Why Do People Here Go to Drastic Measures to Protect Themselves?

Bill, I know you mean well but I give up. It's like talking to a brick wall.
If what you said were to be true, it would be easy for you to prove me wrong and point to a post (call it "post A") where someone says that their T had worsened after hearing birds. Pointing to a (nonexistent) post where I use that (nonexistent) post A to warn people about ensuring that they don't get exposed to bird noises, would help your case too.
 
If what you said were to be true, it would be easy for you to prove me wrong and point to a post (call it "post A") where someone says that their T had worsened after hearing birds. Pointing to a (nonexistent) post where I use that (nonexistent) post A to warn people about ensuring that they don't get exposed to bird noises, would help your case too.

I don't want to get into another pointless debate and I can't post any examples because they are all private (although there are many examples on the open forum). Some of the sound triggers are obviously anxiety. Once you train your parasympathetic nervous system to treat something as a threat then you will begin to envoke real physiological reactions. The spikes are real, but it's not the sound that's causing them, it's the overwhelming fear response and this is something that is learnt.

You will never understand this which is quite evident. I've been on the other side of the coin and know exactly how it feels to be phonophobic; it's mentally draining and absolutely exhausting. It takes so much away from you and you can end up in a very very bad place. I'm in a MUCH better place now trying to help others but there's just too much fear mongering going on to ever succeed. So, I admit defeat.
 
The spikes are real, but it's not the sound that's causing them, it's the overwhelming fear response and this is something that is learnt.
The majority of my spikes were the result of noises that didn't worry me at the time.
 
Bill, I know you mean well but I give up. It's like talking to a brick wall. I'll let you get on with it because the people who are doing well with intrusive T are never listened to anyway, so I see no point anymore. I'm gonna get back to my life now and I wish you all the best. Take it easy everyone.

PS: Who's up for another fundraiser later in the year? I'm thinking tinnitus research this time round.

I totally understand why you try to get him to see another point of view, but it's pointless.
Another fund raiser sounds great Ed. Take it easy and come back soon buddy.
 
@Ed209,
Fundraising! count me in any time and any help setting it up..lol
Please stick around Ed...
love glynis x
 
Protecting your ears around everyday sounds is not needed and building up time around everyday sounds is important if have Hyperacusis.
If you work in a loud area around 84 db hearing protection is needed but I would say 80db.
Where you live depends also when you need to protect your ears eg-
commuting to work by train,underground,loud motorways etc ..
Unexpected sounds will happen and just keeping plugs handy can help.

Cinema, football games,concerts need ear protection and also how you are dealing with tinnitus at the time is a good judge weather to go with protection or keep away.
We do not have to live a life of doom and gloom and not having fun so just be sensible and even check out events before hand .
love glynis x
 
Bill, I know you mean well but I give up. It's like talking to a brick wall. I'll let you get on with it because the people who are doing well with intrusive T are never listened to anyway, so I see no point anymore. I'm gonna get back to my life now and I wish you all the best. Take it easy everyone.

PS: Who's up for another fundraiser later in the year? I'm thinking tinnitus research this time round.
To use Bill's own analogy, if you hit a brick wall with a hammer . . .

Thank you for speaking up on behalf of those with intrusive tinnitus who are living well and living without fear.
 
No you wouldn't trust me. Tinnitus suffering is exponential with volume. Someone with twice the tinnitus volume suffers around 3-5 times more. Keep your earplugs in.

The first part I agree. Tinnitus suffering is exponential with volume.
The secone part, that earplugs and noise protection are the solution, - I remain very sceptical.
 
Once one adopts a safe lifestyle, there is nothing to be stressed about.
Well in my case the inability to be productive and to stay social because I follow the "safe lifestyle" is what had contributed to my decision to die. Of course tinnitus is the reason that causes the inability. It's always about tinnitus. Btw since the onset I haven't gone to any bars, clubs, concerts etc. Anyhow... the "safe lifestyle" is not tolerable by everyone. Bill has stated he doesn't mind because for him to be happy solitary is necessary. I am the opposite. Loosing everything and staying safe has deteriorated me to the point that I have began to address the way of my suicide. It's very hard and unfair but there are no choices for some of us.
 
Uh oh, you found the cursed image of Bill the Bauer! Quiet tinnitus days and good hearing will come to you, but only if you reply "Stay based Bill" to this comment!

lkNiK.jpg
 
Thank you for speaking up on behalf of those with intrusive tinnitus who are living well and living without fear.
It is "living without hope." Of course one always has the option to just give up, stop thinking about what might promote healing, accept that one will have T for the rest of one's life, and just get used to T. If T gets louder - who cares, stop being fearfull - just get used to the new level, and keep getting used to it - the louder, the merrier.
 
