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Happy Days!

Big shoutout to @MindOverMatter one of the best dudes on here :beeranimation:

Glad to hear you're doing well, mate.

Re delivery; I believe there are already suitable systems out there. For example, I can't see why a modified TORS machine couldn't be used.

Re delivery; the needle trajectory absolutely does require the scraping or drilling of bone - "trephining" as the study refers to it. This occurs at the modiolous wall of the cochlear "for a median depth of 1.48mm". Access to that part of the anatomy would be gained via the round window with...

The above article answered the below question:

I still strongly believe that the root cause of tinnitus lies in a defective (for the most part, congenital) neural-noise gating mechanism. It's the only conclusion I've ever been able to reach, other than "bad-luck", which is not very scientific, that explains why some people get tinnitus...

Hey, D. I went through a period of reading Philip K. Dick novels. I think he's a superb author who almost invented a genre of his own but I did find myself having to really bump up my mood prior to starting each book because many of his stories would either severely p*ss me off or play too much...

Regarding those who struggle intensely; you're quite right when you say "that level of struggle is not the norm". Nevertheless, the problem with a comment like that is that a significant number of people new to Tinnitus Talk appear here struggling intensely - lack of sleep, hyper-focus, anxiety...

Thanks for the link. What Hamid has provided there makes for interesting reading. I think he's on point with a lot of what he says, but I disagree with him on point 7: Distinct from Hyperacusis: Although sound sensitivity may be present, the primary complaint is an increase in tinnitus...

I've spoken to a few people from the charity sector about the current situation at Tinnitus UK and they all opine the same thing, more or less: the charity has been mismanaged. I don't really know the details of their financial situation but Tinnitus UK lost me when they started with this...

Sound familiar?

I've not seen a diagram referencing the Cochlear device, and on a technical level, the information they've supplied to date lacks the relevant detail, so there's some presumption on my part. My belief is that a sound processor sits over the ear (in the same position as a hearing aid) and that...

We have a saying in England; same shit, different colour.

Hello, mate. Sorry I didn’t reply earlier—I’m still not receiving alerts when tagged. I was also a bit confused when researching these latest updates because I’ve seen references to both “on the promontory” and “in the promontory,” which suggest two very clinically different setups. However, I...

My NHS audiology dept. promised me CBT a couple years ago but never got back in touch (even to this day). I dabbled with the idea of paying privately and ended up having an email exchange with Debbie Featherstone, who provides the CBT4T programme you've linked to above. I was really impressed...

Good luck with it, mate. I'll be thinking about you.

I always thought there was a lot to be said about this type of human connectivity to the ground. We have a particular radiator in the house that is prone to discharging angry sparks when touching it while wearing slippers. When I think ahead and remember to take off the slippers, I'm already...

@Wouter De Blaere, I'd tend to agree with what @Nick47 has said above that the symptoms outlined, delayed as they may be, are likely linked to hyperacusis. Frank Magnusson over at Hyperacusis Research wrote an interesting account of his own experience. In it, he mentions the delay factor, or...

What's your point of view on 26 years of research? 11 years ago on the first post of this thread, Susan Shore stated in an interview that they were excited about this device because, "It's not just something we cooked up. It's based on 15 years of research."

Disclaimer: I haven't read the paper as I'm maxed out reading tinnitus research for now! ----- At the very least, I think where any tinnitus treatment study is concerned , particularly where the researcher is a young scientist, we should consider trying to pair the study team with the Bionics...

This describes my own tinnitus perfectly; the reactionary feedback loop being the thing that causes me the most distress. I attribute this to the addition of hyperacusis, and from what you've written, it sounds like hyperacusis has presented itself in your situation, too. 7 years ago my...

Yeah, it's been a long haul!

They didn't appear to. They used a "hydrotransmissive" method requiring filling the external ear canal with a saline solution then setting an electrical probe (that didn't touch the walls of the canal) into it. Goodness knows how they managed to keep the saline from trickling out. I think it's...

I think this is extra-cochlear stimulation? Probe + saline solution inside the ear canal. Anyhow, regardless of that, the more of these study papers I see, the more bewildered I get. We're literally staring at an open goal. I even wonder about the point of Tinnitus Quest in this regard. The...

It might depend on how they/we define sound processing. I mean, hearing with or without tinnitus is all sound processing to a degree, just "normal" or "abnormal" processing. If they're measuring tinnitus "severity," then going off what I personally experience with reactivity, I'd expect to see...

Thanks for the update; it looks quite encouraging. "Firstly, it provides definitive evidence that the tinnitus diagnostic tool developed by our researchers can detect changes in tinnitus severity" I wonder if this opens up further avenues to measure "reactive tinnitus"? "our upcoming clinical...

Hi Frédéric, I remember the first time you shared this info and being quite intrigued by it. From the article: "Structural abnormalities could be associated with psychiatric disorders such as schizophrenia" Along the way in my own research I've often felt there could be some kind of...

