Juliane

Juliane

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  • Juliane
    4/4 performance. I wonder if all this in combination ramps up T... T, my old companion - please go away. You outstayed your welcome
    Juliane
    3/4 mental task on Thursday that exhausted me. Plus have not had energy to eat well / cook. Mostly takeaway. General worry about work
    kingsfan
    Easy meal when I can't be bothered to cook: Walmart has packaged chopped rotisserie chicken. That with baby spinach, chopped up pink lady apple, goat cheese, pistachios, and balsamic vinaigrette. You can add bacon too (but I'm not a fan) The perfect salad.
    Juliane
    Juliane
    2/4 emotional shocks in a very physical way. Poor sleep the following night. Feeling sad and vulnerable Wednesday. Tough physical and
    Juliane
    1/2 A lot has been happening this week and my T feels worse / more bothersome. On Tuesday a piece of information shocked me. I always feel
    Juliane
    Why even bother to try and cope when at any time it could all go haywire again. I can't do this nonsense.
    Juliane
    I no longer believe that everything happens for a reason. It all just random BS and I am just unfortunate. Makes this ordeal pointless
    Juliane
    2/2 from anyone. No hope. Thank you all for being there!! One day we will all find relief. We have to.
    Juliane
    1/2 On tough days like these I am so thankful for this amazing community. Without you guys there would be no compassion, no understanding
    Cmspgran
    Can relate to this so much right now.
    cjbhab
    If this site didn't exist I would be even more angry that I'm the only one with this crazy affliction.
    Juliane
    Have any of you tried getting fired? How did you cope? I am obsessing extremely over this fear :-(
    4Grace
    When I got T I began to break down at work. I had no choice but to take a leave. If I didn't I probably would have got fired at some point I think it's much better to keep working if you can so that your mind stays busy. I could not cope. I tried but failed. I feel your pain. Obviously don't try to get fired. Do your best to stay. If you can't I would take a sick leave if they will allow.
    Juliane
    @4Grace I am sorry but good that you went on sick leave. Necessary! I hope you were able to keep your job
    Juliane
    I was a highly functional person just months ago. Now I constantly worry about getting fired or worse. All because of the worsening of my T
    Juliane
    2/2 you're being overly pessimistic and others have it worse. Awesome support!!!
    View previous comments…
    Juliane
    They really don't. Not only are we struggling with these horrors, we are being seen as hypochondriacs. So unfair and I just can't accept it. I won't.
    T
    It would be nice if people could just listen to you and try to be understanding without the others have it worse comment.
    RunningMan
    Yeah, easily said by someone that isn't experiencing it or only has a mild typical case.
    Juliane
    1/2 Just received a dose of toxic positivity. Boy, nothing makes you feel better than being told you have no reason to be sad and that
    Juliane
    1/2 So tired of this BS and the impact it has on all areas of my life. Feels so pointless, stupid and unfair. I will never forgive those
    Juliane
    Mad spike after exercise. Wasn't even that intense :-( Went to the infrared sauna afterwards. Could that be it?
    View previous comments…
    4Grace
    Mine always spikes after exercise due to increase in blood flow. :(
    ErikaS
    @hopefuldede you describe your T changes how I tend to experience mine. With movement, after a walk,constant sound, increased heart rate, etc it becomes this awful high hiss that is reactive. As this calms down in quiet, the hiss is still there but then my other 3-4 crazy chaotic sounds come out. Its insane. How do so many get blessed with one T sound that can be ignored 90% of the time?
    H
    I am on holiday in Spain at the minute and have taken a week off running ( I usually run 6 days a week) I'll report back in the forum how I got on
    Juliane
    To me, T now seems to be the worst condition you can get. Is it really so, or do we always feel what we suffer from is the worst of all?
    View previous comments…
    MindOverMatter
    ....I adjusted my workload, lowered my stress levels, spent a lot of time in nature, and found soothing background noises that I, over time, could tolerate. Slowly I began to feel like I was drifting back to normal life again. At one point I was feeling like I was almost reborned since I had been struggling for quite some time.
    Theezy
    @MindOverMatter thanks for your response! That's helpful to hear your experience. I will try to apply some of this into my routine. I'm currently in a bad spike - feels like I'm always either just starting to get out of a spike or starting up a whole new cycle. Was the counseling tinnitus specific or general talk therapy?
    MindOverMatter
    @Theezy t/h specific, with an audiologist and cbt therapist.
    Juliane
    Find myself comparing my suffering to other people I know suffering from health issues to see who has got it worse. Not constructive, I know
    View previous comments…
    sakrt
    It's human @Juliane and a primary reason is because they are treated very differently in the medical world and public eye, often due to awareness. When celebrities "come out", it draws the public to suddenly be interested, motivated to be a part of too, Notice this also impacts monetary decisions w/ our gov't too? How many TV ads by the pharma industry about T/H have you seen?
    SarahMLFlemmer
    Juliane
    @sakrt That is spot on and I do feel I have an obligation to raise more awareness about T. It should be talked about a LOT more!
    Juliane
    Friends meeting up spontaneously and asked if I wanted to join. Of course I do but can't due to stupid damaged ears. Now at home crying
    S
    You can still do these things. Sometimes you've just gotta change the way you do it. Wear earplugs or go to a quiet place perhaps? :)
    4Grace
    So sorry to hear. Ear plugs are only option.
    Juliane
    Went swimming in the ocean today. Almost felt like a normal person for 20-25 minutes
    RunningMan
    Yeah, those moments are nice. I can go out walking, running, biking and almost feel normal. Except, I'm wearing earplugs when biking, which I never used to do until last summer and have to be careful about mowers and loud vehicles when walking/running.
    sakrt
    Ocean is very healing. Our inner ear and brain anatomy sure looks like we evolved from that wondrous blue world.
    Juliane
    Feel I should isolate for the sake of T but isolation makes me depressed. Catch 22
    4Grace
    Agree. I my case, each is different, I don't think my T will get better anyway. I wish I was in a position to isolate and improve. You might be in a better position so think of the end goal.
    SarahMLFlemmer
    Crazy, ain't it?
    S
    Isolation drove me nutty. Had to have some semblance of my old life back. I just do things I used to do in protection if it's overly loud or avoid them if don't have plugs.
    Juliane
    I am not going to accept any more BS from doctors saying T is not a disease. It sure is! And one of the worst you can get imo
    Juliane
    Broke down in tears again today. Crying seems to be the only thing that makes sense
    kingsfan
    Crying really is the body's natural "reset"
    4Grace
    I feel you. I agree with kingsfan.
    S
    Crying releases so much built up tension. I almost feel normal and back to normality when I've finished, lighter almost. Cry away @Juliane
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