What's the Point? No Matter What I Try to Do, I Will FOREVER Have My Tinnitus and Hyperacusis...

[Christophe_85]

Almost every single day I am thinking "What's the point?", meaning that even if I want to feel well in my head and body, if I want to ameliorate my way to eat, if I want to make small or big projects in my life, etc...

I will FOREVER have my tinnitus and hyperacusis...

And of course in the addition to being very affraid that it may increase in the future, no matter what I could do...

Not very motivating...

---

Wish you peace.

Christophe

 

[JodieStephens]

Look how fast technology advanced in thirty years, technology is improving exponentially.

I'm going into neuroscience in January and hopefully will learn more about tinnitus and in the future, contribute to the community.

I feel it calming when I research how tinnitus works, maybe you should try researching too.

 

[Jomo]

Hang in there man...you're going to be fine..just live your life.. I'm ringing away but I only just realized it now after I read your post.

 

[Christophe_85]

Look how fast technology advanced in thirty years, technology is improving exponentially.

I'm going into neuroscience in January and hopefully will learn more about tinnitus and in the future, contribute to the community.

I feel it calming when I research how tinnitus works, maybe you should try researching too.

Hello,

Even if I agree with you regarding the development of technology, I think Tinnitus is way too complicated to be cured... It is too deep in the brain IMO...

 

[Paulmanlike]

Hello,

Even if I agree with you regarding the development of technology, I think Tinnitus is way too complicated to be cured... It is too deep in the brain IMO...

For example, Schizophrenia is deep in the brain and can controlled by medicine, just like epilepsy. There are two examples.

 

[fishbone]

Almost every single day I am thinking "What's the point?", meaning that even if I want to feel well in my head and body, if I want to ameliorate my way to eat, if I want to make small or big projects in my life, etc...

I will FOREVER have my tinnitus and hyperacusis...

And of course in the addition to being very affraid that it may increase in the future, no matter what I could do...

Not very motivating...

---

Wish you peace.

Christophe

That is a negative mindset and it limits what you can do in life. Yes, life is hard and tinnitus is a horrible thing, but many including myself live each day and still try to make a positive impact on the lives of others and my own life. Life is what you make of it, all of us can unleash the greatness...that is in us. Tinnitus doesn't mean that life doesn't go on...

 

[Julien87]

Look how fast technology advanced in thirty years, technology is improving exponentially.

I'm going into neuroscience in January and hopefully will learn more about tinnitus and in the future, contribute to the community.

I feel it calming when I research how tinnitus works, maybe you should try researching too.

Yes, I truly believe we can be helped and experience improvement in the coming years. This hope helps me a lot to keep a good morale.

 

[Christophe_85]

For example, Schizophrenia is deep in the brain and can controlled by medicine, just like epilepsy. There are two examples.

Thank you for your answer, but Tinnitus seems to be quite complicated, even more no ???

 

[Christophe_85]

Yes, I truly believe we can be helped and experience improvement in the coming years. This hope helps me a lot to keep a good morale.

Yes but maybe 10 years ago people said exactly the same thing about science and technology... And nothing came out as a cure or any relief...

 

[Julien87]

Almost every week I read news about conditions that can now be cured for the first time. Just this evening I read a news about a tetraplegic guy who can now use his arm again thanks to a neuroprothesis, it's the first time this thing happens, isn't it awesome?
I'm sure the time will come for T. There is progress in that area too.

 

[Paulmanlike]

Thank you for your answer, but Tinnitus seems to be quite complicated, even more no ???

Tinnitus is complicated yes but look at this way

1.) over the last few years there has been increasing research into the topic. Before 2000 there was very little.

2.) the market for tinnitus treatment is huge due to its prevalence. It would be a huge investment with a excellent return.

3.) the market for tinnitus will continue to grow (iPods, concerts, aging population)

4.) in 2008 when I researched a cure there was only lllt and snake oil scams, now there is dbs, rTMS, vagus nerve, hair cell regeneration soon going into human trials, ACRN, new version of Trobalt hopefully coming out, etc etc

5.) there are already treatments for brain disorders, perhaps why there hasn't been for tinnitus is because of pre-2000 there was too little understanding off it due to under funding.

