Red

Red

Member From Northeast USA
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  • Red
    Want to talk to H people. Soon as I load the H facebook support groups I just close. Instant anxiety.
    Red
    @AZeurotuner I am different from other H people. I go to the grocery store, I hold down a job, I hardly use ear protection. (Cont)
    View previous comments…
    Red
    How can one get sound therapy if the number 1 thing used for it hurts you.
    TheDanishGirl
    I have to protect on the the days where my H is a stabbing pain......I can't endure that kind of pain. it is either protect or avoid in that situation......on my good days I try to subject myself to more noise......but never very loud noises and never for too long......I listen to how my ears react and try to go with my gut instinct.
    TheDanishGirl
    But I don't know why you are taking offensive to me telling my story. I am telling it because the reality is simply that some people never get better from their H no matter what they do......Most probably do......but SOME still don't......like Autumnly for example, who I know have tried very much to get better but still are stuck with quite bad H.
    Red
    Unlike tinnitus, I see no hope of future treatments for hyperacusis. There's nothing for us. What could a H person possibly cling to.
    Red
    Almost 4 months into worse H and I can't get through a movie without my face erupting in fiery, awful pain
    Red
    Now keep in mind I have other health problems and this is the only activity my SO and I can do together due to my limitations. -_-
    Red
    Can't leave my apartment to go to an appointment. Some type of loud yard work going on.
    Red
    Feel like I am about to have a panic attack at work. I can't. I just can't do this. I can't work with the noise. F xmas. Xmas is fing awful
    View previous comments…
    Red
    @OnceUponaTime It's hard taking it one day at a time. I miss my friends. They keep asking when I'll be around again. It's been 4 1/2 months and I still don't feel any closer to getting to be with them again.
    Red
    It's not the music. We don't play music. It's the electronic shopping carts. Whenever they are put in reverse, they make a sound that -aggravates- my H. There's only 4 in the store and outside of Xmas they don't get used much.
    OnceUponaTime
    Hey Red, maybe you can have some of your friends over? It takes sometime for your ears to heal but they will. What helped me was putting a pack of ice behind my ear and under chin around the ear, to lower inflammation and Flexeril. Hope you feel better soon.
    Red
    @katri How bad is the pain? Bad enough to prevent sleep? Could be appendicitis if so. Maybe stomach virus or food poisoning.
    katri
    It's like a huge bloated pain. Probably from energy drinks and no real meals.
    Red
    Annnd...the receptionist never put my neurology appointment in and I have to wait until Feb. I am so upset. I was supposed to see him in Oct
    Red
    Stop bumping really old threads in the support forum. (2yrs+) It's really annoying.
    View previous comments…
    Red
    Generally, sounds in speakers are compressed into high frequencies.
    L
    That's why I struggle with cellphones still. But I'm okay listening to the tv now. It took a few months but I'm generally okay at a low volume. I can't go outside though. And car vibrations are a bitch for me still.
    Red
    Often other car sounds do bother me though. I think it's also important to have a car with a quiet, smooth engine. I lyft a lot (casual taxi service dunnobif you USA) and notice a big difference in comfort sometimes depending who I ride with.
    Red
    Tonight's tinnitus imagery: tiny hamster is growing marijuana with my head as a greenhouse. But it won't share any.
    PDodge
    I dig it! MJ was a huge help for me- before I got T
    Phendran
    Quite sad, but hamsters are at least cute.
    Arseny
    How are you holding up today?
    View previous comments…
    Arseny
    I feel numb too. I go in circles from crying hysterically to feeling absolutely nothing and just staring into the wall.
    Have you considered LLLT for your H? I'm researching this type of treatment right now. I hope you'll get better soon. I've noticed that I've had symptoms similar to TTTS and they have gradually got better to the point that I feel 90% normal.
    Red
    Mostly I just want the ability to watch TV with volume on, listen to music and white noise, and voice chat with people without being in pain. These were my coping methods and now they are gone.

