“Tinnitus Truths”

[Jazzer]

We are a strange community indeed.

Probably due to the adverse effects of our condition... suicidal ideation, PTSD, anger, and total desperation.

The community can be loving and supportive and full of venom, spitefulness, and hate.
My audiogram puts me in a minority here of those who are properly f@cked and here to stay.
Everyday is a challenge but I am getting better at this.

Thank you friends and fellow sufferers for being here, and the staff who work tirelessly for free.

Wishing everybody relief and a brighter day...

Dear Daniel
From being totally suicidal I have finally arrived at a place where I can live my life and cope quite well.
I wish I could tell you that my noise level has receded - but I don't think it has.
However my sounds no longer take centre stage.
Lots of things take my concentration now:
reading, writing, conversation, interaction, pussycats etc.... I have a life....though not the one I had before.
As you say:
"Life is a challenge, but I am getting better at this."
You're well on the way now my friend.
Dave x
Jazzer

 

[Jazzer]

We are a strange community indeed.

Probably due to the adverse effects of our condition... suicidal ideation, PTSD, anger, and total desperation.

The community can be loving and supportive and full of venom, spitefulness, and hate.
My audiogram puts me in a minority here of those who are properly f@cked and here to stay.
Everyday is a challenge but I am getting better at this.

Thank you friends and fellow sufferers for being here, and the staff who work tirelessly for free.

Wishing everybody relief and a brighter day...

I should say that I have rarely experienced venom, spitefulness and hatred on here.

Once or twice I have felt ostracised for refusing to agree with another's point of view, but nothing any stronger than a cold-shoulder.
All part of life's rich tapestry, as they say.

 

[Jazzer]

Glad you're here friend.
Hope you're finding some good days this summer.
Daniel xx

You too buddy.
My life is a pretty settled liveable routine.
I do not waste any time considering gizmos and gadgets, or hanging on a cliff edge awaiting a possible rescue attempt.
Life is now.
We have tinnitus.
We have to learn how to accept and adapt to it if we possibly can.
'Lenire' this - and 'Lenire' that......
It seems to have become the only thing on TT that anybody can talk about or even think about.
Not me mate.
Survival means developing methods to help us cope.
Conceptualising the problem,
chilling out with meditation...etc.....x
Perhaps I'm just weird ?????

 

[Daniel Lion]

I should say that I have rarely experienced venom, spitefulness and hatred on here.

Once or twice I have felt ostracised for refusing to agree with another's point of view, but nothing any stronger than a cold-shoulder.
All part of life's rich tapestry, as they say.

I agree.

I am prone to melodrama and over sensitivity.
Everybody's cool, some disagreements at times.
You're not weird, we have to breathe deep and survive.
I'll see you around brother.
Take care

 

[OnceUponaTime]

Does anybody ever feel like this......?

Everyday Jaz....everyday

Perhaps I'm just weird ?????

Bahahah...Yes you are Jaz!! Good weird!​

 

[OnceUponaTime]

 

[Jazzer]

 

[Jazzer]

Two good things about Meditation:

- it works

- it's free

 

[Jazzer]

 

[Daniel Lion]

Well it's been a fuck of a long time since I have seen my dear friend Dave aka Jazzer.

Pardon my French.

I just wanted to say thank you to Jazzer, Once, Greg, JA, Star, and so many others here, the staff.
Especially Jazzer. A huge hug for Jazzer whose words of wisdom and love really helped me. After two years now, my tinnitus has not changed a bit, it remains its relentless self... but I have changed. I've developed coping techniques and have gone from wanting to die to a much better place now... a happy place. Despite the affliction, I am gaining a lot that I lost, have a joy for life, and am simply feeling so much better.

Thank you Jazzer.

I hope I can do what you did for me to other souls here. Give them love and hope and a much needed laugh from time to time.

Miss you buddy. Hope you are more than ok and doing well.
Daniel

 

[Tex]

Yeah Jazzer, I too hope you are doing well. I'm posting just to move this to the top and ask if you, and anyone else, to start posting some more of the great pictures again.

 

[Jazzer]

Hi @Tex
Hi @Daniel Lion
Hi @Jcb
Hi @Greg Sacramento
Hi @Elfin
and Hi to any other good friends and buddies.

I've been away from here for quite a number of weeks now, but just wanted to keep some contacts going.

You have all been supportive of me many times, and I truly appreciate it fellas.
I spent last week with my lovely misus up in Amersfoort in Holland.
Lousy weather but had a nice time at this holiday village.