Hope that shines a little hope brother

 

[glynis]

Never give up hope !!!
I have no control of Menieres ,Sever Bilateral tinnitus and Breathing problems that causes me to struggle to breath normal and would not be alive without medication and attacks stopping me breath in or out or gasping and lips go blue...
I really know what it's like to fight to be alive and even with Menieres and sever Bilateral tinnitus I never give up hope .
We have one choice to make everyday count or let our health problems win.
I know tinnitus can be mental torture and emotionally challaging but you have to push to enjoy good days and push hard even harder on bad days ...
Emotions can be hard if anxiety and depression take hold and only see a bleak future but never give up HOPE !
Love glynis x

 

[maltese]

Never give up hope !!!
I have no control of Menieres ,Sever Bilateral tinnitus and Breathing problems that causes me to struggle to breath normal and would not be alive without medication and attacks stopping me breath in or out or gasping and lips go blue...
I really know what it's like to fight to be alive and even with Menieres and sever Bilateral tinnitus I never give up hope .
We have one choice to make everyday count or let our health problems win.
I know tinnitus can be mental torture and emotionally challaging but you have to push to enjoy good days and push hard even harder on bad days ...
Emotions can be hard if anxiety and depression take hold and only see a bleak future but never give up HOPE !
Love glynis x

Glynis, you're such a good person, we're blessed to have you here.

Just wanted to say thank you.

Almost every single day I am thinking "What's the point?", meaning that even if I want to feel well in my head and body, if I want to ameliorate my way to eat, if I want to make small or big projects in my life, etc...

I will FOREVER have my tinnitus and hyperacusis...

And of course in the addition to being very affraid that it may increase in the future, no matter what I could do...

Not very motivating...

---

Wish you peace.

Christophe

You should really consider CBT. I would really, really, really, really, really strongly recommend it.

(Good) therapist if you can afford it, buy a book called "Feeling Good" and do all the exercises (!!!) Otherwise.

You have a model example of severely distorted thought process and your mood might improve significantly with proper therapy.

I defeated my, "tinnitus-induced", moderate depression with CBT and I can't stress enough how important it is to regain the feeling of being in control of your life that you seem to missing.

Half of a year ago I was crying, hugging table's leg and begging for the ringing to stop.

Today, I'm lying in my bedroom, reading in silence and the ringing is so far in the background I don't care about it.

I'm upset about it sometimes, but I quickly remind myself that life isn't fair and think about all the awesome stuff that happens to me.

I have regained this sense of inner peace, I hope you'll get to this stage soon.


All the best.

 

[Christophe_85]

Tinnitus is complicated yes but look at this way

1.) over the last few years there has been increasing research into the topic. Before 2000 there was very little.

2.) the market for tinnitus treatment is huge due to its prevalence. It would be a huge investment with a excellent return.

3.) the market for tinnitus will continue to grow (iPods, concerts, aging population)

4.) in 2008 when I researched a cure there was only lllt and snake oil scams, now there is dbs, rTMS, vagus nerve, hair cell regeneration soon going into human trials, ACRN, new version of Trobalt hopefully coming out, etc etc

5.) there are already treatments for brain disorders, perhaps why there hasn't been for tinnitus is because of pre-2000 there was too little understanding off it due to under funding.

Hope that shines a little hope brother

Thank you for all the information, indeed in this way it is more optimistic...

 

[Christophe_85]

Glynis, you're such a good person, we're blessed to have you here.

Just wanted to say thank you.



You should really consider CBT. I would really, really, really, really, really strongly recommend it.

(Good) therapist if you can afford it, buy a book called "Feeling Good" and do all the exercises (!!!) Otherwise.

You have a model example of severely distorted thought process and your mood might improve significantly with proper therapy.

I defeated my, "tinnitus-induced", moderate depression with CBT and I can't stress enough how important it is to regain the feeling of being in control of your life that you seem to missing.

Half of a year ago I was crying, hugging table's leg and begging for the ringing to stop.

Today, I'm lying in my bedroom, reading in silence and the ringing is so far in the background I don't care about it.

I'm upset about it sometimes, but I quickly remind myself that life isn't fair and think about all the awesome stuff that happens to me.

I have regained this sense of inner peace, I hope you'll get to this stage soon.


All the best.

Actually I am seeing someone but this is regular psychotherapy I guess...

CBT is something special for Tinnitus ???

Thank you for your message !

 

[Christophe_85]

Never give up hope !!!
I have no control of Menieres ,Sever Bilateral tinnitus and Breathing problems that causes me to struggle to breath normal and would not be alive without medication and attacks stopping me breath in or out or gasping and lips go blue...
I really know what it's like to fight to be alive and even with Menieres and sever Bilateral tinnitus I never give up hope .
We have one choice to make everyday count or let our health problems win.
I know tinnitus can be mental torture and emotionally challaging but you have to push to enjoy good days and push hard even harder on bad days ...
Emotions can be hard if anxiety and depression take hold and only see a bleak future but never give up HOPE !
Love glynis x

Hello Glynis thank you for your kind and positive message !

All the Best for you !

 

[JodieStephens]

Yes but maybe 10 years ago people said exactly the same thing about science and technology... And nothing came out as a cure or any relief...

Technology really just started in the past 100 years, and when anything is exponential the start must be small you know what I mean?

