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Hi everyone, I have been off the board for quite a while. Unfortunately I have not turned the corner yet. I am still deeply depressed and my heart condition has worsened. I have heart failure. Tinnitus is still very present. Some days more than others. So here I am. I lost my job and home all...

Thanks for you story. What you write is so true.

@Florida John I managed to taper the Xanax. Tinnitus did not get any worse, hyperacusis has gone away. I'm still on Mirtazapine. It makes me sleep and eat, but doesn't do much for depression. This last month tinnitus is much more quiet than it has been in 11 month. Still very anxious but at...

My T. started three day before my menstrual cycle. From a 1 to a 10. In one night. Definitely hormone related.

I know of one person who had a very bad T. reaction to asprin. His T. got a lot quieter after about 6 month. Now he still has a sound but absolutely not as loud as it was before.

I hope you get more clarity soon. It's hard to not know. These days I'm using a 'mantra' that helps me al lot: What is, is. What will be, will be. I say this over and over to myself to stop anxious thoughts and catastrophic ideas.

@Natalie Roberts Natalie, how are you doing now? Been thinking about you.

Thanks for sharing Luke. You're story gives me hope and that is all I need for now.

Here's how you cook tinnitus: - work in a call centre and have a beep in your ears every night when you're in bed; - wait a couple of years; - get a heart condition, preferably a rhythm problem; - have mild tinnitus and forget to mention you have it to anyone; - have an MRI have tinnitus for...

Happy for you Mario! My tinnitus has gone done in volume the last three weeks too. I'm still keeping my breath as I do not want to jinx myself. I had a terrible spike (hormones), quit my medication (candesartan) and after that things got more quiet. Fingers crossed! Unfortunately I'm still very...

@Natalie Roberts How are you doing now Natalie. You've been on my mind. Have you had any news yet?

Hope you feel better soon Glynis. You are a such a positive and courage woman. My thoughts are with you. xxx

Hi Nathalie, I would advise you to try to stay as calm as you can. Don't look far ahead. Take things one day at a time. I know what it is like to have terrifying health issues and what helps me is not to think too far ahead. Try not to play out scenario's in your head because the reality is...

:cry:

Same here. Some days are worse, on those days the dentist drill comes along.

I get that when I listen to this clip, especially the part where the sun comes out. I guess it's because it sound sa lot like my tinnitus on some days. It's like my brain has finally figured out where the sound comes from. My brother (who doesn't have tinnitus) has the opposite effect. When he...

Hi Jason, I was on Xanax for about 6 month. I expected T. to become worse after tapering but that did not happen. It actually got a little better. I took the Xanax cross over to Valium route. I found the tapering proces hard but I'm so glad I did it! I'm on Mirtazapine though. That is said to...

After some horrible days with light sabel tinnitus this evening I hear - dare I say it - something similar to silence! How is that possible. I'm afraid to really listen in for fear I might pick up a sound. So I keep from listening closely. Wauw. Mmm... I've heard it.... It's not complete...

30 mg of Mirtazapine here. Makes no difference to my T. (I think) but makes me sleep 7-8 hours and that is worth a lot. Gained weight though....

I'm not taking aspirin. My T. was cause by the mix of Flecainide, Verapamil and Apixaban. All heart medication. Luckily the spike went down and today T. is really quiet. This is such a strange affliction.

Thank you all, you are great people. @Jomo that is a great tinnitus masker, I'm playing it now and it made me relax immediately. Thank you. @LeQuack Wow, ten years. My god. I cannot even imagine having to live with this for more than a year. I wish so much to habituate but I am very scared of...

Thank you so much for your posts. Distraction is key. I am so sad that I can not go to the gym or go swimming. That is what I used to do when times were rough. I have a heart condition that makes it impossible. I feel trapped in my body with all the noise. My friend took me out today. I feel so...

Thank you Glynis, I've just taken a bath. I've been talking to my mother via Skype and have a friend coming round for lunch. I'm trying not to think about the past or the future. It very hard to calm myself down. I seem to be in some sort of hyper state. Wanting to flee but can't. Life is tough...

Please people, I'm at my wits end.

There is no God. I have Always been a very friendly, non violent, positive person. I have the most beatiful children I love so much. But I'm got of this horrible disease called tinnitus. I know one day I won't be able to bare this torture anymore. My heart is sick and hurting. I have to die a...

Hi people, I've been off the board for a while. I am doing CBT for 8 weeks now. But since yesterday all hell broke loose. Have been experiencing the most horrible spike. Diamond cutter head drill leaves me in total panic with no sleep. I have been taking valium last night even though I fought so...

For me Xanax worked. It stopped my H. stopped the fluctuating ear fullness and lowered my tinnitus. I hate the stuff though, I feel horrible on it and had a really hard time quitting.

If it's caused by a traumatic incident EMDR might work?

My husband has had tinnitus for over 20 years. His fluctuates enormously, he can hear church bells ringing, pulsating, the works. The first year he told me it was louder than a tea kettle whistle. I believe him cause he's really down to earth and never exaggerates. He's the one that makes me...

Is you're T a pure tone? Or does it vary? I've got fluctuating T. On day's when it's low I can handle it. It's days like today that are driving me insane. Constant ringing in my head. Cannot imagine ever getting used to that.

