposure) has faded 75%. This is my second bout with T in my life (first one faded to Zero in 18 months) and I'm 57 years old, so even at my age the body can repair itself.
 
@TheDanishGirl ,
If you tried hang yourself two weeks ago I hope you have support from hospital as a out patient and a crisis line to contact them or open access to admit yourself.
Regardless of if you go to the festival that's your choice but I think getting some support for confidence and self worth and ways to cope with how you feel will help you and the support will help you then through life's ups and downs.

The festival with ear protection could do you good with how you feel for a few days but if it did cause you problems with your tinnitus wearing earplugs for a long time you need to be ok to deal with the unwanted emotions it can bring.
Depression and having to try get through each day when everything seams so hard to do the simplest things like getting out of bed,
Personal hygiene,eating ,talking,so depressed ending it all comes in to your mind,I know that you want to do what you can to help from going into a deep depression by going having some fun with friends is the best treatment for depression.

I know you will do all you can to protect your ears and take time out from the music as a precaution so I think you will be fine.
So make sure you get the support you need should you go into a deep depression with a action plan in place with your doctor and outside agencies....

Chin up and have fun...
Love glynis
 
if you gonna live the next 50 years avoiding all sounds above 60 DB you better just stop living right now.
Who said "the next 50 years"? I think it makes sense for her to protect her ears at least for the next 6 months, possibly for 1 or 2 years.
 
It most definitely mean that to me! If i cant go to the festival then T has won in my opinion.
But T is a long battle. T wins if you let it worsen shortly after onset. A few months are nothing. If you break your leg, you can't run for months. That doesn't mean you will never run very fast again. The same here.

Your choice, I just hope you see a therapist already because you need that more than a festival.
 
..i am not like most people.

Each one of us on this planet is unique @TheDanishGirl and all have our own special qualities. Tinnitus forums can be good, bad and ugly. Please read the post below.

The Good, The Bad And The Ugly.

This post will not be about that classic 1966 western with the same name. That stared: Clint Eastwood, Lee Van Cleef and Eli Wallach. However, if the title has sparked some interest then I'm pleased. Anyone that hasn't seen this film please try to, as I think you'll be in for a treat. Although I'm not a huge fan of westerns, I do like this one, along with that other great classic The Magnificent Seven, in which Eli Wallach appears again as the bandit Calvera. Those were the days when movies were movies no matter what the genre. Perhaps I'm being a little unkind, although I have a feeling I'm not alone with this thinking but that's for another day.

A few members have contacted me to discuss their concerns about this forum and the undesirables that are able gain access to it. They offer no help I'm told and therefore, it seems their only purpose is to constantly berate and spread negativity about life with tinnitus and the various treatments for it. One member who has been here for quite a while, said he feels his recovery is now being affected. He has decided to reduce his postings in the main forum and stay in private messenger, which will be a prelude to leaving tinnitus talk for good. I believe this is unfortunate because the person in question always gives good helpful advice to people new to this condition and having to deal with his own difficulties.

Today, someone new to this forum mentioned he was advised not to visit these places and asked for my opinion, as his thoughts were contrary to this. I believe there are some very helpful people at Tinnitus Talk, that give good advice and encouragement to those that are having a difficult time with tinnitus. This can be of real benefit and can give a person hope and purpose that all is not lost. It is especially true for someone with early onset. Many of us know of the emotional roller coaster that one can feel because of not knowing what each day will bring, until it starts to settle into some sort of rhythm, and this takes time. For many it can be a wakeup call and a steep learning curve towards habituation.

My advice to people seeking help in this forum and others they might visit. There will always be people that will feel sorry for themselves and choose to live their life bogged down in misery and despair. These people not only have tinnitus but often have other emotional baggage in their life to deal with and want to vent their frustrations to the world. Forums and other social media sites are perfect platforms for this. Try not to take it on because these people find it difficult to change and they will attempt to break you with their negativity.

In tinnitus terms I would say that I'm veteran, having lived with it for over twenty years. I have been there done that and still don't know everything about it. I have crossed swords with a few people in this forum that have tried to ruffle my feathers and this is to be expected. However, I remain stalwart and refuse to get into it with them and just ignore their condemnation and snide remarks. Put simply it's water of a duck's back. I understand this might not be so easy for some to tolerate and ignore but try not to let them get you down.

Tinnitus forums can be good, for there are often knowledgeable people there, with a wealth of experience to freely give to whoever asks for help. At times they can seem bad, due the negativity that's purported. When this is backed up with personal attacks and abusive language it often looks ugly. Don't respond because this shows more about them than it will about you and the kind of person they really are deep inside.

