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I have no idea how to habituate to my high frequency tinnitus (~15000 Hz). It's been over 2 years and it's only gotten worse. Only specific YouTube videos come close to masking it.

That’s not how the drug works though. It doesn’t mess with any receptors in your dick that will prevent you from getting it up after stopping the drug. Your ability to get an erection will just return to how it was before starting the drug. So idk, I’m still conflicted but I feel like the risk...

I feel like the odds of worsening tinnitus from low dose Cialis are very rare though. I mean, everything we do is basically a Russian roulette for our ears.

Bump. I want to start taking Cialis but I'm nervous that it will worsen my tinnitus.

What is everyone's experience with Cialis? DId it affect your tinnitus?

Klonopin 1 mg 2x a week as needed works amazing for me. It’s honestly one of the only things that keeps me going. I know that I will get at least a few hours of silence a week.

Yea. I got nervous and decided not to follow through with it. I regret my decision though.

Yea. I don’t think these companies understand that what they say (or don’t say) directly influences whether some people off themselves or not.

1.5 years in. Haven't habituated and no longer enjoy life.

How safe would it be to start using cialis?

I can't find it at the moment, but it was a slide on one of their presentations.

Thank you for understanding.

I decided not to do it after reading about the adverse effects. It would be around a 30% chance of my tinnitus worsening. I just couldn't take that risk.

I’m leaning towards bailing out of the trial. I really can’t risk my tinnitus getting worse. @Sentinel’s post kinda scared me as well. I am sorry everyone, I hope my reasoning sits well with all of you.

Jesus. This does not make me want to get the injection tomorrow.

That’s interesting. They were pretty adamant about me making sure I only had ringing in one ear.

I've had my tinnitus for around 10 months and I've noticed that worsening trend already. I'm pretty positive I'm going to go through with it. I'll let y'all know how it goes when I get the injection on Thursday and the following weeks after.

I'm still debating if I should get the injection or not. I really can't risk my tinnitus worsening. What are your guys' opinions?

Where should I go looking to obtain WNGs? It seems most clinics only offer hearing aids.

Update: Was officially accepted into the OTO-313 trial. Injection date July 22nd.

8/10 tinnitus is definitely not maskable by your car and radio. I think you have your scale skewed a bit, unless you’re basing your scale off your own tinnitus.

Update: First appointment is tomorrow (July 8th). They said the injection will be delivered 2 weeks after the first appointment, so on July 22nd. I will continue to give updates as things progress.

I’ll let you know how it goes for me. The place I’m supposed to go to is super unresponsive and I’ve had to call a dozen times to even set up a date for the appointment. In my opinion, it’s super irresponsible how lackadaisical they’re taking this study.

It is wild how many people have tinnitus. I found out 2 of my uncles and my grandpa have it.

It does help progress the science. As long as I pass the screening visitation, I should be getting the injection on 7/21/2021.

Bro, tinnitus doesn’t make sense.

I have an opportunity to participate in the trial. Should I do it or is the risk too great?

Major spike in my tinnitus the past few days. Hoping this isn't the thing that brings me over the edge.

I've been doing this dose for 5 months and have noticed no decrease in the effect of it.

Are you planning on returning it then? Let us know how the process goes if that’s the course of action you take.

Yes, significantly. It’s the same sensation as being drunk.

Would we be telling people with chronic pain or any other disease to just get past it mentally?

1 mg.

Personally, Clonazepam reduces my tinnitus to basically nothing for around 4-5 hours. It’s quite addictive but, when taken moderately (once or twice a week), shouldn’t have you develop an addiction.

If you have to listen closely to see if your tinnitus is still there, you should count your blessings. Odds are you will easily habituate and live a normal life in a few months. Just protect your ears from noise and ototoxic medication from now on and you should be fine.

It doesn’t look too much like snake oil. I’m interested.

We get it bro, you're a bear.

Most things point in the direction that the drug failed though. Having no scientifically significant improvements on the audiogram in any groups does not look well for the drug’s efficacy.

Gf bought me flowers today because of the bad news. So thankful for her.

Definitely getting drunk later

I’m starting to understand where the pessimism of tinnitus veterans comes from.

Just goes to show how this disease can destroy even those who have it all. We need a cure ASAP.

Had to quit my new job at a carwash because it was spiking my T. I’m feeling more disabled everyday.

I also attend Kent State and was wondering how you got the extended audiogram. When I went, they only tested up to 8 kHz.

Been struggling recently. Just keep asking myself "Why me?".

I mean you could see an ENT but there’s really not much they can do for you. Your best bet is to just hope that a treatment comes out soon, which could actually be very soon.

I personally don't know. Depends how I adapt to tinnitus over the years. Thankfully, I'm only 21 and expect to see a treatment/cure before I plan on having children.

Most definitely. I was already a very anxious person pre-tinnitus. Like you said, I’d speculate that most members on this forum suffered from greater anxiety, before tinnitus, compared to the general public.

If that’s the case, just fake a hearing test and make it seem like you have hearing loss in some of the frequencies tested.

For real man. Can't believe they can put a $300 price tag on "Tinnitus? Deal with it".

$500 for the shot and $5,000 for the ENT visit.

He took Retigabine, not Keppra.

Where do you purchase your Kava from? If you could provide a link that would be amazing. Thank you.

Overall, what supplement/medication has helped you the most?

If you’re on this forum and don’t email the ATA, you’re being complacent with your and everyone else’s suffering. It takes 2 minutes, email them.