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  1. Mithrandir

    Hyperacusis/TTTS and Myringotomy Tubes Surgery for Ear Fullness

    Tensor Tympani works to open ET...exactly, you have an hypertonic tensor tympani after acoustic shock, try to avoid new auditive problem or you will have acoustic shock disorder...there's a link with TMJD...some folks believe you can cure it with music in the ear to calm limbic system...it's a...
  2. Mithrandir

    Is Recruitment a Myth?

    Serious people know hyperacusis is in the middle ear. To have a kind of hyperacusis in inner ear, Boston guys have to put mice in 120 dB during 2 hours. None of us had this treatment with continuous sound, more often is just a quick trauma.
  3. Mithrandir

    Is TRT Effective Against Cochlear Hyperacusis?

    @GregCA When my computer doesn't work, it's not because virus or bad use, it's just because my mac book has negative thinkings ;)
  4. Mithrandir

    New York Post Article on Hyperacusis

    @Foncky Send me a PM when the scientists find the link between H & inner ear :) Thanks
  5. Mithrandir

    New York Post Article on Hyperacusis

    Hidden hearing loss is a concept to cure inner ear, not to cure hyperacusis and that's a huge difference...
  6. Mithrandir

    New York Post Article on Hyperacusis

    I agree with you Japongus. I think a lot of hyperacusis case are facial muscles/jaws problem :)
  7. Mithrandir

    Dr. Wilden's LLLT Laser Machine Reduced My Tinnitus to 1/2 of What It Was in 6 Weeks

    I used the laser of wilden during 9 months without success. I respected the protocol. No chance for me. Now I try to sell it if someone is interested. The laser is in perfect condition. Pm me if you want.
  8. Mithrandir

    Why Isn’t TRT the Holy Grail?

    @lapidus I don't know you can ask to her.
  9. Mithrandir

    Why Isn’t TRT the Holy Grail?

    @lapidus Well each ear reacts differently. In my case, sensations are different between left and right ear. My accoustic trauma was closer to my right ear than my left ear.
  10. Mithrandir

    Why Isn’t TRT the Holy Grail?

    @GregCA Ronna Field was bad H before Silverstein discovered her "wiggly" stapes...
  11. Mithrandir

    Symptom — Advice

    @SilverSpiral Temporal Mandibular Joint in english, sorry ;)
  12. Mithrandir

    Symptom — Advice

    @StubbyJ @SilverSpiral I agree. Looks like TTTS like a big part of H noise induced...it's an hyper contraction of tensor tympani.. no really cure or treatment. If you have no photophobia is good. The best advice is avoid loud noise you can't tolerate. Pain behind eye is trigeminal neuralgia...
  13. Mithrandir

    Why Has Damage Been Ruled Out as a Cause for Hyperacusis or Ear Pain?

    @Lex You can use a neti pot and follow the thread of LA_engineer on TT ;)
  14. Mithrandir

    Why Has Damage Been Ruled Out as a Cause for Hyperacusis or Ear Pain?

    @linearb 51% of hyperacusis comes from noise. I can give you the origins of my figures. H can come from acoustic shock or acoustic trauma, it's very different and different part of the ear can be damaged.
  15. Mithrandir

    Why Has Damage Been Ruled Out as a Cause for Hyperacusis or Ear Pain?

    Is there a true and a false hyperacusis ?
  16. Mithrandir

    Round and Oval Window Reinforcement for the Treatment of Hyperacusis

    Nope Ponsot is a french researcher, he's closer to the truth than other for a good reason. He began to make a very exhaustive review and now he works only on the most logical way for H noise induced with pain, it means TTTS. I discovered Damien Ponsot thanks to Lymebite, the american guy ;)
  17. Mithrandir

    How to Stop Tensor Tympani Spasms?

    Magnesium for muscle spams, it won't work, cut the tendon.
  18. Mithrandir

    Suicides Per Year?