I dont think any of this is healthy. There is one thing humans do really really well and that is disagree and argue over nothing. People will be people and no one is responsible for anyone else on here. Personally there is only one type of post id like to not see and thats people talking about suicide. That doesn't mean i think it should be banned people are entitled to write what ever they want and sadly its just a part of a forum like this.. Its up to me to decide wether i want to listen to someone, be effected by someones suicide post or even go on tinnitus talk today.
 
Well in my case the inability to be productive and to stay social because I follow the "safe lifestyle" is what had contributed to my decision to die. Of course tinnitus is the reason that causes the inability. It's always about tinnitus. Btw since the onset I haven't gone to any bars, clubs, concerts etc. Anyhow... the "safe lifestyle" is not tolerable by everyone. Bill has stated he doesn't mind because for him to be happy solitary is necessary. I am the opposite. Loosing everything and staying safe has deteriorated me to the point that I have began to address the way of my suicide. It's very hard and unfair but there are no choices for some of us.

Sorry to read this. Do you mean you never go out anymore? Maybe you can find some other nightlife places where you can have fun with friends? Some bars are really not loud. And what about the restaurants? Generally it's ok.
 
It's ok to go out and have fun that's the point. Tinnitus can't stop you having a good time, or is having a good time also considered bad for our ears as well?

Too much weight is put on avoiding things and not enough is put on enjoying stuff and getting back out into the world.

What I mainly see is don't do this, don't do that, definitely don't do this, this is terrible, etc. It's depressing enough as it is having screaming tinnitus in your head (when you're new to it) without all this added misery that's promoted.

Most places are fine. With earplugs you're ok to go out and have a good time. That doesn't mean you have to go raving in a club. Most bars are fine with plugs, some are fine without. Most cinemas (in U.K.) are fine, plugs provide a good safety blanket. Nearly all restaurants are fine; if they get a bit loud stick your ear plugs in and enjoy your food and time out with your friends. Life can be good again it really can. It generally sucks when you allow tinnitus to take control of every aspect of your life. If you obsess and read this forum all day, then you'll suffer, make no doubt about it. It's a road to isolation and misery. Your nervous system will end up in bits and you'll slowly become a nervous wreck scared to shut your own door in case you do it wrong and it's too loud. That will be your new life if you let your self become absorbed by it.

The obvious caveat is to be careful around really loud concerts and similar places. This doesn't mean you can't go with good ear protection. It means be vigilant and don't stand by the speakers or do anything stupid. If it's way too loud for your ear protection to work, then leave. If in ANY doubt, don't go. But, don't isolate yourselves from your friends. I've been out loads and I feel like a weight was lifted when I did get back to living my life. It feels good to socialise and get out again.
 
What I mainly see is don't do this, don't do that, definitely don't do this, this is terrible, etc. It's depressing enough as it is having screaming tinnitus in your head (when you're new to it) without all this added misery that's promoted.
You are operating under the assumption that the things that people have been advised not to do, can't actually interfere with recovery and can't cause permanently louder T. This assumption is not true, as evidenced by overwhelming number of posts on this forum.
The obvious caveat is to be careful around really loud concerts and similar places. This doesn't mean you can't go with good ear protection.
Sometimes I wonder whether you are getting a sick thrill out of the thought that your advice has caused another person to get debilitating T.
 
@Ed209
Yes, absolutely and completely agree with you.
I have seen very paranoid posts on here, and concur that people's fear is worse than their tinnitus.

We certainly do need to be aware and protect our ears, but isolating oneself and missing out on life only makes the depression and anxiety much worse.
 
You are operating under the assumption that the things that people have been advised not to do, can't actually interfere with recovery and can't cause permanently louder T. This assumption is not true, as evidenced by overwhelming number of posts on this forum.

I'm not trying to be mean here, Bill, but what planet are you from? I mean honestly, most people need a social life or some form of outlet. You can't tell people to stay cooped up somewhere in a safe little box. It's not possible! And more to the point, it's depressing as hell.

If you're happy to live tucked away somewhere, never to venture out again, then there's no issue, and I don't think anyone will argue with that. Everyone is free to live their lives as they see fit. However, for the vast majority this simply doesn't work and is likely to make their tinnitus worse. Tinnitus is mainly a central nervous system/brain problem, so a great way to exacerbate one's symptoms is for them to be in a constant state of panic, and a lot of your advice is sure to do that.

Staying away from excessive noise and protecting our ears in loud environments is not rocket science. Quoting people who are at the worst end of the spectrum is a complete waste of time and is so biased it's embarrassing. There are literally millions of people going about their daily business with intrusive tinnitus who've never been on a tinnitus forum in their life.
 
