Thank you so much for your information, I appreciate it! Turns out I have TMJ/D, jaw misalignment and bruxism. I have severe TMJ, I have flat condyles. I am getting a TMJ specialist. Do you have an advice on what's best to do or warnings of what not to do in case it'll worsen tinnitus? Also, I do have neck issues, the doctor said it's all connected to the TMJ/D issues.
Best Guess on When Tinnitus Will Be Cured?
- Thread starter Eric N
- Start date
MemberIn my opinion, there is no "THE" tinnitus, but tinnitus is rather a description for diseases that are accompanied by a ringing in the ears.
One could also ask when headaches would finally be cured.
I believe that some tinnitus diseases can be cured in the foreseeable future and others not. Much like some types of headache can be cured and others cannot.
The idea that tinnitus is a single disease - and not a symptom of different diseases - will not advance research into this miserable condition.
One could also ask when headaches would finally be cured.
I believe that some tinnitus diseases can be cured in the foreseeable future and others not. Much like some types of headache can be cured and others cannot.
The idea that tinnitus is a single disease - and not a symptom of different diseases - will not advance research into this miserable condition.
- Oct 14, 2016
- 1,270
- Tinnitus Since
- All my life, but got worse 2016
- Cause of Tinnitus
- Noise induced / Concert
This was me in India once, i had to literally share a hospital bed with a man in a room where the ceiling was caving in and giant balls of dust were suspended from the lighting fixture. I asked them why there were bars in the windows, and they told me that too many people tried to attempt suicide...and I was like: "bruh...have you seen the state of your hospital recently??!" I had stitches on the right side of my head and i had to share a bed with some dude who was showing signs of the flu...really nasty. Whatever, India still a 10/10 no regrets...will do it again.
Fabrikat
Member
- May 1, 2017
- 416
- Tinnitus Since
- 1973
- Cause of Tinnitus
- Otosclerosis then volume then viral infection
If Frequency, Audion, Decibel etc. manage to sprout one single, wobbly hair cell that works and that ups the hearing in a certain frequency and conversely lowers the ringing at that same frequency, lets promise to come back to this thread to soak up all the new found positivity and good vibes that will pour forth from the conga line of TT members.
That presumably could happen in about a year from now.
Alternatively, it they crash and burn, the naysayers should be congratulated for their wisdom and foresight and friends and family should hide all ropes, sharp objects, weapons, sheets and alert authorities to block access to bridges and tall buildings to all TT members.
Just playing with scenarios without answering the OP's question.
That presumably could happen in about a year from now.
Alternatively, it they crash and burn, the naysayers should be congratulated for their wisdom and foresight and friends and family should hide all ropes, sharp objects, weapons, sheets and alert authorities to block access to bridges and tall buildings to all TT members.
Just playing with scenarios without answering the OP's question.
- Apr 15, 2017
- 1,419
- Tinnitus Since
- 2008
- Cause of Tinnitus
- Noise
Deathtotinni
Member
- Dec 21, 2017
- 157
- Tinnitus Since
- 9/10/17
- Cause of Tinnitus
- Qtip and maybe a sound..who knows
I think we already have a cure with Frequency Therapeutics, just have to wait 3 years for it to come out. MuteButton is also coming out in the coming months, which isn't a hearing loss cure but device to train the brain to stop making the sound. I think MuteButton is a great start.
- Feb 17, 2017
- 10,400
- Tinnitus Since
- February, 2017
- Cause of Tinnitus
- Acoustic Trauma
Those people did something (e.g., invested into this company, worked at the company) to earn that right. If you haven't done any of those things, why do you think you should have access to that information?
That's a rather casual endorsement... Personally I will not come even close to the Frequency Therapeutics solution until late in the adoption cycle because it requires that you render yourself completely deaf first before they attempt to regrow follicles. Even if it works, it's a terrifying and disruptive thing to have to endure. I would be glad to tolerate my current level of hearing loss and some residual T with Neuromod rather than having to go through that. I think all but the worst cases will probably opt for the Neuromod approach for the same reason. If FT comes up with a way to regrow the damaged hairs without having to destroy the good ones, then we're talking.
