What's the worst part about having tinnitus?

Days of mental mistakes and confusion. Can someone answer why there are days where my t is hardly audible and the next day it's back with a vengeance. Is it because the nerve or neurons are fired out and are replenishing. Just something scientist should look for .

I have read some people reporting the same pattern. T can spike on almost predictable cycle for some. For others it may be just because their T is caused by something in their body physiology, such as blood flow to the ears or muscle tension or oxygen level. I heard some people with sleep apnea can have loud ringing after they sleep without the CPAP machine, thus starving their body of needed oxygen at night and they can wake up to very loud T. Some people can have their T turned on by eating/drinking something such as Caffeine, MSG, salt, etc. One well known tinnitus personality Paul Tobey, a Canadian concert pianist who was featured on ATA even said his T was much reduced when he started eating foods suitable for his blood type. Go figure. So when he ate foods not suited, his T just flared up. So there are many reasons why T just spikes one day from the next. You will have to see if there is a certain pattern which can trigger the spikes.
 
:wacky:
For me the evenings before going to bed are the worst part of T, as I have a hard time relaxing and falling asleep. I would also like to sleep better. Fortunately my sleeping has already improved somewhat from what it was in the autumn. Sometimes I don't like to wake up in the morning and realize my T is just as loud as the previous day. Would be nice to have quiet T days also.

totally agree Riikka! I am in the same place. Bedtime sucks, and waking up sucks!!:grumpy:
 
I have read some people reporting the same pattern. T can spike on almost predictable cycle for some. For others it may be just because their T is caused by something in their body physiology, such as blood flow to the ears or muscle tension or oxygen level. I heard some people with sleep apnea can have loud ringing after they sleep without the CPAP machine, thus starving their body of needed oxygen at night and they can wake up to very loud T. Some people can have their T turned on by eating/drinking something such as Caffeine, MSG, salt, etc. One well known tinnitus personality Paul Tobey, a Canadian concert pianist who was featured on ATA even said his T was much reduced when he started eating foods suitable for his blood type. Go figure. So when he ate foods not suited, his T just flared up. So there are many reasons why T just spikes one day from the next. You will have to see if there is a certain pattern which can trigger the spikes.
Thank you for the info.
 
I know you have to take precautions with loud noise, taking certain medications that might be ototoxic etc, but I believe you have to lose the fear of tinnitus, worrying if it will get worse in the future only adds to the misery of people who are suffering, live in the moment. Millions of people have tinnitus, normal happy people that live their lives without giving a thought about tinnitus, let alone worrying if it will get worse. Its like worrying you aren't go to live to be old or worrying if you might get cancer in your lifetime, fear is what drives the misery/suffering, I used to have the same worry, that made me depressed, now I don't think about these things I'm happy.
 
I will have to address this question in two stages. In the initial stage, it was all hell.

I usually woke up in the morning with loud screaming ultra high pitch tinnitus shrill, something which used to drive my brain into relentless anxiety and panic attacks on auto mode before I was fully awake enough to reason myself out of these attacks. In the first few months, I had to immediately reach for meds, Ativan, Prozac & what have u whenever my loud T woke me up. No amount of will power could stop this process, so much so that I was worrying my doom would be a foregone conclusion. I mean how do you survive something which didn't give you any chance to fight it. The problem was that I had suffered decades of anxiety and panic disorders. My brain tended to react with anxiety/panic mode on life's challenges. So my brain facing these new and alien T sensation had no chance. It was so freaked out by my T (and hyperacusis soon after) that it just caved into panic on auto mode. Each day was a long dark day. Every night when I went to sleep, if I could sleep at all, not wishing to wake up to repeat the 'torture' cycle again. I mean besides dealing with T & H, I also had to deal with repeated episodes of anxiety and panic attacks.

It is not just the ultra high pitch loud tinnitus shrill or the piercingly hurtful hyperacusis, there were also the dreaded symptoms of anxiety and panic attacks. These A & P attack were very alarming and hurtful sensations, with heart attack alike symptoms of chest pain, tightness of chest, shortness of breath, heart palpitations, sore muscles and pains, headaches of all kinds, sharp pain like migraine, tingling pain like being pinned all over the skull, and numb pain with the brain like being enveloped in a fog not able to think clearly. There were nightmares, profuse sweating, strong adrenaline rush, fears & phobia about things & about the future, feeling disoriented, dizzy, lost and helpless. These symptoms coming on auto mode made it very hard to live with my T & H. During the darkest period, day and night, T, H, A, and P all conspired to attack me with great sufferings, both mind and body, causing great despair and inevitable depression and sleeplessness. I had to depend on meds to survive during these dark, dark days. My situation was hopeless and often the big 'S' word was dangling in front of the tired and stressed out mind as it saw no way out, no light whatsoever at the end of that long dark tunnel. I never thought I would recover.

Well, tell me about the worst part about my tinnitus back then. It was all of the above. Now, it is a different story. I have recovered from the nightmare and the horror show. T doesn't scare me anymore and it cannot even get my brain to zoom on it. The brain now hardens to the sound which is still same as loud and screaming high pitch but I don't give a dime. The T nightmare is over for me and I enjoy my life now regardless of what T does any given day. Freedom at last.
Do u go clubbing and to parties where they have loud music ....
 
i'm not sure that my T is the same as anyone else's, unless i haven't read threads correctly, which could very well be the case. my T is only in one ear. it's constant. it doesn't come and go like some peoples' do that i have read thus far. it's there 24/7. sometimes it's louder than other times. sometimes it's more noticable than other times. i have also started to feel dizziness at times. when i plug my right ear [the one that doesn't have T] i cannot hear at all.

i am afraid that i will go deaf
 
Do u go clubbing and to parties where they have loud music ....

No I am not a club person. But I do go to parties such as Christmas and New Year's celebration. I won't stand in front of loud speakers. Just need to be prudent. Although I do go to movies like 'Iron Man', 'Man of Steel' etc. etc. without needing to wear ear plugs now. I started with using them but gradually phasing them out. If it really gets too loud in a few scenes, my fingers are the best ear plugs for those few moments, LOL. In general, I prefer going outdoor to nature. It is quiet there mostly unless I am fishing salmon at the rapids. My T can be dominant in the quiet setting, but the heck with the T bully. I choose to fight & dare this bully. I don't give it a dime any more and I won't allow it to rob me of my outdoor life. If I really need it, an ipod with nature sounds will do some partial masking. So at times I may be masking T in nature with nature. Go figure & what a joke, LOL. Love my life with T or no T. Be positive, be prudent, but don't let T dictate your life. My new motto is to live life abundantly to compensate for any T suffering, and the suffering will get less and less as time passes. Time is on our side. Cheers.
 
Probably how quicky it can change my mood. I'm lucky enough to have it at a bareable noise most of the time, but when it spikes out of no where my mood immediately goes downhill and only improves once it's back to normal. It's an incredibly stressful time because you never know when it'll return to normal, or if it will at all.

A close second is not being able to commit to thoughts at times. When this happens I feel like I can't utilize my full brainpower in trying to contemplate and analyse whatever information is presented before me. This bothers me deeply because I'm left with the thoughts that my 'conclusions' on the matter may be either unintentionaly 'false' or not the 'conclusions' that I would have arrived at without the hounding noise. It's as though tinnitus has changed me as a person and I'm not my normal past self. Which I kind of believe is somewhat true.:dunno:
 

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