 

[Dmitriy]

Hello,

Even if I agree with you regarding the development of technology, I think Tinnitus is way too complicated to be cured... It is too deep in the brain IMO...

I think you maybe surprised how quickly a potential medical resolution may come about. Financial gains is a good motivator for pharma, and there are so many people with T that will pay $$ to get rid of it.

 

[Lex]

@Christophe_85, I also have similar thought patterns. It depresses me whenever I remember that I will suffer from T and H for the rest of my life because our damn ears can't fix themselves.

Research news excites me but realistically, I don't think I'll see an effective cure or treatment in my lifetime. I will change my mind once they can pinpoint the exact causes. But right now, the medical community can't even agree on what's causing T and H. They can't even get a clear image of the inside of the cochlea yet.

BUT!

I advise you to take life one day at a time instead of looking years into the future. No one can really say what life holds.

You can die young from a freak accident, so all your worries about dealing with T and H for decades to come will not matter anymore. Or it can get much worse, and you'll regret you didn't enjoy what you have today. Or it can get much better, and you'll regret that you wasted a lot of your time obsessing over your ears.

 

[Christophe_85]

I think you maybe surprised how quickly a potential medical resolution may come about. Financial gains is a good motivator for pharma, and there are so many people with T that will pay $$ to get rid of it.

Thank you for your positive answer...

But to me it seems so complicated in the brain that nothing could provide relief to T...

 

[Christophe_85]

@Christophe_85, I also have similar thought patterns. It depresses me whenever I remember that I will suffer from T and H for the rest of my life because our damn ears can't fix themselves.

Research news excites me but realistically, I don't think I'll see an effective cure or treatment in my lifetime. I will change my mind once they can pinpoint the exact causes. But right now, the medical community can't even agree on what's causing T and H. They can't even get a clear image of the inside of the cochlea yet.

BUT!

I advise you to take life one day at a time instead of looking years into the future. No one can really say what life holds.

You can die young from a freak accident, so all your worries about dealing with T and H for decades to come will not matter anymore. Or it can get much worse, and you'll regret you didn't enjoy what you have today. Or it can get much better, and you'll regret that you wasted a lot of your time obsessing over your ears.

Hello Lex !

Yes I agree with you... Anyway I don't really have the choice to live my life day by day... But sometimes I get tired of this situation...

I also think we are really not close to find anything soon... Too deep inside the brain and it varies too much from every single person...

How are you these days ???

 

[Christophe_85]

Technology really just started in the past 100 years, and when anything is exponential the start must be small you know what I mean?

Yes but still to me T seems too complicated to be cured...

Too inside into the brain...

 

[Lex]

Hello Lex !

Yes I agree with you... Anyway I don't really have the choice to live my life day by day... But sometimes I get tired of this situation...

I also think we are really not close to find anything soon... Too deep inside the brain and it varies too much from every single person...

How are you these days ???

I'm slowly improving since my setback more than a month before. Also, my bf is back from three months being abroad so emotionally I'm a bit better. Here's hoping for better days, not just for me but you too and everyone else here.

 

[JodieStephens]

Yes but still to me T seems too complicated to be cured...

Too inside into the brain...

I've had a huge spike this week, went to the hospital twice. I was thinking the same thing, it's easy to be hopeless. Have you tried any treatments yet? I haven't

 

[Christophe_85]

I've had a huge spike this week, went to the hospital twice. I was thinking the same thing, it's easy to be hopeless. Have you tried any treatments yet? I haven't

Sorry for your spike, did it go away by now ?

What kind of treatments are proposed either by ENT or any other Doctor ?

Everyone I saw told me : "You have to live with it !"

But never proposed me any treatments...

 

[Christophe_85]

I'm slowly improving since my setback more than a month before. Also, my bf is back from three months being abroad so emotionally I'm a bit better. Here's hoping for better days, not just for me but you too and everyone else here.

So 2 good news for you !!!

 

[vermillion]

Or it can get much worse, and you'll regret you didn't enjoy what you have today.

And then?

 

[Lex]

And then?

He can cross the bridge whatever way he wants when he gets there. But he isn't there yet. That's pretty much clear no?

 

[JodieStephens]

Sorry for your spike, did it go away by now ?

What kind of treatments are proposed either by ENT or any other Doctor ?

Everyone I saw told me : "You have to live with it !"

But never proposed me any treatments...

I have an emergency appointment with the ENT this week, he'll tell me what treatments there are. Probably sound treatment. I live in Canada, all treatments are covered

I'm not sure if it went away, it just suddenly didn't bother me that much anymore... Quieter? Knock on wood.

 

[vermillion]

He can cross the bridge whatever way he wants when he gets there. But he isn't there yet. That's pretty much clear no?

I was afraid that this is the only option. However it takes great courage to successfully kill yourself.