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Sorry for the late reply but yes I have been on 500 mg Depakine / Depakote (brand name Enteric). It was prescribed to fight my Meniere's disease and/or vestibular migraine attacks. Long story short, yes, it affects your mood. It is a mood stabilizer. I was more of a zombie when I took the 500...

If it wasn't for the white noise generators, I wouldn't have any relaxation at all. They do not help to lower the tinnitus, but give a more comfortable sound than the BEEEEEEP which is annoying. They are not a cure, but they help to keep the mind of the beep which in my book is a helpful tool...

Prednisone is also used in Meniere's treatment, in which it initially increases tinnitus. But hey, in order to combat the very fierce vertigo related illness you have to do something.

Be careful when tapering down Pregabaline. It gave me serious anxiety attacks which were sleeping for the past 7 years.

Do you have any side effects? Do you take it for vestibular migraines?

The UK government published official data on the vaccines (as you can see from the link) on side effects. Both Moderna and Pfizer are listed. Moderna COVID-19 Vaccine Analysis (PDF) Pfizer COVID-19 Vaccine Analysis (PDF)

But where do you get the low-dose Naltrexone?

My ENT tries to treat my Meniere's disease. First he tried Betahistine and diuretics but those didn't work so after three years I'm still very ill. After consulting with the university hospital that also reviewed my case he opted to try Kenacort injections that go through the eardrum via the...

Unfortunately I cannot afford to go back to Ghent and ask him about the drugs that are being developed. However, since Sven Vanneste is also in the research advisory board of Neuromod I'm hoping that they will bring Lenire to Belgium.

Well transparency is key, but look at other Tinnitus Centres. They have not been very open either.

Offtopic: Bob, I see that your T was triggered by Amitryptiline. My doc wants to try nortriptyline (the sister of ami). Do you discourage it?

That is professor Dirk de Ridder on the last picture. I hope @Hazel interviewed him or will do so later.

That is because it is no candy. Quite addictive and tapering off seems to be hard. At least that is what I have heard. I have it at home but not tried it yet.

Well IMO the hearing field is less dominant than the research field. But Jastreboff's model needs a big update. Simply saying that more stress is more tinnitus does not count anymore. Good luck @Hazel and best to your mom. There is a big interview with Dirk de Ridder in this weekend's Dutch...

She then probably will deny this and say because your focus is more on it or something. I tried every possible thing to counter such answers, to the point that they thought I was not cooperating enough to let the therapy succeed. It is louder but they say it isn't... They don't have your head...

Did the injections contain dexamethasone? Did it improve the aural fullness / stuffyness of your ear? Did it improve the dizzy spells?

They translate that into your perception of tinnitus is more intense. You experience it louder but it is not. And I became angry and said for sure it is louder. For someone as a therapist without tinnitus you cannot understand it.

Thanks The duration of tinnitus symptoms required for inclusion in the QUIET-1 study was set to >6 months and <18 months. Although somewhat arbitrary, these durations were chosen to exclude participants with relatively acute tinnitus that might spontaneously remit, and those with a...

The thing about this therapy is to be less anxious about fluctuating tinnitus, by doing exposure exercises. Part two of this treatment is focus. Learning to shift your focus is difficult. I'm now doing almost the exact same techniques for my chronic pain and yes it can help to relax a bit. But...

@Mr. Cartman How are you doing?

Don't know. Hearing aids amplify, or maybe if you disable the microphone and only enable the masking generator (white noise, ocean sound etc) it might help.

My hearing shop said the Lyric has one design defect and that is that it is placed along the first turn in your ear canal, just after the organ that generates earwax. That earwax blocks the battery. Hearing aid batteries are working on both battery and air, that's why you pull off the tab if...

Dr. Dirk De Ridder is very much into Deanxit + Rivotril. I visited him last month. Now he does consultations every 2 months at Brai3n in Ghent for tinnitus. I would ask him what his opinion is on the work of Dr. Tzounopoulos, the SF0034 compound of Retigabine.

Jan Ost described it as overtensioning of the muscles what he saw as I described it in the intake. But remember also a lot of the scan is directly thrown away as they compare the normal "in rest" results with the "overactivity" results. I think that the scan is far from accurate enough to show...

He is from time to time. 3-4 times a year he is able to see patients in Ghent (Belgium). I visited him and he did 2 things: -Requested my MRI images -Prescribed Deanxit and Rivotril The rest of the time he is flying around the world attending conferences, maybe doing brain surgery, who knows...

Well I went to Brai3n but only did the qEEG and consultation. About 300 EUR, plus the consultation for Dr. De Ridder, which was also a lot. That plus the travel expenses is already a month's salary in some countries. I heard that there are a lot of patients, about 230 patients in the last 6...

If you talk to my T physchologist she would blame you are somatizing your diseasse and you need to stop looking. But yeah we all know how strange it can be. Even on days when I have high T, I cannot control it with my neck and sometimes I can.

7 million is if you deduct the overhead and setup costs almost nothing.

