What Is Your Typical Day Like?

daiso

Member
Author
Benefactor
Jan 24, 2018
92
Tinnitus Since
10/2017
Cause of Tinnitus
Unknown
Wonder how it goes for your typical day if you care to share.

On most days, I will wake up with noticeable but ignorable hissing or low eeeing on left ear. Right ear ringing feels more in the distant and for some reasons it bothers me much less. On good days, that may last until noon or evening until it becomes more in my face and it starts to fill all my head. On bad days, it may last an hour or two or I just wake up with in-my-face ringing. I can't find any correlation to what I do throughout the day. That pattern is quite consistent. Taking a shower, going to work or long driving, like 10+ miles, is like playing russian roulette. More often than not, these activities accelerates worsening of my tinnitus but sometimes they don't. Regardless, in the evening I am almost left with moderate in-my-face ringing, with moments where I feel it is low, only to become loud the next moment like in a few minutes, and then it would kind of alternate between low and moderate.

On good days I can manage some laughs and joy, but these are rare. On bad days, I just wish to be hit by a truck and get it over with painlessly. On most days, I just survive and the only thing I look forward to in the day is the end of the day. I always have trouble falling sleeping and staying asleep even before tinnitus. Tinnitus makes it harder but oddly I still find comfort in sleep. Obviously the next thing is I get off bed and the cycle repeats, and this is my groundhog day.

If only the tinnitus could just stay at the f*king baseline, not even cured, how many of us would be overjoyed and move on to live normal again? How cruel!!!
 
When I wake up the very first thing I do is focus on the T and check if it is at baseline. It almost always is. That gets me in a hopeful mood and I go do my thing. I'm extra careful all day long, do not use headphones at all and wear earplugs into any remotely noisy situation (public spaces, supermarkets, cinema etc). And I just do not go to anything that could be really loud (so, zero clubbing or concerts. Hated them anyway).

I check the tinnitus often, it's a kind of nervous habit that's hard to shake. It usually begins to get louder and shriller as the evening approaches. No idea why that happens, it just does. However as long as it stays within normal parameters I'm not very nervous. Besides the baseline, noises come and go all the time, and unusual noises can give me a jolt of anxiety.

What can really scare me is an unexpected loud external noises. For example a loud bang at the gym, which gave me a few really anxious days a few weeks ago. I try to protect against these but accidents inevitably happen. Something like this can really spoil the rest of my day - I check the T compulsively and sometimes have a few glasses of wine to soothe the dread.

Then next day when I wake up I check the T - if it is at baseline I whisper a prayer of gratitude that I made it through yet another day without permanent damage - and the cycle goes on. :)

Tinnitus is a constant drag, but in its current form it does let me live. I know very well how fragile this is, and do my level best to avoid making it worse, and fervently hope that the treatments currently on the horizon will help us tame this uncontrollable, terrifying beast.
 
i have no life, people just hate me for wanting one.
 
@hans799 I am just like what you described. I don't really hope for a drug though, not because I don't want it, but what if it is ototoxic? Pretty funny, but I'm serious. No drugs are fool proof. I'll call it good if my baseline just stay put.
 
@hans799 I am just like what you described. I don't really hope for a drug though, not because I don't want it, but what if it is ototoxic? Pretty funny, but I'm serious. No drugs are fool proof. I'll call it good if my baseline just stay put.

Hm. It seems you're not familiar with Neuromod. It's the first ever treatment that has proper, hard scientific proof (in this instance they did a double-blind clinical trial with 500+ people), AND it is scheduled to come out early 2019 (so in weeks!), AND it is a device, not a drug - no significant side effects were experienced during the trial. Zero risk of ototoxicity.

It is a proper, honest-to-God treatment in that it actually reduces tinnitus volume, long-term, maybe permanently. It's not the usual bullshit that "helps you habituate" or masks or whatever.

We're actually at a very hopeful moment in tinnitus-land!

If you want to learn more: https://www.tinnitustalk.com/threads/q-a-tinnitus-hub-meets-neuromod-lenire.32369/
 
survival....trying to survive with Severe T and Severe H.
 
I thought the devil was meant to entice you with 20 virgins or some shit, I seem to have missed that part.
 

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