Tinnitus, TMJ, Headaches, Neck Pain, Facial Pain, etc. — Possible Treatment

#992
Codaz said:
The nerves you indicated are seen on this machine as well
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Thats quite interesting though.. Maybe its related to the facial nerve.. I didnt read up anything regarding those spots, I just found that those spots felt off and that they couldnt be in a very good shape.. It literally feels as if theres some inflammation going on there..

I hope you are doing alright :)
 
#993
Mr. Cartman said:
Im kind of curious what muscles he refers to..
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Temporalis, the other I don't know.

Apart from fluctuations my T is 65 - 95% gone nowadays. Depends on the day, stress level, facial pain.
I reduced the TMJ therapy to once in 13 days per request of my TMJ specialist.

It comes back when I press my face but ok, it's much much better. Now to get rid of anxiety, tension headaches and other stress problems. It is already a year and the bill is quite big.
 
#994
Mr. Cartman said:
Thats quite interesting though.. Maybe its related to the facial nerve.. I didnt read up anything regarding those spots, I just found that those spots felt off and that they couldnt be in a very good shape.. It literally feels as if theres some inflammation going on there..

I hope you are doing alright :)
Click to expand...

@Kaelon @carlover @applewine

I was at my dentist today and she is going to presribe a referral letter to the ACTA in Amsterdam. It is the highest available academic specialised institution (as far as I know) in jaw and tooth problems.
I'm going for their orofacial department for TMJ. My dentist thinks they can further diagnose the problem. Is there anything TMJ related that you or others might want me to ask there?

Topics on my list are facial nerves, jaw joint, and possible medication.

Scientific publications here with some new ones from 2014:

http://www.acta.nl/en/research/scie...ember-u-z/visscher-c-m/publications/index.asp

And attached is one of the newest (2014 and 2015) I could find which directly relates TMD to Tinnitus but leaves a lot of questions unanswered.

Interesting in the article of Attanasio

The characteristics of tinnitus and the degree of response to treatment confirmed the relationship between tinnitus and TMD, the etiology must be sought in the three theories that in part are opposite and on the other hand complementary, which are neuromuscular, somatosensorial, and anatomical theories. The neuromuscular theory is based on the common embryological origin of some structures, such as those for chewing, and facial muscles and the middle ear being the cause of the tinnitus; in this case, it is linked to the presence of anatomical structures that connect the TMJ with the middle ear and chronic inflammation of the same. The somatosensorial theory is based on the neuro–anatomical interaction between the nervous input of the somatosensory afferent fibers of second branch of the trigeminal nerve and dorsal cochlear nucleus; in this case, a chronic irritation of the nerve fibers would have an effect on the acoustic system. The anatomical theory is based on the close position of the mandibular nerve to the TMJ capsule, so that irritating or compressive occurrences acting on the mandibular nerve might cause trigeminal-like symptoms even extended to the entire orofacial region, which could even chronicize at the central nervous system level for some predisposed subject.
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#995
Codaz said:
@Kaelon @carlover @applewine

I was at my dentist today and she is going to presribe a referral letter to the ACTA in Amsterdam. It is the highest available academic specialised institution (as far as I know) in jaw and tooth problems.
I'm going for their orofacial department for TMJ. My dentist thinks they can further diagnose the problem. Is there anything TMJ related that you or others might want me to ask there?

Topics on my list are facial nerves, jaw joint, and possible medication.

Scientific publications here with some new ones from 2014:

http://www.acta.nl/en/research/scie...ember-u-z/visscher-c-m/publications/index.asp

And attached is one of the newest (2014 and 2015) I could find which directly relates TMD to Tinnitus but leaves a lot of questions unanswered.

Interesting in the article of Attanasio
Click to expand...

Thanks for this @Codaz !
 
#996
Thanks so much for tagging us, @Codaz. In my case, it's becoming clear that "TMJ dysfunction" is too specific a diagnosis for what is really ultimately Somatosensory Pulsatile Tinnitus caused by neuromuscular inflammation along the head, neck, back, and jaw muscle cluster (resulting in the compromised behavior of my dorsal cochlear nucleus, thereby generating tinnitus). I'd be very interested if ACTA has a familiarity with this behavior -- specifically, the head/neck/shoulder/jaw muscle spasms causing interference with the DCN, and what sort of medications and therapies they might recommend.
 
