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Not before it happens the world will never really appreciate the seriousness, pain and agony of having T. There will never be focus on us as a patient group, cause were all weird psychology cases with some silly noises inside our heads, They will never value us correctly, we will never receive...

I had a chat with an Osteopath a couple of weeks ago because I'm in a postoperative period again now (had several orthopedic surgeries), he said that many of his patients are also dealing with T. He went on to say that many of them felt improvement in terms of T after being treated for other...

@Stina, I haven't read that article before, thanks for sharing. There are several like it. It does actually strengthen my personal theories to a great extent, I've always believed that T is more a brain disorder than anything else. The article and the articles referred to in the article, also...

Thanks for sharing. And this is what my ENT and my audiologist don't want me to read. Can you believe that? They're so ignorant. The all so familiar "stay away from forums" line is so provocative. I got that again on my last assessment, this time I returned an honest reply.

I totally follow you on this.

@Ears4Funk, I think I've lost my fight for music. At least the headset use and the many hours of digging into my record collection. It all stopped the day I woke up with T. I think it's great to see that you wanna pursuit and keep music important in your life, doesn't your T get aggravated...

Just following up on my H assessment here. Did my third LDL-test today, it showed unchanged hypersensitivity on one ear but a slight improvement on the other. It feels the same for me on both ears cause H is all consuming as many of you may know. Also, I think I was a little more brave on one...

@Danil, Thanks for sharing that article and the info. Seems interesting to me, in my opinion they may be onto something. Good to see someone thinking out of the box, other than the "hearing loss --> T-->hair cell theory.

Hi mintblue, sorry to wander a little off thread topic here but what type of high frequency test did you do? I'm reading about them at the moment and over here they seem to be customized for small children that are not able to use physical response by hand gestures. Was it one of them electronic...

Nothing at all. Same old routine. Wish it was something I did but almost everyone experiencing this has no clue. T is living its own life.

Amelia, no need to feel sorry for this. It's a forum so we share. Didn't know you have a dad with T as well. But don't you get to talk to him about it, or is he mostly a sufferer? Some T veterans tend to give good advice and strategy tip. You need to approach each other with this it seems. I...

As some of you may know I have very loud and constant T. I've never ever experienced any decrease except from a very slight decrease whilst on benzo's. But it's more like brain based perceived feeling of relief, like being knocked out and nummed, but it doesn't really lower my T level. After...

@Boxdra, Stay positive. If the onset is pretty new then it could go away, its a complex thing. I've talked to people both with and without hearing loss that experienced solid decrease. In terms of doctors they don't know diddley about our condition. Might as well just expect that. The ENT's...

@Zimichael, Thanks for sharing. To me stress and preoccupation works a little different with my T. The latter is distracting and that's good. It's so difficult to debate T loudness as it's so based on individual aspects, but we all recognize a spike when we hear one! You have a great deal of...

Ok, but you wrote 6mg a day - of what?

@LadyDi, I agree with your resume. I want to add that I didn't mean to compare tuna with Xanax, I was trying to make a point about the uncertainty of pharmaceuticals versus T. As mentioned I've been on and off Xanax for 17 years, so I'm not without experience in that area. I've also been on a...

6mg a day of Xanax or knopolin?

I agree on that. But I believe it's the stress of the withdrawal that is the T instigator and not necessarily the drug itself. As all benzo users know, going cold turkey after that long of a user period with that dosage could create stress inducted T with anyone, if there IS such thing as stress...

@Zimichael, I've read your profile, does this mean you have experienced absolutely quite periods as well? Since you've had several spikes like you describe, have you concluded that your T is noise inducted and stress related at the same time, or does stress spike your T on top of the damage...

Be careful not to wear plugs all the time in normal environmental noise cause that can promote H.

How do you know that? Don't know if it works quite like that. Some may say that certain meds can create T but then it should come whilst being on the drug, not when you stop taking it. I stopped many things prior to my T, one of them was tuna fish. I ate it every day for 15 years. Don't think...

