Tinnitus Classification for the General Public

This is why shit like "don't be afraid of tinnitus" piss me off.

Again: WE NEVER SAID THIS!!!!

Never ever said that, it was merely your misinterpretation of something else I said, which I've tried to explain to you like 200 million times by now (or so it feels, LOL).

Wow, you got me to write a message in all caps ;) :D
 
if they are going to use their position of influence to down play people's tormented destroyed lives then we would be better off if their existence came to a halt. I'm not advocating violence against them I'm just stating the truth.
 
It's time for the segment of this thread called "derpytia gives her two cents worth!"

Have you forgotten that there may be people out there with new, catastrophic tinnitus just like you that is searching these forums for some sort of solace? What about those who are looking for a community of people with tinnitus to be a part of so they don't feel so alone with this condition? And what are they going to find?

I can only think that such fighting is the result of being struck with desperation borne out of dealing with your tinnitus in either an unhealthy way or alone for too long. And I get that. I really really do. But it DOESN'T EXCUSE this sort of behavior. It just doesn't.

Your suffering is valid! The moment someone invalidates you doesn't mean that the rest of the world has. Try to wrap your head around that! Tinnitus makes it easy for us to give into our brain's lies that we are alone and no one gives a crap about us. That is a LIE. There are plenty of people who don't care about us unhappy sufferers but there are also people who DO. Don't throw the care and support of those few people down the drain just because it feels like the odds are stacked against us. That is cheapening the support that we do have.

Before someone chimes in with a "derpytia doesn't understand our suffering" go find my "Success Story" in the Success Stories section of this forum. What I've written isn't anywhere close to being what you think it is.

If you have wronged or hurt someone in some way on this forum, please consider swallowing your pride and apologizing. Don't expect forgiveness (because no one is owed forgiveness just because they apologize) but be pleasantly surprised and thankful if it is extended to you. Likewise, if someone apologizes to you, consider letting your hurt and anger go and forgiving them so that you and they can move forward. Consider doing these things so that we as a COMMUNITY can move forward, no matter how much it hurts, and accomplish some wins for the team!

So many TT rules and netiquette have been broken here and I'm disappointed in it. We can do better. <3
 
And exactly what kind of action do you propose I do?

I already told you, I refuse to get involved in projects, that undermine tinnitus...

Yes action speaks louder than words, but I'm not so sure if you speak English...or maybe you are just confused?
dude don't speak out against the status quo
 
Its aim is not to make people afraid.

Again: WE NEVER SAID THIS!!!!

Never ever said that, it was merely your misinterpretation of something else I said, which I've tried to explain to you like 200 million times by now (or so it feels, LOL).

Wow, you got me to write a message in all caps ;) :D
Look... I know you mean well, but you did say what that the aim of the guide is for people not to be afraid.
 
That statement can be interpreted in two ways @Wolfears

It can mean that we're telling people "don't be afraid" - this is how you interpreted it, but not what I meant.

Or it can mean: "The aim of the guide is something other than telling people: "be afraid"" - This is what I meant. So we are neither telling people to be afraid nor telling them not to be afraid. We are simply not advising them on this topic altogether. They can make up their own minds about that based on objective information.

Anyway, this is like the 200 million + 1 time I tried to explain. Wow.
 
...er.....if this battle goes on much longer
I'm gonna go and put my jock-strap on.

(I get frightened ye know)
 
@Wolfears

- come on buddy - have you started writing yet ??
I did Dave...but as I was already explaining above, lot of people do not feel comfortable with having their quotes shared on such public platform.

This is a huge setback needless to say.

So far I'm still fairly busy at work, so haven't had time to re-think my next strategy.
 
It's time for the segment of this thread called "derpytia gives her two cents worth!"

Have you forgotten that there may be people out there with new, catastrophic tinnitus just like you that is searching these forums for some sort of solace? What about those who are looking for a community of people with tinnitus to be a part of so they don't feel so alone with this condition? And what are they going to find?

