Dr. Nagler, 11 dB SL Tinnitus and Niagara Falls

[Dr. Nagler]

@dboy said:
the degree of your hearing loss means that even objectively very loud sounds do not mask your tinnitus

.........

Just because my tinnitus can readily be heard over the roar of Niagara Falls, that doesn't mean my tinnitus is louder than Niagara Falls. All it means is that it cannot be masked by Niagara Falls. Maskability and loudness are two different things.

 

[Kathi]

I think we should all be friends .

Absolutely--or listen to that wonderful music you posted on the favorite song thread. It will chill us all out.

 

[Karen]

I agree, Razah! We're all here to support one another, and that's what we should strive to do.

@Street Spirit, we're here for you, and certainly understand how you're feeling. Tinnitus can really change our lives, and make us feel as if life is passing us by.

Take care, and I hope you begin to feel better soon.

 

[Dr. Nagler]

I think we should all be friends .

I think we should all help one another succeed in our battles against tinnitus, our common enemy. Some of us have the soft touch. Some of us are more the "in your face" types. On this board nobody is forcing anybody to read anything. It's no secret that my approach here is more "in your face." I believe in attacking the problem head on. Folks know that ahead of time. If that sort of direct approach doesn't suit an individual, then I ask that individual to please not read my posts.

 

[Dr. Nagler]

Yes I have tried for 2 years to help myself!

I know that. But it doesn't seem to have gotten you anywhere. So if you can set all that bitterness and resentment aside for just a few moments, why don't you tell all of us exactly what your problem is and exactly what you have been trying for the past two years. There is a lot of knowledge and experience on this board. So take advantage of it, for goodness' sakes. It's yours for the asking!

 

[dboy]

@dboy said:
the degree of your hearing loss means that even objectively very loud sounds do not mask your tinnitus
.........
Just because my tinnitus can readily be heard over the roar of Niagara Falls, that doesn't mean my tinnitus is louder than Niagara Falls. All it means is that it cannot be masked by Niagara Falls. Maskability and loudness are two different things.

I cannot perceive any relevance in what you say here (a factual statement not intended to be inflammatory).

I think we should all be friends .

I agree with this - in spirit if not always in temperament/ability. Thanks for injecting a little sanity @RaZaH. I'm gonna try to back off this thread now.

 

[jimH]

@Karen
Let's everyone remember that we aren't working against each other here, we are working for each other, which is something that Karen and many other members have proven time and time again.

I like and agree with what @Markku wrote yesterday. That is the way it should be here....

 

[Kathi]

I think we should all help one another succeed in our battles against tinnitus, our common enemy. Some of us have the soft touch. Some of us are more the "in your face" types. On this board nobody is forcing anybody to read anything. It's no secret that my approach here is more "in your face." I believe in attacking the problem head on. Folks know that ahead of time. If that sort of direct approach doesn't suit an individual, then I ask that individual to please not read my posts.

Your style worked for me. I didn't need coddling--I needed help and you provided that help. It is amazing to me that a doctor would take so much time to help me along on a message board. I was twice blessed because my primary care physician is also a compassionate, wonderful doc who educated himself about tinnitus.

 

[Dr. Nagler]

@dboy posted:
"the degree of your hearing loss means that even objectively very loud sounds do not mask your tinnitus"

I responded:
"Just because my tinnitus can readily be heard over the roar of Niagara Falls, that doesn't mean my tinnitus is louder than Niagara Falls. All it means is that it cannot be masked by Niagara Falls. Maskability and loudness are two different things."

@dboy responded:
"I cannot perceive any relevance in what you say here (a factual statement not intended to be inflammatory)."

...........

My mistake. I just thought that since the topic of this thread is Dr. Nagler (me), 11dB SL (which is a number that by definition takes into account hearing loss), and Niagara Falls ... that when you write "the degree of your hearing loss means that even objectively very loud sounds do not mask your tinnitus," a statement that begins to explore the relationship among tinnitus, hearing loss, loud sounds, and masking might be relevant.

 

[dan]

@Dr. Nagler I am just curious, how long did it take TRT to make you better?
When we spoke on the phone, you mentioned that as soon as you put the white noise generators
on, you felt immense relief.....I am wondering if that is a major sign that this therapy will be effective.

 

[Danny Boy]

@Dr. Nagler I am just curious, how long did it take TRT to make you better?
When we spoke on the phone, you mentioned that as soon as you put the white noise generators
on, you felt immense relief.....I am wondering if that is a major sign that this therapy will be effective.