Appreciate your input here gary. Tuff times! You know about challenges and I'm hoping for your recovery. But T must be somewhat important in your life since your here, right? Isn't it interesting how we "rate" our life quality? It's only natural that I had a lot of silly "problems" when I was...

First of all, not saying T is incurable forever but right NOW it's classified as such in medical terms. So to my topic. I sometimes wonder if other people with visible or invisible chronic deceases have T as well? Or if anyone here have something even worse than T that could compare or bring...

Stress A multitude of new challenges Academic pressure Uncertainty in regards to important life changing things Hopelessness Anxiety Antibiotics Pain killers Benzo's Sleep medication Fire alarm going off unintentionally close to my door many times Tension and physical illness Severe muscle and...

But what do you think caused it?

@Neenie, Yes, a lot of times I'm tempted to write "doctors", cause I haven't met one of them that actually know T&H. It's ridiculous. I've been forced to trace down answers myself by research and discussions with others with the same issues. If your lucky enough to come across a scientist or an...

I've been wondering about this myself but to me it seems like its a mechanism more than an illness or a treatable condition. I guess being less bothered by H would mean less tensor tympani muscle issues/responses, but I don't know that cause I'm still battling H. Looks like TTTS is just one of...

Hope so too, but be ware of the chance that they have no clue on either T, H or TTTS. Some are slightly more into the T aspect but it stops there. You need to read material and talk to others, thats the best strategy. In terms of H you could contact an audiologist.

I'l start with: James D-train Williams / Loose Ends / The fat boys / Zapp Band / Scritti Politti / Luther Vandross / Thompson Twins // Shantel / Duran Duran // Nina Hagen / Jermain Stewert / / The BeeGees / Boney M /// ABBA / Grandmaster Flash // Michael Jackson // 52nd Street...

These contractions seems to be a common factor to many grades of hypersensitivity, in your case you don't have severe H but you do have T, so perhaps the physical inner ear sensations your experiencing is in fact a type of TTTS - "this contraction of the tensor tympani muscle tightens the ear...

I have both T&H, when I first described my inner ear cramps and my unpleasant physical ear reactions to two different ENTs none of them knew anything. After I read up on it I concluded with TTTS. I saved the best definition of this and I have shared it here on the forum several times. I lost the...

I envy sports professionals. I regret not going all the way with that when I was young. After the career you could just lean back and be a sponsored celebrity. The grass is always greener over there...

@LadyDi, Thanks, I bookmarked your post and I'll try to use it as a positive reminder.

I would approach a sexologist, they talk to people about sexuality all day and if your lucky to find a senior perhaps that person have come across similar cases before.

Thanks. First week felt like running a marathon. Feeling like everyone else is having a ball while I'm sitting there listening to my T going on like crazy. It's in situations like that you feel alone, thinking that all them other people are living cheerful lives with no T. But who knows, perhaps...

To cry is deliberating, some times I'm so full of locked up madness towards my condition that I don't dare to openly cry. But today Ive been sitting alone in my dark bathroom crying my pain away. The first week in a new job where the stress is massive and so is the expectations, it's like...

@DezDog, Just the sentence "putting cutlery in the dishwasher" made me make a lemon face. I'm in a very stressed period now cause I just started working again (yes, I'm mad) after many years off the job market. Stress is gasoline on the fire but we all gotta make a living. I'm reading stress...

Fingers crossed for you demi. I know why you wanna try as you can read from my post. Feel free to share how it's developing.

Several billion people believe in Jesus and God, meaning they believe its possible to be healed from all sorts of stuff cause after all miracles and healing power is described in the bible. That so many people belong to this believe is within itself a little weird, especially because it can...

And to further be annoying: Why is that epileptic shaped thing called a ball, as in football? A ball is round. Anywho, it's a weird sport. They call a similar activity rugby in some other countries, but they preform it with no protection. It's popular in France, England and Australia. I've never...

It's impossible to have tried everything but I have shared my attempts at seeking treatment in different posts here on TT. Had a Skype talk session with a psychosomatic T therapist and I've read some books on stress management. I actually just finished one today, I'm trying to apply the...