I can only think that such fighting is the result of being struck with desperation borne out of dealing with your tinnitus in either an unhealthy way or alone for too long. And I get that. I really really do. But it DOESN'T EXCUSE this sort of behavior. It just doesn't.

Your suffering is valid! The moment someone invalidates you doesn't mean that the rest of the world has. Try to wrap your head around that! Tinnitus makes it easy for us to give into our brain's lies that we are alone and no one gives a crap about us. That is a LIE. There are plenty of people who don't care about us unhappy sufferers but there are also people who DO. Don't throw the care and support of those few people down the drain just because it feels like the odds are stacked against us. That is cheapening the support that we do have.

Before someone chimes in with a "derpytia doesn't understand our suffering" go find my "Success Story" in the Success Stories section of this forum. What I've written isn't anywhere close to being what you think it is.

If you have wronged or hurt someone in some way on this forum, please consider swallowing your pride and apologizing. Don't expect forgiveness (because no one is owed forgiveness just because they apologize) but be pleasantly surprised and thankful if it is extended to you. Likewise, if someone apologizes to you, consider letting your hurt and anger go and forgiving them so that you and they can move forward. Consider doing these things so that we as a COMMUNITY can move forward, no matter how much it hurts, and accomplish some wins for the team!

So many TT rules and netiquette have been broken here and I'm disappointed in it. We can do better. <3

I apologise for my language but I acted out of sheer frustration. To see the efforts of others pulled apart so easily really touched a nerve tonight.

I apologise to anyone who took offence including you Wolfears. I'm not here to argue, but you was out of order and I couldn't help but post in defence of all the effort that's gone into the work here.
 
That statement can be interpreted in two ways @Wolfears

It can mean that we're telling people "don't be afraid" - this is how you interpreted it, but not what I meant.

Or it can mean: "The aim of the guide is something other than telling people: "be afraid"" - This is what I meant. So we are neither telling people to be afraid nor telling them not to be afraid. We are simply not advising them on this topic altogether. They can make up their own minds about that based on objective information.

Anyway, this is like the 200 million + 1 time I tried to explain. Wow.
I know what you said...the way it was worded leaves no room for misinterpretation... unfortunately.

Again I have nothing against you personally so don't take this the wrong way.
 
I apologise for my language but I acted out of sheer frustration. To see the efforts of others pulled apart so easily really touched a nerve tonight.

I apologise to anyone who took offence including you Wolfears. I'm not here to argue, but you was out of order and I couldn't help but post in defence of all the effort that's gone into the work here.
All good Ed... bed time for me now.
 
I did Dave...but as I was already explaining above, lot of people do not feel comfortable with having their quotes shared on such public platform.

This is a huge setback needless to say.

So far I'm still fairly busy at work, so haven't had time to re-think my next strategy.

- thanks for coming back buddy xx
 
I love all of you guys - and gals - and I won't let any of you talk me out of it
- so there !!!

(I can't help being a soppy old sod)
 
Again I have nothing against you personally so don't take this the wrong way.

I also have nothing against you personally, but I still think you deliberately misinterpreted my words. Again, you've not read a single word from the guide, so don't judge our work before you've seen it.

You make a lot of presumptions and assumptions. They're just not founded, that's all - much as you keep insisting otherwise. We are actually here to help all tinnitus sufferers, we're not some evil conspiracy wanting to make your life hell. If you had taken some trouble to look into the work we actually do behind the scenes you would understand this.

Coming back to my previous call for action (no, I'm not giving up on this one): Will you share your personal story with us in such a way as can be used for awareness raising?!? I also PM-ed you about this, but no response yet. Come on dude :)
 
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I'm out of this thread now, it's draining what little energy I have left nowadays.