    I have a forum in french for people with T & H. The 25th of december, one french guy killed himself, he can't bear anymore symptoms like headache, hyperacusis, tinnitus. He had hyperacusis noise induced. RIP "Yoyo"
  19. Mithrandir

    Round and Oval Window Reinforcement for the Treatment of Hyperacusis

    @japongus audiologists keep in their rates only people who had "success", when you stopped because of ear pain or discomfort they don't include you in their figures :)
  20. Mithrandir

    Round and Oval Window Reinforcement for the Treatment of Hyperacusis

    @VRZ78 I had Round and Oval window reinforcement without any hearing loss ;)
  21. Mithrandir

    Round and Oval Window Reinforcement for the Treatment of Hyperacusis

    @japongus @lapidus Japongus is totally right, a lot of scientist & doctors follow(ed) Jastreboff (bullshit) theory just to give some (bad) help to their patients and give them a good conscience (We can do something for Hyperacusis, don't worry). But when their therapy doesn't work 'cause...
  22. Mithrandir

    Why Isn’t TRT the Holy Grail?

    @japongus When you kill yourself 'cause you have an unbearable issue, they just say it's a suicide due to depression... :/
  23. Mithrandir

    Round and Oval Window Reinforcement for the Treatment of Hyperacusis

    Anyway the schema of hyperacusis research is bad, they forgive middle ear muscle...maybe that's what they give hyperacusis ?!
  24. Mithrandir

    What on Earth Is Happening at the Hyperacusis Network Forum?

    "access denied" ?? Did they make a christmas cleansing ?
  25. Mithrandir

    Hyperacusis — Can "Normal" Sounds Cause Damage in a Person Who Has Tinnitus and Hyperacusis?

    Hi Roseanna, You don't be afraid by noise but avoid loud noises and take a lot of rest. Ear pain is a signal of something wrong, you can find on the site of tinnitus.org the most interesting paper about the syndrom of tensor tympani : http://www.tinnitus.org/Tensor%20tympani%20syndrome_Klochoff.pdf
  26. Mithrandir

    Eustachian Tube Dilation Surgery

    My surgeon does it. You can see a video of that here : http://www.allodocteurs.fr/actualite-sante-un-nouveau-traitement-pour-soigner-l-otite-chronique_10026.html
  27. Mithrandir

    Use of Alprazolam (Xanax) for Relief of Tinnitus — Post Your Experiences

    Xanax can help tinnitus/hyperacusis but one side effect of Xanax is tinnitus/hyperacusis :)
  28. Mithrandir

    Suspenseful Murder Mystery — Main Character Has Hyperacusis

    Did the doctor provide TRT/CBT in 1881 ?
  29. Mithrandir

    What on Earth Is Happening at the Hyperacusis Network Forum?

    If you are not in the sect of sound therapy, you're not welcome on chat-hyperacusis :)
  30. Mithrandir

    Some Questions About Hyperacusis

    @stophiss Stop trying to speak french. Maybe you try to be intelligent front of the non french speakers, but all french speakers here who read you know what you are telling means nothing in french and that's just a bad google translation. Maybe I'm not good in english but I can make my own...
  31. Mithrandir

    Retigabine (Trobalt, Potiga) — General Discussion

    I talked a lot with Locoyeti and I know Philemon very well. Trobalt functions for them 'cause they surely had DCN problems. No results for me... Good luck guys.
  32. Mithrandir

    Some Questions About Hyperacusis

    @stophiss I prefer someone who gives good informations in bad english, than a useless english speaker :)
  33. Mithrandir

    Some Questions About Hyperacusis

    Sorry @stophiss I read your "theory", very funny I had a good moment of fun. Just don't try to be a scientist and read the best review about hyperacusis : you'll learn more with that and stop telling bullshit :) https://hal.archives-ouvertes.fr/hal-01202136v2
  34. Mithrandir

    Some Questions About Hyperacusis

    I don't insulting others, I spent so many time in US to understand how you are puritans and shocked for nothing...poor little kitten ;P
  35. Mithrandir

    Some Questions About Hyperacusis

    @stophiss Exactly, that's what I said, but there are more proof of Jesus Christ existence than TRT works >.<
  36. Mithrandir

    What on Earth Is Happening at the Hyperacusis Network Forum?

    AAAh welcome on the hyperacusis-network, nothing interesting in this grim place where people think hyperacusis is a brain problem, where the cure is TRT, etc...
  37. Mithrandir

    Round and Oval Window Reinforcement for the Treatment of Hyperacusis

    I made surgery. I'm not cured but I'm sure that helps me with pain.
  38. Mithrandir

    Some Questions About Hyperacusis

    I have made TRT, I think that's just good against phonophobia, I don't have photophobia but I appreciated brown noise. I have made CBT but I know more about my disease than my counselor... So please when I talk I know what I say, me ;) Each person can believe human lived with dinosaurs or TRT...
  39. Mithrandir

    Why Has My Decreased Sound Sensitivity Not Improved with the Administration of 24/7 Sound Therapy?