#997
Kaelon said:
Thanks so much for tagging us, @Codaz. In my case, it's becoming clear that "TMJ dysfunction" is too specific a diagnosis for what is really ultimately Somatosensory Pulsatile Tinnitus caused by neuromuscular inflammation along the head, neck, back, and jaw muscle cluster (resulting in the compromised behavior of my dorsal cochlear nucleus, thereby generating tinnitus). I'd be very interested if ACTA has a familiarity with this behavior -- specifically, the head/neck/shoulder/jaw muscle spasms causing interference with the DCN, and what sort of medications and therapies they might recommend.
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I will add inflamation of muscles or muscle groups to my list. Depends on how much time that I get. Some docs as you may know dismiss you in 5 mins.

To be correct it is the highest academic institution in my country The Netherlands. I'm sure in the USA maxillofacial surgery or orofacial kinesiology is a specialisation in one of the academic hospitals.
 
#998
I went to an orofacial specialist and he did a basic physical exam and said I had trigger points and that was it. He said the only scientific treatment was psychotherapy.

I suppose if I wanted to I could go to my primary care practitioner and ask where I should go for the best orofacial clinic or google for one. I'd have to travel if they will see me and pay a lot of money and who knows what they would do and I doubt they would figure it out.
 
#999
applewine said:
I went to an orofacial specialist and he did a basic physical exam and said I had trigger points and that was it. He said the only scientific treatment was psychotherapy.

I suppose if I wanted to I could go to my primary care practitioner and ask where I should go for the best orofacial clinic or google for one. I'd have to travel if they will see me and pay a lot of money and who knows what they would do and I doubt they would figure it out.
Click to expand...

I hope my visit is (partially) covered by my health insurance. And I do not have any guarentee at all that it will provide me any new info or help. But I am prepared to go for it.
 
#1,000
You need to take care of your health and it is worth paying for. Once you try something though you don't need to keep doing it forever and drain your money. If something new comes along to investigate maybe check it out, but if it isn't working you should just rest. Thankfully I haven't really been really worried about my tinnitus in oh maybe years.

I have been more worried about my general health, though not extremely for almost a year which is good. I have the myofascial pain syndrome and neurological stuff, and I don't want that effecting the quality of my life. I also have eczema now too.

I got the new test for Lyme disease which can detect the ospA protein in urine. However the results were equivical, so I need to take the test again. This test was developed by George Mason University. There is pretty much only one place you can get the test in the world right now. It is a doctor's office run out of his home far out in the country in the state of Virginia.
 
#1,001
applewine said:
You need to take care of your health and it is worth paying for. Once you try something though you don't need to keep doing it forever and drain your money. If something new comes along to investigate maybe check it out, but if it isn't working you should just rest. Thankfully I haven't really been really worried about my tinnitus in oh maybe years.

I have been more worried about my general health, though not extremely for almost a year which is good. I have the myofascial pain syndrome and neurological stuff, and I don't want that effecting the quality of my life. I also have eczema now too.

I got the new test for Lyme disease which can detect the ospA protein in urine. However the results were equivical, so I need to take the test again. This test was developed by George Mason University. There is pretty much only one place you can get the test in the world right now. It is a doctor's office run out of his home far out in the country in the state of Virginia.
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So a world exclusive test is only available at a doctor's office far out in the country? Why?
 
#1,002
Codaz said:
So a world exclusive test is only available at a doctor's office far out in the country? Why?
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Because the health department isn't really interested in innovating effective tests for Lyme Disease or other chronic infectious pathogens that could be the cause of many chronic diseases.
 
#1,004
While there are only a couple of definitive tests that exist in the world right now that can reliably (or at least, to a greater degree of accuracy) detect Lyme disease's antigens, there is a simple process of elimination based upon your symptoms that you can use to determine whether Lyme disease is even a remote possibility in your case. The lack of systemic chronic fatigue and inexplicable pain is usually one of the early disqualifiers, and while not 100% accurate, it is reliable enough to suggest you may want to consider other alternatives before spending a lot of money down the Lyme disease rabbit hole.
 