Stina, I know what your talking about. the cause of my T&H is not proven in a "court of law" either, it's been a lot of guesswork and theories. My T is very loud as well. Could be stress, could be a hidden hearing loss, could be toxic medication, could be all of these and then some factors. All...

But a plausible theory could be that ANY trauma is stress related, either it be mental or acoustic. An acoustic trauma is in essence a chock to the central nervous system, it could be firecracker, loudspeaker sound, fire alarm, rockets, grenades, shouting close to ear etc. Scientist have taken...

The hub for the nerves is the central nervous system, and stress/nerve activity is also connected. Stress can cause and create: 1 Acceleration of heart rate 2. Dilation of coronary arteries 3. Dilation of bronchial tubes 4. Increase in force of heart contractions 5. Increase in rate of...

@mick, I'll make sure I share my experiences with treatment methods, right now the only tactile thing I'm doing is to wear a white noise generator to hopefully get my H a little better. You can do a local search on these posts. I believe becoming more "intact" with my stressed out physique can...

Misophonia and hyperacusis is classified very differently, the first being a purely psychological phenomena. H is much more related to T and other yet unknown conditions. A person with severe Misophonia can't even tolerate whispers. Yes, treating H before T is what most clinics do. That's what...

This scares me cause it doesn't support the anxiety and stress theory I'm holding on to. To me T caused by hearing loss seems worse than the other cause. Dunno if I'm entitled to believe so or not, it's just my perception.

After reading the post on this thread I don't know what to think, this forum confuses me and informs me simultaneously but that's natural with diversity of opinions we have here. This hearing loss versus T drives me mad, there are so many sides to this and I can find as much support for it as I...

There are many therapists here that have a refund system with the governments, so all you do at those clinics is to pay a small amount of your own money, the government covers the rest over the tax bill. Then you have the totally private market dealing the road above so to speak, with very high...

@mick, Ive just booked a double assessments with an osteopath, we had a chat in the hallway between me and him and just by touching some vital parts of my body he could tell that things are not the way its supposed to be. I've been in and out an physiotherapist treatment for ages but my pain...

Strange going back to that post, it seems so old now although it's not that long time ago. I guess it feels old since its prior to my audiologist assessment. Also, short term memory loss is another side affect of my T&H. I really dunno what to think of this ultra high frequency test issue, I...

I'm trying to find out if I still could have hearing loss in the ultra high frequencies (above 8000 Hz) 250hz-8000hz is where my two tests have been but I want to get to the bottom of this. I sent an email to the American Speech-Language-Hearing Association cause I know that Americans have a...

Good to hear about your progress SueR. I've been wearing mine as many hours a day that I can, meaning from morning to bedtime. Only breaks are if I need to build up a sweat, like in working out. My audiologist said something about 9 hours a day, but I don't think theres no such thing as too long...

@Smoogle; How does your OCD work? Do repeat strategies or feel that you have this urge to explode from inner energy that you can't seem to be able to canalize? Do you analyze stuff much and do have problems in focusing on one thing at the time? Like looking at just one item in a store, thinking...

30 years, then your obviously at home. Most people seem to have a relaxed and comfortable way of living down there, coming from a rather cold country Florida has always felt exotic and a real holiday destination for me, that's when I wanna take a longer trip. Normally us Scandinavians travel to...

I have been taking Xanax on and off for the past 17 years so I'm wathcing my dose trying to keep it low. I actually used to take 4 times my current dose back in the day. If I take breaks 0.5mg is ok for me now, I never take benzo's before eight at night and I never take more than one dose one...

I've been to Florida a couple of times, great place. Last time was October 2010, just after the rain storms. I arrived just as the last shower went away. Fort Lauderdale, Miami, the keys. Nice memories.

Wow, there's no end to what we have to stay clear of to avoid getting even more T. The list of potential T instigators is enormous! @Penelope33, Did you struggle with severe stress before the masturbation events? Is that you stress reliever?

How loud is yours and have you gone trough the nine yards to find out what caused yours? Stress and depressions seems like such a big bag.

I lived down under for year and loved it. Wish I could go back. It's a loong trip...