Tinnitus Classification for the General Public

[Ed209]

If I had joined TT today, my fear is that I probably would have killed myself. Pretty much all the support has gone or been driven away.

 

[Jazzer]

Because you have been incredibly arrogant and demeaning to me when I tried to tell you how much I suffered myself.

Your self admitted Tinnitus volume is
15 dbs.
"......how much you suffered???"

'WOW - that would be a luxuary to me my friend."

 

[kelpiemsp]

Your self admitted Tinnitus volume is
15 dbs.
"......how much you suffered???"

'WOW - that would be a luxuary to me my friend."

It was 15 dbs above my base measurement which occurred at 60db. Like I said, I misrepresented it. Sheesh I'd love to have this much trouble reading.

I'd love for something that I could mask at 60db.

 

[Bam]

I totally understand what you're saying and agree that medical professionals and the general public need to be aware that there are different intensity levels of tinnitus and that it is a serious condition. However, your guide is drastically simplifying what is an extremely complex condition, and it could never be used professionally.

I really sympathise with your case, Bam, and that of all other sufferers, but you cannot just censor positive stories from existence. That is equally as bad as what you're suggesting. There exists a middle ground that takes everything into account. If newcomers were told that there's no hope for them and that most people kill themselves or suffer forever, we would be showing them what tinnitus is like through a very biased lens, rather than an accurate one. This works both ways. If we censored all the worst cases then people would generally look and think "this tinnitus thing ain't no big deal."

What we need is the truth. Nothing more, nothing less. There is no need to sensationalise it either way.

I wasn't going to post this, as last time I replied, I got a ton of abuse calling me a troll and all sorts of other stuff. If we can't speak openly then what's the point? It becomes a dictatorship instead.

Ed I'm all for true stories of getting better. All I asked is that people pause a second and genuinely question what their motivation is. As @Wolfears pointed out. Has the situation really improved or is it just bravado?! An attempt at a self fulfilling prophecy.

I stand by what I said. Telling people the noise is still the same but they're 100% better, when it's not actually true, can be very damaging to the mindsets of people who then feel like failures for being unable to achieve the same blissful state of insouciance.

And it seriously damages the absolute necessity that a cure be found for the many people who are in a really really bad way.

 

[Bam]

I don't take any meds.

Wasn't referring to you Ed.

 

[Tinker Bell]

I don't take any meds.

Nor do I. Were not even an option due to another health condition.

 

[RCP1]

Guys chill - We're all on the same side here.

 

[Wolfears]

No I don't. I don't feel bad for pointing out when someone marginalizes a segment of people. I will call out some one when they marginalize another group. Which is exactly what you yourself are doing. Real sufferers like me need to be told it's in your head because frankly that is how I interact and interpret my world. So step off.

You are clearly confused...there is no marginalizing on my part..I only point out the ugly facts.
You on the other hand live in a fantasy world, that has nothing to do with reality.

Correct me if I'm wrong, but aren't you the guy who is/was currently enrolled in a trial for one of the upcoming tinnitus reducing devices?

If you truly are one of those whom "need to be told" a blatant lie about tinnitus being all in their head, why the device trial?
Why not just use some of your double think powers instead?

Or does that mean, that you yourself don't believe your own BS?

 

[Ed209]

Guys chill - We're all on the same side here.

Team Tinnitus. We all want the same, and with that I'm going to bed.

 

[Bam]

If I had joined TT today, my fear is that I probably would have killed myself. Pretty much all the support has gone or been driven away.

I highly doubt anything anyone reads on the internet is going to kill them or not kill them. Tinnitus on the other hand coupled with doctors playing down its effects with the classic, 'ignore it and get on with your life,' very nearly did kill me and has killed many others who committed suicide right after their cosy habituation chat with a doctor.

 

[Audiophile_bg]

Yeah but ignore it works for some people. What about all of those people who "ignore it" works for. Because for some it does work!

But it will not work for many people. What about an actual treatment.

 

[Ed209]

I highly doubt anything anyone reads on the internet is going to kill them or not kill them.