Mine's been sh*te recently as well to be honest. Me and Mrs UKB flew down to Spain today, so I was expecting the worst, but thankfully, the earplugs seemed to have done the trick. Small victories. Speak soon, man.

We're living in clown-world, mate.

Literally the best news! Overjoyed for you, E.

Even if the treatment is going to be a real grind, it sounds like you managed to catch it early, which is great news.

Good luck, E. I'm rooting for you.

This "different types of tinnitus" perspective is what has ultimately led to "muh heterogeneity" and the endless conveyor belt of clinical researchers all needing "another ten years" and a horde of gerbils. The solution to tinnitus starts with one decent executive project manager. If these...

I drop by every couple of days or so to keep up with the research threads, etc, but for the most part, I try and get on with life. You know how it goes, E. Did you ever complete that log cabin, or is the project on hold for now?

Whatever happens and however it goes, E, you'll get through it x

Thank you, Ann! I'm not annoyed. Frustrated perhaps, but not annoyed. My comments are observations (right or wrong) about how ongoing research functions. This is just me trying to piece together what I've recently learned is actually a rather long history of extra-cochlear electrical...

Yes, I understand that. Maybe that's not been made super-clear. Brian Fargo donated $1m for what appeared to me - further research, trials, etc. If we're beyond that phase and now into "getting his device to market," well... I know from my perspective, I'd be pretty excited about that. But...

On the funding question, I've donated to Tinnitus Talk over the years and been happy to do so because I always felt @Markku & @Hazel were out there fighting our corner. Since learning a bit more about the history of direct electrical stimulation of the cochlear, however, a treatment that was...

I'm trying to understand the ethical standpoint of research that, on one hand, cites a 40-year-old experiment that produced results many of us dream of, yet, on the other hand, is still conducting feasibility studies today to determine if that same technology actually works. Someone from the...

If the procedure to install the proposed tech was as invasive as having a cochlear implant, I would think very seriously about it before trying, even with my severe tinnitus and loudness hyperacusis. However, my understanding is that they are working towards a device that could be fitted in...

Opening lines to a tinnitus study like the above leave me gobsmacked.

The data for this is probably already out there. When first learning about an electrical tinnitus implant, one of my initial concerns was the long-term effect of applying current to the hearing system. A feasibility paper (I can't remember which, I'm afraid) mentioned exactly this, but in the...

This would be a good question to ask him at the upcoming Q & A event. My main takeaway with Heidi Olze is that (as far as I know) she's one of the main players in Europe for this type of approach to cochlea stimulation. She's also competition, which is always a good thing. Had I not...

That made me laugh, mate :-)

...and Heidi Olze. What is also worth bearing in mind is, the control. The device is installed into the test subject who has no idea whether or not it is switched on. This is true placebo control; none of that wishy-washy stuff we've all become so accustomed to wading through.

This is the future for effective tinnitus treatment.

You won't get any argument from me on that point. It is the same with the other Internet audiologist into TRT, whose name I shan't mention. I'm always interested in listening to what Dr. Lim has to say, however. From his own statement in the interview, he's clearly been involved with the FDA...

TL;DR - Yes; I've always said I think she has done good science/research. TL;DR - I'm not sure we can really answer that question at this point. ============================================ Factors governing control/trial design are something we should consider, I think. Also, the extended...

There's clearly a distinction between doing proper science and trialing that science in the proper way. I'm not going to go into detail about why I believe the Shore lab and associates should and could have avoided the situation we're all in now. Suffice it to say, I think in the end, they just...

Hey, E, long time no speak. I skipped over your post this morning before heading out. The "polyp" part caught my eye, so I wanted to reply, but I must confess to missing the first part entirely until now when I sat down with a bit more time to hand and read it properly. Regardless of what's...

...and 8 out of 10 cat owners:

I agree. Tinnitus grifting is interminable and absolutely underlies much of the hardening of attitudes (certainly my own) toward the various initiatives that have sprung up over the years. I also think it's a good idea that any outreach - certainly on social media - is done from the inside out...

Yes, that makes sense. In terms of emerging experimental approaches, I'm quite happy with where the electrical-based stuff is going, a little less so with the pharmaceuticals, so it'll be interesting to see how things pan out.

Hi @Hazel. This is an interesting development. Thank you for the update. I wonder if you can expand a little more on the reason why you've decided to pursue avenue 3) Testing out experimental approaches to resolve tinnitus? Personally, I would have focused on point 1) Fundamental research to...

Thanks for the report! That's a very welcome and interesting development. If Emilie Cardon can push for some collaboration with Hamid Djalilian and Heidi Olze, we'd have the dream-team for that particular area of research.

"Classic" TMS is delivered in pulses from 1-10 Hz. This opens up the question of researchers wondering, "Could 5.375 Hz be the magic frequency?" And on, and on, and on... I think Lakhovsky was on the right track.