Good night guys and gals.
these things need to be said. on one hand I sorta understand the people that run the community forum to not be militant towards the ata and bta despite their extremely insulting white gloved and watered down advocacy efforts if you could even call them that, but on the other hand there could be much more attention given to the horrible affect tinnitus has on some of us. to be fair, the people that run this site are probably in a sort of difficult position, they know but they probably want to be professional and not burn bridges. I will at least say ed209 did post criticism of the ata that got them on the defensive regarding their tweet about the lady gaga movie. this is all just fucked. the sad part is that there may be a cure sitting in a cabinet somewhere right now.
 
We're all friends here stop fighting!


*hides behind @Jazzer in the corner*
 
I have read over 6000 highly professional articles and case studies on physical tinnitus where I have 1200 saved downloads.

In conclusion of my research almost all physical tinnitus associates to six areas. I have posted many links per each six areas.

1. Dental, Head, Face, Neck and Shoulder Connection.
A few easy to read links about this:
http://www.dentalwholebodyconnection.com/casereports.html
http://wholehealthdentalcenter.com/head-jaw-neck-back-pain/
http://www.icnr.com/cs/cs_50.html

2.Facial interactions to each physical tinnitus condition.

3. The cervical spine with all relations to somatic physical tinnitus.

4. Occipital nerve input. Nerve trauma. The brainstem with injury conditions.

5. Muscles that associate with each different somatic physical tinnitus condition.
Muscle imbalance.

6. Possible infection

If I wasn't in such pain, I would write a complete physical tinnitus handbook - guide with cause and treatment.
 
I have read over 6000 highly professional articles and case studies on physical tinnitus where I have 1200 saved downloads.

In conclusion of my research almost all physical tinnitus associated to six areas. I have posted many links per each six areas.

1. Dental, Head, Face, Neck and Shoulder Connection.
A few easy to read links about this:
http://www.dentalwholebodyconnection.com/casereports.html
http://wholehealthdentalcenter.com/head-jaw-neck-back-pain/
http://www.icnr.com/cs/cs_50.html

2.Facial interactions to each physical tinnitus condition.

3. The cervical spine with all relations to somatic physical tinnitus.

4. Occipital nerve input. Nerve trauma. The brainstem with injury conditions.

5. Muscles that associate with each different somatic physical tinnitus condition.
Muscle imbalance.

6. Possible infection

If I wasn't in such pain, I would write a complete physical tinnitus handbook - guide with cause and treatment.
To clarify Greg, is this a list of possible physical causes beyond hearing loss?
 
@Tinker Bell. Hearing loss does need to be considered. With physical tinnitus loud noise isn't usually a major involvement, so hearing loss with some forms of physical tinnitus is often not severe.

This link provides a series of articles (three pages of title articles) where some discuss the relationships of hearing loss to physical tinnitus. I have other links.

https://trainingandrehabilitation.com/articles/
 
Again what are YOU doing outside this forum to help and try and make a difference?

Please explain to me. I know I could be doing so much more.

I think the major point here is and this has been raised by @Telis and others. Those with severe T are virtually crippled by this condition, drowning in stress, insomnia, financial worries, relationship breakdown....basically isolated and tortured. We're not really in a position to 'help' because we're clinging to life and just trying to survive. We rely on the BTA to tell the world, 'look these people are desperate and killing them selves because they have no other escape from daily torture and if they don't commit suicide their condition gets worse and worse and worse.'

Anyone who thinks this is fanciful is a fucking delusional apologist because I genuinely don't know if I'm going to make it through Xmas as a homeless sufferer with zero family or support during this holiday period.

You can all go and attack Wolfears and me but your version of life with this condition where you run around working on little projects is so far from my fucking nightmare reality it's untrue.

I'm done with this bullshit. Good luck all
 
You do realise you will drive all the real advocates away with your constant complaining? Why should people bother to help when this is the shit they have to put up with.

If their help is to create watered down pamphlets about coping with this life destroying disease we don't need their help.

We need a strong message to the world that tinnitus needs to be cured above everything else right now or people will keep suffering horrendous torture and killing themselves day in day out.

End of. That's the message. Clear and simple.
 

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