Deathtotinni
Member
- Dec 21, 2017
- 157
- Tinnitus Since
- 9/10/17
- Cause of Tinnitus
- Qtip and maybe a sound..who knows
Dude what are you talking about? They aren't destroying your remaining hair cells. The drug doesn't kill your remaining hearing. I think you're thinking of another drug.
I went looking for the phrase that freaked me out and I think this is it:
https://www.businesswire.com/news/h...Revolutionary-Small-molecule-Approach-Restore
The generation of new hair cells was achieved even in cochlear tissue that had been depleted of hair cells by exposure to an ototoxic antibiotic.
I think I read that as:
The generation of new hair cells was achieved in cochlear tissue after being depleted of hair cells by exposure to an ototoxic antibiotic.
I certainly hope that's the case because I could understand why from a biological standpoint they may feel the need to first eliminate damaged hair-cells and cause the layer underneath to sprout new ones, sort of like getting rid of a baby tooth before a tooth underneath can sprout.I think I read that as:
The generation of new hair cells was achieved in cochlear tissue after being depleted of hair cells by exposure to an ototoxic antibiotic.
Deathtotinni
Member
- Dec 21, 2017
- 157
- Tinnitus Since
- 9/10/17
- Cause of Tinnitus
- Qtip and maybe a sound..who knows
No man that's not what they're doing at all. They used the drug to deafen the animal subjects. They had to have hearing loss in order to see if they had improvement. They did not do this to humans... we don't even have the results from the last clinical trial. Trust me when I say they will not do this to you. It's not ethical and would get them sued, if it's not illegal in the first place.
I screened for the study and I can tell you with 1000% confidence this not even remotely true.
@JohnAdams is a smart guy and can help shed some light on this for those of you who may be are confused.
Not very optimistic this post: /
I think. I hope we are getting closer to the goal. The only thing that can put sticks in the wheels of research is money. And it's sad .. It's all about money! Heal people once for ever. It does not pay as much as a lifetime treatment. Not to mention the money it brings to doctors who offer his treatments.
Treat hearing loss for life. The ENTs are not going to be happy .. And are not going to let themselves go.
I try at least to keep hope to see something to diminish their intensity. My tinnitus has reached a threshold where it becomes impossible to accustomed
(sry for english :/)
I think. I hope we are getting closer to the goal. The only thing that can put sticks in the wheels of research is money. And it's sad .. It's all about money! Heal people once for ever. It does not pay as much as a lifetime treatment. Not to mention the money it brings to doctors who offer his treatments.
Treat hearing loss for life. The ENTs are not going to be happy .. And are not going to let themselves go.
I try at least to keep hope to see something to diminish their intensity. My tinnitus has reached a threshold where it becomes impossible to accustomed
(sry for english :/)
Fabrikat
Member
- May 1, 2017
- 416
- Tinnitus Since
- 1973
- Cause of Tinnitus
- Otosclerosis then volume then viral infection
There's no ongoing treatment for tinnitus or hearing loss anyway, so things won't change for ENT's as far as business goes.
And a proper treatment will bring in all those people who sense a little tinnitus or hearing loss, that have never been to see an ENT before.
Repair of mechanical issues to do with the ear, will go on as always. No pill or shot will fix those.
And finally, there's still the N and the T remaining in ENT. Plenty of money to be made out of those two.
I wouldn't expect any resistance from the medical fraternity to innovations in hearing treatment.
- Apr 15, 2017
- 1,419
- Tinnitus Since
- 2008
- Cause of Tinnitus
- Noise
- Feb 17, 2017
- 10,400
- Tinnitus Since
- February, 2017
- Cause of Tinnitus
- Acoustic Trauma
Are you saying that you would prefer that people serve your needs and work for your benefit without you having to provide any compensation to them?
Would you be interested in coming by my house and cleaning my toilet for free?
Ken219
Member
- Feb 17, 2017
- 10,400
- Tinnitus Since
- February, 2017
- Cause of Tinnitus
- Acoustic Trauma
It looks like you have missed my point. He thinks he is entitled to the equivalent of people cleaning his toilet for free. He thinks that it is wrong of them to be interested in how much they will get paid if they do it for him.
