Warning for People with Noxacusis: For the Love of God, Protect Your Ears!

Okay well CBD helps middle ear pain. It helps all pain when I'm on it. When I get off it I get this weird shocking pain in my cochlea. Hard to explain but it hurts and feels like I'm having a nerve attack in my left ear. Going to stay off it.

I'm going to keep doing acupuncture. After the first treatment I woke up the next day feeling different, like I woke up from a year-long nap. Ears are maybe 5% better for a day, then goes back to normal. The rashes on my hands are gone, my headaches are better, tinnitus little lower but not anything to report on. She is good, I'm not going to lie. I'm going to go back to my Chiro soon and give that another try. It's next to a stem cell center.
 
Okay well CBD helps middle ear pain. It helps all pain when I'm on it. When I get off it I get this weird shocking pain in my cochlea. Hard to explain but it hurts and feels like I'm having a nerve attack in my left ear. Going to stay off it.

I'm going to keep doing acupuncture. After the first treatment I woke up the next day feeling different, like I woke up from a year-long nap. Ears are maybe 5% better for a day, then goes back to normal. The rashes on my hands are gone, my headaches are better, tinnitus little lower but not anything to report on. She is good, I'm not going to lie. I'm going to go back to my Chiro soon and give that another try. It's next to a stem cell center.
What CBD oil are you using?
 
Okay well CBD helps middle ear pain. It helps all pain when I'm on it. When I get off it I get this weird shocking pain in my cochlea. Hard to explain but it hurts and feels like I'm having a nerve attack in my left ear. Going to stay off it.

I'm going to keep doing acupuncture. After the first treatment I woke up the next day feeling different, like I woke up from a year-long nap. Ears are maybe 5% better for a day, then goes back to normal. The rashes on my hands are gone, my headaches are better, tinnitus little lower but not anything to report on. She is good, I'm not going to lie. I'm going to go back to my Chiro soon and give that another try. It's next to a stem cell center.
This is a random question so my apologies in advance, but did Chiro have any impact on your distortions?
 
This is a random question so my apologies in advance, but did Chiro have any impact on your distortions?
No that's a good question. Me and my Chiro before the car accident thought my neck was causing the issues. I had subluxation in C1 and C2. Maybe it helped 5%? Nothing to really go crazy about though. Pretty sure it was ear damage from barotrauma, probably a PLF. Not sure at this point.
 
Hey everybody. I wanted to make this to warn anybody with mild or moderate noxacusis/ear pain or even just hyperacusis.

Quick background so you get an idea: I had mild hyperacusis and tinnitus in my right ear for many years. Hyperacusis got worse and I developed bilateral distortions from a heavy deadlift with earplugs in. I was not careful with all this ear damage and did not wear my earplugs in my delivery van and got in an accident.

Front airbag deployed, this was the beginning of my nightmare. Number 1, if you have any tinnitus, hyperacusis, or any ear problems, I don't care what anybody tells you, wear hearing protection in your car at all times. I read some people on here said "oh you need to hear, and the odds of an accident are unlikely."

I thought the same thing... But now I know driving a car without earplugs is like holding a loaded gun to your head if you're a tinnitus or hyperacusis sufferer.

I was taken to a hospital in an ambulance to get checked out, and of course all I cared about was my ears. I hopped on Prednisone right away which made my ears feel so much better. Even after the car accident my hearing recovered and I still can hear in both ears perfectly up to 16 kHz and have perfect speech-in-noise word recognition.

After an acoustic trauma it is extremely important that you protect your ears like a maniac for many months after. I was not careful enough. After two weeks I decided to go back to the gym. I was eating with family and I was blocked in the driveway so I had my windows down trying to see to back out. My car has high performance brakes that always squeal. That one squeal was the final nail in the coffin for my left ear.

Ever since that day the ear pain in my left ear has only progressively gotten worse and worse. It started with me only getting pain from high pitch squeals, from cars and doors, then as time went by earplugs stopped working, the sound started to go right through. I decided to give up my career, I made extremely good money but my job was just too loud to continue even with earplugs in all day. I was truly happy before the car accident, I was suffering from ear problems but it was manageable.

I was a sales manager and was soon going to take over my parents shop, and had many other side hustles. I realized that noxacusis can be aggressive for some people so I stopped going to a lot of places to prevent worsening .I stopped going to restaurants, bars, even going to friends' houses, yet I still got worse. The pain started coming from my own voice, because I had bad loudness hyperacusis from my ear injury from the deadlift accident, it would trigger the noxacusis. In June of 2021, I completely gave up everything, but luckily could still play video games and watch TV without pain or discomfort.

