Search results for query: *

I want to warn people who are thinking of trying intratympanic steroid injections. As I have mentioned in this thread a couple of years ago I did and it didn't cure my tinnitus (it is actually much worse now). The injections are totally useless IMHO and it can damage inner ear. Don't do it...

I get also from time to time the same vibrating eardrum, if I distract my self I can ignore it well. Espacially when I’m in bed I hear it constantly.

Thanks again Glynis, I’m in for theee years on this forum and do a lot of reading. You gave me also support back in 2015! I really appreciate all your work on this forum! Back in 2015 with the start of my T and H, also due to inflammation of the ears the doctors didn’t prescribed me...

Since yesterday I have got extreme worse Tinnitus (already existing 3 years) in a couple of hours. It began with pain in my right ear and then it blocked completely my hearing in a couple of seconds, I thought this can be sudden deafness? My left ear isn’t affected now. Because the pain in the...

I am now again (after 1 year and 5 months) on prednisone infusion for the second time after major hearing loss in my right ear (good ear, only a little T hum) because of ear infection last week (that comes from my throat infection 3 days before...), otitis media with acute hearing loss. My...

Can you use NAC when I'm on prednison? Could it give any harm?

Still high after the injections......

3866 !! All members please sign this petition, it's very VERY IMPORTANT for us.

Exciting!!

Me to with anesthetic and it did HURT!!

Any update on oto-311 or oto-4xxx ??

Any further news about this?

best wishes Glynis!!!!!!!!!!

Thanks for your explanation, I'm a 110kg man so I need way more than 17 kilos of NAC I think. :p I will try NAC....hope I have no cancerous cells that I don't know of.

WoW. So scared of NAC now, just bought a bottle but scared to take it now.

Sorry for my late reaction. After all the treatments i have still extreme T...... It's all about money, doctors do this for money they know nothing can help.

Sorry to say but what a BS! Do you really believe that Starbucks has the secret weapon for T? 1 hour ago 5 euro down the toilet and no change in T. :mad:

Hope you're right dear glynis. Today T is bit reduced. Before the injections I had very very silent mornings but now even if I sleep 10 hours T is still the same. Just hoping it will be 0/0 T someday! I experienced almost 3 weeks 0/0 T just before the dex-it. And that is conufusing me. I asked...

The unbelievable part is that after the first injection in right ear has caused loud T in left ear. The ENT said it's very strange and couldn't explain it. Since then my left ear is ringing 24/7 and also reactive to loud sounds. I'm scared....back of to the start of loud T 5 months ago. Hope...

Thanks hope this also! No pressure, hearingloss or weird feelings in the ears aynmore only loud T. I got the injections directly with a needle.

Hi glynis thank you very much. See my post above. T is not better after the injections but worser. Hope it will reduce quick to normal. 29 October was my last session. 3 injections left and 2 right ear. :(

Hey @Sat how are you now? Is it back to normal again? Me 1 week after the shots still loud and unbearable. Since the injections is T full force back to the start. I thought after the normal infusion (IV Steroids)I was feeling much better then before, but also decided to go for the...

I am not deaf and also not developed vertigo/diziness. The ENT said it can't harm only very rare chance of gettig light hearingloss. I tried it now and can't say in the future why I haven't do this.

Thank you very much glynis!! I hope you are right and trust your reaction. Will keep you updated.

So i want to update: After 2 weeks of intravenous prednisolon my T reduced by almost 70-80 %. How is it possible? Does prednison works slowly? I decided also to go for the intratympanic injections and have 2 sessions done. Session 1: no change in T, pain from injection and diziness for 3...

Yesterday I have started the intratympanic injection to on my right ear. This morning second shot with metylprednison. After this weekend maybe third session and no positive changes so far or is it possible that its slowly working? First injection was strong pain but today the second one no pain...

I am only afraid that it wil mess up my hearing permanently, I think the pain is not to much. I have no problems so far with the normal infusions.

Yes, he said that it's a little bit to late and each other day I lose time and he can't promise me to get full relief. but recommends to go for it as it can do no harm to my ears (normal infusion has more and more side effects and risks said the ENT). I am really thinking it's not gonna help...

@glynis I hope so! @Sailboardman Thanks for sharing your experience! Very bad that it didn't helped anything. The ENT highly recommends to do the intratypmanic steroid injection (prednison). I asked him about the succes rates and side effects. Succes: higher chance of getting better with this...

You can delete your posts

Thanks for your reaction Paul. It's a very difficult decission that I have to make tonight. This is so stressfull! The intratympanic infusion directly in ears is scary to think about. What if I get deaf or my normal hearing will damage. This will stop my life.

