dpdx
Reactions
4,999

Joined

Profile posts Postings About

  • Dear God, I would give you anything in the world if you can make life be what it was before. I never believed in you until now but please.
    I get 5 days per week where my T is blasting loud a 8/10, then I get 2 days where its a 6/10, this has been happening since August.
    Red
    Maybe that is a good sign? Maybe you are improving?
    PDodge
    <3
    Apolonia
    There is a treatment named calminax by a spanish molecular biologist. IT is a New thing and it has been Said IT helps. I bought one bottle and am willing to try IT out. I advise you to try it as well.
    The day after CVEMP I felt a cool sensation in my ear and felt these popping/snapping sounds. Were these the inner hair cells being damaged?
    I dont understand how my Hyperacusis is so bad. I cant even sneeze without causing discomfort or cough. I have damaged a lot of inner cells.
    Red
    Get advice from hyperacusis.net or one of the facebook hyperacusis groups
    dpdx
    thank you so much :) will do :)
    People DO NOT. I REPEAT DO NOT do THE CVEMP/ECOG/ACOUSTIC REFLEX. It results in HEARING DAMAGE.
    I am sorry but Hyperacusis is so bad that I cant even endure people talking or objects clattering. T is blasting loud right now...BLASTING
    My life is over sad truth. Living with H and T is hard. I cant even raise my own voice without causing discomfort! T is blasting loud :(
    Red
    It's hard not to feel broken. But even broken people are alive. Broken people can find happiness but it's harder for us. We have to learn how to navigate the world differently.
    Have you been taking any steps to address your hyperacusis?
    Severe hyperacusis...cant even talk.
    Red
    How do you tolerate white noise if you have severe hyperacusis? TT doesn't have a particularly active H community. I go off site for H support. Most H sufferers get relief from silence even if that isn't a long term solution. Personally, disagree that drowning everything in white noise is the way to go.
    Red
    If I never turned off my white noise a few weeks ago, I would have never recovered from reactive T and made progress with H. My T would have stayed unmaskable and not have gone to whisper soft.
    Red
    H is like all other nerve injuries from what I've seen. You can rebuild tolerances slowly and carefully. But blasting white noise always is like asking someone with a back injury to help you carry all your furniture in when you move.
  • Loading…
  • Loading…