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I don't agree with this. I certainly believe and experience a lower threshold for what causes my middle ear muscles to contract as a result of whatever damage happened to this ear. It doesn't have to be a particular value.

For me, sometimes anticipatory anxiety or anxiety caused by a distressing event causes a feeling of increased head pressure which tends to lead to fullness in the ear with other symptoms. There is autophony, which consists of hearing my voice within my head, some thumping in the ear...

Interested that I've found people who have the same symptoms as me. I've had all imaging, and there's no diagnosis. I want to get my ME muscles lasered away but how do I know it will solve it? The best in the UK has confirmed no microcompression. So what else could it be other than those damn...

Hopefully the fluid lasting there for all those days allows the healing properties to disburse fully where needed. I wonder if he could use a gel in the future as a way to improve patient experience as in this study. It would help the annoying sloshing problem: Role of Platelet Rich Plasma in...

Sounds like me, overreactive middle ear muscles. I suppose the cure would be tenotomy of these muscles --- if we are not prepared to wait for the never ending search for hearing regeneration or a cure for the nerve overactivity/damage. My MEM even rumbles when I scratch my head. I get pulsatile...

Is that the treatment fluid or mucus due to Eustachian tube problems before the treatment? My question was about your ear issues before starting treatment, if that makes sense. I think I saw a post of yours where you said you had middle ear exploration and that damaged your eardrum but I...

You may have missed this post in the other thread but would appreciate a response to this: "Good luck. Do you have any middle ear issues? Like pain, fullness, change in hearing, internal sounds etc? Would be interested to see if the PRP can have local healing to middle ear muscles, eardrum...

It's the only thing that can cause mine after various experts have ruled out anything else. The thing is, the only solution for me would be removal of the thyroid lobe without guarantee of cure. So I'm waiting for hearing medication for another 2 years. If there is nothing, I will take the...

Good luck. Do you have any middle ear issues? Like pain, fullness, change in hearing, internal sounds etc? Would be interested to see if the PRP can have local healing to middle ear muscles, eardrum, and local mucosa.

I cannot offer much but have your thyroid looked at for nodules or a goitre. I have pulsatile tinnitus like you, and the throat click. I have a goitre with normal thyroid labs. They discovered a carotid bruit but wouldn't tell me if that was the cause of my pulsatile tinnitus. What's next for...

What do you guys think about this being good for middle ear myoclonus issues? I have involuntarily rumbling of middle ear muscles from sounds, some internal sound autophony (not SCDS), TMJ nerve pain, single-sided facial nerve twitches around my ear and temple, and ear fullness. It's as if the...

Hi, Just wanted to say how revolutionary your work is. People never mention the middle ear as a cause of pulsatile tinnitus despite researching this for years in the past. Interesting that you recommended him as I was referred to Addenbrookes Cambridge. I looked at him in the eye while in the...

Sorry to hear that. Mr Boets told me if it doesn't work the first time, they try it on different areas of the TM. Will you try in a different area? What resonance symptoms do you get? We may have the same symptoms and can share anything positive we might find. For me vibrations from neck...

Did you have any signs of healing elsewhere in the body or are you in perfect health otherwise? Is tinnitus your only ear symptom?

I now believe this is middle ear myoclonus. Tympanic Resonance Hypothesis At times my voice, pulse, and head movements resonate from my neck to my ear. Does anyone get these symptoms and had a diagnosis / cure?

First of all congrats on relieving some ear issues. I don't think it was time. Here I am 10 years later with the same pressure and reactivity. If you don't mind me asking, did you have any sports injuries, autoimmune conditions etc that have shown signs of healing after doing this treatment? If...

Wow congrats on solving at least one of your ear issues. This is probably a hugely overlooked cause. I even asked the leading UK ENT for pulsatile tinnitus if this was the cause and he went silent. Worrying! I have the same, if I have a bad night's sleep with lots of dreams and increased heart...

@attheedgeofscience Thanks for sharing your experiences. It is interesting you are able to breathe better through your nose. Do you have any scientific theory as to why? It seems it could have regrown damaged cilia allowing better passage of mucus and pathogens from your sinuses. Or it could...

