Recent content by ZZZK

Shashta I went through similar terror with my MEM. Please dont dispair and it doesnt help to fixate on it. Try to live ur life as normal as possible. I have done massive amounts of research on the subject of MEM and read hust about every paper. In most cases it gets better on its own, but...

Shasta don't despair. I know it's awful and plenty of us on this forum have been through the same thing. When my MEM was very active I was also getting random spasms all over especially my upper eyelids. This disorder seems to be related to some other kinds of essential tremor. Avoid...

The only muscle capable of vibrating that quickly in the ear is the tiny stapedius muscle. The tensor tympani cannot move that fast and my middle ear myoclonus is just a slow thump on and off. I have had the stapedius go off before and create a higher frequency rumble like you are describing...

I think some of the "permanent" medication induced tinnitus cases are often simply the temporary increase in tinnitus caused by the medication bringing the background T level high enough to become consciously aware of it and then when it subsides people still hear it because now they "tuned"...

I've had tinnitus for nearly 20 years. I suffered permanent damage in my youth after attending a loud rave and standing in front of the loud speakers for many hours. We're talking over 120db+ SPL. This was something incredibly dumb to do and I wish there was more awareness for this among...

I have chimed in before on the topic of tinnitus related to EM exposure. The bottom line is there is simply no compelling research to support the correlation of Tinnitus to RF exposure within the typical everyday low energy EM fields that we all experience. There is a thing called Microwave...

Aimee I was doing intermittent fasting. I would not eat until 5pm. I never tried acupuncture or chiro.

Aimee you are still really early into this. Give it some time. I know it totally sucks right now but it seems time does help. For many people it seems to settle down within 2-6 months. Sometimes longer. From my research the medications don't seem to help MEM much for many people. Don't...

Aimee how long has it been going on for?

Rfisher no I never have but looking at the symptoms I don't seem to have any other than just the vertigo.

Rfisher we have many similar symptoms. I first started having brain fog and headaches in early 2016. Headaches were all the time and worse with with exertion. A few months after those started I started having bad episodes of vertigo. My worst one I laid in bed and the room was spinning as...

For sure this is some kind of neurological issue. Especially since we all seem to have twitching in other body parts on a completely different nerve path. I don't think it's anything wrong with the actual muscles. In my particular case I'm also getting clicking and popping behind my nose and...

Seems like everyone who has this condition seems to have a history of generalized anxiety disorder prior to it (myself included). I wonder what the relation perhaps some kind of neurotransmitter issue. Sorry to hear it affected some of you at such a young age. My first epidode was at 37 so...

Hey guys. Wanted to post on here with an update. So far I have not had thumping episodes *knock on wood* since just before New Years. HOWEVER, this disease has continued to progress in other ways unfortunately. Likes others have mentioned MEM seems to coincide with twitches in other parts...

I'm sorry but you missed the point of my last posting. This isn't a contest about who suffers more or who has it easier. It's also strange to make a statement like an amputee has "a better prognosis than most tinnitus suffers." Not sure what you mean by that. The best prosthetics can't hold...