    I am considering LLLT. However, I do not have a lot of money and my hours have been decreased after handing in my ADA form at work. There are no easy decisions in life.
    Arseny
    I'm very sorry you have to go through this. I'm sorry I don't even have anything to recommend regarding your situation. :(
    I'm considering making my own laser, I'm researching the parts and it seems that I can do it under 100$. I'm running around local clinics and the only one that has 650 nm laser provides treatment for only 4 minutes at 5 mW. It seems to be useless at this dosage.
    Red
    New tone. Only thing different was that I used the tragus technique around loud noises. (Not too loud tho, just a H wimp) Never again.
    Red
    I can, right now, not hear T in my left. The T from the formerly clogged ear. I can only hear the right.
    Red
    My ears have been clogging from fall allergies I think. Unclogged now and T is quieter than before it was clogged. Wonder why?
    Red
    I have severe depression
    P
    Me too and last year, hang in there. Read about neuromodulation and the research section, very promising results. But first, focus on your depression.
    Red
    The worse my hyperacusis, the worse my visual snow is. My vs doesn't seem to be tied to my tinnitus.
    katri
    Mine is pretty bad. The lights on cars at night are unbearable. How do you drive at night?
    Contrast
    interesting, see if others have the same issue.
    Red
    @katri -You- saved your grades. But I'm sure god was watching you + knew you would succeed. He's surely watching and is proud of ur strength
    katri
    That means a lot to me. Especially since you don't necessarily believe. These days are hard on me and my faith but I can't let go.
    Red
    I'm done with the "don't overprotect" advice. I'm wearing ear protection everywhere that isn't work/home from now on.
    View previous comments…
    Jack Straw
    Let your ears rest up as much as possible until the weekend. It's so hard to predict these unexpected events. Hang in there I'm sure it will go down!
    katri
    Wish you the best. Ultimately, it'll probably work itself out with or without the protection.
    Gman
    I really hate to have to agree with you, but experiences in situations that should have been fine have taught me other wise. I'm protecting more often, but not everywhere (at my own risk).
    Red
    Back to the beginning with H, maybe even worse. T sucks but I hate H more. I was doing so good. I had no more ear pain or tension headaches.
    Red
    Just was having some lingering facial pain in response to noise. I didn't even do anything, just was in the wrong place at the wrong time. Car horn at full blast/car alarm at 20-40 ft away.
    Red
    I LOVE it when I wake up calm and cautiously optimistic only to end the day feeling scared and hopeless.
    katri
    Same lmao. Except it's in reverse.
    Red
    "It can be worse!" -No please! Already struggle with suicidal ideation as is. Life right now isn't sustainable, any less is a death sentence
    katri
    I can understand you. Just take it little by little. You can stand anything for 10 seconds and once those seconds are up. Start over.
    Red
    @katri Thanks. What I really need to do is get out of the rut I am in. I am just a shell of a person. I really should be in counseling and on ADs but I'm not. Everything is piling up making it harder and harder to dig myself out. I am a completely dysfunctional person and starting to get old. It feels like it's too late.
    katri
    You aren't too old. Trust me, time works. Don't give up because you're in a rut. You'll grow out of it.
    Red
    I transferred my meds bc the pharmacy I used is right next to a fire station. Our f.stations don't have just trucks but air raid sirens too!
    Red
    So if you hear a fire truck siren, there is also an air raid siren going off to call in volunteers thanks to how my area handles fire fighting.
    Red
    I am going to start putting some people on ignore. It's not out of ill will. Some posters are making my anxiety worse with their posts.
    Red
    Huh. Feel like oversleeping gave me a T spike. What won't give you a spike, amirite?
    Tinker Bell
    Yes! We've all heard of waking up on the wrong side of the bed, well I've discovered I have a wrong side of my head. If I sleep too much on my good ear, my tinnitus is louder.
    Red
    Wow. Seems it doesn't pay off to go cheap. My store brand magnesium tablets had talc in them! Trashed.
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