Thanks glynis. I am back in Holland since yesterday night. It's 2.5 hours driving to Germany from here. I think I will do it again and go for the second round of the presdnison infusion. What a hell of illness is this my life is ruined nearly. Nothing helps doctors don't guarantee anything...

The main question for me now is: should I take the extra 5 infusions of prednisolon? The first 5 infusions past week didn't do anything positive. I don't want to try the other option (intratympanic). I need your advice please.

I'm in Germany now and got 5 days prednisolon steroid injection. It has no effect at all. The doctor says maybe the steroids will work in the weekend much better and I have to think about my last option: intratympanic injection of steroids with a needle in my eardrums. Because my T is 3,5 months...

The tought is I think it can react with the amalgam you already have?

Some doctors are saying it's not safe to take chlorella when you have dental amalgam fillings. Is this right? They advice to take amalgams out first before you take chlorella.

I'm taking zinc 22mg since 3 days (1 tablet each day). I don't know if this is a placebo or something but I really see a difference in the loudness of my T. If I have to rate it: from 8/10 to 4/10 I hope it's not a placebo thing!!

My question is what damage can Tramadol do, in the brain or ears? Can I take supplements or whatever to reduce or eliminate the damage?

I was taking also this tramadol drug for ear ache because of an ear infection and after 2 days I got T. I stopped immediatly with tramadol but now since 2 months ringing is 24/7 non stop. I thougt first the eardrops caused T but now I think it's the tramadol.

I hope you are right and we will get this drug soon! I have a tonal T. The sad thing is that only autifony is recruiting people in the UK. The rest of Europe is sleeping.....they want to earn money with TRT and benzo's in place of finding that something is really helping us.

Yes it's very reactive even when someone is talking loud it directly pushes my T to the highest point. I'm trying to avoid crowded places and noises but I have a little child and she's also crying alot each day and night. Sounds are indeed a bit more louder on the left ear it's like there is no...

I hope to get some boxes of Trobalt from Turkey, in the Netherlands I'm sure doctors won't give this to me but I will try to talk with a neurologist. Thanks for the tip of checking QT intervals during use. But my first action for now will be to get the infusion therapy with prednisolon or...

How do you know it will work for 100% do you have proof? Does this statement includes all types of T? When do you think it will be on the market, 2020 for example?

Thanks for your positive reaction. Still I hope it will go away completely by it's own but I don't know how big this chance is? It's now two months since I have this and from day 2 I knew it was permanent T. Family and friends were saying that it would dissappear in a couple of weeks. T is so...

I thought the outcome will be succesfull anyway from reading al the posts in this tread? My English is bad so maybe I am to optimistic about it.

Money helps everything... money makes the world go round. I think this cure will come faster if there is more money. If we count the money we've spend on supplements, benzo's etc it will go up to billions which we could beter invest in this research. Sorry for my bad English.

Placebo or not who cares? If its helping what do you want more? Can we donate (all users of TT) to push autifony to get this medicine so quick as possible? We need this medicine now not in 2020 or 2025, this can save lives!

Danny's T was due to an ear infection maybe preslyls T was also infection related? I am on the same road as them because my T comes also from infection.. I will try to get some trobalt from Turkey on my vacation, f... the side effects I can't live with this crazy sound in my head for 2 months...

Is Danny the only one who has positive reaction to Trobalt?

I took betaserc for two weeks and it worsened my T, much louder and screaming so I stopped immediatly.

I am trying the following (advice of a professor doctor and a specialist in natural herbs): 15 days onion juice 2 times a day Done 30 days tea of alchemilla vulgaris (lady's mantle) 2 times a day Done 15 days onion juice 2 times a day -> i am here right now on day 1. No relief from T at this...

I am also trying the following (advice of a professor doctor and a specialist in natural herbs): 15 days onion juice 2 times a day Done 30 days tea of alchemilla vulgaris (lady's mantle) 2 times a day Done 15 days onion juice 2 times a day -> i am here right now on day 1. No relief from T at...

pfeww... UZA 6 months wait :( Good luck I hope you will get relief from TMS.. then think I will go to the Hospital in Turkey, I'm going 15 august on vacation and to visit a doctor there but I'm also afraid that it's to late then. Maybe it's wise not to wait till 15 august but to get the car and...

Nills, I have tried 3 ENT's and the last one was adviced me from someone who has also tinnitus and said that she (the ENT) was very good with T. I had hope but dissappointed after because she said the same: you have to take benzo and go to audiologist to get some help (TRT) and learn to live...

Hi, 2 months ago had an ear infection and after the first week I developed tinnitus. My GP gave me antibiotics pills (amoxicillin) and ear drops (Sofradex which contains framycetin). I think Sofradex has started my tinnitus because I had the first days on the infection no tinnitus. My tinnitus...