Very Best Wishes Guys
Dave x
Jazzer

 

[Jazzer]

 

[Jazzer]

 

[Jazzer]

 

[Daniel Lion]

Hi folks, no pictures, I am still a spazz, but wanted to share something real quick.

This morning I was driving the kids to school, and Gabriel who is 6, and really an angel, said "Dad are your ears gonna heal, get better"

I said, "probably not son, but we can still play badminton and have fun. I just can't take you to the movies and do things like that".

My eldest, Noah, who is 10, said , "that's ok, mom can take us to the movies".

I dropped them off at school, told them I loved them and then took care of some bureaucratic tasks I had to do.

I cried for an hour straight. I cried for the love I have for little Gabe and my kids. I cried because I needed to cry. The tears just kept coming and coming and it was fine.

I talked to my wife about suffering.

I accept it, it hurts, it's not easy.
I will fight and do everything in my power to have a better life.

So don't worry folks... this is an affirmation of love and gratitude despite the pain.

Just a little tidbit for my friends here.......adios......see you around the boards as they say.

 

[Jazzer]

Hi folks, no pictures, I am still a spazz, but wanted to share something real quick.

This morning I was driving the kids to school, and Gabriel who is 6, and really an angel, said "Dad are your ears gonna heal, get better"

I said, "probably not son, but we can still play badminton and have fun. I just can't take you to the movies and do things like that".

My eldest, Noah, who is 10, said , "that's ok, mom can take us to the movies".

I dropped them off at school, told them I loved them and then took care of some bureaucratic tasks I had to do.

I cried for an hour straight. I cried for the love I have for little Gabe and my kids. I cried because I needed to cry. The tears just kept coming and coming and it was fine.

I talked to my wife about suffering.

I accept it, it hurts, it's not easy.
I will fight and do everything in my power to have a better life.

So don't worry folks... this is an affirmation of love and gratitude despite the pain.

Just a little tidbit for my friends here.......adios......see you around the boards as they say.

Dear dear Daniel
I am so so sorry my lovely friend.
You write so beautifully - your love for your wife and your wonderful children is driving you forward despite the anguish and the pain.

You are a true hero, a great father, and a wonderful man.

I so wish I could do more for you than just to appreciate your incredible fortitude, and your wonderfully expressed humanity.

I am not on here so much these days, but I do look in occasionally.
I feel very sorry that I was not on here to respond to you sooner.

I love you so much buddy, and I will never forget the person that you are,

Dave xx
Jazzer

 

[Jazzer]

 

[Daniel Lion]

View attachment 32592

Love you my friend...

You take care... and enjoy.
I will do the same... that's a promise...

 

[Jazzer]

Love you my friend...

You take care... and enjoy.
I will do the same... that's a promise...

'I might have to keep you to it !!'

 

[OnceUponaTime]

Hi @Jazzer !

Glad to know you are still around and ok.

{{{Hug}}}

 

[Jazzer]

Hi @Jazzer !

Glad to know you are still around and ok.

{{{Hug}}}
View attachment 32616

Hi @OnceUponaTime
Yes thank you - I'm okay babe,
hope you are too.
I took a few weeks away, just to break the cycle,
but I must admit I missed all you guys.
I won't be disappearing,
Thanks for missing me OUT,
Dave x
Jazzer

 

[Jazzer]

 

[Jazzer]

 

[Jazzer]

 

[Jazzer]

Even though it is loud and constant, the way we think about it may affect our ability to cope.

My concept:

 

[Jazzer]

 

[Jazzer]

I turned vegetarian just over a month ago.
I am much happier this way.

 

[Jazzer]

'How we feel at times......'

 

[Mister Muso]

You too buddy.
My life is a pretty settled liveable routine.
I do not waste any time considering gizmos and gadgets, or hanging on a cliff edge awaiting a possible rescue attempt.
Life is now.
We have tinnitus.
We have to learn how to accept and adapt to it if we possibly can.
'Lenire' this - and 'Lenire' that......
It seems to have become the only thing on TT that anybody can talk about or even think about.
Not me mate.
Survival means developing methods to help us cope.
Conceptualising the problem,
chilling out with meditation...etc.....x
Perhaps I'm just weird ?????

Agree about free treatment being the best kind. I'm not spending £1000s on a tinnitus cure that may or may not work for me.

I've just finished spending £10000s on two rounds of dental implants. If I did the same on tinnitus treatments I'd have to break into my pension funds!

They say life is 10% about what happens to you, and 90% about how you react to it.

Your attitude @Jazzer continues to be an inspiration to many of us in this precious community.