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  1. T

    Pulsatile Tinnitus Caused by Transverse Sinus Stenosis

    Yes, Dr. Patsalides is great. I would also recommend the group at NYU Langone. That's who treated me and placed my venous stent.
  2. T

    Pulsatile Tinnitus Caused by Transverse Sinus Stenosis

    Before I had the DAVF repaired, I did have narrowing visual field when my heart rate/blood pressure was raised, like with exercise. If you're willing to travel to NYC, I could recommend to you specialists whom are some of the best in the world for your issue, and also who treated me.
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    If You Have Pulsatile Tinnitus, Here's the First Thing You Need to Do to Get Answers and a Diagnosis

    That's unfortunate. Sorry you're suffering with it. In my case, I was diagnosed by imaging tests, not by audiology. Audiologists and ENTs cannot really help with diagnosis.
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    If You Have Pulsatile Tinnitus, Here's the First Thing You Need to Do to Get Answers and a Diagnosis

    Don't go down the path of googling nonsense or listening to opinions of people on here. You have to go to a qualified specialist that is an expert in this field to get a diagnosis. It's rather easy for someone who knows what they are doing. They can determine if it is benign or not. The good...
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    If You Have Pulsatile Tinnitus, Here's the First Thing You Need to Do to Get Answers and a Diagnosis

    I did try Xanax, in the same family. No effect. In my case, the hum stopped when one of my sinus veins fully clotted and shut down in response to the dural fistula, which made my situation dangerous. After surgery, all of my symptoms resolved. Pulsatile tinnitus and hum gone. It took years, but...
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    If You Have Pulsatile Tinnitus, Here's the First Thing You Need to Do to Get Answers and a Diagnosis

    It was like a constant background noise. This was described to me by a surgeon as a "venous hum".
  7. T

    Sound and Sensation of Water Running Though a Pipe When Going from Lying Down to Standing Up

    Why not both MRI and MRA at the same time? For my follow-ups I typically do an MRI, MRA, and MRV.
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    Sound and Sensation of Water Running Though a Pipe When Going from Lying Down to Standing Up

    Yeah, this is just irresponsible. Diagnosis of exclusion can't be done until you do the actual excluding by diagnostics. Clinical guesswork isn't sufficient. Don't get too anxious about this, but keep pressing. Sometimes I think it's limited to this country, but I think medicine in general is no...
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    Recommendations for Doctors Experienced in Pulsatile Tinnitus in Phildelphia, PA Area?

    If you want solid, definite answers, travel to NYU Langone in NYC. That's where most of my surgeries were performed. They are among the best in the world.
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    Sound and Sensation of Water Running Though a Pipe When Going from Lying Down to Standing Up

    They are also the group that performed my surgeries.
  11. T

    Sound and Sensation of Water Running Though a Pipe When Going from Lying Down to Standing Up

    This is written and maintained by the doctors at NYU Langone, who are a foremost leader in the treatment of these types of issues: http://neuroangio.org/patient-information/diagnosis-and-treatment-of-pulsatile-tinnitus/
  12. T

    Sound and Sensation of Water Running Though a Pipe When Going from Lying Down to Standing Up

    This is classic pulsatile tinnitus. Most likely what you are hearing is turbulent flow through your blood vessels close to your ear. This is exactly what I have experienced, and still experience to some degree after it's been repaired. You should get an MRI/MRA and see a neuro interventional...
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    I Feel My Tinnitus Often Aligns with My Heartbeat — Possibly Pulsatile Tinnitus?

    It depends on what the source is. Trying to speculate on the cause is not a good use of time or energy. Go to someone that can find out. In my particular case, it only got worse over time. DAVF are not to be messed with. They are almost 100% guaranteed to rupture and cause a hemorrhage at some...
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    I Feel My Tinnitus Often Aligns with My Heartbeat — Possibly Pulsatile Tinnitus?

    I am not qualified to answer that, and neither is anyone on this forum. Go see a qualified specialist.
  15. T

    I Feel My Tinnitus Often Aligns with My Heartbeat — Possibly Pulsatile Tinnitus?

    I mean, speculation is an act in futility. I would go get it checked out. Pulsatile tinnitus by its nature is intermittent, and not at all related to "ordinary" tinnitus. With pulsatile tinnitus, you are hearing just fine, you're just hearing turbulent blood flow in your head. I also have...
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    I Feel My Tinnitus Often Aligns with My Heartbeat — Possibly Pulsatile Tinnitus?

    These are exactly the symptoms I had with my DAVF. Get an MRA, and talk to a neuro-interventional radiologist for a consult. This is completely out of the wheelhouse of audiologists and ENTs.
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    PSA: Have Pulsatile Tinnitus? Have an MRA! Mine Showed Dural Arteriovenous Fistula

    This is the same thing I had been suggesting to people in this thread: If You Have Pulsatile Tinnitus, Here's the First Thing You Need to Do to Get Answers and a Diagnosis Mine was the same issue.
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    Pulsatile Tinnitus and Head'ache'

    You've probably already waited too long to have it diagnosed. Here's a thread I wrote on the subject: If You Have Pulsatile Tinnitus, Here's the First Thing You Need to Do to Get Answers and a Diagnosis
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    Sudden Onset of Pulsatile Tinnitus — It's Kept Coming and Going

    Here's the thread I created on this topic: If You Have Pulsatile Tinnitus, Here's the First Thing You Need to Do to Get Answers and a Diagnosis This is also useful to read, it's maintained by the surgeons that treated me: Diagnosis and Treatment of Pulsatile Tinnitus Remember that no one on...
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    Pulsatile Tinnitus That Cycles Every Few Seconds?

