- Jun 21, 2017
- 16
- Tinnitus Since
- 06/2017
- Cause of Tinnitus
- Accidental self-afflicted blow
This is for all you who have T and believe it won't pass. I currently am not sure if I have T or not, quite new to all of this - but I had something else that is right up there with T when it comes to scariness.
One night, I was sitting at the computer, doing nothing out of the ordinary. I had a perfect health assessment, no worries - at all.
Then, all of a sudden, I felt my heart rate rocket up. I panicked, went to the bathroon and gave myself a splash of water to calm myself down, but it didn't work.
I measured the pulse at 130 beats per minute. It took a lot of stupidity on my part, but I tried to lay down and have it pass instead of running to the emergency room.
I laid down, and I felt my neck pulsate, heard the blood rushing in my ears, it wouldn't calm down. So I went to the emergency room and there they found nothing wrong.
They handed me some beta blockers and told me to sleep it off at home. I then pointed out that I am not going to do that, until I have a clearer picture of what is going on.
After some discussion, they told me that if it makes me feel better, they will send me to a hospital for more extensive tests. I agreed and so I went there directly.
At the hospital, they tested me extensively for the entire night and the whole next day. A doc came to the bed where I was hooked up and was like: "we found nothing."
So I did. The next few days, the pulse came down to like 100 beats per minute when I rested. It was an improvement, but it was still really really really scary to have it go quickly like bombombombom when you are doing nothing at all.
The moment I stood up to walk, it was 130 bpm. It was hopeless. I could not sleep because of it. I tried, but it just went on and on as if I was out and running in the field - and not laying in bed.
When I eventually managed to fall asleep, I had bad dreams and would regularly wake up in the middle of the night in a cold sweat, feeling weak, exhausted. I rarely went to school because of it.
My parents took me to a number of cardiologists, and other specialists, but none of them could figure it out. It was the most hopeless feeling in my life, I felt like there was no future.
Cut friendships, no more activity for me. Spent all my time researching on Google, and there I ended up diagnosing myself with IST, which stands for: Inapprooriate Sinus Tachycardia.
Docs I visited mostly didn't hear of it, and it is only by exclusion of symptoms that a diagnosis is made. One cardiologist told me he agrees it is IST and suggested it may be related to another thing called POTS - those two as one. Even worse.
It comes without warning in any person and lasts for a lifetime. No cure, except heart sugery with an extremely low percent of success.
Most people with IST say that drugs don't help them a lot, and the people who had the surgery often claim that IST returned relatively quickly, no actual cure, or cause, is known.
This terrified me. Sone times I felt like throwing up due to all the stress. But you would not believe it. After a year of this horrendeous torture it actually began to normalize.
I am now free from this illness. I still can not believe it. It was the worst part of my life, period. The night it began, I could never have imagined it, much less me having it.
Now I struggle with determining if I have T or if I am tricking myself. In any case, I was hopeless, and it passed. During my illness, I was constantly active on IST support groups and it was a small, small community.
One night, I was sitting at the computer, doing nothing out of the ordinary. I had a perfect health assessment, no worries - at all.
Then, all of a sudden, I felt my heart rate rocket up. I panicked, went to the bathroon and gave myself a splash of water to calm myself down, but it didn't work.
I measured the pulse at 130 beats per minute. It took a lot of stupidity on my part, but I tried to lay down and have it pass instead of running to the emergency room.
I laid down, and I felt my neck pulsate, heard the blood rushing in my ears, it wouldn't calm down. So I went to the emergency room and there they found nothing wrong.
They handed me some beta blockers and told me to sleep it off at home. I then pointed out that I am not going to do that, until I have a clearer picture of what is going on.
After some discussion, they told me that if it makes me feel better, they will send me to a hospital for more extensive tests. I agreed and so I went there directly.
At the hospital, they tested me extensively for the entire night and the whole next day. A doc came to the bed where I was hooked up and was like: "we found nothing."
So I did. The next few days, the pulse came down to like 100 beats per minute when I rested. It was an improvement, but it was still really really really scary to have it go quickly like bombombombom when you are doing nothing at all.
The moment I stood up to walk, it was 130 bpm. It was hopeless. I could not sleep because of it. I tried, but it just went on and on as if I was out and running in the field - and not laying in bed.
When I eventually managed to fall asleep, I had bad dreams and would regularly wake up in the middle of the night in a cold sweat, feeling weak, exhausted. I rarely went to school because of it.
My parents took me to a number of cardiologists, and other specialists, but none of them could figure it out. It was the most hopeless feeling in my life, I felt like there was no future.
Cut friendships, no more activity for me. Spent all my time researching on Google, and there I ended up diagnosing myself with IST, which stands for: Inapprooriate Sinus Tachycardia.
Docs I visited mostly didn't hear of it, and it is only by exclusion of symptoms that a diagnosis is made. One cardiologist told me he agrees it is IST and suggested it may be related to another thing called POTS - those two as one. Even worse.
It comes without warning in any person and lasts for a lifetime. No cure, except heart sugery with an extremely low percent of success.
Most people with IST say that drugs don't help them a lot, and the people who had the surgery often claim that IST returned relatively quickly, no actual cure, or cause, is known.
This terrified me. Sone times I felt like throwing up due to all the stress. But you would not believe it. After a year of this horrendeous torture it actually began to normalize.
I am now free from this illness. I still can not believe it. It was the worst part of my life, period. The night it began, I could never have imagined it, much less me having it.
Now I struggle with determining if I have T or if I am tricking myself. In any case, I was hopeless, and it passed. During my illness, I was constantly active on IST support groups and it was a small, small community.
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