As time went on I had to completely stop working out because it was making my loudness hyperacusis even worse along with the distortions. Not being able to workout that was keeping the noxacusis at bay definitely sucked. A few more surprise noises and squeals I was exposed to made me become full on hermit. Around August, TV started triggering my noxacusis, and other noises such as my own voice, others' voices, dishes, squeaking cabinets, anything really. I started seeing a therapist close by for severe depression, and did not leave the house for anything other than dinner at my parents', 10 houses down , and I always kept my earmuffs on and ate in the other room.

The noxacusis started getting so aggressive that squealing brakes from the mail men and work trucks outside my house started triggering it. This is when the real pain started. Before it was stabbing followed by aching that lasted for a few hours. Now it's so bad all it takes to set it off is one little squeal from a closet door or a truck outside and I am in so much pain I am throwing up and can't function for days. This was only in my left ear.

I was always going for walks at night with my mom to help get my mind off things, we would walk on a golf course but the street noise eventually pissed off my good ear. Even with earmuffs on. Before this my tinnitus was moderate and never bothered me, now both ears are screaming and get instantly louder from almost any noise at all, my noxacusis is so bad it reacts to cars driving by my house. Before this severe worsening I was miserable but not suffering for the past few months.

I played video games on mute and go on my phone, take long showers and go to my parents for dinner and have a walk every day. It was better than nothing. I should have been thankful, no outside noise bothered me, if it did, earmuffs would do the trick. Now with earmuffs on any vibrations go through my walls and hurt my ears. I have to wake up at 6 am every day to be ready to have my earmuffs on and run around the house all day to find quiet with all the lawn workers and street noise. I can no longer go for walks because every time I do even at 1 am I get blasted with airplanes flying over or birds chirping in my ears.

I am truly miserable, depressed, I cry every single day, and miss my old life terribly. I am a tough person inside and out but having severe noxacusis, severe hyperacusis, moderate severe tinnitus, and severe distortions, have broken every bone in my body. I wish I was dead every single day. Even if I do improve, which I think is very unlikely, because all it takes to set me off is a bird chirping outside my house, I will have PTSD for the rest of my life. I am only 23. And I lived happily with mild tinnitus and hyperacusis for 4 years until this.

My main point for any mild tinnitus sufferer or mild hyperacusis suffer out there reading this, please for the love of god protect your ears so you don't have the same fate as me. Wear earplugs in loud places, in the car, and when needed in any noisy environments. I don't know how much longer I will be alive but this would advice would have saved my life. I am trying to stay strong hoping these regenerative medicines will give me and others hope in the upcoming years so we can get somewhat of a life back.

This suffering and agony has really opened my eyes. I came from a well off family, had friends, was popular in high school, had a great job and future and did not appreciate it enough. If you are able to go out and have fun and live life, enjoy every second till your last. Love your family, love your friends, don't hold grudges. Be nice to people, and help others, make the world a better place. Prevent this nightmare from happening. If you develop noxacusis, stop it cold in its tracks before it gets worse because it can and it will. Some people are worse in the beginning and take a long time but do recover to a certain point. Some people like me only get worse from every setback.

Thank you for reading this, I hope any newbies take my advice or anybody else who needs it.

Brian
Hey @Brian Newman, it's not in this post, but in another post you mentioned you keep developing new tinnitus tones and called yourself the habituation monster.

Are these new tones linked to noise incidents? If so, are they at volume levels that are "safe" or only at levels that are normally considered risky?

I've been protecting basically 24/7 with some small breaks here and there because it's so isolating and to let my ears breathe. I've got some pain from this, but once it starts to set in I put the hearing protection back on.

I have been getting spikes and new tones like crazy in the past couple weeks. I now have a low tone at slightly different frequencies in each ear that literally makes my body feel like it's vibrating. It's the worst tinnitus I've ever experienced. Just trying to figure out where this is coming from.
 
Hey @Brian Newman, it's not in this post, but in another post you mentioned you keep developing new tinnitus tones and called yourself the habituation monster.

Are these new tones linked to noise incidents? If so, are they at volume levels that are "safe" or only at levels that are normally considered risky?

I've been protecting basically 24/7 with some small breaks here and there because it's so isolating and to let my ears breathe. I've got some pain from this, but once it starts to set in I put the hearing protection back on.