    Salvi & co (american researchers) makes a great work, but they work only on hyperacusis from inner ear... Hyperacusis is a symptom which can provide from other place than inner ear...
  40. Mithrandir

    Botox for Hyperacusis

    Well you can't speak with stupid people who believes hyperacusis is a disease from the devil and Jastreboff is the new messiah... Maybe TRT can help in some case for some situations... "BUT hyperacusis is a symptom from a disease (like tinnitus)...it could be from noise injury, SCDC, fistulas...
  41. Mithrandir

    Some Questions About Hyperacusis

    @Michael Leigh I believe in god and there's no proof he exists. That's the same story for TRT.
  42. Mithrandir

    Botox for Hyperacusis

    @PaulBe @japongus Have you got the link ? I want to have fun before bed !
  43. Mithrandir

    Some Questions About Hyperacusis

    Like I said, when you have hyperacusis because fistulas, it's stupid to imagine TRT can help you...when you have hyperacusis from TMJD, it's stupid to imagine TRT can help you... But you can buy books to fill your library, it's nice in a home... you can try TRT it's free, the worst is people...
  44. Mithrandir

    Some Questions About Hyperacusis

    There is no "cure" for Hyperacusis. You can pray for natural recovery. There is no evidence behind sound enrichment, that's just the phantasm of one guru followed by sheeps... Hyperacusis is not a disease. Hyperacusis is a symptom and it can come from different reason (noise injury, fistula...
  45. Mithrandir

    Botox for Hyperacusis

    @Briann @japongus and others That's the explanation why TTTS creates pain
  46. Mithrandir

    Why Has My Decreased Sound Sensitivity Not Improved with the Administration of 24/7 Sound Therapy?

    Personnally I shared datas about my R&OWR success over the internet, I shared my good results with Xanax... I won't share my results about tenotomy 'cause I don't appreciate people are just waiting some courageous guinea pig make the job for them... Each person have to take their fate in hand...
  47. Mithrandir

    Why Has My Decreased Sound Sensitivity Not Improved with the Administration of 24/7 Sound Therapy?

    @Sen You have physical symptoms looks like TTTS, do you believe when a sport pro player has a muscular problem at a leg he uses sound therapy to heal it ^^ Hyperacusis is just a symptom of a disease, find your disease and cure it (fistula, ttts, scdc, or whatever). Sound therapy is just a...
  48. Mithrandir

    Never Thought I'd Be Here

    @cjb2811 You take Xanax 2mg each day ? That doesn't help your tinnitus ?
  49. Mithrandir

    Is This Hypercacusis?

    Hyperacusis is not a disease, that's the symptoms of a disease. You need to find where is the disease of your hyperacusis. I have delayed pain too what is horrible 'cause sometimes I'm not enough protected in noisy situations. The problem is not from your inner ear (hear cells & co). It could...
  50. Mithrandir

    Stapedius Myoclonus Surgery — Can Someone Explain the Recovery Process?

    @Telis Hi, if you have hyperacusis, tinnitus, ear pain, etc...noise induced, good audiograms, that's TTTS not an inner ear problem. Cutting the muscle can be a solution
  51. Mithrandir

    Tensor Tympani Surgery/Cures?

    @OPlax Have you done the surgery ? I think you can be spasm-free with tenotomy of middle ear muscles. Have you got a report ?
  52. Mithrandir

    Acoustic Shock Disorder

    Good luck Greenqueen, I have the same shit, with complicated legal issues... What do you think about cutting the tensor tympani ? Westcott talks about that in one of this paper.
  53. Mithrandir

    Hidden Hearing Loss, Tinnitus and Trouble Hearing Conversations in Noise

    I have no non hidden hearing-loss, audiograms are perfect, & I'm quasi sure I have TTTS
  54. Mithrandir

    Hidden Hearing Loss, Tinnitus and Trouble Hearing Conversations in Noise

    @Reinier You have hearing loss ?
  55. Mithrandir

    Hidden Hearing Loss, Tinnitus and Trouble Hearing Conversations in Noise

    @Reinier Maybe you don't have a problem of inner ear but a problem of middle ear ;)
  56. Mithrandir

    I've Given Up on Life

    Well I think the most important is finding which is the cause between TTTS/TMJD/Migraines/...to try to eradicate the problem. Good luck