- Oct 14, 2016
- 1,270
- Tinnitus Since
- All my life, but got worse 2016
- Cause of Tinnitus
- Noise induced / Concert
- Apr 15, 2017
- 1,419
- Tinnitus Since
- 2008
- Cause of Tinnitus
- Noise
What did you mean when the man you shared a room in was hanging from his balls suspended from the lighting fixture? CreasedSo funny when logic meets emotional outburst
- Jan 25, 2013
- 3,596
- Tinnitus Since
- 2008
- Cause of Tinnitus
- TMJ disorder, airplane barotrauma, noise exposure.
So funny when logic meets emotional outburst
She enjoys eating human (tastes just like pork), so that incident was normal human male behavior to her.
Jk
Last edited:
- Apr 15, 2017
- 1,419
- Tinnitus Since
- 2008
- Cause of Tinnitus
- Noise
I think he may be talking about the new drug from Sage Therapeutics, a new antidepressant drug. There's no indication this will treat tinnitus though so not sure why he would mention it here.
Where did I write that he should not be paid?
I'm just saying it would not pay enough. Freqeuncy talks about a potential market of 20 billion. 20 billion is nothing compared to other more lucrative and proven market.
- Feb 17, 2017
- 10,400
- Tinnitus Since
- February, 2017
- Cause of Tinnitus
- Acoustic Trauma
When you wrote "it's all about the money", you implied that it is not ok for the service provider to worry about their own benefit (you know - Money), that they should be there for you because that is the moral thing to do.
I should believe in the cure because:
- Lenire helped me once in a while
- Supplements helped me a second time
But now for 2 weeks I feel bad again and for the first time I think that during these 3 and a half years I was only lying to myself. Until now, I assumed that I would be cured, and by then I should try to live as much as possible, hmm, humanely.
It's hard for me to believe anything anymore. I even have the impression that most of the patients acknowledged that it was a life sentence very quickly, and I defended myself against it. On the other hand, for example, in 2000, there were probably no incidental stories of recovery? Here, FX-322, even Lenire... @linearb and Dr. Shore...
- Lenire helped me once in a while
- Supplements helped me a second time
But now for 2 weeks I feel bad again and for the first time I think that during these 3 and a half years I was only lying to myself. Until now, I assumed that I would be cured, and by then I should try to live as much as possible, hmm, humanely.
It's hard for me to believe anything anymore. I even have the impression that most of the patients acknowledged that it was a life sentence very quickly, and I defended myself against it. On the other hand, for example, in 2000, there were probably no incidental stories of recovery? Here, FX-322, even Lenire... @linearb and Dr. Shore...
I voted 2019; because what none of you realise, is that the inventor of the cure for tinnitus died in a car crash in Boston 2 years ago.
The only way to find a cure now, is to take the time-machine that gets built in 2074 and use it to prevent the inventor of the cure for tinnitus from getting into his car on the day of his crash in 2019.
The only way to find a cure now, is to take the time-machine that gets built in 2074 and use it to prevent the inventor of the cure for tinnitus from getting into his car on the day of his crash in 2019.
- Aug 21, 2014
- 5,049
- Tinnitus Since
- 1999
- Cause of Tinnitus
- karma
Bold statement; I'm inclined to agree because I don't actually know if a cure will be possible but assuming we don't all die of desertification or other climate shit or in global conflict, in my lifetime (I'm 40), I expect the following:
* bimodal devices that work better then Lenire which reduce suffering dramatically for a lot of people. (I'm biased here, I used the UMich tech for a month, "the shit works")
* hearing restoration of cochlear hair cells using genetic therapy
* hearing restoration of ribbon fibers using genetic therapy
While none of these things may be a cure, I don't think it's dumb to be optimistic about more effective treatments because the tech already exists, has already been demonstrated in clinical trials, and is marching forward despite COVID-19 probably slowing most research by 2-3 years.
I don't actually need a cure because I don't expect to live forever so whatever provides me with the richest and most satisfying life in the grains of sand I still have in the glass, is good with me. There's going to be hearing loss treatments in 20-30 years that are sci-fi now, just as bimodal reprogramming of the DCN in humans was sci-fi 20 years ago and is now a real thing that can be done in humans.
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