I have been getting spikes and new tones like crazy in the past couple weeks. I now have a low tone at slightly different frequencies in each ear that literally makes my body feel like it's vibrating. It's the worst tinnitus I've ever experienced. Just trying to figure out where this is coming from.
Well, I got new tones from Prednisone, new tones from driving for 4 hours, new tones from being exposed to noise from outside my house. They're pretty settled now. I mean I have a bunch of tones and they just keep changing too. On good days I have like 3-4 tones, other days like 5-7.

Who knows, I try not to think about it. The more I think about it, the crazier I get. The tinnitus in my noxacusis ear does not seem to get worse with the pain which is good. It gets worse from me talking too much or car drives, and stuff like that. If I'm in the house I don't get too many crazy spikes now. My few louder tones drown out the other ones usually. I even noticed for my pain hyperacusis, the more you think about it the worse it gets. This stuff is the toughest mental battle you could ever go through. The mind is ridiculously powerful. The only tones that made me want to jump off a bridge are my distortions, my right ear picks up low sound and turns it into shit beeping, fluttering, wavering shit. When it's bad I'm very anxious. When my main tones get louder it doesn't bother me as much because it sounds way better than the shit I'm usually hearing.

I do get more bothered by the super high pitch squealing tinnitus. That does bother me sometimes. The lower ones I just don't care anymore. It's definitely not as loud as some people on this site. The distortions on bad days are definitely complete hell. When it's not bad I can tune it out. But those bad days the distortions are like 70 dB off a 40 dB fridge, that's why it's so bad.
 
Well, I got new tones from Prednisone, new tones from driving for 4 hours, new tones from being exposed to noise from outside my house. They're pretty settled now. I mean I have a bunch of tones and they just keep changing too. On good days I have like 3-4 tones, other days like 5-7.

Who knows, I try not to think about it. The more I think about it, the crazier I get. The tinnitus in my noxacusis ear does not seem to get worse with the pain which is good. It gets worse from me talking too much or car drives, and stuff like that. If I'm in the house I don't get too many crazy spikes now. My few louder tones drown out the other ones usually. I even noticed for my pain hyperacusis, the more you think about it the worse it gets. This stuff is the toughest mental battle you could ever go through. The mind is ridiculously powerful. The only tones that made me want to jump off a bridge are my distortions, my right ear picks up low sound and turns it into shit beeping, fluttering, wavering shit. When it's bad I'm very anxious. When my main tones get louder it doesn't bother me as much because it sounds way better than the shit I'm usually hearing.

I do get more bothered by the super high pitch squealing tinnitus. That does bother me sometimes. The lower ones I just don't care anymore. It's definitely not as loud as some people on this site. The distortions on bad days are definitely complete hell. When it's not bad I can tune it out. But those bad days the distortions are like 70 dB off a 40 dB fridge, that's why it's so bad.
Do you use double protection to drive? Sometimes I have to drive but lately it has been spiking my tinnitus and noxacusis. How the fuck am I supposed to drive now if I can't even be safe with double protection.
 
Do you use double protection to drive? Sometimes I have to drive but lately it has been spiking my tinnitus and noxacusis. How the fuck am I supposed to drive now if I can't even be safe with double protection.
So I didn't drive for like 4 months. I pretty much sat inside and played video games with earplugs in 24/7. I had to stop going to the grocery store in August. My mom's been bringing me groceries ever since. I started acupuncture in April, after 3 treatments I noticed a difference. It's not a cure but definitely helps the pain. Before my acupuncturist went on vacation I could wear double protection and drive there and back a few times a week and be ok. Then I was able to talk at low volumes without pain. Then I started waking up and my left ear that felt like an open wound 24/7 stopped feeling like that. Depression better, sleep better. Then I started working out again, makes my tinnitus horrible and distortions hell but helps the pain too.

I actually had pain free weeks, but I was living very quietly still. The wrong noise would bring it back right away. Still homebound besides going to my acupuncturist. She had been gone for 2 weeks for vacation. Pain started coming back after a week. I have two more to go. My ears are getting worse again. Trying to get through this. I haven't spoken of this because being such a bad case I don't want to jinx anything. Getting back to normal life will probably be impossible until regen meds, but that was the only progress I saw in over a year. Silence didn't help much, it just kept me from aggressively worsening. Noise made it worse. I'm going to keep perusing this. My acupuncturist is not a normal acupuncturist, she's definitely a very specialized one. When she gets back we will see how I do. I was on the couch for 8 months brother, in so much pain. Being a success story going back to normal life with my state probably won't be an option. Just trying to get to be pain free being homebound and I'll take it.
 