Michael
 
Take it easy now @TheDanishGirl No-one is saying that you shouldn't go to the festival, well I'm haven't said that. Just be careful. I hope you don't mind me saying: Try noise-reducing earplugs instead of foam earplugs. Foam earplugs will close off all the external sound. Noise-reducing earplugs have filters in and will allow some sound through. They can be bought at different levels of attenuation. Amazon will have them. Go to the festival and have a nice time just be careful.
Michael
Michael, why ? If she goes, she needs the maximum protection, at least for this one. That means foam earplugs. They won't "close off all the external sound".

Don't tell me she will make her ears more sensitive by using strong protection at a festival lol
 
This forum is helpful and the people are in the same shoes YOU are in. I don't see why you'd knock it and post negativity about it. Also, don't assume things either.....
 
Sandra, I am not trying to belittle you in any way, but this is a heartfelt post of how I feel.
I understand your problems very well as I have gone throug something very similar. All I can offer is my sincere experiences and advice, and you can see what you want to do with it. I completely understand about not wanting your life to be over, and feeling the pressure of attending the events that EVERYONE will be going to. you feel like missing out on life and maybe also some people or your peer group judging you for it.

You have to understand that you have an illness now that is very precarious for some, and not at all for others. Some are fine going to loud rock concerts from time to time (with great earplugs and standing as far away from the speakers as possible), while others can have their tinnitus became life devastating after attending just one concert after acquirering their tinnitus. Unfortunately nobody can tell you which person you will be. Although the evidence shows that for a lot more people it will get worse. If you still decide to go, then I would advice you to go just one day, and not multiple days. Wear the best earplugs you can find, and stand as far away from the speakers as humanly possible. Also, outside concerts are much better because the sound has somewhere to escape and not reverberate in the venue.

The problem with this illness is that especially in the beginning (first 6 -12 months).. your ears (or your brain) is trying to adjust or recalibrate itself to the damage that has happened. So any new shocks to the auditory system during that time can be extra detrimental. Your brain is trying to figure out a way how to quiet down the ringing and if you thwart it, it might just throw its hands up and say, you're on your own now. Nothing I can do if you're so stubborn as not to let me do my job.

As for your peer group. Tinnitus is not something a lot of people understand. Especially when you are young! But you have to know that your life is VERY long. You are going to go through so many phases of your life. From now on, unfortunately you will have to think long and hard before doing stuff because of what you have and the risks of what it involves. Yes, welcome to adulthood.

I guess this was almost like a letter to my younger self, wishing I would have liked someone to tell me all of this when I first got tinnitus. You can still have a very nice life, and tinnitus certainly hasent won. but you just have to think about everything that you do from now on, and make smart choices that will benefit you not only now, but also in the long run. I wish you all the best.
 
Michael, why ? If she goes, she needs the maximum protection, at least for this one. That means foam earplugs. They won't "close off all the external sound".
Don't tell me she will make her ears more sensitive by using strong protection at a festival lol

@Foncky you are entitled to your opinion and I respect that; I just happen to disagree with you. @TheDanishGirl wants to enjoy her time at the music festival and not to feel as if her "head is under water" and that's what the foam earplugs will do. All she needs, in my opinion, is a reasonable pair of "noise-reducing earplugs" that I have shown her and don't cost the earth and I'm sure she will have a nice time.

Michael
 
If we talk about sound quality, we agree ! Foam is not great for that. But I really think this festival, if she goes, should be about getting some confidence back and not hoping for a perfect musical experience.

That means, in my opinion, using a powerful protection.
 
That means, in my opinion, using a powerful protection.

You are forgetting one thing @Foncky and that is "bone conduction". The best earplugs in the world will not stop sound entering the inner ear if it is loud enough because it can pass through the skull or transferred through it to the inner ear by bone conduction. I believe as long as @TheDanishGirl wears the noise-reducing earplugs stays well back as she intends to do, she won't have any problems. By the time she is ready to go to the festival her tinnitus and auditory system will have improved further. She is making steady improvement and that is a positive thing and the fact that she wants to go out will improve her confidence and mental well-being.

Michael
 
Use the highest rated foam earplugs you can find (which are 33 decibels are far as I've discovered.) If you are going to risk being around concert level sounds you should protect as much as possible. ....if you even choose to go.

Oh, and make sure you learn how to properly insert a foam earplug otherwise it won't do its job - it's not so straightforward.

These are what I use when needed:

https://www.amazon.com/Protection-C...qid=1499115444&sr=8-6&keywords=foam+ear+plugs
 
If we talk about sound quality, we agree ! Foam is not great for that. But I really think this festival, if she goes, should be about getting some confidence back and not hoping for a perfect musical experience.