I'm not so sure. I had a complete breakdown and I needed to see if there were people out there who could live with it. Luckily @billie48 was the first person to reply to me and he calmed me down somewhat. Like I said, it's not black or white. We cannot assume that our personal situation is what others will face, and this is something I think we're all guilty of.

We project our reality onto others.

 

[Jazzer]

Guys chill - We're all on the same side here.

You are absolutely right my friend.
I simply did not appreciate his snide comment to me some weeks back.
I just happened to remember his name.
Whatever - I forgive him xx

 

[Michellejean]

Haven't read any replies on this thread. I'm level 3. And sometimes I get pissed that people who had tinnitus for a month share their story of deep dark depression, then one day it's gone and life's good. Ugh. I'm so bitter and angry. This is NOT me. I'm a yoga teacher for goodness sake's!

 

[Tinker Bell]

I highly doubt anything anyone reads on the internet is going to kill them or not kill them. Tinnitus on the other hand coupled with doctors playing down its effects with the classic, 'ignore it and get on with your life,' very nearly did kill me and has killed many others who committed suicide right after their cosy habituation chat with a doctor.

Not true. People in vulnerable mental states can be influenced by what they read online. There are cases of individuals committing suicide following something they read online, often from cyber bullies.

I wrote a goodbye letter after something I read on this forum. The forum did not pull me out of my suicidal mindframe, instead it seemed to feed into my assumptions and catastrophic thinking.

 

[Jazzer]

No I don't. I don't feel bad for pointing out when someone marginalizes a segment of people. I will call out some one when they marginalize another group. Which is exactly what you yourself are doing. Real sufferers like me need to be told it's in your head because frankly that is how I interact and interpret my world. So step off.

I almost understood a word he said.....x

 

[Bam]

Not true. People in vulnerable mental states can be influenced by what they read online. There are cases of individuals committing suicide following something they read online, often from cyber bullies.

I wrote a goodbye letter after something I read on this forum. The forum did not pull me out of my suicidal mindframe, instead it seemed to feed into my assumptions and catastrophic thinking.

I'm sorry to hear that Tinker. Of course I see how it can have that effect but I honestly believe what I said about doctors downplaying it. They threw me in to a full on breakdown with their backslapping you'll be fine bullshit. It was like being in an alternate reality.

 

[kelpiemsp]

You are clearly confused...there is no marginalizing on my part..I only point out the ugly facts.
You on the other hand live in a fantasy world, that has nothing to do with reality.

Correct me if I'm wrong, but aren't you the guy who is/was currently enrolled in a trial for one of the upcoming tinnitus reducing devices?

If you truly are one of those whom "need to be told" a blatant lie about tinnitus being all in their head, why the device trial?
Why not just use some of your double think powers instead?

Or does that mean, that you yourself don't believe your own BS?

You are clearly ignorant and confused as well. Rephrase your question in a less ignorant and condescending answer and I will respond. Until you show your capable of rational debate I will refrain.

::sigh:: I miss debating with @Bill Bauer he's open minded and you get to a point instead of this pointless meandering. Sorry for bringing you in here bill.

 

[Ed209]

Of course I see how it can have that effect but I honestly believe what I said about doctors downplaying it.

Yea, I agree with you there. I've experienced this; they need better training and a much better way of approaching patients.

 

[kelpiemsp]

You are absolutely right my friend.
I simply did not appreciate his snide comment to me some weeks back.
I just happened to remember his name.
Whatever - I forgive him xx

I felt the same way Jazzer. I really expected an apology from you. But one never came.

 

[Wolfears]

You are clearly ignorant and confused as well. Rephrase your question in a less ignorant and condescending answer and I will respond. Until you show your capable of rational debate I will refrain.

::sigh:: I miss debating with @Bill Bauer he's open minded and you get to a point instead of this pointless meandering. Sorry for bringing you in here bill.

I think that asking why you contradicting yourself was pretty rational, but I digress.

I do understand, that the best strategy for someone in your position is to play offended and show yourself out when your contradictions are put into question.
Each to their own I guess.
Have a nice day.

 

[kelpiemsp]

I think that asking why you contradicting yourself was pretty rational, but I digress.