Hi @Brian Newman, I really feel for you man.

Did you ever consider taking the anti-epileptic Keppra? Some users reported improvements in their hyperacusis with it.
Thanks brother, I have thought about Keppra too. That stuff scares me. Obviously I would try it before dying. I'm just not quite over the fence yet. Who knows what would happen tbh. If I got any worse, not sure what I would do. I'm going to keep doing acupuncture for half a year and see where it gets me. I might be on to something. I'm just trying to make it will the regen meds. Probably 3-5 years.
 
I'm so glad I have the Internet and this forum. I can't imagine how terrifying this condition would be if I had no idea what it was.
Imagine if we only had ENT doctors to turn to who'd tell us it's all just in our head and we need to stop using hearing protection... This forum has literally saved my life.
 
Thanks brother, I have thought about Keppra too. That stuff scares me. Obviously I would try it before dying. I'm just not quite over the fence yet. Who knows what would happen tbh. If I got any worse, not sure what I would do. I'm going to keep doing acupuncture for half a year and see where it gets me. I might be on to something. I'm just trying to make it will the regen meds. Probably 3-5 years.
Do you think it will be between 3-5 years before we have an actual treatment? :(
 
I'm going to keep doing acupuncture for half a year and see where it gets me.
Hi @Brian Newman -- I find acupuncture helps me as well. At one point it helped stop an episode of my ears burning after just one treatment. At other times, it helps bring a much deeper calm to my body and psyche, and my perception of tinnitus changes. From feeling like it's eating me alive, to more feeling like a noise I can tolerate (though not like). It seems to take me out of fight or flight mode.

Last night I was feeling especially out of sync in so many ways, like there was a tug of war going on inside of myself. This of course made my tinnitus even more difficult to deal with. As soon as I laid down, I knew I wouldn't be able to get to sleep. So I did my normal self-acupuncture routine, and 20 minutes later I felt totally calm and relaxed, and then had a very good night's sleep. Being able to do this on myself at anytime gives me a much greater sense of self-empowerment.
 
@Brian Newman, do you have any advice for lifting weights? I remember you saying you experienced an increase in tinnitus and hyperacusis. Did you lift overly heavy weights, in other words exerted yourself? I'm currently very overweight and just had a health scare and been advised to lose weight as soon as possible. But I'm too worried about increasing my tinnitus and hyperacusis.

Are you still working out in whatever shape or form?
 
@Brian Newman, do you have any advice for lifting weights? I remember you saying you experienced an increase in tinnitus and hyperacusis. Did you lift overly heavy weights, in other words exerted yourself? I'm currently very overweight and just had a health scare and been advised to lose weight as soon as possible. But I'm too worried about increasing my tinnitus and hyperacusis.

Are you still working out in whatever shape or form?
I'd advice going on long walks. Exercise exacerbated my tinnitus and hyperacusis. Only thing that I can do is go on walks.
 
Do you think it will be between 3-5 years before we have an actual treatment? :(
For noxacusis, man who knows, but I do think if OTO-413 and FX-322 got out, it should definitely help. Noxacusis is most likely from outer hair cell or synapse damage triggering Type 2, so it should calm stuff down.
 
Hi @Brian Newman -- I find acupuncture helps me as well. At one point it helped stop an episode of my ears burning after just one treatment. At other times, it helps bring a much deeper calm to my body and psyche, and my perception of tinnitus changes. From feeling like it's eating me alive, to more feeling like a noise I can tolerate (though not like). It seems to take me out of fight or flight mode.

Last night I was feeling especially out of sync in so many ways, like there was a tug of war going on inside of myself. This of course made my tinnitus even more difficult to deal with. As soon as I laid down, I knew I wouldn't be able to get to sleep. So I did my normal self-acupuncture routine, and 20 minutes later I felt totally calm and relaxed, and then had a very good night's sleep. Being able to do this on myself at anytime gives me a much greater sense of self-empowerment.
Yeah I went in the third day and my 10/10 pain went to a 5. It's more temporary but it seems accumulative. I felt that too after my first appointment. I felt my mentality and entire mindset change, it felt like I was reborn. Stuff is no joke. It helps.
 