Yes, try the short nod 3 x 10 times a day. It's only a few centimeters you have to tension. Or try massaging your face. There are also various neck training exercises but it all comes down to strengthening your upper back and shoulders so your neck does not get overloaded.

Afraid not. I spoke to Professor Dirk De Ridder who published a lot of papers on tinnitus. He says that (no matter what the origin of tinnitus is), 70 % of tinnitus patients have a somatic component, i.e. flex their jaw, press their face, flex their neck to make tinnitus louder or quieter. I...

It has now been delayed from 2019 to 2024 and still is recruiting?

So what does GABA do? Did you try nortriptyline? Is it the combination that does the thing or just one of the two?

Botox is very poorly understood. All doctors that I have visited for my chronic pain from anesthesiologists to gnathologists to jaw surgeons, they all knew about it but never have done it. Also the effects of botox are vastly downplayed. It is toxic. They all say well it dissapears within 3...

In my situation it is the opposite. Left ear tinnitus, right eye the most floaters. But I have had much more tinnitus in the past in the right ear. That's where this has all started.

I asked questions but no reply to the Tassignon research.

I strongly disagree. What about meniere's disease, ototoxity, hormone related tinnitus, head injury etc. Those are not noise induced. And not 10%.

Very interesting. The thing is that I have heard that 9.4T MRI is used for the imaging of Meniere. There is such a very new MRI installation in Maastricht, The Netherlands. I wonder if they put patiënts in. https://www.ncbi.nlm.nih.gov/pubmed/26048336 This study also mentions the gadolinium. I...

As for tinnitus I don't agree. It severely limits my tinnitus when I have a Meniere's attack.

Do you mean this?

Master Thesis Invasive neuromodulation as a possible treatment for tinnitus Background: Tinnitus is the perception of a meaningless sound which does not originate from an external sound source. It affects a large part of our population and can have a serious impact on people’s lives. Many...

A new PhD paper has been released for the treatment of tinnitus with Deep Brain Stimulation. "Exploring deep brain stimulation as a treatment for tinnitus":

What if hearing is lost due to an endolympathic hydrops (aka Meniere's), does the over presence of fluid in the inner ear also work with these new kinds of drugs?

If it lowers an hour after Betaserc intake it might also be a hydrops. Is there any nausea and or dizziness?

It's quite nerve wrecking that even my anesthesiologist didnt seem to know anything about these nerves. He didnt mention botox. He said go either lyrica or nortriptyline / amitriptyline. Why is there no consensus among these people?

Betaserc only seems to work in the higher doses and only if you have an hydrops. For BPPV it seems to do nothing.

Masters student Organizational Behavior here. Halted my thesis because Tinnitus + TMJ + Menieres is a beast. I did try though. Now looping for temporary work. Maybe I will finish it later. Hope my body heals a bit.

Shows proof that with a lot of money you can buy the necessary skills and knowledge. But nothing about that he created the solution himself. Don't mean to be skeptical but "seeying is believing" is a strong one in The Netherlands. We have been promised good things before. Don't get it when...

Which paper exactly?

Dr. Shore has even less publications than Dirk de Ridder / Paul vd Heyning. So why should she solve it? Don't mean to be skeptical but don't understand why we put so much faith into non hard evidence aka research papers.

C1 / C2 isn't necessarily atlas. If there is something stuck work gently on it. It's necessary that the muscles aren't tight. This can be done by training your upper back muscles also.

I never got an "official" diagnosis. I just signed up for special TMJ physiotherapy as I went to my dentist and then the ball came rolling. Later on I got "temporomandibular pain" as diagnosis, with absolutely no guarentee as if there was healing possible. TMJ is a very very unknown field, even...

After 2,5 months I'm scheduled to the anasthetics department at the end of this month as my gnathologist and jaw surgeon said that my treatment options are exhausted. Well I can say for the hardcore TMJ patients that my facial pain in the cheeks and side are now ok, but not the temporalis, which...

If it is still high after several weeks then try it. You might regret it if you don't do it within the time window.

100% cured not but one of my fellow HBOT patients which was in the same 10 person tank as me said his hearing improved a lot. And yes, I spoke to the other patients and some of them didn't notice a difference at all. Apparenlty it's no magical cure. Let's aside that I'm super happy that they try...

Remember that there is a difference in off label betahistine and Betaserc (from Mylan). My ENT said to absolutely avoid the standard Betahistine 16mg and only take Betaserc 24mg. My menieres alike attacks have diminished from 1-2 a week to 1 or 2 per half year and my hearing went from -60 to...

How do you notice that you feel better?

Do you notice any improvements / worsenings with nortriptyline? Or only help with sleep?

It does sound like amitriptyline is bad news for tinnitus.

I might have Meniere's, or just endolymphatic hydrops in my left ear. With taking of Betaserc 24mg for 3 times a day and the use of Co-Amiloride Hydrothianizide my left ear improved a lot in hearing. From -60dB to now -25 in some frequencies and -40 in some other. However my dizziness remains...

Yes the benzodiazepine method is a trick used before.