#1,005
I already paid for the test. I have to retake it though because the results were equivocal. It is a urine test so I should have taken it first thing in the morning for more concentrated results. They didn't tell me that. Instead I chugged a ton of water and gave a sample more than twice the required size.

If anything I want to get it for research purposes to compare to the other test that are out there from companies like Igenx. I've already poured many thousands of dollars into lyme disease as well as other medical expenses. It has been a while, but I've been waiting for a test like this. I was told by multiple doctors I did have chronic lyme disease over the years which would be antibiotic resistant, so if this test is negative that would mean they were probably wrong.

I don't have the chronic fatigue, though I sometimes do. I do have a lot less energy than I had before the systemic muscle pain started though. I felt like superman before that.

Also, there are many manifestations of Lyme disease. Some people have no symptoms, so there is a huge spectrum. Some people have no fatigue and are all adrenaline pumped up and have psychiatric reactions. Others neurological, others plenty of energy and then a heart attack from lyme, others arthritis.

It is a multi-systemic, multi-manifestation disease. Also, you may have other chronic infections which aren't technically lyme disease.
 
#1,006
applewine said:
I already paid for the test. I have to retake it though because the results were equivocal. It is a urine test so I should have taken it first thing in the morning for more concentrated results. They didn't tell me that. Instead I chugged a ton of water and gave a sample more than twice the required size.

If anything I want to get it for research purposes to compare to the other test that are out there from companies like Igenx. I've already poured many thousands of dollars into lyme disease as well as other medical expenses. It has been a while, but I've been waiting for a test like this. I was told by multiple doctors I did have chronic lyme disease over the years which would be antibiotic resistant, so if this test is negative that would mean they were probably wrong.

I don't have the chronic fatigue, though I sometimes do. I do have a lot less energy than I had before the systemic muscle pain started though. I felt like superman before that.

Also, there are many manifestations of Lyme disease. Some people have no symptoms, so there is a huge spectrum. Some people have no fatigue and are all adrenaline pumped up and have psychiatric reactions. Others neurological, others plenty of energy and then a heart attack from lyme, others arthritis.

It is a multi-systemic, multi-manifestation disease. Also, you may have other chronic infections which aren't technically lyme disease.
Click to expand...

On topic: I have also the support from my TMJ Physiotherapist to go to ACTA We tried to learn one of the excersizes she does every two weeks on me. I'm not there yet but I tried.
 
#1,007
Thought I'd post this list of symptoms for neuro-borreliosis:

http://www.netdoctor.co.uk/diseases/facts/lymedisease.htm

  • The symptoms often begin with back pain, typically between the shoulder blades and in the neck like a slipped disc. The pain worsens at night.
  • Distorted feelings around the area of the bite. The nerves become numb, especially in the face. This may occur at any time up to four weeks after the pain began.
I have these symptoms as well as systemic sensory nerve dysfunction causing cold water sensations and burning / stinging sensations. I also have tinnitus of course in addition to my vision being jumpy on close up things.

I got my ospA antigen test and am awaiting the results. I'm told the antibody test given is falsified to exclude kda 31, which is basically what you need to test for for neuro-borreliosis. The current test is supposed to be for people which are pre-disposed to creating lots of antibodies in addition to the kda 31 and/or are pre-disposed to lyme arthritis.

I've had this for over 10 years. In my opinion if I have this and I have been told correctly about the falsification of the test by the USA health department it is my belief that each victim of this falsified test should be compensated at least 1 million dollars per person. In addition of course criminal prosecution of the officers involved should also be carried out.
 
#1,012
applewine said:
I'm going to test for the genus Bartonella next:
http://www.galaxydx.com/web/bartonella-epcr/

After that I'll probably move on to the genus Babesia or Mycoplasma (maybe).
Click to expand...

If I look up on what Bartonella's symptoms can be:

Fever, swollen lymphes, headaches, loss of weight, throat pain, skin changes, pain under your feet and more things in the heart and the brain.

Another note: "Too bad there is not much research done in the progression of Bartonella in Lyme patients"

Source (Dutch): http://www.tekenbeetziekten.nl/co-infecties-bartonella/

Keep us updated on your progress please.
 
#1,013
@Codaz You have to keep in mind that Bartonella causing cat scratch disease is just one manifestation of one type of bartonella in a type of person. You can get DNA and antibody testing. I think I'll try the DNA test, but most doctor's won't order a test from any lab except labcorp or quest. If you go to a private doctor they will though.
 