So good to read your story Melissa. Can you tell me, how loud is you're T? Has it gone down in volume over time? Do you still hear it?

I'm on Remeron 30 mg. Makes me sleep and eat. You really need to watch what you're eating though. So far no effect on my T.

No not possible. I hate the feeling taking benzo's give me more than I hate tinnitus or hyperacusis. I do not want to be an addict. Never.

That is exactly what I am experiencing. Today H is awful, yesterday it was gone.

Aha. Glad I did not know that

What is LDL?

Sorry Vaba, can't go there.

I've tapered Xanax and Valium. Two weeks ago I took my last dose. Today I have really, really bad hyperacusis and I'm scared. Scared to death. I can handle T. but H.... Xanax took care of my H. in February. As long as I'm on benzo's H. is no problem. How can this be?

Vaba I understand you. Really I do. But you're current state isn't forever. Things change all the time, nothing is constant. You're family will be more than 'upset' I tell you. The'll be devastated, crushed. When someone commits suicide they give their pain to the ones that stay behind, forever...

Same here. Too scared to kill myself. Thank god. I'm visiting my psychiatrist on Monday. My psychiatrist....never in a million years did I ever expect to be writing those words.... Now if we could only push fast forward....

Looking at the bright side: glad I'm not an elderly man. But a young ;) woman.

Just spoke to my husband. He has T. for a long, long time (more then 20 years). He never spoke about it but he has it bad, really bad. He said that after two or three years things got better, his ear and head pain dissolved. His strategy was not to talk about it and to find distraction as much...

God Philip. I have three children to raise. I'm 47 and have had the heart condition all my life. Just did not know it. I haven't heard silence in a long time. Before my T. and H. went crazy last year, I already had T., but in a milder version. I'm all for bright side but not for non sense...

@Vaba As a surviving member of a family that had to deal with suicide: I would have payed anything to keep my dad. You're thinking is definitely distorted.

@Sam Bridge If I ever get my life back on track I'm going to visit her together with my husband and tell her what I think of her 'expert view'. I'm so angry.

I've done my research. Nobody denied that my T. comes from one of the three meds that are listed under my avatar. Neither my cardiologist nor my psychiatrist. The new med I'm going to have to take is to prevent me from getting heart failure due to a leaking mitral valve. I've done my research...

Xanax and Valium - helps (no solution, addiction, don't go there) Remeron - helps (makes me sleep and eat) Hypnotherapy - helps (effect on mood, lasts only for a day) Masking - helps sometimes (but can be annoying) Eating crispy food - helps (but makes me fat) Eating ice cream - helps (but...

Thank you Glynis. I'm going to see my psychiatrist next Monday. My cardiologist is going to contact my psychiatrist. I'm really thankful that she does. I need all the expertise there is to get out of this mess I'm in.

Here I am. Devastated by tinnitus caused by heart medication in December 0f 2015. Visited my cardiologist today. I have to start taking medication to prevent heart failure and I'm scared to death. I'm depressed and scared of my tinnitus. and on top of that HAVE to take a risk and take medication...

I'm struggling every single day. Got myself off benzo's. Still on Remeron. Suicidal feelings come every couple of days. I'm very anxious. Have to take new medication for my heart with possible T. worsening (or not). Have not felt like myself since 4 december last. I'm afraid of my thoughts. My...

Maybe it's the Remeron. Or stress related, because it went away when I was on Xanax. I've read depression can be a cause of nausea too. Well I'm still very depressed....

Wow @undecided. No need to be so harsh. Very glad you found a cure @Krianna!

I've finally decided to watch it. What a sad, sad story. I think she really wanted someone to tell her to stay in this world. I think it's depression that killed her. I read that she battled anorexia, anxiety and depression before T. and H. set in. My husband who has habituated to fluctuating...

@billie48 For me T. is usually not so very loud in the morning. I thank Remeron for that. I meant to say that the depression is worst in the morning. I'm fine when I wake up, I turn over get nauseated and then either anxiety or depression sets in. I so wish I can get used to this new me and...

For I fear the thoughts themselves. Because my father committed suicide it's extra hard for me to have these feelings. I never in my whole life thought I would ever feel like this. Have seen a hypnotherapist today. He eased my mind. I feel a bit better now. Mornings are the hardest.

Thanks everyone. I feel ashamed for my post. How on earth can I think these of unthinkable thoughts. I'm going to a psychologist for EMDR next Thursday. I hope that will help.

Hi @billie48 I'm not dizzy though. I'm just nauseated. Can that be vertigo too? And why am I not nauseated when I'm turning over in my sleep? It only happens when I'm awake. I have only very little hearing loss in the very high frequencies. I thought for it to be Meniere you have to have...

Why am I the only one that can't handle this. I see so many brave people on this site. They struggle but continue. I just want it to stop. I can take no more.

Hi BobDigi I'm not hungry. It happens when I'm awake an turn to my other side. Really strange and horrible every morning ritual.

I've been through hell for 8,5 month now and it's not getting any better. Was at my work for an hour yesterday and had to pay and am still paying for it with increased T and nausea. This is no life. I can't do this anymore. I've seen two psychiatrists. One in the crisis centre who put me on...