I do understand, that the best strategy for someone in your position is to play offended and show yourself out when your contradictions are put into question.
Each to their own I guess.
Have a nice day.

Just because something is occurring in my brain doesn't mean I can just think it away over night. That is silly. And that is not what doctors mean when they say "it's in your head".

 

[kelpiemsp]

I think that asking why you contradicting yourself was pretty rational, but I digress.

I do understand, that the best strategy for someone in your position is to play offended and show yourself out when your contradictions are put into question.
Each to their own I guess.
Have a nice day.

Basically what you are doing is what many fascist dictators have done. You are blaming your experience and your unhappiness on a subset of your same population, and then trying to turn the larger population against them. In this analogy you are acting like a dictator (say Hitler), Tinnitus Talk is the country, and pro-habituation people are those that were oppressed by nazi Germany. I hate to explain it like this but I'm not sure how else you will understand...

 

[Zeneth]

I'd say volume wise, I'm "moderate" yet telling someone that I have "moderate tinnitus" probably won't do me any justice and will just make them think "okay it's just a small problem"

Not true. People in vulnerable mental states can be influenced by what they read online. There are cases of individuals committing suicide following something they read online, often from cyber bullies.

I wrote a goodbye letter after something I read on this forum. The forum did not pull me out of my suicidal mindframe, instead it seemed to feed into my assumptions and catastrophic thinking.

Honestly, if anything, this forum has given me hope, reading and going through all these possible treatments/cures helps me feel better..

MuteButton
Fx-322
RL-81 (Dr. Thanos's research)
Decibel Therapeutics
Susan Shore's device
Dr. Minbo Shim's treatment
Stem Cell stuff
etc etc

I'm surprised that so many people still don't even know about this stuff.

 

[Audiophile_bg]

Basically what you are doing is what many fascist dictators have done. You are blaming your experience and your unhappiness on a subset of your same population, and then trying to turn the larger population against them. In this analogy you are acting like a dictator (say Hitler), Tinnitus Talk is the country, and pro-habituation people are those that were oppressed by nazi Germany. I hate to explain it like this but I'm not sure how else you will understand...

This is just insane tho.
The doctors telling people with loud tinnitus "hur dur just tune it out man", yet they are literally Hitler and oppressing people and stuff.
This is developing into Reddit discussions at this point.

 

[Bill Bauer]

I needed to see if there were people out there who could live with it.

I never doubted that there are people who can live comfortably with loud T. This doesn't mean that I will be able to live with it.

You are blaming your experience and your unhappiness on a subset of your same population, and then trying to turn the larger population against them.

Just because someone is paranoid, doesn't automatically imply that no one is trying to harm them.

 

[Wolfears]

Basically what you are doing is what many fascist dictators have done. You are blaming your experience and your unhappiness on a subset of your same population, and then trying to turn the larger population against them. In this analogy you are acting like a dictator (say Hitler), Tinnitus Talk is the country, and pro-habituation people are those that were oppressed by nazi Germany. I hate to explain it like this but I'm not sure how else you will understand...

Another great strategy....you are a real thinker.
Compare your opponent to Hitler.
I can clearly see, that I hit a nerve with you somewhere...
Your accusations and fantasies are now hitting a new low.
Yes you got me...I'm trying to put all of you in a concentration camp.
Anything else you got there?

 

[Michellejean]

@Ed209 it sounds like you are on good terms with your tinnitus these days. Is it severe tinnitus? I think our ability to cope and past anxiety, trauma, and likeliness to develop depression or have depression regardless of tinnitus plays a role in habituation as well. My tonal tinnitus can be canceled out at 45 decibels though I do sometimes here the tonal in the car.
My reactive winding up tinnitus I can hear in an airplane.

 

[Bill Bauer]

it sounds like you are on good terms with your tinnitus these days.

@Ed209 have you experienced any improvement following that spike that was a result of an MRI? I sincerely hope that you and your dad will end up being and feeling well.

 

[Telis]

If I had joined TT today, my fear is that I probably would have killed myself. Pretty much all the support has gone or been driven away.

Wow!!! You are one seriously messed up dude if you kill yourself based on what some members say on a support forum. Is this a millennial thing?