    There isn't any one name or specific procedure. The intervention performed is very dynamic and specific to the situation. Most times it's endovascular, meaning done through the blood vessels with a catheter, so it's minimally invasive. But use of different embolic materials, stents, platinum...
  21. T

    Taking Up Acoustic Guitar a Bad Idea When You Have Tinnitus?

    No, you should not let tinnitus stop you from doing anything you want to in life.
  22. T

    Transverse Sinus Stent Cured My Pulsatile Tinnitus and Other Symptoms

    They couldn't take them out if they wanted to. They are permanent. The tissue of the vessel wall grows over it within a few months.
  23. T

    Transverse Sinus Stent Cured My Pulsatile Tinnitus and Other Symptoms

    I had mine placed July 2019. No problems at all. I'm no longer on antiplatelet therapy or anticoagulation. I did have issues with Plavix though. It made me weak, ill, high anxiety. It elevated my liver enzymes too. I felt much better after I stopped taking it. I couldn't tolerate it. My doctor...
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    Transverse Sinus Stent Cured My Pulsatile Tinnitus and Other Symptoms

    Congrats and welcome to the club. I have one in my right transverse sinus. The headaches will go away in time. I assume they have you on Aspirin and Plavix for about 6 months?
  25. T

    Can You Work with Pulsatile Tinnitus?

    Have you made any progress on having it diagnosed and treated? Regarding the initial question, I don't think any doctor would sign off on that, as it's not disabling.
  26. T

    Diagnosed with Pulsatile Tinnitus: Doctor Wants a CT Scan — Insurance Won't Cover It: Do I Need It?

    Yes you need it, but an MRA/MRV is more appropriate for diagnosis. That technically is not pulsatile tinnitus.
  27. T

    Thumping in Sync to Heartbeat in My Head and Left Ear

    I'm not trying to scare people, but it can indicate a serious problem that needs medical intervention. Ignoring it won't make it better.
  28. T

    Thumping in Sync to Heartbeat in My Head and Left Ear

    Are you seriously kidding me right now? I literally wrote that post to help people in your situation, with my experience. You come here asking for help, then choose ignorance instead. That's beyond frustrating.
  29. T

    What Exactly Does Your "Pulsatile Tinnitus" Sound Like...?

    Yours sounds like typical PT.
  30. T

    Diagnosing Pulsatile Tinnitus without an MRI?

    The whiplash could have caused a tear in a blood vessel in your neck or head. I would not wait to get this checked out. Especially if you have pulsatile tinnitus. I have regular tinnitus and I have no problems with MRI. There is a lot of fear mongering on this forum. They are loud, yes, but they...
  31. T

    Pulsatile Tinnitus That Lasts Only Up to 10 Minutes at a Time

    This is pretty typical of the symptoms. Please read this thread I created: If You Have Pulsatile Tinnitus, Here's the First Thing You Need to Do to Get Answers and a Diagnosis This is also helpful (written by doctors, for doctors and patients): Diagnosis and Treatment of Pulsatile Tinnitus
  32. T

    Take a look at the conversation I started with you.

    Take a look at the conversation I started with you.
  33. T

    How to Manage or Get Relief from Pulsatile Tinnitus?

    Aside from treating the root cause, there is not much else you can do to control the symptoms. Please read this: If You Have Pulsatile Tinnitus, Here's the First Thing You Need to Do to Get Answers and a Diagnosis
  34. T

    Finally Pulsatile Tinnitus Diagnosed: Internal Jugular Vein Stenosis

    I had a stent placed as part of the treatment for my DAVF(s).
  35. T

    If You Have Pulsatile Tinnitus, Here's the First Thing You Need to Do to Get Answers and a Diagnosis

    I'm unfamiliar with that area. A little research may find someone good. It's encouraging that those studies didn't show anything, but sometimes they don't. An NIR may suggest a cerebral angiogram.
  36. T

    New to Pulsatile Tinnitus — It Seems to Be Highly Correlated to Blood Pressure

    Maybe they can refer you out if they don't find anything.
  37. T

    Does Papilledema Relate to Pulsatile Tinnitus?

    That isn't going to solve the problem, that's just temporary to help the symptoms. You need a new doctor. You could risk losing your vision, among other things.
  38. T

    Does Papilledema Relate to Pulsatile Tinnitus?

    I go to NYU Langone. The doctors there are outstanding. I would highly recommend you go there. Johns Hopkins is good too, but I've heard some not so good things.
  39. T

    Does Papilledema Relate to Pulsatile Tinnitus?