@Brian Newman, do you have any advice for lifting weights? I remember you saying you experienced an increase in tinnitus and hyperacusis. Did you lift overly heavy weights, in other words exerted yourself? I'm currently very overweight and just had a health scare and been advised to lose weight as soon as possible. But I'm too worried about increasing my tinnitus and hyperacusis.

Are you still working out in whatever shape or form?
Well, the only reason why I stopped working out is because months before I was exposed to airbag deployment. I most likely blew a hole in my cochlea lifting 495 lbs. That mixed with the noise damage was a recipe for disaster. And I was taking many doses of Prednisone, then also damaged my stapes and tensor ty,pani from yelling months later. That is what caused this catastrophic case of pain hyperacusis. I only stopped working out because it seemed every day I would work out I would wake up and my loudness hyperacusis would be worse. Every single day. I didn't know it was helping the pain.

There's a reason why I was never sick or had any health problems my entire life. My body healed from everything. I recovered from tinnitus and hyperacusis once. It was not this bad though. Working out 5 days a week for 12 years had more effect than being ripped and looking good. It kept me extremely healthy, more than I could have possibly imagined. After 8 months of not moving I lost everything I worked so hard for. Such a horrible feeling.

Everybody is different when it comes to exercising with ear issues. You have to find what works for you. This entire time I was going for mile walks, and I always felt a little relief when I got back for a few minutes. Other than that it did nothing. Once I started running with acupuncture I felt my bad ear actually start to feel a little better. I'm not cured and will not be getting back to normal life anytime soon. I think a good diet, with good cardio, and moderate lifting is the sweet spot. Before my tinnitus always spiked from working out but settled. Now if I work out and strain too hard I feel like my head is going to explode and I have all sorts of other issues I think from a CSF leak or a fistula. Since you probably don't have that, I definitely recommend exercising with this and see how your ears feel. It's not cheap but I bought Rogue Fitness stuff and set it up at my place. Going to a gym with severe noxacusis is a big hell no. I run at 3 am, only issue I have are crickets.
 
For noxacusis, man who knows, but I do think if OTO-413 and FX-322 got out, it should definitely help. Noxacusis is most likely from outer hair cell or synapse damage triggering Type 2, so it should calm stuff down.
Those treatments are mainly for tinnitus, correct? What if they don't help noxacusis? If they don't, I'm fucked, well we are fucked.
 
I felt my mentality and entire mindset change, it felt like I was reborn. Stuff is no joke. It helps.
I think a major reason acupuncture helps is because of its ability to harmonize energy flows in the head and body. Most people, and certainly conventional medicine, rarely think in term of the way energy is flowing (or not flowing) in our body. But I think it's a major factor in tinnitus severity, in addition to how well a person can cope with it. Another thing that helps me significantly calm and harmonize my own neurological system and energy flows is castor oil packs.
 
Well, the only reason why I stopped working out is because months before I was exposed to airbag deployment. I most likely blew a hole in my cochlea lifting 495 lbs. That mixed with the noise damage was a recipe for disaster. And I was taking many doses of Prednisone, then also damaged my stapes and tensor ty,pani from yelling months later. That is what caused this catastrophic case of pain hyperacusis. I only stopped working out because it seemed every day I would work out I would wake up and my loudness hyperacusis would be worse. Every single day. I didn't know it was helping the pain.
Brian, sorry, you probably answered this a million times before but how do you know you got stapes and tensor tympani damage? Did you get some sort of scan proving it? I want to see if there's a way to examine the damage but I'm coming up short and most ENTs dismiss me wanting to explore it.
 
I think a major reason acupuncture helps is because of its ability to harmonize energy flows in the head and body. Most people, and certainly conventional medicine, rarely think in term of the way energy is flowing (or not flowing) in our body. But I think it's a major factor in tinnitus severity, in addition to how well a person can cope with it. Another thing that helps me significantly calm and harmonize my own neurological system and energy flows is castor oil packs.
Yeah well, it doesn't do a whole lot for my tinnitus tbh. Maybe helps like 5%. My left ear stapes is most likely broken, my tensor tympani is messed up, and my Type 2 nerves are fully fired. It's definitely calming all that down. I would finally wake up and my left ear didn't feel like hell after a year. My acupuncturist said she was channeling the energy like you said to promote healing in my ears. I didn't think it would help tbh. I was so wrong. I'm glad I tried it.
 