That means, in my opinion, using a powerful protection.
I agree. If it were me, I would not go, but at the very least I would use foam plugs. Don't be the person who would give anything to go back in time and make a different decision. She is only a couple months in with T, don't make things worse.
 
I'm Sure @TheDanishGirl will read everyone's replies and then she can make up her own mind and what plugs to take .
Maybe take both as only a few pound as I know Sandra will do everything possible to protect her ears.
@TheDanishGirl we do have advantage as you know how protect your ears and think of all the others unprotected.
Love glynis
 
How do you people truly live enjoyable lives with your T?? I don't believe it
It is a recurring theme that you start thinking life is over because you obsess over your background noise. It is like living next to a road when you used to live in the country. You do get used to the background sound. I still get anxious at times, but my situation is a lot better than before.

As for concerts, I have accepted that I can't. It's not for me anymore. It is important to live a full life, it's the source of your energy. The bad parts are not that bad if you live a little. Celiacs can't eat gluten, and I can't go to concerts. There are many other things I can do.

Maybe it it just the fact that you all are very different from me. Like i said....i am not like most people.
I advise you to keep some kind of diary and write down how things make you feel. If you let your thoughts come and go, you may indulge in self pity and negative thoughts, which is not the way to recovery. However, if you force yourself to write down things, you will have to clarify and make sense of things. A silly thought put on paper loses much of its power, because well, it is silly, and has nowhere to hide.
 
Sorry if I sounded too direct Sandra because it was not my intention. Everyone here has T and nobody likes it. I myself have 4 high tones which all oscilate and one pulsating 50 hertz low tone which is driving me insane from time to time. But there are also people who have T that is so loud that they still hear it under the shower. We're not here to throw a pity party who is off worse because we are experiencing T alone. Everyone got his/her own unique sound and a fact is that our ears are now special little snowflakes. Even if you or I recover then we have to take extra care for our ears.

But attending a festival or committing suicide is rather black and white and also discouraging to read for other people who are struggling with T. You have to find out to enjoy other things now as I am trying.

When I was younger my favourite fruit were strawberries. But at the age of 7 I developed allergic reactions with unknown causes which made my skin itch, my throat was swolling up and I could not eat anymore. Turns out I became allergic to strawberries and I quickly found out that red colored food, natural or synthetic, triggered my allergy. So no more strawberries for me. During the years I started liking apples more and I have tried a strawberry last year but I did not like it as I used to. Moral of the story is that even though I can't enjoy strawberries anymore I did find something other to enjoy.
 
Man! I wish i could just fall asleep and never wake up:cry: or that i had the courage to end myself.

I have dealt with a bad childhood, an awful youth were i was bullied and an adulthood with multiple depressions and anxiety. I have been to over 100 therapy sessions with various therapists, without any real change happening.....and now this....it is like the final nail in the coffin, the last straw....

I should never have been born:cry:
 
Man! I wish i could just fall asleep and never wake up:cry: or that i had the courage to end myself.

I have dealt with a bad childhood, an awful youth were i was bullied and an adulthood with multiple depressions and anxiety. I have been to over 100 therapy sessions with various therapists, without any real change happening.....and now this....it is like the final nail in the coffin, the last straw....

I should never have been born:cry:
You are still here, you have plenty of courage. You went through a lot and that takes courage. I think you have more courage than you know. And if you go to the festival wear plugs and if it's to much for you don't be a hero and just leave.
 
@TheDanishGirl I can totally relate. I've been anxious all my life and depressed for more than a half of it. Ever since I can remember, I've always waited for things to get better. Even now, I'm still waiting in spite of the fact that things are going the opposite way. The quote "People wait all week for Friday, all year for summer, all life for happiness" encapsulates my whole life in a nutshell.

But somehow, we're still pushing on. That has to count for something, right? We don't have a real cure or treatment yet but there are people working on it. In the meantime, it's best to derive whatever joy we can still get out of this life. It's not going to last forever anyway.

As for the festival, I suggest you forego it this year but if you must go, wear ear protection, skip some days, take frequent breaks, stay away from all speakers, and leave as soon as it gets uncomfortable.
 
I have tried both musicians plugs and foam plugs. Musicians plugs took the edge off and didn't spoil the music. Foam plugs were awful and muffled everything to the point where its better to stay at home and go on youtube/ dvd of concerts. So maybe its better you don't go especially as its new.

Having said that when i first got t I didn't run to internet forums, only to a high street audiologist and he told me to protect my ears at concerts which i did with alpine plugs and i was fine. About 6 months later i decided to google tinnitus and came across this forum, read the horror stories and it has put me off going to concerts again. Maybe thats a good thing as i will avoid potential worsening, maybe not. It sure would suck if i went to a few more and it got permanently louder though, therefore at the moment i am not willing to risk it. Maybe one day in the future i will be brave enough.
 