I mean honestly, most people need a social life or some form of outlet. You can't tell people to stay cooped up somewhere in a safe little box.
In the spirit of talking about people who send private messages to us - I am currently talking to a person who spent a couple of hours in a restaurant (while wearing earplugs) with no music, just people talking. As a result, the person is living through a horrific spike now (it had already lasted for close to a week). Of course there are plenty of stories like that, and you are not doing anyone any favors by pretending that this can't happen.
If you're happy to live tucked away somewhere, never to venture out again, then there's no issue, and I don't think anyone will argue with that.
The choice is the above, versus a very real risk of a lifelong debilitating T which would be a cost that one would have to pay for a couple of hours of "fun" (not sure how enjoyable it can be if one knows what is at stake).
Quoting people who are at the worst end of the spectrum is a complete waste of time and is so biased it's embarrassing.
Riiiight.
 
In the spirit of talking about people who send private messages to us - I am currently talking to a person who spent a couple of hours in a restaurant (while wearing earplugs) with no music, just people talking. As a result, the person is living through a horrific spike now (it had already lasted for close to a week). Of course there are plenty of stories like that, and you are not doing anyone any favors by pretending that this can't happen.

I'm talking to the same person and have been since this morning. It's another case of a fear induced spike and it's getting more and more out of hand. You're not helping, Bill.
 
It's another case of a fear induced spike
The facts are that he or she wasn't worried about T as the restaurant wasn't loud, and he or she was wearing hearing protection. So stress did not cause T, T was the cause of stress. You are refusing to believe the facts, and making up ridiculous scenarios that are clearly false. This is fascinating.
 
The facts are that he or she wasn't worried about T as the restaurant wasn't loud, and he or she was wearing hearing protection. So stress did not cause T, T was the cause of stress. You are refusing to believe the facts, and making up ridiculous scenarios that are clearly false. This is fascinating.

I've been talking to him for literally 7 hours straight pretty much non-stop. What are you on about? You cannot talk on behalf of someone else like you are that person.

I'm not refusing to believe anything, but I am getting more and more concerned about your wellbeing, Bill. Something is not quite right with you.
 
I've been talking to him for literally 7 hours straight pretty much non-stop. What are you on about?
If you have some reading comprehension issue or if your subconscious made you not see sentences in his messages, then that is your problem. I read his (her?) messages carefully, and had provided an accurate summary (while making sure to not reveal his identity).
Something is not quite right with you.
Why do you think that?
 
Thank you for speaking up on behalf of those with intrusive tinnitus who are living well and living without fear.

@Ed209 if we all pack it up and leave here - I wonder what would happen? I left the scene for several years because I could not stand what was going on just like in this thread. I wonder if I made the wrong decision now.

But maybe what we say will actually help someone - even though we don't know.

I am tired of Bill Bauer and another tinnitus "expert" psycho on another forum who is now using the passing of a former poster as some sort of proof. In reality that person hated him and everyone knows it. But no one speaks out.

I am ready to take a hike myself right now. Take my noisy brain and poof disappear and forget this part of my life.
Donate money to other causes that need help. Not Tinnitus Talk which I will support even when I am gone. But tinnitus organizations like the ATA who simply have no empathy or respect for people who supported the organization in the past.

This is all so ego driven regarding tinnitus. Jesus Christ it has not changed at all. There are so many games being played right now.

@threefirefour be very very careful. You are being played and used in the game of tinnitus forums.

@Bill Bauer if you want to continue to take over this site with your attitude than you should fork up a big donation to Tinnitus Talk for taking up so much space.

@those who chose to put me on the ignore list.....you are no better. Put up donations if you want to take over this site with your views that are supposed to be the Holy Grail of Tinnitus.

No wonder tinnitus sufferers are confused.

So Ed what shall it be now? Time to pack it up? You are spending such great effort to help people off the board as well as on the board. From my past experiences I had to close off my profile and just settle for talking on the board.
 
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Well in my case the inability to be productive and to stay social because I follow the "safe lifestyle" is what had contributed to my decision to die. Of course tinnitus is the reason that causes the inability. It's always about tinnitus. Btw since the onset I haven't gone to any bars, clubs, concerts etc. Anyhow... the "safe lifestyle" is not tolerable by everyone. Bill has stated he doesn't mind because for him to be happy solitary is necessary. I am the opposite. Loosing everything and staying safe has deteriorated me to the point that I have began to address the way of my suicide. It's very hard and unfair but there are no choices for some of us.
So many hugs. This is how I felt, too. I had no hope for my future. Felt isolated from friends and family and worried about future events.

I could not imagine living my life with a high pitch nonstop ringing. Work, vacations, volunteer efforts, church, family gatherings . . even cleaning my house seemed impossible.

I sincerely felt my life was over. I decided to set a date and that for the remaining time I would live my life. That I would continue to pursue help (therapist, ear specialists, etc) but I would also move forward by living my life. And little by little, the more I returned to normal life (with earplugs in loud environments), the more hope I had and the more I realized I could live life with high pitch tinnitus.

I know this thread has slipped from this topic but I wanted to reply to you. I wish you well, @vermillion. And I wish you hope.
 

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