White noise generators don't work for reactive tinnitus, as it reacts with the white noise and could spike tinnitus. I mean, how do you treat reactive tinnitus, outside of drugs?

 

[Street Spirit]

White noise generators don't work for reactive tinnitus, as it reacts with the white noise and could spike tinnitus. I mean, how do you treat reactive tinnitus, outside of drugs?

Danny there is no such thing as "reactive" tinnitus.

Therefore nothing to treat.

 

[Danny Boy]

Danny there is no such thing as "reactive" tinnitus.

Therefore nothing to treat.

Well, there is, as I've had it and loads of people mention the same symptoms.

 

[Telis]

Danny there is no such thing as "reactive" tinnitus.

Therefore nothing to treat.

Really? My T seems to run way way up with white noise, a fan, or even the TV.

 

[Street Spirit]

Well, there is, as I've had it and loads of people mention the same symptoms.

Oh do tell..because it simply does not exist in literature.

 

[Street Spirit]

Really? My T seems to run way way up with white noise, a fan, or even the TV.

Yea..hmmm. Telis..mine too..interesting isn't it?!

but still, no sorry. . no such thing.

 

[Danny Boy]

Oh do tell..because it simply does not exist in literature.

Then it needs updating. Reactive tinnitus does exist.

 

[Street Spirit]

Then it needs updating. Reactive tinnitus does exist.

Indeed..

 

[Dr. Nagler]

@Dr. Nagler I am just curious, how long did it take TRT to make you better?When we spoke on the phone, you mentioned that as soon as you put the white noise generators
on, you felt immense relief.....I am wondering if that is a major sign that this therapy will be effective.

Thank you for your very good question, dan. For me, TRT took 14 months to "make me better." I experienced virtually no improvement at all for the first 12-13 months, and then things sort of took off like a rocket. The time needed and pattern of improvement varies from patient to patient, but that's how it was for me. To the best I can recall, I did not experience "immense relief" from the devices, although I did not find them bothersome. Whether or not the devices provide any degree of immediate relief is irrelevant to the ultimate success of TRT.

 

[Dr. Nagler]

White noise generators don't work for reactive tinnitus, as it reacts with the white noise and could spike tinnitus.

TRT works just fine for "reactive tinnitus." But it does help to have a clinician who knows how to tailor the treatment protocol to the needs of such patients.

 

[Danny Boy]

TRT works just fine for "reactive tinnitus." But it does help to have a clinician who knows how to tailor the treatment protocol to the needs of such patients.

Hm....really? How do they manage that?

 

[Dr. Nagler]

Hm....really? How do they manage that?

Carefully, with attention to detail and to the particular pattern of reactivity. TRT is not "one size fits all" - although that is how the naysayers often portray it on this board.

 

[Danny Boy]

Carefully, with attention to detail and to the particular pattern of reactivity. TRT is not "one size fits all" - although that is how the naysayers often portray it on this board.

Very vague. Ah, well...I stopped caring really.

 

[Dr. Nagler]

Very vague. Ah, well...I stopped caring really.

I have never stopped caring. That's the only reason I am here.

 

[Danny Boy]

I have never stopped caring. That's the only reason I am here.

Well, it's all about waiting for Autifony. How terribly boring.

 

[linearb]

Well, it's all about waiting for Autifony. How terribly boring.

speak for yourself. If it works half as well as people hope, I'll consider taking it after it's been on the market for a period of years...

Being an early adopter of new classes of drugs doesn't always end well.

 

[Danny Boy]

speak for yourself. If it works half as well as people hope, I'll consider taking it after it's been on the market for a period of years...

Being an early adopter of new classes of drugs doesn't always end well.

Surprised Trobalt hasn't been withdrawn. Anyway, if it's a safe version of trobalt or better. We'll be fine.

 

[Dr. Nagler]

Well, it's all about waiting for Autifony. How terribly boring.

So you're all about waiting. I'm all about doing. Different philosophies.

 

[Danny Boy]

So you're all about waiting. I'm all about doing. Different philosophies.

Well, I'm all about the research. I just want to see what Autifony's drug can do. I know trobalt works, so if Autifony's drug is a safe version of trobalt, then we're all cool.

 

[MattK]

Well, I'm all about the research. I just want to see what Autifony's drug can do. I know trobalt works, so if Autifony's drug is a safe version of trobalt, then we're all cool.

Are you still cured? No T or H even without drugs?