#1,014
So I went to my manual therapist on Friday. Before going to him I had no complaints of my neck,but I see him regularly as this is part of my T combat programme. He worked on my neck and upper shoulder muscles. Major headache afterwards and it felt like someone exploded a fireworks rocket into my head, so many sparkles. I was kinda nauseus the rest of the day.

But: major decrease of tinnitus. It does come back at the end of the day though when laying in bed.

So is it TMJ or my neck, or both? It's pretty insane wat a neck can misdo. The manual therapist said that if you do an MRI you cannot see what is wrong. Therefore manual therapy is in some ways scientifically unproven as they don't know what is wrong. He said that one of his patients had very limited walking abilities. He worked on her pelvis and now she is able to walk for an hour again. This sounds like magical nonsense, but as he works on me with these effects, I believe him.

So everyone that is suspecting their neck to be of influence, visit a therapist.
 
#1,017
Sjtof said:
That is what I meant with atlasprofilax. Its corrects the first cervical vertebra without using a brutal method.

http://www.atlasprofilax.ch/en/

I'm also kinda nervous for my next treatment as I don't like the brutal way of cracking my neck, think I'll have a word with her about that in advance.

Next to this I found something else when I went to a homeopathic shop here in the Netherlands called "de tuinen", which actually means that gardens :D anyways I told them about my T and was wondering if ginkgo biloba was effective for it. Instead they looked it up and told me I should try schussler salts instead (I think it was number 1 and 3) anyways, here you go:

http://www.bookrix.com/book.html?bookID=robert.write.books_1377373101.6670649052#0,432,4914

Goodnight folks
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Interresting I'm from the netherlands too and they adviced me the schussler salt too but they gave me the 11 silicea d12.
 
#1,018
Well this is really interesting. I haven't read all pages but i have read enough to see some connections to my tinnitus.

Mine developed back in 2012 as mild clicking sound with a hiss dominated in my right ear. I do have mild hearing loss but hey i'm 47 ;)

Now the interesting part:

I have bad posture, kind of a hunchback.
I grind my teeth, bite my fingernails.
Occasionally my jaw clicks followed by a sharp pain. (very rare though)
Occasionally my jaw crunches like cartilage.
If I press my forehead the T volume rises
My ears are very waxy and sometimes they are blocked (although mainly on the right)
I sleep on my side simply because sleeping on my back will hurt.
My nose is always blocked either left or right I have cats for over 25 years ( so could be allergie)

So basically I have all the things that could be the cause of T! (I'm so buggered ;) )

Last week my T got worse, I felt like having the flu as in shivers and hot flushes and sweating a lot especially at night.
During the day I have very sweaty hands (liver?)
The flu is going around in the Netherlands at this moment since some of my family members are affected with the same symptoms.

Luckily I am getting used to my new T level , needless to say I could really do without.
I do practice EFT which is great to take away fear, stress and anxiety.


Any thoughts?
 
#1,019
Drecul said:
Well this is really interesting. I haven't read all pages but i have read enough to see some connections to my tinnitus.

Mine developed back in 2012 as mild clicking sound with a hiss dominated in my right ear. I do have mild hearing loss but hey i'm 47 ;)

Now the interesting part:

I have bad posture, kind of a hunchback.
I grind my teeth, bite my fingernails.
Occasionally my jaw clicks followed by a sharp pain. (very rare though)
Occasionally my jaw crunches like cartilage.
If I press my forehead the T volume rises
My ears are very waxy and sometimes they are blocked (although mainly on the right)
I sleep on my side simply because sleeping on my back will hurt.
My nose is always blocked either left or right I have cats for over 25 years ( so could be allergie)

So basically I have all the things that could be the cause of T! (I'm so buggered ;) )

Last week my T got worse, I felt like having the flu as in shivers and hot flushes and sweating a lot especially at night.
During the day I have very sweaty hands (liver?)
The flu is going around in the Netherlands at this moment since some of my family members are affected with the same symptoms.

Luckily I am getting used to my new T level , needless to say I could really do without.
I do practice EFT which is great to take away fear, stress and anxiety.


Any thoughts?
Click to expand...

What is EFT?
 
#1,020

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