Recent content by vttbx

Hi Everyone, I visited Dr. Djalilian at UCI this week and was somewhat disappointed. He didn't ask many questions; his first question was, "Do you have any questions for me?" Essentially, you must adhere to his lifestyle protocol before receiving any migraine medications. While I understand the...

I'm seeing Dr. Djalilian in March. It will be interesting to see which one of the treatments he recommends.

Yes, I tried it. I have never heard about pterostilbene being ototoxic and haven't seen any data on it. It's more expensive than TruNiagen. I think it's more or less a gimmick. It's the same as resveratrol, so you can buy it separately and stack it.

So, if all goes well, we are looking at a minimum of 5-10 years before it becomes available?

I looked at their website and the thread here on Rinri Therapeutics. Have they published any results showing the amount of hearing improvement with their treatment?

For me, the pain sets in over time. It's usually a few hours, but always less than 12 hours.

It doesn't help with noise tolerance or hyperacusis. Only with the pain. It's an aching/burning pain that's reactive to noise. It gets my pain level to zero. No other meds. I titrate up and down. 100 mg for a few days, then 200 mg, to 300 mg, then back down.

I use Gabapentin whenever my hyperacusis pain spikes. It always helps even in small dosages (max 3x 100 mg daily). It lowers my tinnitus only slightly.

Correct. I was joking. :)

@Justin De Moss has entered the chat.

I can't seem to find Dr. Djalilian's Tinnitus Talk interview. Was it recent? Do you have a link?

I've had three surgeries, all of which were unsuccessful. Patulous Eustachian Tube symptoms include autophony, hearing your voice in your head, and aerophony, hearing your breathing. You probably don't have Patulous Eustachian Tube if you don't have any of these two. Crackling with every swallow...

I have it. In my case, it's due to a Patulous Eustachian Tube. It's a terrible condition to have that makes my tinnitus seem like a walk in the park.

Sorry that the improvement didn't last. How did you decide on taking 15 grams? Did you try less first? Why not try it again?

0% anger. 100% despair.