- Sep 5, 2015
- 718
- Tinnitus Since
- 2015 resolved, 4/20 L ear, increase 2/21
- Cause of Tinnitus
- 2015,noise,2020-21 SNHL
I am re-introducing myself. I first joined this forum in 2015 after developing bilateral tinnitus. At the time, I did not know the true cause. I had attended a loud concert without ear protection a few days before but I was also diagnosed with bilateral fluid in my ears. I also had aural fullness in both ears. Needless to say it was horrible and I went into a terrible depression. I was put on Zoloft (gained 60 lbs on it ugh) and Klonopin to manage my acute anxiety. I used masking devices and a sound pillow to sleep - I even had a travel sound pillow to take with me when I had to travel for work. I brought sound machines to meetings at work. It was awful. I was lucky though, in that my ENT had a lot of experience with tinnitus and has tinnitus herself. She was very supportive. My hearing test was in her words "perfect." She told me ears take a really long time to heal as long as the damage isn't permanent and to give it time and to move on with my life. And try really really hard not to focus on it. So I was left with trying to cope.
This forum was a tremendous source of support and hope. Over time, I started not to notice it anymore. I stopped using sound machines or the sound pillow. I would say for the last almost 4 years it has been all but gone. I would have to struggle to hear it and most of the time I didn't even bother because it was imperceptible. That is not to say that the first year or so wasn't pure Hell. My tinnitus was all I could think about. Every day was a marathon just to get to the point where I could knock myself out and sleep, only to wake up and realize I was still in Hell. But I got better. I never had spikes. It was just way, way in the background or for all intents and purposes, essentially gone and I could no longer hear it.
Fast forward to this past Tuesday. I'm sitting in a quiet living room talking to my husband and all the sudden out of my left ear I had this weird noise. I thought I was picking up some sound in the living room but when I got up and moved to the dining room and the kitchen I realized that it was in fact my ear. And I was right back where I started. The excruciating anxiety and the fear. Because this is the biggest fear of someone who has / had tinnitus right. That once you habituate, it will come back or get worse? That was certainly my fear.
So I went to my ENT, who of course, wants to do another hearing test although he does not suspect that I have hearing loss because I have been very good about protecting my ears. And yes, I am aware of the hidden hearing loss that isn't picked up on the hearing test. My exam was in remarkable. I actually thought I had fluid in my ear because I had the aural fullness again and pressure in the ear but the ear looks fine. He actually thinks that my problem is related to my neck/TMJ. He said he actually sees a lot of people in his practice who have whiplash and other neck problems and have had tinnitus as a result. Since COVID -19 , I've been working from home and have been ergonomically in all the worst positions possible. Additionally, I bought a special memory foam pillow and all it did was cause neck pain and give me headaches. It was very awkward to try to sleep on particularly because I'm a side sleeper. He has referred me to physical therapy. I spoke with my physical therapist yesterday who is seeing people on a limited basis. He too has treated people with neck problems and resulting tinnitus.
Has anyone had this kind of experience and success with physical therapy? Or does this sound like a spike that I just need to wait out? This is far more intrusive and louder than it was before and I can hear it over the TV in the room.
I would appreciate anybody's insights.
Thanks so much.
This forum was a tremendous source of support and hope. Over time, I started not to notice it anymore. I stopped using sound machines or the sound pillow. I would say for the last almost 4 years it has been all but gone. I would have to struggle to hear it and most of the time I didn't even bother because it was imperceptible. That is not to say that the first year or so wasn't pure Hell. My tinnitus was all I could think about. Every day was a marathon just to get to the point where I could knock myself out and sleep, only to wake up and realize I was still in Hell. But I got better. I never had spikes. It was just way, way in the background or for all intents and purposes, essentially gone and I could no longer hear it.
Fast forward to this past Tuesday. I'm sitting in a quiet living room talking to my husband and all the sudden out of my left ear I had this weird noise. I thought I was picking up some sound in the living room but when I got up and moved to the dining room and the kitchen I realized that it was in fact my ear. And I was right back where I started. The excruciating anxiety and the fear. Because this is the biggest fear of someone who has / had tinnitus right. That once you habituate, it will come back or get worse? That was certainly my fear.
So I went to my ENT, who of course, wants to do another hearing test although he does not suspect that I have hearing loss because I have been very good about protecting my ears. And yes, I am aware of the hidden hearing loss that isn't picked up on the hearing test. My exam was in remarkable. I actually thought I had fluid in my ear because I had the aural fullness again and pressure in the ear but the ear looks fine. He actually thinks that my problem is related to my neck/TMJ. He said he actually sees a lot of people in his practice who have whiplash and other neck problems and have had tinnitus as a result. Since COVID -19 , I've been working from home and have been ergonomically in all the worst positions possible. Additionally, I bought a special memory foam pillow and all it did was cause neck pain and give me headaches. It was very awkward to try to sleep on particularly because I'm a side sleeper. He has referred me to physical therapy. I spoke with my physical therapist yesterday who is seeing people on a limited basis. He too has treated people with neck problems and resulting tinnitus.
Has anyone had this kind of experience and success with physical therapy? Or does this sound like a spike that I just need to wait out? This is far more intrusive and louder than it was before and I can hear it over the TV in the room.
I would appreciate anybody's insights.
Thanks so much.