This thread is interesting! I too have an undiagnosed T that i can magnify by moving my jaw or applying pressure on muscles in my neck/face, whats peculiar is that before i got the constant but fluctuating T which also sounds like an electrical static hiss and sometimes a high pitched "whistling", i've had a period of some months in which T was occasionally but quite frequent present accompanied with small mystery headaches localized at random points in my head, and
@Mr. Cartman i've also been hearing a static kind of T for years when i yawn or move my jaw or strain the muscles in my face, but i always thought this was normal and wasn't bothered by it, on top of all this i've had an inflammation in my jaw joint a year and a half ago, which was caused by chewing too much gum and thus straining my jaw too much while on amfetamine(which is something i do once a year while out clubbing, to put things in perspective
), which was solved quickly with some medication i can't remember unfortunately, and on top of that i do grind my teeth a lot, sleep sometimes with my mouth extremely wide open and the muscles tense (according to my gf), and on top of all this the right side of my jaw clicks whenever i eat something thats quite hard, and every time i move my jaw from one side to another, also my dentist which i visited recently hinted to me that i might have some form of bruxism.
It seems like the pieces of the puzzle are finally falling into place, and to add insult to injury, the first time since i had that jaw inflammation, that i went clubbing again while on amfetamine, and thus chewing a lot of gum, was 1week before my continuous loud T started 3weeks ago. I now realize this is probably the most stupid thing to do with an possible TMJ disfunction, and in any other case it's stupid too, and i feel REALLY stupid about it... but i felt like telling the truth as it is unfortunately probably part of the problem i'm experiencing even though it was a very occasional occurrence
My question is the same as
@just1morething , i'm really wondering if its possible to have TMD and a continuous T related to it, even though i'm not really experiencing any of the other symptoms? But i'm 99% convinced it is, it all feels linked somehow and there is definitely something wrong with my TMJ. Gonna try the sub-occipital stretch for a while and make an appointment for a bite guard and further diagnosis of TMD, and hope it will get better
I've also had these weird tingling painful stings in the right side of my tongue for months, the same side as my jaw problems and the right ear is also the ear with the most T( the left ear being only 20% in loudness as compared to the right), could this be related? As already said here nerves seem connected in the most peculiar ways.
@Mr. Cartman Great to hear your T seems to get better! Makes me think mine and probably a lot of others might too! Did you experience a continuous yet fluctuating in loudness T for some period?
Thanks everyone finding this thread and TT.com has been a great help for me!
What a great post you have made, and our symptoms are so similar.
I do grind teeth at night, pretty bad too. Before, I grinded my teeth during the days as well because of extreme stress. But I broke that habbit, and its now "only" during the night, and not as bad as I did before.
Now when I look back, I can really recall a lot of weird things happening before the onset of my T.
I do remember that I had kind of black spots floating around in my vision field for a few days while watching TV (never had those before), and a really weird feeling of a tight upper jaw (like my upper jaw was shrinking and that my teeth got closer and pushing against eachother), but it wasnt very painful and I literally thought it was because I was getting older or something like that and ignored it. If I remember correct, it started about 4 - 6 weeks before my full blown T.
In that period I also had quite a few episodes of temporarily T when I drove my car for a long time, and when sitting infornt of my computer for a long time.
I also had throbbing one-sided headaches (mostly on the right side) after those long car drives, but it all went away when I got out of my car and it was a usual headache so I didnt think too much about it.
About 2 weeks after the onset of my T I got very very bad headaches, it was pain I have never experienced before. I literally thought I was dying. I heard clicks around my head, like the sound of muscles contracting very rapidly. And I got "spots" of aches that appeared random around my head.
The headaches could be described as a feeling of vacuum inside my head, like my head was about to implode any minute.
I then went to a chiro, and he said that my first cervical vertebrae was stuck and he did a neck adjustment. When he adjusted my neck I could feel a very warm sensation on the left side of my neck (around where the sub-occipital muscles are located) lasting for a minute or two, and I was kinda baffled about this feeling and the chiro told me it was probably blood flowing better after the adjustment. My headaches then got better for some reason. I then went back to the chiro a week later and he did another adjustment and this time I could feel a very cold/cool sensation at the same spot.
After that the headaches came back with a vengance + some tingeling around my nose and I did not return to the chiro after this.
It got slightly better while time passed, and back to square one pre chiro for the most part.
Then after a while I started to get those weird tingling painful stings, not only around my head, but also in my arms, legs, and pretty much all around my body. Especially around my eyesk, lips and cheek that can remind a littlebit like an electrical buzz. Ive had two major stings, one in my neck that felt like a high voltage shock and the feeling of somone slamming sand or small rocks at the back of my head. It also tickles inside my ear from time to time, and it feels like something is moving inside my ear, like I have muscle spasms.
My current T started in my left ear, and then progressed to both within 3 - 4 weeks.
My jaw clicks, and I would guess I have a bit of TMD as well, and my jaw seems worst on the left side (the side im grinding my teeth). The T and the symptoms that seem related is worst on the left side as well.
Regarding fluctuation in T, my T seems to fluctuate all the time. When Im driving my car and make a sudden turn, my T disappears for a few seconds. When Im doing hard physical work my T disappears for a while as well. When I chew my T seems to somehow lower, but this could be due to perception.
Its louder and more of a hiss in the morning, and turns into a whistle or a ring later in the day.
Neck movements and jaw movements are affecting it as well.
What I have noticed though, is that the hiss I have always had when yawning is somehow stuck and when I yawn now, my current T, the hiss just becomes more high picthed. If I chew on my cell phone charger cable or put some pressure between two teeth (the second left and the third left tooth located at the top left side counted from my left incisor), the hiss becomes so high pitched that I almost cant hear it.
My aches seem to be connected with my T and I also have a sensation of fullness in the ear(s).
After I started the sub-occipital stretches, my headaches and tingling has gotten a ton better.
The headaches are virtually gone compared to what it was. The tight jaw feeling is for the most part gone.
And it all got better one day after I started those stretches. Could be a coincidence, but I doubt.
Yesterday my entire body felt light as a feather, and I think its 4 days ago I started stretching now.
Maybe, just maybe those stretches might actually work if its caused by tension in the sub-occipital area.
Could be multiple causes though, but I really believe its caused by nerves.
So far, this is what I have found to be possible causes (clinically):
1. First cervical vertebrae was stuck.
2. Negative density in my left occipital condyle probably caused by a lipom (seen on MRI and CT), but the neurologists dont think its related.
I will have a CT of my back and neck tomorrow, Ill post the results later.
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