PennyCat

Happy belated. I hope this year brings good fortune.

@BrOKeN_1 @snizzleberry @kingsfan Thanks everyone!

Didnt check TT for a bit so I'm two days late but belated happy birthday Penny!

Sorry to hear you’re feeling similar to how I felt last year ;( I think what helped me on my worst days was doing things that could offer distraction from my T even if it was only for a few moments at a time. Video games (low volume), reading outside, watching vids from my fav youtubers (on speaker). I also was doing an outpatient anxiety program which helped me build some tolerance but ik that’s not for everyone

Thank you. And happy birthday!

@Zigs Of course, anytime! And thanks :)

I know how it feels. My hearing issues started at 24. It sucks.

You are a fighter. God bless you!! 24 years old. You are an information to me.

Inspiration - not information -

It's alright Penny, if it's gone away many times before, it will again, you gotta believe in that.

@TheCapybara Thank you :) How are you doing? I hope you’re doing alright.

I'm alright, thanks for asking Penny :) I have distortions for two years now, I doubt it'll go away but it's become more normal/manageable over time.

@PennyCat Do you have jaw/neck problems?

@GG_Ear I do, I have TMJ issues and clench my jaw pretty bad at night. Recently started using a gua sha to massage my sore facial muscles and am going to incorporate some TMJ exercises as well to see if it helps anything. Not sure if my T or TTTS are related, but it seems reasonable.

Can you share a link for th tmj exercises. And are they helping?

For the last week I been waking up with TTTS going nuts. I don’t understand why it’s happening.

@SamRosemary Ugh I’m sorry, it’s the worst :( I’ve noticed when I wake up lately, my jaw is so sore from how tight I’ve been clenching it in my sleep. So I’m wondering if there’s a correlation for me

@PennyCat Probably. That happens to me sometimes too. Seems it could for sure be related.

@eldudebro Unfortunately not gone entirely. But I think the 2nd surgery thankfully helped a decent amount, since the 1st surgery didn’t do much at all. Over all, I think I hear the pulsatile T less frequently than I did before my 2nd surgery.

Given the hell I’ve gone thru w my PT - the years of trying to get the right doctor, the many scans & painful diagnostic procedures, the hell of the 2 surgeries & ICU stays, the first surgery not working, the nightmare month following the 2nd surgery where it was thought I had a stroke, brain bleed, etc due to my rare complications… I’d be pissed as fuck if it didn’t work even a little!

Obviously, I was hoping for a full fix, but I’ve exhausted all options; had thorough scans of my arteries and veins, had them scoped with a camera and scanned some more, had a CT of my temporal bones. Nothing else has been found. But some relief is better than none.

Do you have reactive T/H? What was your pulsatile T. like? Have you improved from last surgery at all? @PennyCat

@sakrt Not sure about reactive T but I do get distortions over certain sounds like fans. Sounds like sporadic, low pitched beeping. I still have my pulsatile T unfortunately, no change there. Not much improvement from my surgery :(

Symptoms: difficulty speaking and swallowing (which have improved maybe 85% since onset). Also nasal regurgitation - water goes up my nose when I drink and sometimes fully drips out my nostrils. This has not improved.

I'm late to this but I'm so sorry Penny. Surgeries are supposed to improve things, not worsen them. I really hope you can get the right help and recover from this.

@TheCapybara Thank you. It’s really scary and stressful :( I’ve been in a massive depression episode ever since my surgery, and even more now that I’ve learned there is something officially wrong with my throat.

So sorry @PennyCat. Is there still a chance you might improve?

Good luck

Good luck.

You're a trooper @PennyCat. Best of luck to you.

I'm sorry you're going though so much pain. It's not easy to deal with a break-up, let alone with tinnitus. Stay strong

@PennyCat - such beautiful and strong people on here. Stay strong. You are not alone.

good luck pennycat!

Take it easy Penny, breakups are rough especially with everything else you're dealing with. But you're going to be alright.

I don’t think so, just a temporal spike for me

@Marshall It hasn’t settled for me yet. How long does it usually take for you?

I think it’s fairly common for it to seem worse when hungover.

The whole next day until I wake up again

It's great to see you're coping with everything better! Just one question, has your TTTS calmed down at all?

@HearingHell Hey! I actually just left a comment about that on @BB23 page if you want to read that. But TL;DR, yes for the most part it has. I still get flare ups maybe once every month or two and it lasts for a few days to a week. But in comparison to how it was this time last year, that aspect is much better.

I did! I was stented because I had Venous Sinus Stenosis. Unfortunately it didn’t work for me in regards to getting rid of the sound. I had more testing done which lead to a dead end, and now I have scans scheduled for March 3 - getting scans of my temporal bones to test for dehiscence. Are you struggling with PT as well?

Mine comes and goes. Seems caffeine can irritate it. I'm sorry it didn't work for you! I'm not a candidate for the stent. Hopefully they can find another way to get that fixed.

@tpj I’m okay, my groin is just super sore where they went in. And I’m pretty devastated that the balloon occlusion didn’t yield positive results, because if it did, that would indicate that a coil in the jugular bulb would fix my PT. But he is consulting a colleague to see whether I might have superior semicircular canal dehiscence, which can be caused by the turbulent blood flow of the stenosis and diverticulum.

Any news from results from angiogram? (good I hope) @PennyCat I'm sorry you're going through this. Is this T different than what you had before the stent?

@sakrt The angiogram showed a small aneurysm but nothing to be concerned about. I had a balloon occlusion test done in my jugular because I have a diverticulum (outpouching). But sadly the test didn’t indicate that fixing that diverticulum would solve my PT ;( so I’m having even more testing done on March 3rd. Thank you for asking! The T is still the same though sadly.