I don't know how well they can replace the ear drum after inspection. For me it would be worth it to see what is going on if they can fix the ear drum back. Bad science is to blame. Here in the NHS they don't even take down your symptoms for tinnitus complaints to try to gather data and...

I have the same. The chirp I call an auditory nerve twitch. I feel the nerve twitching where I get the chirp sound. I too have spasms on the same side as the chirp. My temple and sometimes my jaw twitches. Sometimes when the temple twitches I can feel it to the top of my teeth. The temple...

Got a few questions if you dont mind @JohnAdams. 1. How long did it take for the injection to drain down the eustachian tube? 2. Did you notice a change in your hearing while it was in there, like increased head sounds and less external ones? 3. Could the solution help regenerate other things...

Did you notice muffled voice when speaking, and increased hearing of head sounds like bones creaking etc? If yes, it seems to be like your tube got blocked up. Crap thing about the tube is we cannot inspect it. We cannot inspect the middle ear unless the ear drum is destroyed!

Has anyone noticed that tinnitus and/or hearing loss had caused them to hear internal sounds louder? I know of SCDS (Superior Canal Dehiscence Syndrome) being a cause of this which I have been given the all clear for. Only other thing I can think of is tinnitus and hearing loss has caused it...

You are opening your eustachian tube so every sound you are making in your mouth and sinuses is louder and the eustachian tube is normally closed which blocks those sounds. You need to stop doing it and you do not want to mess around with this area of your body. If you don't have anything like...

I see, my case is as above. So you never hear your pulse / blood flow in your ear?

Are you saying your tinnitus is high pitched to the pace of your pulse. So pulse and hitch pitch come at the same time. My tinnitus started like this. Now it has reduced to tinnitus and intermittent PT. What other symptoms do you notice. Can you hear your neck movements, bone creaking, when...

My problem is chronic fluid despite being able to open the tube. Its really strange. What if the stimulation from Lenire of the trigeminal nerve has some positive effect on the nerves that control our eustachian tube. One would hope. The tinnitus and ET problems came at the same time. For me I...

I have an appointment for late February. Not sure I am going to go ahead with Lenire yet as I still have trouble with my eustachian tube. My thinking is that I will either get rejected or any progress will be undone with my incurable (?) problems. Doctors have no clue. Anyone in the same boat...

Only thing is how can I get an ENT to inject me with it? I have inflammation in the eustachian tube closer to the middle ear so nasal sprays won't get in there. An injection would.

I applied back in the summer and haven't got an appointment yet. People are getting May 2020 appointments so I wonder how long until I am contacted. Surely the demand isn't so high that it could take a year for me to get an appointment. Anyone got any tips on how to get Neuromod to offer me a...

I wonder if this could regenerate middle ear and eustachian tube cilia that have been damaged due to a viral or bacterial infection. Ear infection was the cause of my tinnitus and to this day, I still have trouble clearing mucosal secretions despite normal middle ear pressure and tube function...

It is possible the OP dissolved and/or weakened the bacterial biofilms that existed within his middle ear and possibly sinuses with the netipot . Then the Z pack completely killed whatever was holding on. Personally I struggle with chronic otitis media since getting tinnitus. My ETs seem to...

Interesting. Are your ear spasms like the frequency of your tinnitus sound? For example my high pitched tinnitus ear makes a kind of high-pitched bird chirp sound. Like the nerve is spasming or the timing of my tinnitus is temporarily out of sync and makes a tick like sound.

Exactly my point, which is why I believe curing most types of tinnitus is a long way off. Also from your first point ETD does not only come with pressure and pain. There's the whole incorrect functioning to allow proper fluid drainage. Most people are chronically suffering with that. Me...

Agreed. It's terrible, very primitive as you say. We don't even know why some people with severe hearing loss don't have any tinnitus while some with minor loss or no loss at all have tinnitus. Friend has been to over 100 concerts, has double hearing aids now and no tinnitus. He's only heard...