    If you have a cerebrovascular issue that is causing intracranial pressure, or pressure behind your eyes, yes. What part of the US do you live in?
  40. T

    Does Pulsatile Tinnitus Ever Stop? Can a Stent Cure It?

    The answers are in the links I sent you.
  41. T

    Cerebral Angiogram as Part of the Pulsatile Tinnitus Journey — Experiences?

    I've had 4. They are really no big deal so long as you have an experienced and skilled doctor doing them. You don't want just anyone doing this. I wouldn't worry about it too much.
  42. T

    Does Pulsatile Tinnitus Ever Stop? Can a Stent Cure It?

    Did you read those links I posted for you?
  43. T

    Does Pulsatile Tinnitus Ever Stop? Can a Stent Cure It?

    I have a stent placed. Read this: If You Have Pulsatile Tinnitus, Here's the First Thing You Need to Do to Get Answers and a Diagnosis and this: http://neuroangio.org/diagnosis-and-treatment-of-pulsatile-tinnitus/ What were you diagnosed with?
  44. T

    Pulsatile Tinnitus with Ear Pain, Ear Fullness and Weird Sensations: So Scared!

    This is helpful as well, this site is maintained by some of the best neuro interventional radiologists in the world, and the ones who treated me: http://neuroangio.org/diagnosis-and-treatment-of-pulsatile-tinnitus/
  45. T

    No Known Reason for Pulsatile Tinnitus? Is That Possible?

    The quality of the doctor you're seeing makes an huge difference. With that said, at least NIR have specialized training for things like this.
  46. T

    No Known Reason for Pulsatile Tinnitus? Is That Possible?

    Did you read my thread on the subject? If You Have Pulsatile Tinnitus, Here's the First Thing You Need to Do to Get Answers and a Diagnosis
  47. T

    Pulsatile Tinnitus That Cycles Every Few Seconds?

    It really depends on the underlying cause. If it's something like DAVF, it won't get better. Having lower blood pressure is always better though.
  48. T

    Pulsatile Tinnitus That Cycles Every Few Seconds?

    You're doing the right thing. 1. Hypertension can be a factor, but that solely usually isn't the issue. 2. The intermittent nature is normal for pulsatile tinnitus. This is how it almost always presents. 3. Don't panic. You're dong the right thing by having it investigated. The times it...
  49. T

    @mhess Not in particular. But you can start by looking up neuro-interventional radiologists.

    @mhess Not in particular. But you can start by looking up neuro-interventional radiologists.
  50. T

    Pulsatile Tinnitus with Ear Pain, Ear Fullness and Weird Sensations: So Scared!

    Please read my thread on the subject: If You Have Pulsatile Tinnitus, Here's the First Thing You Need to Do to Get Answers and a Diagnosis
  51. T

    @LilSass weird that I can't start a conversation with you here. I'm right across the water from...

    @LilSass weird that I can't start a conversation with you here. I'm right across the water from you in Rochester. Are you able to see this?
  52. T

    I Want to Become a Musician... Should I Not Because of Having Tinnitus and Minor Hyperacusis?

    I have a music degree and audio engineering degree. I've worked in a studio and performed live and never had a problem with volume or tinnitus, ironically. I've always worn earplugs at concerts or live. That is key. In a studio, the volume is never too loud, on the other side of the glass. You...
  53. T

    Strong Pulsatile Tinnitus Mainly When Getting Up from Lying Down, or Standing Up After Sitting

    Please read this: If You Have Pulsatile Tinnitus, Here's the First Thing You Need to Do to Get Answers and a Diagnosis
  54. T

    Pulsatile Tinnitus Developed While Taking Minocycline

    Please see my thread regarding this: If You Have Pulsatile Tinnitus, Here's the First Thing You Need to Do to Get Answers and a Diagnosis http://neuroangio.org/diagnosis-and-treatment-of-pulsatile-tinnitus/
  55. T

    How Did Your Pulsatile Tinnitus (PT) Start? Suddenly or Gradually?

    Please read this thread I created, it will also answer the questions you sent me in a message: If You Have Pulsatile Tinnitus, Here's the First Thing You Need to Do to Get Answers and a Diagnosis http://neuroangio.org/diagnosis-and-treatment-of-pulsatile-tinnitus/
  56. T

    Pulsatile Tinnitus Vanished Overnight — Because of Taking Migraleve?

    Because that was when the vein shut down completely. The PT stopped because I wasn't hearing the blood flow through the vein, because there wasn't any, anymore. It then forced that bloodflow backward into the veins of my brain. It became life threatening at that point. High risk of rupture and...
  57. T

    Can Noise-Induced Hearing Loss Cause Pulsatile Tinnitus?

    Science and my own experience. I've consulted with many surgeons and have had 4 neurosurgeries to date. My PT was caused by an underlying cerebrovascular issue, when that was remedied, the PT was cured. If You Have Pulsatile Tinnitus, Here's the First Thing You Need to Do to Get Answers and a...
  58. T

    Can Noise-Induced Hearing Loss Cause Pulsatile Tinnitus?

    Noise induced hearing loss cannot cause pulsatile tinnitus. It you have PT, your hearing is normal and you're hearing the blood flow in your head.