Those treatments are mainly for tinnitus, correct? What if they don't help noxacusis? If they don't, I'm fucked, well we are fucked.
No, they are for hearing loss. Noxacusis is because of hearing loss. When hearing loss is fixed, noxacusis should stop. I hope at least. Same with tinnitus, the root cause is hearing damage. Yeah a treatment specifically for noxacusis will probably never happen. We all see how tinnitus and hearing loss took many years to finally pick up a little. There are probably less than 10 thousand people who have noxacusis. Well true noxacusis, not moderate hyperacusis or moderate ear pain. And severe homebound cases probably are a few thousand. I will probably end up doing the hyperacusis surgery too. My stapes is definitely fucked.
 
Those treatments are mainly for tinnitus, correct? What if they don't help noxacusis? If they don't, I'm fucked, well we are fucked.
I've made a couple posts about this already, but I am pretty certain Kv7.2/7.3 channel openers will treat and eventually cure our noxacusis. A study published in 2015 found that opening these potassium channels in mice "suppressed the type II fiber's response to hair cell damage". There are people on this forum who claimed to be helped and even completely cured from hyperacusis by taking the potassium channel openers retigabine or flupirtine for a couple of months. Due to side effects these drugs had to be pulled from the market. Currently there are three medicines in development for various illnesses that target these channels; XEN-1101, QRL-101, and RL648_81 (developed specifically to prevent or cure tinnitus). Best case scenario XEN-1101 hits the US market in 2-3 years.

Because I do not want to wait that long, I am planning to take flupirtine (in coordination with my doctor) for a couple of months to see if I can cure my hyperacusis. I think I've found a way to acquire this medicine. It will probably be next week or the week after when I can get my hands on it. I will report back of course.
 
Well, the only reason why I stopped working out is because months before I was exposed to airbag deployment. I most likely blew a hole in my cochlea lifting 495 lbs. That mixed with the noise damage was a recipe for disaster. And I was taking many doses of Prednisone, then also damaged my stapes and tensor ty,pani from yelling months later. That is what caused this catastrophic case of pain hyperacusis. I only stopped working out because it seemed every day I would work out I would wake up and my loudness hyperacusis would be worse. Every single day. I didn't know it was helping the pain.

There's a reason why I was never sick or had any health problems my entire life. My body healed from everything. I recovered from tinnitus and hyperacusis once. It was not this bad though. Working out 5 days a week for 12 years had more effect than being ripped and looking good. It kept me extremely healthy, more than I could have possibly imagined. After 8 months of not moving I lost everything I worked so hard for. Such a horrible feeling.

Everybody is different when it comes to exercising with ear issues. You have to find what works for you. This entire time I was going for mile walks, and I always felt a little relief when I got back for a few minutes. Other than that it did nothing. Once I started running with acupuncture I felt my bad ear actually start to feel a little better. I'm not cured and will not be getting back to normal life anytime soon. I think a good diet, with good cardio, and moderate lifting is the sweet spot. Before my tinnitus always spiked from working out but settled. Now if I work out and strain too hard I feel like my head is going to explode and I have all sorts of other issues I think from a CSF leak or a fistula. Since you probably don't have that, I definitely recommend exercising with this and see how your ears feel. It's not cheap but I bought Rogue Fitness stuff and set it up at my place. Going to a gym with severe noxacusis is a big hell no. I run at 3 am, only issue I have are crickets.
I'm just worried about pulling something and making my hyperacusis worse but on the other hand I need to lose weight ASAP and a clean diet has done nothing so far.

You say you recovered from hyperacusis and tinnitus before, would you put that down to being in shape or because it wasn't as severe up until your accident?
 
No, they are for hearing loss. Noxacusis is because of hearing loss. When hearing loss is fixed, noxacusis should stop. I hope at least. Same with tinnitus, the root cause is hearing damage. Yeah a treatment specifically for noxacusis will probably never happen. We all see how tinnitus and hearing loss took many years to finally pick up a little. There are probably less than 10 thousand people who have noxacusis. Well true noxacusis, not moderate hyperacusis or moderate ear pain. And severe homebound cases probably are a few thousand. I will probably end up doing the hyperacusis surgery too. My stapes is definitely fucked.
The hyperacusis surgery is Dr. Silverstein's surgery right? Will you wait to see if any treatments are developed first, or are you doing the surgery after the treatments come out? Do you know how reliable the Dr. Silverstein's surgery is for noxacusis? Sorry for all the questions, I ask because I also have noxacusis, which has left me almost completely home bound.
 

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