Tinnitus & The Body: Take the Survey

[Tinnitus Talk]

Do you want a cure? Help us collect data!

Dearest members,

Have you wondered whether chronic pain, diabetes or dental problems are somehow related to tinnitus? Or have you noticed that your tinnitus is worse on days when your neck hurts?

To kick off 2020, we are launching a new survey. It focusses on the physical aspects of tinnitus, meaning how tinnitus relates to certain physical ailments and health conditions. The results will hopefully provide new clues about neurological triggers for tinnitus and treatment pathways.

Please help move tinnitus research forward by filling in the survey!

TAKE THE SURVEY

It will only take about 7 minutes of your time.

As you may know, Tinnitus Talk contributes to research by collecting data from people with tinnitus and sharing it freely with researchers. This has already led to a number of academic publications co-authored by us.

See for instance:
Somatic Tinnitus and Treatment ⁠— New Evidence
Tinnitus Heterogeneity — Our Small Contribution to Defining Subtypes

As always, let us know if you are interested in helping out behind the scenes with our (research) projects. As a volunteer-based organization we can always use an extra pair of hands. Of course, you can also support our work through a financial donation.

 

[Michael B]

Done.

 

[Watasha]

Done.

 

[Candy]

Done.

 

[Autumnly]

Done!

 

[Ed209]

Done it ages ago what took you all so long!

 

[Mymlan]

Done.

 

[jimH]

Done.

 

[Labyrinthine]

Yes. Done.

 

[UKBloke]

Done.

 

[FGG]

Done. Will we be able to see the results?

 

[Hazel]

Done. Will we be able to see the results?

Of course! But we'll let it run quite a while first, want to get at least a few thousand participants. We will then present the summary data here for all to see.

The raw data (at individual level) will be supplied to researchers; we have two contacts who will definitely be working on it, but we'll make it available for free to any qualified researcher.

We will also try to do our own statistical analysis with the raw data, but for that we're as always dependent on qualified volunteers.

 

[brokensoul]

Done.

 

[Trudy in Tucson]

Done, and it gave me a little hope, as I just started physical therapy for neck pain. The physical therapist thinks my tinnitus might be from lifelong neck pain and stiffness, and I think so too, as those 2 things have been a constant all my life.

I was encouraged when I saw all the questions on the survey about neck pain!

As I have heard before, the tinnitus has increased a bit since starting physical therapy (only 1-1/2 weeks), but my neck is sure improving.

 

[OnceUponaTime]

Done!
Do you need me to get people here to take the survey???

 

[IAmCalifornia]

Done.

 

[Gman]

Done.

 

[jeas]

Done.

 

[Snake]

Done.

 

[Mark A]

Done.

 

[TracyJS]

Done.

 

[Star64]

Done.

 

[Lane]

Do you need me to get people here to take the survey???

Done -- I don't know @OnceUponaTime, I have a hard time imagining you being able to "crack the whip". You're just too nice!
........................................................................

BTW, I've been thinking about passing along some information I got from an email from the Wellness Website that asked the following:

"By the way, Is there a specific health topic, recipe, or DIY tutorial you'd love to see me write about or interview someone on the Wellness Mama Podcast about? If so, please reply back to this email and let me know!"

From what I know about this website, I would think they'd be interested in doing a podcast on tinnitus. @Hazel, would this be of interest to you?

 

[HeavyMantra]

Done. I've wondered about how somatic tinnitus and noise induced tinnitus relates to each other for a while now.

 

[Hazel]

Do you need me to get people here to take the survey???

Yes, please! You're good at rallying people, I know

 

[AVIYT]

Hope it helps, finished mine.

 

[all to gain]

Done.

I found a few questions difficult to answer as there didn't seem to be an appropriate answer or a 'not applicable' answer. But I had to give an answer to complete the rest of the survey. Can't remember which questions they are now.

 

[Hazel]

I found a few questions difficult to answer as there didn't seem to be an appropriate answer or a 'not applicable' answer. But I had to give an answer to complete the rest of the survey. Can't remember which questions they are now.

Hey there, sorry to hear that. We did test the survey extensively with a group of test users and made a lot of fixes based on their feedback, so we thought all ambiguities had been resolved. But some things will always remain a matter of interpretation and in the end there's no such thing as a perfect survey (unfortunately).

You did the right thing though by just answering all questions to the best of your ability. If the 'right' answer isn't there, just pick whichever option seems to come closest. Thanks!

 

[all to gain]

Hey there, sorry to hear that. We did test the survey extensively with a group of test users and made a lot of fixes based on their feedback, so we thought all ambiguities had been resolved. But some things will always remain a matter of interpretation and in the end there's no such thing as a perfect survey (unfortunately).

You did the right thing though by just answering all questions to the best of your ability. If the 'right' answer isn't there, just pick whichever option seems to come closest. Thanks!

I think they were something to do with hearing loss and having had an audiogram. I'm pretty sure i have hearing loss, but I haven't had an audiogram due to one thing and another.

 

[Hazel]

I think they were something to do with hearing loss and having had an audiogram. I'm pretty sure i have hearing loss, but I haven't had an audiogram due to one thing and another.

Ah, I know what happened there. There's a question asking whether you've been diagnosed with hearing loss by a clinician. If you answer 'yes' there you will get follow-up questions about your audiogram. But you're only supposed to answer 'yes' if you have indeed been formally diagnosed. Hope that makes sense