I have pulsatile tinnitus too, which according to experts who have seen my scans, has no known cause. I don't think @kelpiemsp gets frequent fluid trapped in his ear like me, which causes the tinnitus to spike. I think his is more to do with pain and pressure. The reason I cannot have ear drum...

Sounds more like patulous eustachian tube to me OP. Go see an ENT who is knowledgeable on ETD and patulous eustachian tube and clear your mind from the questions you have. Not true, I have patulous opening in my right ear and still have ETD symptoms. Frequent fluid trapped in the ear. Many...

Not going to lie, kind of jealous of all the people that don't have existing ear issues that render treatments like this pointless for me. With my pulsatile tinnitus and ETD + double patulous eustachian tubes I'm not even going to bother with this as my inner ears are constantly under stress...

What's the best way to diagnose TMJ/D? I get fluid stuck in the ear, one of my tinnitus tones gets louder when I yawn / I feel my pulse when I open my jaw / I get some spasm of a blood vessel or nerve in the area. But I don't get any clicking, only a dull sore feeling from time to time.

@Greg Sacramento I would like to know too please.

Thanks for your updates. My thyroid is bulky on the PT side. Any chance the thyroid could be constricting an artery or vein? I don't think a GP is the best to answer that question

What kind of ear spasms do you get? Ear drum spasms or inner ear spasms at the same frequency as your tinnitus?

I can pop my ears extremely easily. Why? Because I have Patulous Eustachian Tube openings. Right ear less patulous than my left. However I don't get autophony, I get eustachian tube flexing when I speak. Also the air from burps etc can be heard within my ears. So why is it that I get fluid...

Any Patulous Eustachian Tube symptoms like fluid in the ear (you can hear the fluid moving when bending over and back up), the tube flexing when speaking, autophony?

Did you lose your weight really fast? Have you considered surgery to refill the fat pad?

Can you find this?

I don't qualify.

When I scratch the back right side of my head and the front above my eyebrow, or rub the eyelid, my ear rumbles. It's like a tensor tympani rumble but not 100% sure. This ear has hearing loss and tinnitus and occasional pulsatile tinnitus. When I rub or scratch the other side of my head that...

When fluid/mucus collects in the middle ear, does that penetrate through the round window membrane? Or does it take a special liquid like what FX-322 is made from? Just wondering with things like infection leading to tinnitus and general fluid collection in middle ear like what I get.

Does Audion Therapeutics promote nerve repair as FX-322 claims to do?

Sorry to hear about this. I suggest you try to trick your mind that it didn't cause a problem. Then update us in a month. Source? 7 years experience dealing with these noise events and working on the mind.

I'm 10 minutes from Regain, but I'm too scared to take part in the trial when there could be some unforeseen side effects. Only thing that makes me want to do it, is the little statement that there's a therapeutic window where we could be treated that I might miss out on.

How can this be suitable for people with hearing loss if the person cannot hear the sound the Neuromod is putting out?

What type of surgery did you get for rhinitis and how did it go? No doubt it contributes to my tinnitus or was the cause of my tinnitus with patulous eustachian tubes. Ballsy going to do this, props.

how is hyperacusis linked to sore throat?

I'm on the NHS and have had a CTA. The report came back negative, my right side arteries is dominant in terms of size, I have tinnitus in my right ear. Here are some summaries "The bony wall of the petrous carotid canal, separating it from the middle ear cleft is thin but intact." Would that...

I'm so desperate, I know about it. But nothing ever goes my way in life, everything I love gets torn from me. I cannot go the gym because of tinnitus. My artery is too close to my ear, it spikes my tinnitus. If it is successful it could be the one positive in my life that can turn my life...

hopefully in 5 years or less the cure will be found and we won't have to hope for spontaneous reduction .

Willing to settle for tinnitus in silence, just dont want to hear it over the TV during my down time or at work when I'm trying to make a living. If this technology can get me there, I'm happy.

Want to know this too. The nerve in my ear is definitely damaged, hence the high pitched nerve spasms. If anyone knows more please chime in.