Juliane

Juliane

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  • Juliane
    1/2 So tired of this BS and the impact it has on all areas of my life. Feels so pointless, stupid and unfair. I will never forgive those
    Juliane
    Mad spike after exercise. Wasn't even that intense :-( Went to the infrared sauna afterwards. Could that be it?
    View previous comments…
    4Grace
    Mine always spikes after exercise due to increase in blood flow. :(
    ErikaS
    @hopefuldede you describe your T changes how I tend to experience mine. With movement, after a walk,constant sound, increased heart rate, etc it becomes this awful high hiss that is reactive. As this calms down in quiet, the hiss is still there but then my other 3-4 crazy chaotic sounds come out. Its insane. How do so many get blessed with one T sound that can be ignored 90% of the time?
    H
    I am on holiday in Spain at the minute and have taken a week off running ( I usually run 6 days a week) I'll report back in the forum how I got on
    Juliane
    To me, T now seems to be the worst condition you can get. Is it really so, or do we always feel what we suffer from is the worst of all?
    View previous comments…
    MindOverMatter
    ....I adjusted my workload, lowered my stress levels, spent a lot of time in nature, and found soothing background noises that I, over time, could tolerate. Slowly I began to feel like I was drifting back to normal life again. At one point I was feeling like I was almost reborned since I had been struggling for quite some time.
    Theezy
    @MindOverMatter thanks for your response! That's helpful to hear your experience. I will try to apply some of this into my routine. I'm currently in a bad spike - feels like I'm always either just starting to get out of a spike or starting up a whole new cycle. Was the counseling tinnitus specific or general talk therapy?
    MindOverMatter
    @Theezy t/h specific, with an audiologist and cbt therapist.
    Juliane
    Find myself comparing my suffering to other people I know suffering from health issues to see who has got it worse. Not constructive, I know
    View previous comments…
    sakrt
    It's human @Juliane and a primary reason is because they are treated very differently in the medical world and public eye, often due to awareness. When celebrities "come out", it draws the public to suddenly be interested, motivated to be a part of too, Notice this also impacts monetary decisions w/ our gov't too? How many TV ads by the pharma industry about T/H have you seen?
    SarahMLFlemmer
    Juliane
    @sakrt That is spot on and I do feel I have an obligation to raise more awareness about T. It should be talked about a LOT more!
    Juliane
    Friends meeting up spontaneously and asked if I wanted to join. Of course I do but can't due to stupid damaged ears. Now at home crying
    S
    You can still do these things. Sometimes you've just gotta change the way you do it. Wear earplugs or go to a quiet place perhaps? :)
    4Grace
    So sorry to hear. Ear plugs are only option.
    Juliane
    Went swimming in the ocean today. Almost felt like a normal person for 20-25 minutes
    RunningMan
    Yeah, those moments are nice. I can go out walking, running, biking and almost feel normal. Except, I'm wearing earplugs when biking, which I never used to do until last summer and have to be careful about mowers and loud vehicles when walking/running.
    sakrt
    Ocean is very healing. Our inner ear and brain anatomy sure looks like we evolved from that wondrous blue world.
    Juliane
    Feel I should isolate for the sake of T but isolation makes me depressed. Catch 22
    4Grace
    Agree. I my case, each is different, I don't think my T will get better anyway. I wish I was in a position to isolate and improve. You might be in a better position so think of the end goal.
    SarahMLFlemmer
    Crazy, ain't it?
    S
    Isolation drove me nutty. Had to have some semblance of my old life back. I just do things I used to do in protection if it's overly loud or avoid them if don't have plugs.
    Juliane
    I am not going to accept any more BS from doctors saying T is not a disease. It sure is! And one of the worst you can get imo
    Juliane
    Broke down in tears again today. Crying seems to be the only thing that makes sense
    kingsfan
    Crying really is the body's natural "reset"
    4Grace
    I feel you. I agree with kingsfan.
    S
    Crying releases so much built up tension. I almost feel normal and back to normality when I've finished, lighter almost. Cry away @Juliane
    Juliane
    I don't believe in coincidences, so I know there must be a reason why we're in this together.
    View previous comments…
    gameover
    Nah. I was wondering about that but I think this is just shit luck and/or ignorance. Universe is chaotic, no God at least not one like we were told.
    AfroSnowman
    My experience with tinnitus has led me to the belief that there is no deeper meaning behind it, no plan, just a banal experience of pain. It is boring.
    gameover
    Yeah, people come with their various explanations. It is BS, but hey if it helps one cope, why not?
    gameover
    No H at all for you? Then I would say try everything to calm down and wait it out. Not saying bad T is nothing, but believe me, without H there is way more hope.
    Juliane
    Back to despair. This is not getting better. I just can't live like this. It's a fucking joke
    Juliane
    If I had been born with this noise in my head would it bother me less? Or is that just something we like to imagine?
    DschwaNH
    Maybe not born with it, but I've had it since I was a little kid. But I didn't know anything was wrong until I realized in my 50's that I have Tinnitus. Now, of course, I hear it 24x7
    Juliane
    Called the doctor to ask about zopiclone and tinnitus, and she suggested I'd instead drink a beer with a paracetamol before bedtime!
    View previous comments…
    Juliane
    @tpj How do you manage sleep?
    tpj
    @Juliane I'm relieved you got some sleep and without taking anything. I usually can sleep but it's always broken. A lot of sleep, wake up, repeat. I'm used to it. When I can't sleep, I take Xanax or doxylamine.
    Juliane
    @tpj Thank you for your kind words. I am glad to hear you are able to sleep but broken sleep is no picnic. It's very exhausting. And I understand why you take meds when not sleeping as we need to sleep to be able to function.
    Juliane
    2/2 taking one zopiclone is? Could one pill after two months absence do any harm to my brain chemistry and tinnitus? Thanks a lot!
    View previous comments…
    Juliane
    @kingsfan Thanks! Yes I did take them before and they did indeed quiet my tinnitus. But it later of course came back and, I felt, worse. I thought it was due to GABA downregulation... That's why I am really cautious with all meds
    aab
    Not sure if melatonin is causing nightmares. I stopped taking melatonin.
    aab
    Juliane
    1/ 2 Dear TT peeps. I would appreciate your support! I am a nervous wreck due to not having slept well for days. How risky would you say
    Ryan Scott
    Don't feel bad I have gone days without sleept multiple times, definitely not the best thing to do but else can you do lol. I still don't sleep the best. Sleep for an hour wake up for 1 repeat.
    Juliane
    @ryanscott Not sleeping is torture:-( Do you take anything to help you sleep or just power through?
    L along the way
    I have had massive sleep issues for the past couple of years.. now I´m using benzos for it.. and it does help me. I´m choosing benzos now over having sleep difficulties.. maybe in the future if t get´s a bit better, I´m also more able to sleep without it again..
    Juliane
    Today needs to be endured and done with. When night time and torture comes around again I might take a sleeping pill. What else can I do?
    Juliane
    Another night of absolutely no sleep. Tinnitus crazy loud. I don't want to live anymore
    Juliane
    I might give in and take a zopiclone. I am so so scared
    View previous comments…
    RunningMan
    I've been taking a different Z drug, zolpidem, for over 18 months. It doesn't affect my tinnitus or morning anxiety, but it helps me get back to sleep if I wake up in the middle of the night. I take a low dose, so I don't normally sleep that much longer.
    Juliane
    kingsfan
    @Juliane Makes my tinnitus more bearable. If I took enough it would make me sleep.
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