Foam plugs were awful and muffled everything

Foam earplugs are meant to be used in noisy environments or when using noisy power tools or machinery. I agree with you @Sam Bridge I probably wouldn't go to a music festival if I were in the early stages of tinnitus caused by noise trauma. However, I think this is something important to @TheDanishGirl and providing she's careful I don't think she'll have any problems. Hopefully her tinnitus will improve more in the coming weeks leading up to the festival. The Alpine noise reducing plugs that you mention seem to be popular and I recommend them. Using foam earplugs at such a place would destroy the music experience and I agree, one might as well not go if they are going to wear them.

Michael
 
@Michael Leigh as i mentioned in my post above, t did not stop me initially from going to concerts and i was fine. People have mentioned in this and other threads that you should leave it x months before returning to concerts/loud environments, is there any evidence to back that up because i did the opposite and was okay. I mean, even if you do wait x months before going to a loud place and you still have t, has anything actually changed to your ears or is it wishful thinking?
 
I plan to stay at home 1 day and rest, and maybe stay away from the music scene itself 1-2 of the other days, and enjoy the music from a greater distance.

I am planning on wearing 3M 37b foam ear plugs, i know i am not 100% safe, but nothing is 100% safe here in life anyways.

Sandra I wouldn't go if I was in your shoes. Even with ear plugs you risk a lifetime worsening, there are people here who got it worse being at the concert with ear protection, as Michael Leigh said there is bone conduction. Not worth it. Try to find other things in life that you enjoy. I used to be a concert goer (not frequent but still), one of the concerts left me with permanent T over 2 years ago. I will never go to concert again, I just don't want to risk.
 
but i know that if i don't go i will be majorly depressed and almost 99,9% have a huge set back with suicidal thoughts going strong and so on, and it is just not worth it
And were you to get worse after? Were you to have Hyperacusis hop aboard as well? These are the kinds of things you now have to think about. What you need isn't always what you may want.
 
@TheDanishGirl leave it for this year, rest your ears, there will be other chances, it's not worth it right now. If things haven't improved in 2 years then it will be a different story. If you'd hurt your knee I would've advising you to miss your marathon for which you've trained hard..honestly there is enough noise we can't escape everywhere as it is.
Maybe have a few months where you chase outdoor pursuits, will be doing the same, then u can get fit from that. x
 
@Michael Leigh as i mentioned in my post above, t did not stop me initially from going to concerts and i was fine. People have mentioned in this and other threads that you should leave it x months before returning to concerts/loud environments, is there any evidence to back that up because i did the opposite and was okay. I mean, even if you do wait x months before going to a loud place and you still have t, has anything actually changed to your ears or is it wishful thinking?

Tinnitus is a very complex condition @Sam Bridge. What affects one person might not in another. In your case what you done was the right thing for you. However, loud noise and tinnitus do not usually mix well together especially when it was caused by "noise exposure". If hyperacusis is also present, it can make the situation worse. It is for this reason I recommend anyone with "noise induced tinnitus" to never use headphones even after habituation has been reached, as I feel there is always a risk of making the tinnitus worse. Tinnitus can be ruthless and only takes one slip and it can be months or even a lifetime of misery due to a mistake.

My own experience is evidence of this. My tinnitus was manageable and low but all that changed one evening in 2008, after listening to a some music on my HI-FI late one evening. I didn't think it was particularly loud as I was listening to a symphony and turned up the volume slightly. Everything seemed fine until the next morning, when I woke up to loud intrusive tinnitus that got progressively worse over the following weeks. It took 4 years to habituate and now I'm left with variable tinnitus that can still reach severe levels.

All I'm saying is that a person is never completely out of the woods when they have noise induced tinnitus. Danger comes when a person habituates and they "forget" something they must try not to do. Enjoy life but be aware when around loud sounds and use appropriate ear protection. This doesn't mean to the point of being obsessed over it or overusing ear protection as this can make matters worse.

Michael
 
You are forgetting one thing @Foncky and that is "bone conduction". The best earplugs in the world will not stop sound entering the inner ear if it is loud enough because it can pass through the skull or transferred through it to the inner ear by bone conduction. I believe as long as @TheDanishGirl wears the noise-reducing earplugs stays well back as she intends to do, she won't have any problems. By the time she is ready to go to the festival her tinnitus and auditory system will have improved further. She is making steady improvement and that is a positive thing and the fact that she wants to go out will improve her confidence and mental well-being.

Michael
Guess you're right.

But really, the Earth is not flat :rolleyes:
 

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